ABSTRACT
Recent paradigm shift in health care calls for more attention to patient preferences. The Health Information Wants (HIW) Questionnaire measures patients' preferences (desires) for health information and participation in decision-making. It has parallel items in seven corresponding areas of information and decision-making (diagnosis, treatment, laboratory test, self-care, complementary and alternative medicine, psychosocial, and health care provider). A pilot study was conducted to generate preliminary data about the psychometric property of this instrument, the relationships between information and decision-making preferences in each of the seven areas, and the relationships among Internet use, age, and preferences for each type of health information and decision-making. The results show that the HIW Questionnaire has strong reliability and validity. After controlling for gender, education, perception of severity, and health, the overall preferences for health information and decision-making were positively correlated. Multilevel modeling analysis results showed that age was negatively related to the overall preference ratings. The differences in decision-making preference ratings between young and older adults were greater than those in information preference ratings. Internet use frequency was not significantly related to preference ratings. The relationships examined varied across the seven subscales (e.g., on the diagnosis subscale, age was positively associated with diagnostic decision-making preferences). These findings have implications for a better understanding of patient preferences, patient-provider relationships, and the quality of health care.
- Ballard-Reisch, D. S. 1990. A model of participative decision making for physician-patient interaction. Health. Commun. 2 (Apr, 1990), 91--104.Google Scholar
- McNutt, R. A. 2004. Shared medical decision making: problems, process, progress. J. Am. Med. Assoc. 292 (Nov, 2004), 2516--2518.Google Scholar
- Charles, C., Gafni, A. and Whelan, T. 1997. Shared decision-making in the medical encounter: What does it mean? (Or it takes at least two to tango). Soc. Sci. Med. 44 (Mar, 1997), 681--692.Google ScholarCross Ref
- Charles, C., Gafni, A. and Whelan, T. 1999. Decision-making in the physician-patient encounter: Revisiting the shared treatment decision-making model. Soc. Sci. Med. 49 (Sep, 1999), 651--661.Google ScholarCross Ref
- Brody, D. S. 1980. The patient's role in clinical decision-making. Ann. Intern. Med. 93 (Nov, 1980), 718--722.Google Scholar
- Blumenthal, D. 2002. Doctors in a wired world: Can professionalism survive connectivity? Milbank. Q. 80 (Aug, 2002), 525--546.Google Scholar
- Gerber, B. S. and Eiser, A. R. 2001. The patient-physician relationship in the Internet age: future prospects and the research agenda. J. Med. Internet. Res. 3 (Apr, 2001), e15.Google ScholarCross Ref
- Wald, H. S., Dube, C. E. and Anthony, D. C. 2007. Untangling the Web -- the impact of Internet use on health care and the physician-patient relationship. Patient. Educ. Couns. 68 (Nov, 2007), 218--224.Google ScholarCross Ref
- Starr, P. 1982. The social transformation of American medicine. Basic Books, New York.Google Scholar
- Benbassat, J., Pilpel, D. and Tidhar, M. 1998. Patients' preferences for participation in clinical decision making: a review of published surveys. Behav. Med. 24 (Summer, 1998), 81--88.Google ScholarCross Ref
- Ende, J., Kazis, L., Ash, A. and Moskowitz, M. A. 1989. Measuring patients' desire for autonomy: decision making and information-seeking preferences among medical patients. J. Gen. Internal. Med. 4 (Apr, 1989), 23--30.Google ScholarCross Ref
- Bagley-Burnett, C. 2004. Measuring information-seeking behaviors and decision-making preferences. Jones and Bartlett Publishers, City.Google Scholar
- Xie, B. 2009. Older adults' health information wants in the Internet age: Implications for patient-provider relationships. J. Health. Commun. 14 (Sep, 2009), 510--524.Google Scholar
- Braman, A. C. and Gomez, R. G. 2004. Patient personality predicts preference for relationships with doctors. Pers. Indiv. Differ. 37 (Sep, 2004), 815--826.Google ScholarCross Ref
- Krantz, D. S., Baum, A. and Wideman, M. V. 1980. Assessment of preferences for self-treatment and information in health care. J. Pers. Soc. Psychol. 39 (Nov, 1980), 977--990.Google ScholarCross Ref
- Cassileth, B. R., Zupkis, R. V., Sutton-Smith, K. and March, V. 1980. Information and participation preferences among cancer patients. Ann. Intern. Med. 92 (June, 1980), 832--836.Google ScholarCross Ref
- Galloway, S. C. and Graydon, J. E. 1996. Uncertainty, symptom distress, and information needs after surgery for cancer of the colon. Cancer. Nurs. 19 (Apr, 1996), 112--117.Google ScholarCross Ref
- Galloway, S. C., Graydon, J. E., Harrison, D., Evans-Boyden, B., Palmer-Wickham, S., Burlein-Hall, S., Rich-van der Bij, L., West, P. and Blair, A. 1997. Informational needs of women with a recent diagnosis of breast cancer: Development and initial testing of a tool. J. Adv. Nurs. 25 (June, 1997), 1175--1183.Google ScholarCross Ref
- Chalmers, K. I., Luker, K. A., Leinster, S., Ellis, I. and Booth, K. 2001. Information and support needs of women with primary relatives with breast cancer: Development of the information and support needs questionnaire (ISNQ). J. Adv. Nurs. 35 (Aug, 2001), 497--507.Google ScholarCross Ref
- Beisecker, A. E. and Beisecker, T. D. 1990. Patient information-seeking behaviors when communicating with doctors. Med. Care. 28 (Jan, 1990), 19--28.Google ScholarCross Ref
- Luker, K. A., Beaver, K., Leinster, S., Owens, R. G., Degner, L. F. and Sloan, J. A. 1995. The information needs of women newly diagnosed with breast cancer. J. Adv. Nurs. 22 (July, 1995), 134--141.Google ScholarCross Ref
- Degner, L. F. and Sloan, J. A. 1992. Decision making during serious illness: What role do patients really want to play? J. Clin. Epidemiol. 45 (Sep, 1992), 941--950.Google ScholarCross Ref
- Lazarus, R. and Folkman, S. 1984. Stress, Appraisal, and Coping. Springer, New York.Google Scholar
- Johnson, J. E., Rich, V. H., Fuller, S. S. and Endress, M. 1978. Sensory information, instruction in a coping strategy, and recovery from surgery. Res. Nurs. Health, 1 (Mar, 1978), 4--17.Google ScholarCross Ref
- Dodd, M. J. and Ahmed, N. 1987. Preference for type of information in cancer patients receiving radiation therapy. Cancer. Nurs. 10 (Oct, 1987), 244--251.Google ScholarCross Ref
- Miller, S. M. 52. Monitoring and blunting: Validation of a questionnaire to assess styles of information seeking under threat. J. Pers. Soc. Psychol. 52 (Feb, 1987), 345--353.Google ScholarCross Ref
- Schwartz, M. D., Lerman, C. and Miller, S. M. 1995. Coping disposition, perceived risk, and psychological distress among women at increased risk for ovarian cancer. Health. Psychol. 14 (May, 1995), 232--235.Google ScholarCross Ref
- Fox, S. and Raine, L. Vital decisions: how Internet users decide what information to trust when they or their loved ones are sick. Plus a guide from the Medical Library Association about smart healthsearch strategies and good Web sites. Pew Internet & American Life Project. Retrieved on August 20, 2009, from http://www.pewinternet.org/~/media//Files/Reports/2002/PIP_Vital_Decisions_May2002.pdf.pdf., Washington DC, 2002.Google Scholar
- Ziebland, S., Chapple, A., Dumelow, C., Evans, J., Prinjha, S. and Rozmovits, L. 2004. How the internet affects patients' experience of cancer: a qualitative study. Brit. Med. J. 328 (Mar, 2004), 564.Google ScholarCross Ref
- Baker, L., Wagner, T. H., Singer, S. and Bundorf, M. K. 2003. Use of the Internet and e-mail for health care information: results from a national survey. J. Am. Med. Assoc. 289 (May, 2003), 2400--2406.Google ScholarCross Ref
- Fox, S. Online Health Search. PEW Internet & American Life. Retrieved March 16, 2007, from http://www.pewinternet.org/pdfs/PIP_Online_Health_2006.pdf, Washington D. C., 2006.Google Scholar
- Fox, S. Health Information Online. Pew Internet and American Life Project (available at: http://www.pewinternet.org/pdfs/PIP_Healthtopics_May05.pdf), Washington, DC, 2005.Google Scholar
- Fox, S. and Raine, L. The online health care revolution: how the Web helps Americans take better care of themselves. Pew Internet and American Life Project. Retrieved August 20, 2009, from http://www.pewinternet.org/~/media//Files/Reports/2000/PIP_Health_Report.pdf.pdf, Washington DC, 2000.Google Scholar
- Dickerson, S., Reinhart, A. M., Feeley, T. H., Bidani, R., Rich, E., Garg, V. K. and Hershey, C. O. 2004. Patient Internet use for health information at three urban primary care clinics. J. Am. Med. Inform. Assn. 11 (Nov, 2004), 499--504.Google ScholarCross Ref
- Rozmovits, L. and Ziebland, S. 2004. What do patients with prostate or breast cancer want from an Internet site? A qualitative study of information needs. Patient. Educ. Couns. 53 (Apr, 2004), 57--64.Google ScholarCross Ref
- Kaiser Family Foundation. e-Health and the elderly: how seniors use the Internet for health information. Retrieved August 20, 2009, from http://www.kff.org/entmedia/upload/e-Health-and-the-Elderly-How-Seniors-Use-the-Internet-for-Health-Information-Key-Findings-From-a-National-Survey-of-Older-Americans-Survey-Report.pdf, 2005.Google Scholar
- Fox, S. E-patients with a disability or chronic disease. PEW Internet & American Life. Retrieved August 20, 2009, from http://www.pewinternet.org/~/media//Files/Reports/2007/EPatients_Chronic_Conditions_2007.pdf.pdf., Washington DC, 2007.Google Scholar
- Campbell, R. J. Consumer health, patient education, and the Internet. The Internet Journal of Health, 2, 2 2001), Retrieved on August 20, 2009, from http://www.ispub.com/ostia/index.php?xmlFilePath=journals/ijhca/vol2002n2001/consumer.xml.Google Scholar
- Hardt, J. H. and Hollis-Sawyer, L. 2007. Older adults seeking healthcare information on the Internet. Educ. Gerontol. 33 (July, 2007), 561--572.Google Scholar
- Dickerson, S., Reinhart, A. M., Feeley, T. H., Bidani, R., Rich, E., Garg, V. K. and Hershey, C. O. 2004. Patient Internet use for health information at three urban primary care clinics. J. Am. Med. Inform. Assn. 11 (Nov, 2004), 499--504.Google ScholarCross Ref
- Bass, S. B., Ruzek, S. B., Gordon, T. F., Fleisher, L., McKeown-Conn, N. and Moore, D. 2006. Relationship of Internet health information use with patient behavior and self-efficacy: experiences of newly diagnosed cancer patients who contact the National Cancer Institute's cancer information service. J. Health. Commun. 11 (Mar, 2006), 219--236.Google ScholarCross Ref
- Flynn, K. E., Smith, M. A. and Freese, J. 2006. When do older adults turn to the Internet for health information? Findings from the Wisconsin longitudinal study. J. Gen. Intern. Med. 21 (Dec, 2006), 1295--1301.Google ScholarCross Ref
- Maibach, E. W., Weber, D., Massett, H., Hancock, G. R. and Price, S. 2006. Understanding consumers' health information preferences: development and validation of a brief screening instrument. J. Health. Commun. 11 (Sep, 2006), 717--736.Google ScholarCross Ref
- Hill, S. A. and Laugharne, R. 2006. Decision making and information seeking preferences among psychiatric patients. J. Ment. Health. 15 (Feb, 2006), 75--84.Google ScholarCross Ref
- Finucane, M. L., Mertz, C. K., Slovic, P. and Scholze Schmidt, E. S. 2005. Task complexity and older adults' decision-making competence. Psychol. Aging. 20 (Mar, 2005), 71--84.Google Scholar
- Lockenhoff, C. E. and Carstensen, L. L. 2007. Aging, emotion, and health-related decision strategies: motivational manipulations can reduce age differences. Psychol. Aging. 22 (Mar, 2007), 134--146.Google ScholarCross Ref
- Bylund, C. L., Sabee, C. M., Imes, R. S. and Sanford, A. A. 2007. Exploration of the construct of reliance among patients who talk with their providers about Internet information. J. Health. Commun. 12 (Jan, 2007), 17--28.Google ScholarCross Ref
- Bundorf, M. K., Wagner, T. H., Singer, S. J. and Baker, L. C. 2006. Who searches the Internet for health information? Health. Serv. Res. 41 (June 2006), 819--836.Google ScholarCross Ref
- Xie, B. 2008. Older adults, health information, and the Internet. ACM Interactions. 15 (2008), 44--46. Google ScholarDigital Library
- Bryk, A. S. and Raudenbush, S. W. 1992. Hierarchical linear models: Applications and data analysis methods. Sage, Newbury Park.Google Scholar
- Cronbach, L. J. 1951. Coefficient alpha and the internal structure of tests. Psychometrika, 16, 297--334.Google Scholar
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