Abstract
People are turning increasingly to the Internet to find support and share their experience and feelings when they are undergoing hardships such as medical problems. The aim of our ongoing research project is to design innovative online social support services. In order to pave the way for this complex undertaking, several interdisciplinary studies were conducted in this framework: discourse analysis was carried out on online discussions focusing on social support, observers attended support group meetings attended by family caregivers, and interviews were conducted with these caregivers. The application of our findings to our design project is discussed.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Notes
- 1.
Nielsen Net Ratings – Doctissimo – http://www.doctissimo.fr
- 2.
The complete results, the list of websites analysed and the data set on which this study was based are available at the following URL: http://www.orkidees.com/missWiki.See also [18] for detailed results and analysis.
- 3.
It is worth noting that treatment for Alzheimer’s disease only recently became available.
References
IFOP 2008 Etude nationale « Connaître les aidants et leurs attentes », http://www.aveclesaidants.fr/index.php?rub=alaune&ssrub=enbref&lid=522#contenu
PIXEL Novartis 2000 Etude PIXEL - L’entourage familial des patients atteints de la maladie d’Alzheimer, http://www.mediathequenovartis.fr/novartis/spip.php?article107
Pillemer, K., Suitor, J.J.: Peer Support for Alzheimer’s Caregivers: Is it Enough to Make a Difference? Research on Aging. 24(2), 171–192 (2002)
Salem, D.A., Bogat, G.A., Reid, C.: Mutual help goes online. Journal of Community Psychology. 25(2), 189–207 (1998)
Barnes, M.K., Duck, S.: Everyday communicative contexts for social support. In: Burleson, B., Albrecht, T., Sarason, I.G. (eds) Communication of social support: Messages, interactions, relationships and community, pp. 175–194, Sage, Thousand Oaks, CA (1994)
Caplan, S.E., Turner, J.S.: Bringing theory to research on computer-mediated comforting communication. Computers in Human Behavior. 23, 985–998 (2007)
Feng, J., Lazar, J., Preece, J.: Interpersonal Trust and Empathy Online: A Fragile Relationship. Behaviour and Information Technology. 23, 97–106 (2004)
Dunham, P.J., Hurshman, A., Litwin, E., Gusella, J., Ellsworth, C., Dodd, P.W.D.: Computer-Mediated Social Support: Single Young Mothers as a Model System. American Journal of Community Psychology. 26(2), 281–306 (1998)
Van Dama, H., Van Der Horsta, F.G., Knoopsb, L., Ryckmanc, R.M., Creboldera, H.: Social support in diabetes: A systematic review of controlled intervention studies. Patient Education and Counseling. 59, 1–12 (2005)
Gustafson, D.H., Hawkins, R.P., Boberg, E.W., McTavish, F., Owens, B., Wise, M., Berhe, H., Pingree, S.: CHESS: 10 years of research and development in consumer health informatics for broad populations. International Journal of Medical Informatics. 65, 169–177 (2002)
White, M., Dorman, S.M.: Receiving Social Support Online: implications for health education. Health Education Research -Theory & Practice. 16(6), 693–707 (2001)
Davison, K.P., Pennebaker, J.W., Dickerson, S.S.: Who talks? The social psychology of illness support groups. American Psychologist. 55, 205–217 (2000)
Coulson, N.S.: Receiving Social Support Online: An Analysis of a Computer-Mediated Support Group for Individuals Living with Irritable Bowel Syndrome. Cyberpsychology & Behavior. 8(6), 580–584 (2005)
Klaw, E., Dearmin-Huebsch, P., Humphreys, K.: Communication patterns in an on-line mutual help group for problem drinkers. Journal of Community Psychology. 28(5), 535–546 (2000)
Pfeil, U., Zaphiris, P.: Patterns of empathy in online communication. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, pp. 919–928. ACM Press, New York (2007)
Cheng, L., Stone, L., Farnham, S., Clark, A.M., Zaner, M.: HutchWorld: Lessons Learned A Collaborative Project: Fred Hutchsinson Cancer Research Center & Microsoft Research. In: Proceedings of Virtual Worlds, Second International Conference. LNCS, vol. 1834/2000, pp. 12–23. Springer, Berlin/Heidelberg (2000)
Leimeister J.M., Krcmar, H.: Acceptance and Utility of a Systematically Designed Virtual Community for Cancer Patients. In: Proceedings of the Second Communities and Technologies Conference, pp. 129–149. Springer, The Netherlands (2005)
Tixier, M., Lewkowicz, M.: Designing Social Support Online Services for Communities of Family Caregivers. In: W. Abramowicz and D. Flejter (eds.) BIS Workshop, LNBIP, vol. 37, pp. 336–347. Springer, Heidelberg (2009)
Gauducheau, N., Marcoccia, M.: Le soutien social dans les forums de discussion Internet: réalisations interactionnelles et contrats de communication, In: Castel, P., Lacassagne, M.-F., Salès-Wuillement, E. (eds.) Psychologie sociale de la communication. De Boeck Editions, Bruxelles (To be published)
Herring, S.C.: Computer-Mediated Discourse Analysis: An Approach to Researching Online Communities. In: Barab, S.A., Kling, R., Gray J.H. (eds.) Designing for Virtual Communities in the Service of Learning, pp. 338–376. Cambridge University Press, Cambridge (2004)
Goldsmith, D.: Communicating social support. Cambridge University Press, Cambridge (2004)
Knoll, L., Burkert, S., Schwarzer, R.: Reciprocal support provision: Personality as a moderator? European Journal of Personality. 20(3), 217–236 (2006)
Atifi, H., Gaglio, G.: L’entraide numérique en mots: le cas du forum « aide » des « Marocains d’ailleurs ». In: Actes du XVIII congrès de l’AISLF, pp. 344–351 (2008)
Tixier, M., Gaglio, G., Lewkowicz, M.: Translating social support practices into online services for family caregivers. In: Proceedings of the International ACM SIGGROUP Conference on Supporting Group Work, pp. 71–81. ACM Press, New York (2009)
Erickson, T.: Notes on Design Practice: Stories and Prototypes as Catalysts for Communication. In: J. Carroll (ed.) Scenario-Based Design: Envisioning Work and Technology in System Development, pp. 37–58. Wiley, New York (1995)
Acknowledgments
This research was conducted with the support of Conseil Général de l’Aube in the framework of a UTT strategic research program.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2010 Springer London
About this paper
Cite this paper
Tixier, M. et al. (2010). Practices Analysis and Digital Platform Design: An Interdisciplinary Study of Social Support. In: Lewkowicz, M., Hassanaly, P., Wulf, V., Rohde, M. (eds) Proceedings of COOP 2010. Springer, London. https://doi.org/10.1007/978-1-84996-211-7_17
Download citation
DOI: https://doi.org/10.1007/978-1-84996-211-7_17
Published:
Publisher Name: Springer, London
Print ISBN: 978-1-84996-210-0
Online ISBN: 978-1-84996-211-7
eBook Packages: Computer ScienceComputer Science (R0)