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Turning Points: Motivating Intergenerational Families to Engage on Sustainable Health Information Sharing

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Information in Contemporary Society (iConference 2019)

Abstract

Family relationships present a space for provision of support in which the members reciprocate and help one another at times of necessity. Yet, family members face obstacles in providing support to one another because they are unaware that it is needed. In this study, we investigated different motivating factors that influence family member’s decision to share (or not share) health information. We conducted focus group discussions with independent living elderly parents (n = 16) and adult children (n = 21). We learned that the change of family member’s sharing behaviors was often due to a disruptive moment which we refer to here as “turning point.” Based on the concept of “turning points”, we discuss how those moments could promote sustainable health information sharing within families and are useful tools for designing technology to support family collaboration on health.

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References

  1. Bawden, D., Robinson, L.: The dark side of information: overload, anxiety and other paradoxes and pathologies. J. Inf. Sci. 35(2), 180–191 (2009)

    Article  Google Scholar 

  2. Bentley, F.R., Basapur, S., Chowdhury, S.K.: Promoting intergenerational communication through location-based asynchronous video communication. In: Proceedings of the 13th International Conference on Ubiquitous Computing, UbiComp 2011, pp. 31–40. ACM, New York (2011). https://doi.org/10.1145/2030112.2030117

  3. Binda, J., Georgiva, E., Yang, Y., Gui, F., Beck, J., Carroll, J.M.: Phamilyhealth: a photo sharing system for intergenerational family collaboration on health. In: Proceedings of the Companion of the 2018 ACM Conference on Computer Supported Cooperative Work and Social Computing. CSCW 2018 Companion. ACM, New York (2018). https://doi.org/10.1145/3272973.3274091

  4. Binda, J., Park, H., Carroll, J.M., Cope, N., Yuan, C.W.T., Choe, E.K.: Intergenerational sharing of health data among family members. In: Proceedings of the 11th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2017, pp. 468–471. ACM, New York (2017). https://doi.org/10.1145/3154862.3154895

  5. Binda, J., Yuan, C.W., Cope, N., Park, H., Choe, E.K., Carroll, J.M.: Supporting effective sharing of health information among intergenerational family members. In: Proceedings of the 12th EAI International Conference on Pervasive Computing Technologies for Healthcare. PervasiveHealth 2018. ACM, New York (2018). https://doi.org/10.1145/3240925.3240936

  6. Braun, V., Clarke, V.: Using thematic analysis in psychology. Qual. Res. Psychol. 3(2), 77–101 (2006)

    Article  Google Scholar 

  7. Center, P.R.: Pew research center - family support in graying societies, January 2013. http://www.pewsocialtrends.org/2015/05/21/family-support-in-graying-societies/

  8. Colineau, N., Paris, C., Marendy, P., Bhandari, D., Shu, Y.: Supporting family engagement in weight management. In: CHI 2009 Extended Abstracts on Human Factors in Computing Systems, CHI EA 2009, pp. 3991–3996. ACM, New York (2009). https://doi.org/10.1145/1520340.1520606

  9. Consolvo, S., Klasnja, P., McDonald, D.W., Landay, J.A.: Designing for healthy lifestyles: design considerations for mobile technologies to encourage consumer health and wellness. Found. Trends Hum.-Comput. Inter. 6(3–4), 167–315 (2014). https://doi.org/10.1561/1100000040

    Article  Google Scholar 

  10. Creswell, J.W.: Qualitative Inquiry & Research Design Choosing Among Five Approaches. Thousand Oaks, CA (2007)

    Google Scholar 

  11. Eschler, J., et al.: Shared calendars for home health management. In: Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & #38; Social Computing, CSCW 2015, pp. 1277–1288. ACM, New York (2015). https://doi.org/10.1145/2675133.2675168

  12. Glanz, K., Rimer, B.K., Viswanath, K.: Health Behavior and Health Education: Theory, Research, and Practice. John Wiley & Sons, San Francisco (2008)

    Google Scholar 

  13. Gutierrez, F.J., Ochoa, S.F.: It takes at least two to tango: understanding the cooperative nature of elderly caregiving in Latin America. In: Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing, CSCW 2017, pp. 1618–1630. ACM, New York (2017). https://doi.org/10.1145/2998181.2998314

  14. Gutierrez, F.J., Ochoa, S.F., Vassileva, J.: Identifying opportunities to support family caregiving in chile. In: Proceedings of the 2016 CHI Conference Extended Abstracts on Human Factors in Computing Systems, CHI EA 2016, pp. 2112–2118. ACM, New York (2016). https://doi.org/10.1145/2851581.2892386

  15. Janssen, R., de Poot, H.: Information overload: Why some people seem to suffer more than others. In: Proceedings of the 4th Nordic Conference on Human-computer Interaction: Changing Roles. pp. 397–400. NordiCHI ’06, ACM, New York, NY, USA (2006). https://doi.org/10.1145/1182475.1182521

  16. Judge, T.K., Neustaedter, C., Harrison, S., Blose, A.: Family portals: connecting families through a multifamily media space. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, CHI 2011, pp. 1205–1214. ACM, New York (2011). https://doi.org/10.1145/1978942.1979122

  17. Katule, N., Rivett, U., Densmore, M.: A family health app: engaging children to manage wellness of adults. In: Proceedings of the 7th Annual Symposium on Computing for Development, ACM DEV ’16, pp. 7:1–7:10. ACM, New York (2016). https://doi.org/10.1145/3001913.3001920

  18. Kaziunas, E., Ackerman, M.S., Lindtner, S., Lee, J.M.: Caring through data: attending to the social and emotional experiences of health datafication. In: Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing, CSCW 2017, pp. 2260–2272. ACM, New York (2017). https://doi.org/10.1145/2998181.2998303

  19. Kim, H., Monk, A.: Emotions experienced by families living at a distance. In: CHI 2010 Extended Abstracts on Human Factors in Computing Systems, CHI EA 2010, pp. 2923–2926. ACM, New York (2010). https://doi.org/10.1145/1753846.1753886

  20. Klasnja, P., Consolvo, S., Pratt, W.: How to evaluate technologies for health behavior change in HCI research. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, CHI 2011, pp. 3063–3072. ACM, New York (2011). https://doi.org/10.1145/1978942.1979396

  21. Kocielnik, R., Hsieh, G.: Send me a different message: utilizing cognitive space to create engaging message triggers. In: Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing, CSCW 2017, pp. 2193–2207. ACM, New York (2017). https://doi.org/10.1145/2998181.2998324

  22. Krueger, R.A., Casey, M.A.: Focus Groups: A Practical Guide for Applied Research. Sage Publications, Thousand Oaks (2014)

    Google Scholar 

  23. Muñoz, D., Cornejo, R., Gutierrez, F.J., Favela, J., Ochoa, S.F., Tentori, M.: A social cloud-based tool to deal with time and media mismatch of intergenerational family communication. Future Gener. Comput. Syst. 53, 140–151 (2015)

    Article  Google Scholar 

  24. Pan, R., Forghani, A., Neustaedter, C., Strauss, N., Guindon, A.: The family board: an information sharing system for family members. In: Proceedings of the 18th ACM Conference Companion on Computer Supported Cooperative Work & #38; Social Computing, CSCW 2015 Companion, pp. 207–210. ACM, New York (2015). https://doi.org/10.1145/2685553.2699008

  25. Pang, C.E., Neustaedter, C., Riecke, B.E., Oduor, E., Hillman, S.: Technology preferences and routines for sharing health information during the treatment of a chronic illness. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, CHI 2013, pp. 1759–1768. ACM, New York (2013). https://doi.org/10.1145/2470654.2466232

  26. Santana, P.C., Rodríguez, M.D., González, V.M., Castro, L.A., Andrade, A.G.: Supporting emotional ties among mexican elders and their families living abroad. In: CHI 2005 Extended Abstracts on Human Factors in Computing Systems, CHI EA 2005, pp. 2099–2103. ACM, New York (2005). https://doi.org/10.1145/1056808.1057107

  27. Schaefbauer, C.L., Khan, D.U., Le, A., Sczechowski, G., Siek, K.A.: Snack buddy: supporting healthy snacking in low socioeconomic status families. In: Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & #38; Social Computing, CSCW 2015, pp. 1045–1057. ACM, New York (2015). https://doi.org/10.1145/2675133.2675180

  28. Stuifbergen, M.C., Van Delden, J.J., Dykstra, P.A.: The implications of today’s family structures for support giving to older parents. Ageing Soc. 28(3), 413–434 (2008)

    Article  Google Scholar 

  29. Sun, R.: Intergenerational age gaps and a family member’s well-being: a family systems approach. J. Intergenerational Relat. 14(4), 320–337 (2016)

    Article  Google Scholar 

  30. Tee, K., Brush, A.B., Inkpen, K.M.: Exploring communication and sharing between extended families. Int. J. Hum.-Comput. Stud. 67(2), 128–138 (2009)

    Article  Google Scholar 

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Correspondence to Jomara Sandbulte , Jordan Beck , Eun Kyoung Choe or John M. Carroll .

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Sandbulte, J., Beck, J., Choe, E.K., Carroll, J.M. (2019). Turning Points: Motivating Intergenerational Families to Engage on Sustainable Health Information Sharing. In: Taylor, N., Christian-Lamb, C., Martin, M., Nardi, B. (eds) Information in Contemporary Society. iConference 2019. Lecture Notes in Computer Science(), vol 11420. Springer, Cham. https://doi.org/10.1007/978-3-030-15742-5_70

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  • DOI: https://doi.org/10.1007/978-3-030-15742-5_70

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