ABSTRACT
Self-care technologies have been influenced by medical values and models. One of the values that was acritically incorporated was that self-care was medicalised, and, as a result, technologies were designed to afford use with clinicians and fit structured medical processes. This paper seeks to broaden the understanding of self-care in HCI, to acknowledge the mundane ways in which self-care is achieved. Drawing on in-depth interviews with patients and carers, and online ethnography of an online community, we describe how the self-care of Parkinson's is mundane. The fieldwork contrasts with more medicalised perspectives on self-care, thus we discuss the properties of a self-care concept that would acknowledge its mundane nature. Our hope is to sensitise designers to identify the mundane ways in which self-care is performed and, consequently, design technologies that better fit the complexities of everyday life with a chronic condition.
Supplemental Material
- J Eric Ahlskog. 2011. Does vigorous exercise have a neuroprotective effect in Parkinson disease? Neurology 77, 3 (2011), 288--294.Google ScholarCross Ref
- Madeleine Akrich. 1992. The De-Scription of Technical Objects. In Shaping Technology/Building Society, Wiebe E. Bijker and John Law (Eds.). The MIT Press, Chapter 7, 205--224.Google Scholar
- N Archer, U Fevrier-Thomas, C Lokker, K A McKibbon, and S E Straus. 2011. Personal health records: A scoping review. Journal of the American Medical Informatics Association 18, 4 (2011), 515--522.Google ScholarCross Ref
- Oliver Assad, Robert Hermann, Damian Lilla, Bj¨ orn Mellies, Ronald Meyer, Liron Shevach, Sandra Siegel, Melanie Springer, Saranat Tiemkeo, Jens Voges, Jan Wieferich, Marc Herrlich, Markus Krause, and Rainer Malaka. 2011. Motion-Based Games for Parkinson's Disease Patients. In Proceedings of the 10th International Conference on Entertainment Computing (ICEC'11). Springer-Verlag, 47--58. Google ScholarDigital Library
- Amid Ayobi, Paul Marshall, Anna L. Cox, and Yunan Chen. 2017. Quantifying the Body and Caring for the Mind: Self-Tracking in Multiple Sclerosis. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems (CHI '17). ACM, New York, NY, USA, 6889--6901. Google ScholarDigital Library
- James Barlow, Debbie Singh, Steffen Bayer, and Richard Curry. 2007. A systematic review of the benefits of home telecare for frail elderly people and those with long-term conditions. Journal of Telemedicine and Telecare 13, 4 (2007), 172--179.Google ScholarCross Ref
- Julie Barlow, Chris Wright, Janice Sheasby, Andy Turner, and Jenny Hainsworth. 2002. Self-management approaches for people with chronic conditions: A review. Patient Education and Counseling 48, 2 (2002), 177 -- 187.Google ScholarCross Ref
- Natalie Bramley and Virginia Eatough. 2005. The experience of living with Parkinson's disease: An interpretative phenomenological analysis case study. Psychology & Health 20, 2 (2005), 223--235.Google ScholarCross Ref
- Stephen Buetow, Jenny Henshaw, Linda Bryant, and Deirdre O'Sullivan. 2010. Medication timing errors for Parkinson's disease: Perspectives held by caregivers and people with Parkinson's in New Zealand. Parkinson's Disease 2010 (2010).Google Scholar
- Gina S. Charlton and Corinne J. Barrow. 2002. Coping and self-help group membership in Parkinson's disease: An exploratory qualitative study. Health & Social Care in the Community 10, 6 (2002), 472--478.Google ScholarCross Ref
- Kathy Charmaz. 1991. Good Days, Bad Days: The Self in Chronic Illness and Time. Rutgers University Press.Google Scholar
- Kathy Charmaz. 2006. Constructing Grounded Theory: A Practical Guide Through Qualitative Analysis. Sage Publications Ltd.Google Scholar
- Horacio Chiong-Rivero, Gery W. Ryan, Charles Flippen, Yvette Bordelon, Nicholas R. Szumski, Theresa A. Zesiewicz, Stefanie Vassar, Beverly Weidmer, Rosa Elena Garc´ ?a, Melissa Bradley, and Barbara G. Vickrey. 2011. Patients' and caregivers' experiences of the impact of Parkinson's disease on health status. Patient Related Outcome Measures 2011, 2 (March 2011), 57--70.Google Scholar
- Lisa Cicutto, Dina Brooks, and Katy Henderson. 2004. Self-care issues from the perspective of individuals with Chronic Obstructive Pulmonary Disease. Patient Education and Counseling 55, 2 (2004), 168 -- 176.Google ScholarCross Ref
- Noreen M. Clark, Marshall H. Becker, Nancy K. Janz, Kate Lorig, William Rakowski, and Lynda Anderson. 1991. Self-Management of Chronic Disease by Older Adults: A Review and Questions for Research. Journal of Aging and Health 3, 1 (1991), 3--27.Google ScholarCross Ref
- Peter Conrad. 1985. The meaning of medications: Another look at compliance. Social Science & Medicine 20, 1 (1985), 29 -- 37.Google ScholarCross Ref
- Roshan Cools. 2006. Dopaminergic modulation of cognitive function-implications for L-DOPA treatment in Parkinson's disease. Neuroscience & Biobehavioral Reviews 30, 1 (2006), 1 -- 23.Google ScholarCross Ref
- Juliet Corbin and Anselm Strauss. 1985. Managing chronic illness at home: three lines of work. Qualitative sociology 8, 3 (1985), 224--247.Google Scholar
- Juliet M Corbin and Anselm Strauss. 1988. Unending Work and Care: Managing Chronic Illness at Home. Jossey-Bass.Google Scholar
- L.G. Dalgaard, E. Gr¨ onvall, and N. Verdezoto. 2013. Accounting for medication particularities: Designing for everyday medication management. In Proceedings of the 7th International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2013. 137--144. Google ScholarDigital Library
- Peter Danholt and Henriette Langstrup. 2012. Medication as Infrastructure: Decentring Self-care. Culture Unbound 4 (2012), 513--532.Google ScholarCross Ref
- Ana Correia de Barros, Jo? ao Cevada, ` Angels Bay´ es, Sheila Alcaine, and Berta Mestre. 2013. User-centred Design of a Mobile Self-management Solution for Parkinson's Disease. In Proceedings of the 12th International Conference on Mobile and Ubiquitous Multimedia (MUM '13). ACM, Article 23, 10 pages. Google ScholarDigital Library
- Nick Drey, Eamonn Mckeown, Daniel Kelly, and Dinah Gould. 2012. Adherence to antiparkinsonian medication: An in-depth qualitative study. International Journal of Nursing Studies 49, 7 (2012), 863--871.Google ScholarCross Ref
- Anne G. Ekeland, Alison Bowes, and Signe Flottorp. 2011. Effectiveness of telemedicine: A systematic review of reviews. International Journal of Medical Informatics 79 (2011), 736--771. Issue 11.Google ScholarCross Ref
- Jessica L. Feuston, Charlotte G. Marshall-Fricker, and Anne Marie Piper. 2017. The Social Lives of Individuals with Traumatic Brain Injury. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems (CHI '17). ACM, New York, NY, USA, 182--194. Google ScholarDigital Library
- Geraldine Fitzpatrick. 2011. New Challenges for Health IT - Design Fit for Life. In Proceedings of the Conference on Design 4 Health 2011. 121--135.Google Scholar
- Garyfallia L. Forsyth, Kathleen D. Delaney, and Mary L. Gresham. 1984. Vying for a Winning Position: Management Style of the Chronically Ill. Research in Nursing & Health 7, 3 (1984), 181--188.Google ScholarCross Ref
- M. Funnell and R. M. Anderson. 2000. The problem with compliance in diabetes. JAMA 284, 13 (2000), 1709.Google ScholarCross Ref
- Brook Galna, Dan Jackson, Guy Schofield, Roisin McNaney, Mary Webster, Gillian Barry, Dadirayi Mhiripiri, Madeline Balaam, Patrick Olivier, and Lynn Rochester. 2014. Retraining function in people with Parkinson's disease using the Microsoft kinect: Game design and pilot testing. Journal of NeuroEngineering and Rehabilitation 11, 1 (2014), 1--12.Google ScholarCross Ref
- Angela Cora Garcia, Alecea I. Standlee, Jennifer Bechkoff, and Yan Cui. 2009. Ethnographic Approaches to the Internet and Computer-Mediated Communication. Journal of Contemporary Ethnography 38, 1 (2009), 52--84.Google ScholarCross Ref
- Stephen James Gentles, Cynthia Lokker, and K Ann McKibbon. 2010. Health Information Technology to Facilitate Communication Involving Health Care Providers, Caregivers, and Pediatric Patients: A Scoping Review. Journal of Medical Internet Research 12, 2 (Apr-Jun 2010), e22.Google ScholarCross Ref
- Grant Gibson. 2013. Men's experiences of living with Parkinson's Disease. Ph.D. Dissertation. University of Liverpool.Google Scholar
- Grant Gibson. 2016. ?Signposts on the journey'; Medication adherence and the lived body in men with Parkinson's Disease. Social Science & Medicine 152 (2016), 27--34.Google ScholarCross Ref
- Erving Goffman. 1963. Stigma: Notes on The Management of Spoiled Identity (1st ed.). Prentice Hall.Google Scholar
- Victoria A. Goodwin, Suzanne H. Richards, Rod S. Taylor, Adrian H. Taylor, and John L. Campbell. 2008. The effectiveness of exercise interventions for people with Parkinson's disease: A systematic review and meta-analysis. Movement Disorders 23, 5 (2008), 631--640.Google ScholarCross Ref
- Sarah L. Gorst, Christopher J. Armitage, Simon Brownsell, and Mark S. Hawley. 2014. Home Telehealth Uptake and Continued Use Among Heart Failure and Chronic Obstructive Pulmonary Disease Patients: A Systematic Review. Annals of Behavioral Medicine 48, 3 (2014), 323--336.Google ScholarCross Ref
- Trisha Greenhalgh, Rob Procter, Joe Wherton, Paul Sugarhood, and Sara Shaw. 2012. The organising vision for telehealth and telecare: discourse analysis. BMJ Open 2, 4 (2012).Google Scholar
- Katherine A. Grosset, Ian Bone, and Donald G. Grosset. 2005. Suboptimal medication adherence in Parkinson's disease. Movement Disorders 20, 11 (2005), 1502--1507.Google ScholarCross Ref
- Katherine A. Grosset and Donald G. Grosset. 2007. Effect of educational intervention on medication timing in Parkinson's disease: A randomized controlled trial. BMC Neurology 7, 1 (2007), 1--6.Google ScholarCross Ref
- Anita Haahr, Marit Kirkevold, Elisabeth O.C. Hall, and Karen Østergaard. 2011. Living with advanced Parkinson's disease: A constant struggle with unpredictability. Journal of Advanced Nursing 67, 2 (2011), 408--417.Google ScholarCross Ref
- Tapani Ker¨ anen and Sammeli Liikkanen. 2013. Medication Reminder Service for Mobile Phones: An Open Feasibility Study in Patients with Parkinson's Disease. Telemedicine and e-Health 19, 11 (2013), 888--890.Google ScholarCross Ref
- I. Killane, C. Fearon, L. Newman, C. McDonnell, S.M. Waechter, K. Sons, T. Lynch, and R.B. Reilly. 2015. Dual Motor-Cognitive Virtual Reality Training Impacts Dual-Task Performance in Freezing of Gait. IEEE Journal of Biomedical and Health Informatics 19, 6 (Nov 2015), 1855--1861.Google ScholarCross Ref
- Markus Krause, Jan Smeddinck, and Ronald Meyer. 2013. A Digital Game to Support Voice Treatment for Parkinson's Disease. In Proceedings of CHI '13 Extended Abstracts on Human Factors in Computing Systems (CHI EA '13). ACM, 445--450. Google ScholarDigital Library
- Annie YS Lau, Ama¨ el Arguel, Sarah Dennis, Siaw-Teng Liaw, and Enrico Coiera. 2015. ?Why Didn't it Work?" Lessons From a Randomized Controlled Trial of a Web-based Personally Controlled Health Management System for Adults with Asthma. Journal of Medical Internet Research 17, 12 (2015).Google Scholar
- Norman A. Leopold, Marcia Polansky, and Marcia R. Hurka. 2004. Drug adherence in Parkinson's disease. Movement Disorders 19, 5 (2004), 513--517.Google ScholarCross Ref
- John Lofland, David A. Snow, Leon Anderson, and Lyn H. Lofland. 2005. Analyzing Social Settings: A Guide to Qualitative Observation and Analysis (4th ed.). Wadsworth Publishing.Google Scholar
- Beats Medical Ltd. 2017. Beats Medical Parkinsons Treatment App. (2017). https://itun.es/i6Yk7tQGoogle Scholar
- Haley MacLeod, Kim Oakes, Danika Geisler, Kay Connelly, and Katie Siek. 2015. Rare World: Towards Technology for Rare Diseases. In Proceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems (CHI '15). ACM, New York, NY, USA, 1145--1154. Google ScholarDigital Library
- Joanne Marr. 1991. The Experience Of Living With Parkinson's Disease. Journal of Neuroscience Nursing 23, 5 (1991), 325--329.Google ScholarCross Ref
- Summer Carnett Martin. 2012. Couples coping with Parkinson's disease: Implications for the patient, partner, and relationship. Ph.D. Dissertation. University of Illinois at Urbana-Champaign.Google Scholar
- Frank Marzinzik, Michael Wahl, Christoph M Doletschek, Constanze Jugel, Charlotte Rewitzer, and Fabian Klostermann. 2012. Evaluation of a telemedical care programme for patients with Parkinson's disease. Journal of Telemedicine and Telecare 18, 6 (2012), 322--327.Google ScholarCross Ref
- Jo? ao Massano and Kailash P. Bhatia. 2012. Clinical Approach to Parkinson's Disease: Features, Diagnosis, and Principles of Management. Cold Spring Harbor Perspectives in Medicine 2, 6 (2012), 1--15.Google Scholar
- Carl R. May, Tracy L. Finch, James Cornford, Catherine Exley, Claire Gately, Sue Kirk, K. Neil Jenkings, Janice Osbourne, A. Louise Robinson, Anne Rogers, Robert Wilson, and Frances S. Mair. 2011. Integrating telecare for chronic disease management in the community: What needs to be done? BMC Health Services Research 11, 1 (2011), 131.Google ScholarCross Ref
- Liza McCoy. 2009. Time, self and the medication day: a closer look at the everyday work of ?adherence'. Sociology of Health & Illness 31, 1 (2009), 128--146.Google ScholarCross Ref
- Susannah McLean, Denis Protti, and Aziz Sheikh. 2011. Telehealthcare for long term conditions. BMJ 342 (2011).Google Scholar
- Roisin McNaney, Stephen Lindsay, Karim Ladha, Cassim Ladha, Guy Schofield, Thomas Ploetz, Nils Hammerla, Daniel Jackson, Richard Walker, Nick Miller, and Patrick Olivier. 2011. Cueing Swallowing in Parkinson's Disease. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '11). ACM, 619--622. Google ScholarDigital Library
- Roisin McNaney, Ivan Poliakov, John Vines, Madeline Balaam, Pengfei Zhang, and Patrick Olivier. 2015. LApp: A Speech Loudness Application for People with Parkinson's on Google Glass. In Proceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems (CHI '15). ACM, 497--500. Google ScholarDigital Library
- Thomas O. Mera, Dustin A. Heldman, Alberto J. Espay, Megan Payne, and Joseph P. Giuffrida. 2012. Feasibility of home-based automated Parkinson's disease motor assessment. Journal of Neuroscience Methods 203, 1 (2012), 152 -- 156.Google ScholarCross Ref
- Annemarie Mol, Ingunn Moser, and Jeannette Pols. 2010. Care: putting practice into theory. In Care in Practice: On Tinkering in Clinics, Homes and Farms, Annemarie Mol, Ingunn Moser, and Jeannette Pols (Eds.). transcript Verlag, Bielefeld, 7--25.Google Scholar
- myHealthPal Group Ltd. 2015. myHealthPal. (2015). https://itun.es/i6SC9mfGoogle Scholar
- Helen Nakagawa-Kogan, Annabaker Garber, Monica Jarrett, Kelly J. Egan, and Susan Hendershot. 1988. Self-management of hypertension: Predictors of success in diastolic blood pressure reduction. Research in Nursing & Health 11, 2 (1988), 105--115.Google ScholarCross Ref
- Mark W. Newman, Debra Lauterbach, Sean A. Munson, Paul Resnick, and Margaret E. Morris. 2011. It's not that I don't have problems, i'm just not putting them on facebook: Challenges and opportunities in using online social networks for health. In Proceedings of the ACM 2011 conference on Computer supported cooperative work (CSCW '11). ACM, 341--350. Google ScholarDigital Library
- Francisco Nunes and Geraldine Fitzpatrick. 2015. Self-Care Technologies and Collaboration. International Journal of Human Computer Interaction 31, 12 (2015), 869--881.Google ScholarCross Ref
- Francisco Nunes, Nervo Verdezoto, Geraldine Fitzpatrick, Morten Kyng, Erik Gr¨ onvall, and Cristiano Storni. 2015. Self-care Technologies in HCI: Trends, Tensions, and Opportunities. ACM Transactions on Computer Human Interaction 22, 6, Article 33 (2015), 33:1--33:45 pages. Google ScholarDigital Library
- Aisling Ann O'Kane, Yvonne Rogers, and Ann E. Blandford. 2015. Concealing or Revealing Mobile Medical Devices?: Designing for Onstage and Offstage Presentation. In Proceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems (CHI '15). ACM, New York, NY, USA, 1689--1698. Google ScholarDigital Library
- Leysia Palen and Stinne Aaløkke. 2006. Of Pill Boxes and Piano Benches: ?Home-made" Methods for Managing Medication. In Proceedings of the 2006 Conference on Computer Supported Cooperative Work (CSCW '06). ACM, 79--88. Google ScholarDigital Library
- Sun Young Park and Yunan Chen. 2015. Individual and Social Recognition: Challenges and Opportunities in Migraine Management. In Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing (CSCW '15). ACM, 1540--1551. Google ScholarDigital Library
- Talcott Parsons. 1951. The Social System. Routledge.Google Scholar
- Ruth Pinder. 1990. The Management of Chronic Illness: Patient and Doctor Perspectives on Parkinson's Disease. Macmillan Press.Google Scholar
- Enrico Maria Piras and Alberto Zanutto. 2014. ?One day it will be you who tells us doctors what to do!". Exploring the ?Personal" of PHR in paediatric diabetes management. Information Technology & People 27, 4 (2014), 421--439.Google ScholarCross Ref
- Julie Polisena, Khai Tran, Karen Cimon, Brian Hutton, Sarah McGill, Krisan Palmer, and Richard E Scott. 2010. Home telehealth for chronic obstructive pulmonary disease: A systematic review and meta-analysis. Journal of Telemedicine and Telecare 16, 3 (2010), 120--127.Google ScholarCross Ref
- Jeannette Pols. 2012. Care at a Distance: On the Closeness of Technology. Amsterdam University Press.Google Scholar
- Jenny Preece. 1999. Empathic communities: Balancing emotional and factual communication. Interacting with Computers 12, 1 (1999), 63 -- 77.Google ScholarCross Ref
- Rebecca Randell, Stephanie Wilson, and Geraldine Fitzpatrick. 2010. Editorial -- Evaluating New Interactions in Health Care: Challenges and Approaches. International Journal of Human-Computer Interaction 26, 5 (2010), 407--413.Google ScholarCross Ref
- Anne-Grete Sandaunet. 2008. A Space for Suffering? Communicating Breast Cancer in an Online Self-Help Context. Qualitative Health Research 18, 12 (2008), 1631--1641.Google ScholarCross Ref
- Caroline Sanders, Anne Rogers, Robert Bowen, Peter Bower, Shashivadan Hirani, Martin Cartwright, Ray Fitzpatrick, Martin Knapp, James Barlow, Jane Hendy, Theti Chrysanthaki, Martin Bardsley, and Stanton P. Newman. 2012. Exploring barriers to participation and adoption of telehealth and telecare within the Whole System Demonstrator trial: A qualitative study. BMC Health Services Research 12, 1 (2012), 1--12.Google ScholarCross Ref
- Vinod Sharma, Kunal Mankodiya, Fernando De La Torre, Ada Zhang, Neal Ryan, ThanhG.N. Ton, Rajeev Gandhi, and Samay Jain. 2014. SPARK: Personalized Parkinson Disease Interventions through Synergy between a Smartphone and a Smartwatch. In Design, User Experience, and Usability. User Experience Design for Everyday Life Applications and Services, Aaron Marcus (Ed.). Lecture Notes in Computer Science, Vol. 8519. Springer International Publishing, 103--114.Google Scholar
- Samantha Solimeo. 2009. With Shaking Hands: Aging with Parkinson's Disease in America's Heartland. Rutgers University Press.Google Scholar
- Arlene D. Speelman, Bart P. van de Warrenburg, Marlies van Nimwegen, Giselle M. Petzinger, Marten Munneke, and Bastiaan R. Bloem. 2011. How might physical activity benefit patients with Parkinson disease? Nat Rev Neurol 7, 9 (09 2011), 528--534.Google Scholar
- Cristiano Storni. 2010. Multiple Forms of Appropriation in Self-Monitoring Technology: Reflections on the Role of Evaluation in Future Self-Care. International Journal of Human-Computer Interaction 26, 5 (2010), 537--561.Google ScholarCross Ref
- Cristiano Storni. 2014. Diabetes self-care in-the-wild: Design challenges for personal health record systems and self-monitoring technologies. Information Technology & People 27, 4 (2014), 397--420.Google ScholarCross Ref
- Cristiano Storni. 2015. Patients' lay expertise in chronic self-care: A case study in type 1 diabetes. Health Expectations 18, 5 (2015), 1439--1450.Google ScholarCross Ref
- Cristiano Storni and Liam J. Bannon. 2012. Towards the Design of Truly Patient-Centred Infrastructures: A Socio-Technical Approach to Self-Care. In Health Informatics: An Adaptive Communication Technology for Future Healthcare, Naveen Chilamkurti (Ed.). Nova Science Publishers.Google Scholar
- Mark Tenforde, Anil Jain, and John Hickner. 2011. The value of personal health records for chronic disease management: what do we know? Family Medicine 43, 5 (2011), 351354.Google Scholar
- Bj¨ org Thordardottir, Maria H. Nilsson, Susanne Iwarsson, and Maria Haak. 2014. ?You plan, but you never know" -- Participation among people with different levels of severity of Parkinson's disease. Disability and Rehabilitation 36, 26 (2014), 2216--2224.Google ScholarCross Ref
- Marlies van Nimwegen, Arl` ene D. Speelman, Esther J. M. Hofman-van Rossum, Sebastiaan Overeem, Dorly J. H. Deeg, George F. Borm, Marleen H. L. van der Horst, Bastiaan R. Bloem, and Marten Munneke. 2011. Physical inactivity in Parkinson's disease. Journal of Neurology 258, 12 (2011), 2214--2221.Google Scholar
- Edward H. Wagner, Brian T. Austin, Connie Davis, Mike Hindmarsh, Judith Schaefer, and Amy Bonomi. 2001. Improving Chronic Illness Care: Translating Evidence Into Action. Health Affairs 20, 6 (2001), 64--78.Google ScholarCross Ref
- Heinrich Worth. 1997. Self management in COPD: One step beyond? Patient Education and Counseling 32, Supplement 1, 0 (1997), S105 -- S109.Google ScholarCross Ref
- Ewa Wressle, Christina Engstrand, and Ann-Kathrine Gran´ erus. 2007. Living with Parkinson's disease: Elderly patients' and relatives' perspective on daily living. Australian Occupational Therapy Journal 54, 2 (2007), 131--139.Google ScholarCross Ref
Index Terms
- Understanding the Mundane Nature of Self-care: Ethnographic Accounts of People Living with Parkinson's
Recommendations
Designing self-care for everyday life
NordiCHI '14: Proceedings of the 8th Nordic Conference on Human-Computer Interaction: Fun, Fast, FoundationalManaging chronic conditions can be challenging. People in such conditions, and the people around them, have to: deal with symptoms, adapt to the resulting disability, manage emotions, and change habits to keep the condition under control. Self-care ...
Self-Care Technologies in HCI: Trends, Tensions, and Opportunities
Many studies show that self-care technologies can support patients with chronic conditions and their carers in understanding the ill body and increasing control of their condition. However, many of these studies have largely privileged a medical ...
Designing Self-care Technologies for Everyday Life: A Practice Approach
CHI EA '15: Proceedings of the 33rd Annual ACM Conference Extended Abstracts on Human Factors in Computing SystemsThe number of self-care technologies in HCI is growing; too often though, these are medically-oriented, failing to integrate in everyday life. In this study I focus on the self-care of Parkinson's using a practice lens. Understanding everyday practices ...
Comments