Skip to main content

Advertisement

SpringerLink
Log in

Engaging patients while addressing their privacy concerns: the experience of Project HealthDesign

  • Original Article
  • Published:
Personal and Ubiquitous Computing Aims and scope Submit manuscript

Abstract

Some patients and clinicians are using digital technologies to collect and share relevant health information with one another, but patient privacy concerns may serve as an obstacle to widespread adoption of such digital data-sharing models. This essay discusses the experience of Project HealthDesign research teams, all of which used technology to facilitate communication of health information between patients and clinical care teams, in successfully navigating patient privacy concerns. Their experience could be instructive to clinicians seeking to adopt digital models of patient engagement.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Log in via an institution

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Institutional subscriptions

Similar content being viewed by others

References

  1. U.S. Policy Research, Inc. (2010) Managing personal health information: an action agenda. Publication No. 10-0048-EF

  2. Pub. L. No. 104-191, 110 Stat. 1936 (1996)

  3. The Privacy Rule is codified at 45 C.F.R. §§ 160 and 164 Subparts A and E). The Security Rule is codified at 45 C.F.R. §§ 160 and 164 Subparts A and C. Summaries of the Privacy and Security Rules are available at http://www.hhs.gov/ocr/privacy/index.html

  4. Section 13408 of The Health Information Technology for Economic and Clinical Health Act (HITECH) Act, Pub. L. No. 111-5, tit. XIII, Div. B, tit. IV, 123 Stat. 115, 276–79; 467–96 (2009)

  5. See 78 Fed. Reg. 5572 (Jan. 25, 2013)

  6. 15 U.S.C. §§ 41-58

  7. 15 U.S.C. § 45(a)(1)

  8. 15 U.S.C. §45(b)

  9. Section 13407 of the Health Information Technology for Economic and Clinical Health Act (HITECH) Act, Pub. L. No. 111-5, tit. XIII, Div. B, tit. IV, 123 Stat. 115, 276–79; 467–96 (2009)

  10. 74 Fed. Reg. 42962 (August 25, 2009)

  11. 16 C.F.R. Part 318

  12. Agaku IT, Adisa AO, Ayo-Yusuf OA, Connolly GN (2014) Concern about security and privacy, and perceived control over collection and use of health information are related to withholding of health information from healthcare providers. J Am Med Inform Assoc 21(2):374–378. doi:10.1136/amiajnl-2013-002079

    Article  Google Scholar 

  13. Eighty-three percent of respondents to a 2011 survey said they trust their physician office to use health information in the best interest of a patient. See iHealthbeat. Survey: Patients Trust Doctors Over EHRs To Ensure Data Security. Feb. 18, 2011. http://www.ihealthbeat.org/articles/2011/2/18/survey-patients-trust-doctors-over-ehrs-to-ensure-data-security

Download references

Author information

Authors and Affiliations

  1. Manatt, Phelps & Phillips, LLP, One Metro Center, 700 12th Street, NW, Suite 1100, Washington, DC, 20005, USA

    Deven McGraw

  2. Manatt, Phelps & Phillips, LLP, 7 Times Square, New York, NY, 10036, USA

    Robert Belfort & Helen Pfister

  3. Manatt Health Solutions, 7 Times Square, New York, NY, 10036, USA

    Susan Ingargiola

Authors
  1. Deven McGraw
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. Robert Belfort
    View author publications

    You can also search for this author in PubMed Google Scholar

  3. Helen Pfister
    View author publications

    You can also search for this author in PubMed Google Scholar

  4. Susan Ingargiola
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Deven McGraw.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

McGraw, D., Belfort, R., Pfister, H. et al. Engaging patients while addressing their privacy concerns: the experience of Project HealthDesign. Pers Ubiquit Comput 19, 85–89 (2015). https://doi.org/10.1007/s00779-014-0809-9

Download citation

  • Received:

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s00779-014-0809-9

Keywords

Search

Navigation