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The value of a medical registry strongly depends on the quality of the data contained in the registry. The first objective of this study was to develop a model for measuring and quantifying data quality in medical registries. In addition, we developed a framework of procedures for the organisation of high quality data collection in medical registries. This framework can be used to identify points in the organisation of data collection that need to be adjusted in order to improve data quality. The quality measurement model and the quality assurance framework have been used for analysis of data quality and data collection procedures in the National Intensive Care Evaluation (NICE) registry.
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