Abstract
Surveillance has been defined as the continual scrutiny of all aspects in emerging and the spread of a disease that is pertinent to effective control, involving a systematic collection, analysis, interpretation, and dissemination of health data. Given their fragmentation several problems inherent to data must be recognized. This paper aims to provide an overview of European Public Health Surveillance Systems emphasizing their structure and main challenges. The HIV-AIDS surveillance is overview as a particular case.
The most common issues are unrepresentativeness, changes in the implementation through time, inconsistent use of case definitions, miss diagnoses, miss or fail to report a case, reporting delay, and errors during completion of the form or data entry. The HIV - AIDS surveillance is one of the most complex mainly due to the special epidemiology of the disease surrounding the transmission modes and the lack of treatment and all the socio-ecological framework involved.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Choffnes, E., Sparling, P., Hamburg, M., Lemon, S., Mack, A., et al.: Global Infectious Disease Surveillance and Detection: Assessing the Challenges-Finding Solutions, Workshop Summary. National Academies Press, Washington, DC (2007)
Teutsch, S., Churchill, R.: Principles and Practice of Public Health Surveillance. Oxford University Press, Oxford (2000)
European Centre for Disease Prevention and Control: Data quality monitoring and surveillance system evaluation. ECDC, Stockholm (2014)
Jajosky, R., Groseclose, S.: Evaluation of reporting timeliness of public health surveillance systems for infectious diseases. BMC Public Health 4, 29 (2004)
Doyle, T., Glynn, M., Groseclose, S.: Completeness of notifiable infectious disease reporting in the United States: an analytical literature review. Am. J. Epidemiol. 155, 866–874 (2002)
Chen, H., Hailey, D., Wang, N., Yu, P.: A review of data quality assessment methods for public health information systems. Int. J. Environ. Res. Public Health 11, 5170–5207 (2014)
Waller, L., Gotway, C.: Applied Spatial Statistics for Public Health Data. Wiley, Hoboken (2004)
Karr, A., Sanil, A., Banks, D.: Data quality: a statistical perspective. Stat. Methodol. 3, 137–173 (2006)
Centre for Disease Prevention and Control and others: Principles of epidemiology in public health practice: an introduction to applied epidemiology and biostatistics (2006)
European Centre for Disease Prevention and Control: Policy on data submission, access, and use of data within TESSy - 2015 revision. ECDC, Stockholm (2015)
European Centre for Disease Prevention and Control: Indicator-based surveillance. http://ecdc.europa.eu/en/activities/surveillance/Pages/index.aspx
MacDonald, P.: Methods in Field Epidemiology. Jones & Bartlett Learning, Burlington (2011)
Gibbons, C., Mangen, M., Plass, D., Havelaar, A., Brooke, R., Kramarz, P., Peterson, K., Stuurman, A., Cassini, A., Fevre, E., Kretzschmar, M.: Measuring underreporting and under-ascertainment in infectious disease datasets: a comparison of methods. BMC Public Health 14, 1–17 (2014)
Medicine, I., Prevention, B., Evaluation, P., Allocation, C.: Measuring What Matters: Allocation, Planning, and Quality Assessment for the Ryan White CARE Act. National Academies Press, Washington DC (2004)
Marinovic, A., Swaan, C., van Steenbergen, J., Kretzschmar, M.: Quantifying reporting timeliness to improve outbreak control. Emerg. Infect. Dis. 21, 209–216 (2015)
Reijn, E., Swaan, C., Kretzschmar, M., van Steenbergen, J.: Analysis of timeliness of infectious disease reporting in the Netherlands. BMC Public Health 11, 409 (2011)
Mauch, S.: Situational Assessment of the HIV/AIDS Notification System - A Portuguese Experience. National Coordination For HIV Infection (2009)
Pagano, M., Tu, X., De Gruttola, V., MaWhinney, S.: Regression analysis of censored and truncated data: estimating reporting-delay distributions and AIDS incidence from surveillance data. Biometrics 50, 1203–1214 (1994)
Gliklich, R., Dreyer, N., Leavy, M.: Registries for Evaluating Patient Outcomes: A User’s Guide [Internet], 3rd edn. Data Collection and Quality Assurance, 11 April 2014. https://www.ncbi.nlm.nih.gov/books/NBK208601/
Anthamatten, P., Hazen, H.: An Introduction to the Geography of Health. Routledge, London (2012)
Trick, W.: Decision making during healthcare-associated infection surveillance: a rationale for automation. Clin. Infect. Dis. 57, 434 (2013)
World Health Organization and others: WHO report on global surveillance of epidemic-prone infectious diseases (2000)
Walker, N., Garcia-Calleja, J., Heaton, L., Asamoah-Odei, E., Poumerol, G., Lazzari, S., Ghys, P., Schwartlander, B., Stanecki, K.: Epidemiological analysis of the quality of HIV sero-surveillance in the world: how well do we track the epidemic? AIDS 15, 1545–1554 (2001)
Platt, L., Jolley, E., Hope, V., Latypov, A., Vickerman, P., Hickson, F., Reynolds, L., Rhodes, T.: HIV epidemics in the European region: vulnerability and response. Directions in Development, International Bank for Reconstruction and Development/The World Bank (2015)
Rosinska, M., Pantazis, N., Janiec, J., Pharris, A., Amato-Gauci, A., Quinten, C., Network, E.H.S.: Missing data and reporting delay in the European HIV Surveillance System: exploration of potential adjustment methodology (2017)
European Centre for Disease Prevention and Control, C.R.O.: HIV/AIDS surveillance in Europe 2015. ECDC, Stockholm (2016)
EuroHIV: Report on the EuroHIV 2006 survey on HIV and AIDS surveillance in the WHO European Region. Institut de veille sanitaire, Saint-Maurice (2007)
European Centre for Disease Prevention and Control: HIV testing in Europe. Evaluation of the impact of the ECDC guidance on HIV testing: increasing uptake and effectiveness in the European Union. ECDC, Stockholm (2016)
Stoto, M.: Syndromic surveillance in public health practice. In: Institute of Medicine (ed.) Infectious Disease Surveillance and Detection (Workshop Report), pp. 63–72 (2007)
Acknowledgements
Luís Paulo Reis and Alexandra Oliveira were partially founded by the European Regional Development Fund through the programme COMPETE by FCT (Portugal) in the scope of the project PEst-UID/CEC/ 00027/2015 and QVida+: Estimação Contínua de Qualidade de Vida para Auxílio Eficaz à Decisão Clínica, NORTE010247FEDER003446, supported by Norte Portugal Regional Operational Programme (NORTE 2020), under the PORTUGAL 2020 Partnership Agreement. Rita Gaio was partially supported by CMUP (UID/MAT/00144/2019), which is funded by FCT with national (MCTES) and European structural funds through the programs FEDER, under the partnership agreement PT2020.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2019 Springer Nature Switzerland AG
About this paper
Cite this paper
Oliveira, A., Reis, L.P., Gaio, R. (2019). The Challenges of European Public Health Surveillance Systems - An Overview of the HIV-AIDS Surveillance. In: Rocha, Á., Adeli, H., Reis, L., Costanzo, S. (eds) New Knowledge in Information Systems and Technologies. WorldCIST'19 2019. Advances in Intelligent Systems and Computing, vol 932. Springer, Cham. https://doi.org/10.1007/978-3-030-16187-3_50
Download citation
DOI: https://doi.org/10.1007/978-3-030-16187-3_50
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-030-16186-6
Online ISBN: 978-3-030-16187-3
eBook Packages: Intelligent Technologies and RoboticsIntelligent Technologies and Robotics (R0)