Abstract
Living Profiles is a personal health record (PHR) designed for and by teens with chronic diseases transitioning from the world of pediatric care to the adult system of medical care. It incorporates typical teen behaviors and attitudes about health and wellness while promoting independence, empowerment, and self-care. Our multi-disciplinary team of designers, medical providers, and engineers employed a user-centered design approach to create a PHR prototype based on teen-specific needs, behaviors, and personal experiences. We advocate a human-centered design approach, especially in the collection of data that adolescents find important and insightful, such as peer interactions, short- and long-term aspirations, and goals. These data can be leveraged to be a part of a successful clinical encounter and promote better self-awareness and chronic disease management. Our collaboration that resulted in a semi-working prototype populated by data important both to teen and medical provider became a launch point for more meaningful patient-healthcare provider exchanges.
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Acknowledgments
We are grateful for the collaborations with this project that included Sean Donahue of Art Center College of Design, Dr. Christy Sandborg of Lucile Packard Children’s Hospital at Stanford University, Dr. Diane Nugent and Dr. Amit Soni of Children’s Hospital Orange County at University of California, Irvine, and the engineering team at MOTO (Jora Jacoby, Margeigh Novotny, and J. Daniell Hebert). We are appreciative of the support and funding of the Project Health Design team at Robert Wood Johnson Foundation. We also acknowledge all the teen participants who helped with the co-creation of Living Profiles. Other funding was obtained from Johnson and Johnson Company, the California Healthcare Foundation, and Lucile Packard Foundation for Children’s Health.
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Tina Park and Peter Chira co authors.
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Park, T., Chira, P., Miller, K. et al. Living Profiles: an example of user-centered design in developing a teen-oriented personal health record. Pers Ubiquit Comput 19, 69–77 (2015). https://doi.org/10.1007/s00779-014-0812-1
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DOI: https://doi.org/10.1007/s00779-014-0812-1