Abstract
Due to limited efforts being made in dementia home care and a lack of well-trained family caregivers, families living with dementia often experience a loss of quality of life at home. To address this, there is a need for stakeholders from different fields to collaboratively develop social support, particularly emotional support. Design is increasingly being recognized as a way to explore and improve current social issues. Building on insights from participatory design for social innovation, and using an action research approach, this study combines design-directed and design-invited approaches to engage cross-disciplinary stakeholders to explore and improve dementia home care. This research engages with the observation and feedback of key stakeholders regarding their living environment to focus on the quality of life of people with dementia. It guides stakeholders in the development of two innovative services Home-based non-pharmacological Interventions for Dementia and Respite tourism for dementia families. The major findings are that due to the complexity of social issues, design needs to use multiple engagement methods and tools during the exploration and innovation phases; designers need to act as directors, facilitators, and observers during the design process; and the roles of stakeholders also change and include discussers, followers, and leaders. Through these changes, the stakeholders are supported to bring their expertise into new practices to improve the quality life of persons with dementia.
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Wu, CS., Yang, CF., Lu, Y. (2020). Using Design to Engage Stakeholders to Explore the Quality of Life of Families Living with Dementia. In: Brankaert, R., Kenning, G. (eds) HCI and Design in the Context of Dementia. Human–Computer Interaction Series. Springer, Cham. https://doi.org/10.1007/978-3-030-32835-1_20
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DOI: https://doi.org/10.1007/978-3-030-32835-1_20
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