Matthew Bonner
ABSTRACT
Child Life Specialists (CLS's) are medical professionals who use activities to educate, comfort, entertain and distract children in hospitals. Adapting to a shifting cast of children, context and mediating activities requires CLS's to be experts at a kind of articulation work. This expertise means CLS's are well equipped to help technologists introduce child-facing interventions to the hospital. We conducted participatory design activities with 9 CLS's to develop two mobile systems to explore how CLS-child interactions are shaped by activities. We observed 18 child-CLS pairs using these systems in a hospital setting. By analyzing these encounters, we describe a continuum for classifying activities as either Co-Present or Collaborative. We then introduce a framework, Activity-Based Interaction, to describe structural components of activities that impact their position on this continuum. These concepts suggest new approaches to designing mediating technologies for adults and children.
- Bandstra, N.F., Skinner, L., LeBlanc, C., et al. The Role of Child Life in Pediatric Pain Management: A Survey of Child Life Specialists. The Journal of Pain 9, 4 (2008), 320--329.Google Scholar
- Bardram, J.E. and Bossen, C. Mobility Work: The Spatial Dimension of Collaboration at a Hospital. In Proc. CSCW 2005, (2005), 131--160. Google ScholarDigital Library
- Bardram, J.E. and Hansen, T.R. Why the plan doesn't hold: a study of situated planning, articulation and coordination work in a surgical ward. In Proc. CSCW 2010, ACM (2010), 331--340. Google ScholarDigital Library
- Benveniste, S., Jouvelot, P., Lecourt, E., and Michel, R. Designing wiimprovisation for mediation in group music therapy with children suffering from behavioral disorders. In Proc. IDC 2009, ACM Press (2009), 18. Google ScholarDigital Library
- Bers, M.U., Beals, L.M., Chau, C., et al. Use of a virtual community as a psychosocial support system in pediatric transplantation. Pediatric Transplantation 14, 2 (2010), 261--267.Google ScholarCross Ref
- Bers, M.U., Gonzalez-Heydrich, J., Raches, D., and DeMaso, D.R. Zora: a pilot virtual community in the pediatric dialysis unit. Studies in Health Technology and Informatics 84, Pt 1 (2001), 800--804.Google Scholar
- Bers, M.U., Karlin, J., Ackermann, E., et al. Interactive storytelling environments. In Proc. CHI 1998, (1998), 603--610. Google ScholarDigital Library
- Bickmore, T.W., Pfeifer, L.M., and Jack, B.W. Taking the time to care. In Proc. CHI 2009, ACM Press (2009), 1265. Google ScholarDigital Library
- Bjørn, P. and Balka, E. Health care categories have politics too: Unpacking the managerial agendas of electronic triage systems. Proc. ECSCW 07. 2007, 371390.Google ScholarCross Ref
- Brewer, S., Gleditsch, S.L., Syblik, D., Tietjens, M.E., and Vacik, H.W. Pediatric Anxiety: Child Life Intervention in Day Surgery. Journal of Pediatric Nursing 21, 1 (2006), 13--22.Google ScholarCross Ref
- Chipman, G., Druin, A., Beer, D., Fails, J.A., Guha, M.L., and Simms, S. A case study of tangible flags. In Proc. IDC 2006, (2006), 1.Google ScholarDigital Library
- Das, A., Faxvaag, A., and Svanæs, D. Interaction design for cancer patients. In Proc. CHI 2011,ACM Press (2011), 21. Google ScholarDigital Library
- Fails, J.A., Druin, A., and Guha, M.L. Mobile collaboration: collaboratively reading and creating children's stories on mobile devices. In Proc. IDC 2010, ACM (2010), 20--29. Google ScholarDigital Library
- Hourcade, J.P. Interaction Design and Children. Foundations and Trends in Human-Computer Interaction 1, 4 (2007), 277--392. Google ScholarDigital Library
- Hutchinson, H., Mackay, W., Westerlund, B., et al. Technology probes: inspiring design for and with families. In Proc. CHI 2003, ACM (2003), 17--24. Google ScholarDigital Library
- King, J. and Ziegler, S. The Effects of Hospitalization on Children's Behavior: A Review of the Literature. Children's Health Care 10, 1 (1981), 20--28.Google ScholarCross Ref
- Klasnja, P., Hartzler, A.C., Unruh, K.T., and Pratt, W. Blowing in the Wind: Unanchored Patient Information Work during Cancer Care. Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '10), (2010). Google ScholarDigital Library
- Lowry, R. Concepts and Applications of Inferential Statistics. Vassar College, Poughkeepsie, NY.Google Scholar
- McGee, K. The role of a child life specialist in a pediatric radiology department. Pediatric Radiology 33, 7 (2003), 467--474.Google ScholarCross Ref
- Skipper, J.K. and Leonard, R.C. Children, Stress, and Hospitalization: A Field Experiment. Journal of Health and Social Behavior 9, 4 (1968), 275--287.Google ScholarCross Ref
- Tang, C. and Carpendale, S. An observational study on information flow during nurses' shift change. In Proc. CHI 2007, ACM Press (2007), 219. Google ScholarDigital Library
- Tang, C. and Carpendale, S. A mobile voice communication system in medical setting. In Proc. CHI 2009, ACM Press (2009), 2041. Google ScholarDigital Library
- Unruh, K.T., Skeels, M., Civian-Hartzler, A., and Pratt, W. Transforming Clinic Environments into Information Workspaces for Patients. In Proc. CHI 2010, (2010). Google ScholarDigital Library
- Yarosh, S., Cuzzort, S., Müller, H., and Abowd, G.D. Developing a media space for remote synchronous parent-child interaction. In Proc. IDC 2009, (2009), 97. Google ScholarDigital Library
- Yarosh, S., Radu, I., Hunter, S., and Rosenbaum, E. Examining values: an analysis of nine years of IDC research. In Proc. IDC 2011, (2011), 136--144. Google ScholarDigital Library
- Child Life Council. http://www.childlife.org/.Google Scholar
Index Terms
- Activity-based interaction: designing with child life specialists in a children's hospital
Recommendations
Children with ADHD and their Care Ecosystem: Designing Beyond Symptoms
CHI '23: Proceedings of the 2023 CHI Conference on Human Factors in Computing SystemsDesigning for children with ADHD has been of increasing interest to the HCI community. However, current approaches do not adequately involve all relevant stakeholders, and primarily focus on addressing symptoms, following a medical model of disability ...
YoungDeafDesign: Participatory design with young Deaf children
AbstractIt is common in HCI research to involve children in the design of their own technology. However, no design methods exist to design with young Deaf children. To address this gap, I have created YoungDeafDesign, a design method for ...
Participatory design with children in the development of a support system for patient-centered care in pediatric oncology
Developing software for children with severe illness poses a number of design challenges. In this paper we describe participatory design methods used in the development of SISOM, a support system for children with cancer age 7-12 to help children elicit ...
Comments