Skip to main content
Springer Nature Link
Log in

Digital Resources Aiding Opportunities for Affiliation and Practical Reasoning Among People with Dementia: A Scoping Review

  • Conference paper
  • First Online:
Body Area Networks: Smart IoT and Big Data for Intelligent Health Management (BODYNETS 2019)

Included in the following conference series:

  • 1054 Accesses

Abstract

Persons with dementia face several challenges in daily life and the consequences of the disease can be a threat to live a dignified life. Martha Nussbaum has developed the concept of dignified life for people with dementia and suggests the capability approach focusing on what people are able to do and to be in certain agreed-upon areas. Particularly, affiliation and practical reasoning are crucial to preserve a dignified life. For people with dementia the consequences of the disease may affect their opportunities to achieve these vital human capabilities. Digital resources have been shown to have potential to support people in their everyday life and provide them with the means necessary to participate in all aspects of life. In this study, our purpose is to describe digital resources aimed at supporting opportunities for affiliation and practical reasoning among people with dementia. Specifically, we wanted to give an overview of the existing digital resources used to support affiliation and practical reasoning and how such resources affect opportunities for people with dementia. A framework for scoping reviews was used and literature searches were conducted in PubMed and Scopus. The results, by providing a deep analysis of digital resources for affiliation and practical reasoning, highlight the need for a clearer direction towards the very core of vital aspects in a dignified life. Hence, there is a need for a framework that can guide attention towards crucial aspects for supporting a dignified life when developing and evaluating digital resources.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Log in via an institution

Subscribe and save

Springer+ Basic
$34.99 /Month
  • Get 10 units per month
  • Download Article/Chapter or eBook
  • 1 Unit = 1 Article or 1 Chapter
  • Cancel anytime
Subscribe now

Buy Now

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Similar content being viewed by others

References

  1. World Health Organization: Dementia (2019). https://www.who.int/news-room/fact-sheets/detail/dementia. Accessed 8 June

  2. Ferri, C.P., et al.: Global prevalence of dementia: a Delphi consensus study. Lancet 366(9503), 2112–2117 (2005). https://doi.org/10.1016/s0140-6736(05)67889-0

    Article  Google Scholar 

  3. Zwaanswijk, M., Peeters, J.M., van Beek, A.P.A., Francke, A.L., Meerveld, J.C.H.M.: Informal caregivers of people with dementia: problems, needs and support in the initial stage and in subsequent stages of dementia: a questionnaire survey. Open Nurs. J. 7(1), 6–13 (2013). https://doi.org/10.2174/1874434601307010006

    Article  Google Scholar 

  4. Kitwood, T.: The experience of dementia. Aging Ment. Health 1(1), 13–22 (1997). http://search.ebscohost.com.proxy.lib.ltu.se/login.aspx?direct=true&db=c8h&AN=107259597&lang=sv&site=eds-live&scope=site. Accessed 8 June 2019

  5. Toombs, S.K.: The Meaning of Illness: A Phenomenological Account of the Different Perspectives of Physician and Patient. Kluwer Academic, Dordrecht (1993)

    Google Scholar 

  6. Tranvåg, O., Petersen, K.A., Nåden, D.: Dignity-preserving dementia care: a metasynthesis. Nurs. Ethics 20(8), 861–880 (2013). https://doi.org/10.1177/0969733013485110

    Article  Google Scholar 

  7. Melander, C., Sävenstedt, S., Wälivaara, B.-M., Olsson, M.: Human capabilities in advanced dementia: Nussbaum’s approach. Int. J. Older People Nurs. 13(2), e12178 (2018). https://doi.org/10.1111/opn.12178

    Article  Google Scholar 

  8. Nussbaum, M.: The capabilities of people with cognitive disabilities. Metaphilosophy 40(3–4), 331–351 (2009). https://doi.org/10.1111/j.1467-9973.2009.01606.x

    Article  Google Scholar 

  9. Livingston, G., et al.: Making decisions for people with dementia who lack capacity: qualitative study of family carers in UK. BMJ (Clin. Res. Ed.) 341, c4184 (2010). https://doi.org/10.1136/bmj.c4184

    Article  Google Scholar 

  10. Cohen-Mansfield, J., Dakheel-Ali, M., Marx, M.S., Thein, K., Regier, N.G.: Which unmet needs contribute to behavior problems in persons with advanced dementia? Psychiatry Res. 228(1), 59–64 (2015). https://doi.org/10.1016/j.psychres.2015.03.043

    Article  Google Scholar 

  11. Martin, G.W., Younger, D.: Anti oppressive practice: a route to the empowerment of people with dementia through communication and choice. J. Psychiatric Ment. Health Nurs. 7(1), 59–67 (2000). http://search.ebscohost.com/login.aspx?direct=true&db=cmedm&AN=11022512&lang=sv&site=eds-live&scope=site. Accessed 8 June 2019

  12. Nordenfelt, L.: Dignity and the care of the elderly. Med. Health Care Philos. 6(2), 103–110 (2003). https://doi.org/10.1023/a:1024110810373

    Article  Google Scholar 

  13. Nussbaum, M.: Creating Capabilities: The Human Development Approach. Harvard University Press, Cambridge (2011)

    Book  Google Scholar 

  14. Eggers, T., Norberg, A., Ekman, S.: Counteracting fragmentation in the care of people with moderate and severe dementia. Clin. Nurs. Res. 14(4), 343–369 (2005). https://doi.org/10.1177/1054773805277957

    Article  Google Scholar 

  15. Bennett, B., et al.: Assistive technologies for people with dementia: Ethical considerations. Bull. World Health Organ. 95(11), 749–755 (2017). https://doi.org/10.2471/blt.16.187484

    Article  Google Scholar 

  16. Martínez-Alcalá, C.I., Pliego-Pastrana, P., Rosales-Lagarde, A., Lopez-Noguerola, J.S., Molina-Trinidad, E.M.: Information and communication technologies in the care of the elderly: systematic review of applications aimed at patients with dementia and caregivers. JMIR Rehabil. Assist. Technol. 3(1), e6 (2016). https://doi.org/10.2196/rehab.5226

    Article  Google Scholar 

  17. Ienca, M., et al.: Intelligent assistive technology for Alzheimer’s disease and other dementias: a systematic review. J. Alzheimer’s Dis. 56(4), 1301–1340 (2017). https://doi.org/10.3233/jad-161037

    Article  Google Scholar 

  18. Sharkey, A.: Robots and human dignity: a consideration of the effects of robot care on the dignity of older people. Ethics Inform. Technol. 16, 63–75 (2014). https://doi.org/10.1007/s10676-018-9494-0

    Article  Google Scholar 

  19. Arksey, H., O’Malley, L.: Scoping studies: Towards a methodological framework. Int. J. Soc. Res. Methodol. 8(1), 19–32 (2005). https://doi.org/10.1080/1364557032000119616

    Article  Google Scholar 

  20. Preuß, D., Legal, F.: Living with the animals: animal or robotic companions for the elderly in smart homes? J. Med. Ethics 43(6), 407–410 (2017). https://doi.org/10.1136/medethics-2016-103603

    Article  Google Scholar 

  21. Birks, M., Bodak, M., Barlas, J., Harwood, J., Pether, M.: Robotic seals as therapeutic tools in an aged care facility: a qualitative study. J. Aging Res. 1–7 (2016). https://doi.org/10.1155/2016/8569602

    Article  Google Scholar 

  22. Joranson, N., Pedersen, I., Rokstad, A.M.M., Aamodt, G., Olsen, C., Ihlebaek, C.: Group activity with Paro in nursing homes: systematic investigation of behaviors in participants. Int. Psychogeriatr. 28(8), 1345–1354 (2016). https://doi.org/10.1017/s1041610216000120

    Article  Google Scholar 

  23. Moyle, W., et al.: Use of a robotic seal as a therapeutic tool to improve dementia symptoms: a cluster-randomized controlled trial. J. Am. Med. Direct. Assoc. 18(9), 766–773 (2017). https://doi.org/10.1016/j.jamda.2017.03.018

    Article  Google Scholar 

  24. Blackman, S., et al.: Ambient assisted living technologies for aging well: a scoping review. J. Intell. Syst. 25(1), 55–69 (2016). https://doi.org/10.1515/jisys-2014-0136

    Article  Google Scholar 

  25. Moyle, W., Jones, C., Cooke, M., O’Dwyer, S., Sung, B., Drummond, S.: Connecting the person with dementia and family: a feasibility study of a telepresence robot. BMC Geriatr. 14, 7 (2014). https://doi.org/10.1186/1471-2318-14-7

    Article  Google Scholar 

  26. Wang, R.H., Mihailidis, A., Sudhama, A., Begum, M., Huq, R.: Robots to assist daily activities: views of older adults with Alzheimer’s disease and their caregivers. Int. Psychogeriatr. 29(1), 67–79 (2017). https://doi.org/10.1017/s1041610216001435

    Article  Google Scholar 

  27. Chu, M.-T., Khosla, R., Khaksar, S.M.S., Nguyen, K.: Service innovation through social robot engagement to improve dementia care quality. Assist. Technol. 29(1), 8–18 (2017). https://doi.org/10.1080/10400435.2016.1171807

    Article  Google Scholar 

  28. Khosla, R., Nguyen, K., Chu, M.-T.: Human robot engagement and acceptability in residential aged care. Int. J. Hum.-Comput. Interact. 33(6), 510–522 (2017). https://doi.org/10.1080/10447318.2016.1275435

    Article  Google Scholar 

  29. Hebesberger, D., Koertner, T., Gisinger, C., Pripfl, J.: A long-term autonomous robot at a care hospital: a mixed methods study on social acceptance and experiences of staff and older adults. Int. J. Soc. Robot. 9(3), 417–429 (2017). https://doi.org/10.1007/s12369-016-0391-6

    Article  Google Scholar 

  30. Holthe, T., Halvorsrud, L., Karterud, D., Hoel, K.-A., Lund, A.: Usability and acceptability of technology for community-dwelling older adults with mild cognitive impairment and dementia: a systematic literature review. Clin. Intervent. Aging 13, 863–886 (2018). https://doi.org/10.2147/cia.s154717

    Article  Google Scholar 

  31. Purves, B.A., Phinney, A., Hulko, W., Puurveen, G., Astell, A.J.: Developing CIRCA-BC and exploring the role of the computer as a third participant in conversation. Am. J. Alzheimer’s Dis. Other Dement. 30(1), 101–107 (2015). https://doi.org/10.1177/1533317514539031

    Article  Google Scholar 

  32. Karlsson, E., Zingmark, K., Axelsson, K., Sävenstedt, S.: Aspects of self and identity in narrations about recent events communication with individuals with Alzheimer’s disease enabled by a digital photograph diary. J. Gerontol. Nurs. 43(6), 25–31 (2017). https://doi.org/10.3928/00989134-20170126-02

    Article  Google Scholar 

  33. Subramaniam, P., Woods, B.: Digital life storybooks for people with dementia living in care homes: an evaluation. Clin. Intervent. Aging 11, 1263–1276 (2016). https://doi.org/10.2147/cia.s111097

    Article  Google Scholar 

  34. Samuelsson, C., Ekström, A.: Digital communication support in interaction involving people with dementia. Logop. Phoniatr. Vocol. 44(1), 41–50 (2019). https://doi.org/10.1080/14015439.2019.1554856

    Article  Google Scholar 

  35. Davis, B.H., Shenk, D.: Beyond reminiscence: using generic video to elicit conversational language. Am. J. Alzheimers Dis. Other Dement. 30(1), 61–68 (2015). https://doi.org/10.1177/1533317514534759

    Article  Google Scholar 

  36. Lorenz, K., Freddolino, P.P., Comas-Herrera, A., Knapp, M., Damant, J.: Technology-based tools and services for people with dementia and carers: mapping technology onto the dementia care pathway. Dement. Int. J. Soc. Res. Pract. 18(2), 725–741 (2019). https://doi.org/10.1177/1471301217691617

    Article  Google Scholar 

  37. Garlinghouse, A., et al.: Creating objects with 3D printers to stimulate reminiscence in memory loss: a mixed-method feasibility study. Inform. Health Soc. Care 43(4), 362–378 (2018). https://doi.org/10.1080/17538157.2017.1290640

    Article  Google Scholar 

  38. Al-Shaiq, R., Mourshed, M., Rezgui, Y.: Progress in ambient assisted systems for independent living by the elderly. SpringerPlus 5(1), 624 (2016). https://doi.org/10.1186/s40064-016-2272-8

    Article  Google Scholar 

  39. Ekström, A., Ferm, U., Samuelsson, C.: Digital communication support and Alzheimer’s disease. Dement. Int. J. Soc. Res. Pract. 16(6), 711–731 (2017). https://doi.org/10.1177/1471301215615456

    Article  Google Scholar 

  40. Cutler, C., Hicks, B., Innes, A.: Does digital gaming enable healthy aging for community-dwelling people with dementia? Games Cult. 11(1–2), 104–129 (2016). https://doi.org/10.1177/1555412015600580

    Article  Google Scholar 

  41. Evans, S.B., Bray, J., Evans, S.C.: The iPad project: introducing iPads into care homes in the UK to support digital inclusion. Gerontechnology 16(2), 91–100 (2017). https://doi.org/10.4017/gt.2017.16.2.004.00

    Article  Google Scholar 

  42. Tyack, C., Camic, P.M.: Touchscreen interventions and the well-being of people with dementia and caregivers: a systematic review. Int. Psychogeriatr. 29(8), 1261–1280 (2017). https://doi.org/10.1017/s1041610217000667

    Article  Google Scholar 

  43. Swan, J., et al.: Meaningful occupation with iPads: experiences of residents and staff in an older person’s mental health setting. Br. J. Occup. Ther. 81(11), 649–656 (2018). https://doi.org/10.1177/0308022618767620

    Article  Google Scholar 

  44. Djabelkhir, L., et al.: Computerized cognitive stimulation and engagement programs in older adults with mild cognitive impairment: comparing feasibility, acceptability, and cognitive and psychosocial effects. Clin. Intervent. Aging 12, 1967–1975 (2017). https://doi.org/10.2147/cia.s145769

    Article  Google Scholar 

  45. Nauha, L., Keränen, N.S., Kangas, M., Jämsä, T., Reponen, J.: Assistive technologies at home for people with a memory disorder. Dementia 17(7), 909–923 (2018). https://doi.org/10.1177/1471301216674816. (14713012)

    Article  Google Scholar 

  46. Boman, I.-L., Lundberg, S., Starkhammar, S., Nygård, L.: Exploring the usability of a videophone mock-up for persons with dementia and their significant others. BMC Geriatr. 14, 49 (2014). https://doi.org/10.1186/1471-2318-14-49

    Article  Google Scholar 

  47. Lazar, A., Demiris, G., Thompson, H.J.: Evaluation of a multifunctional technology system in a memory care unit: opportunities for innovation in dementia care. Inform. Health Soc. Care 41(4), 373–386 (2016). https://doi.org/10.3109/17538157.2015.1064428

    Article  Google Scholar 

  48. Braley, R., Schmitter-Edgecombe, M., Fritz, R., Van Son, C.R.: Prompting technology and persons with dementia: the significance of context and communication. The Gerontol. 59(1), 101–111 (2019). https://doi.org/10.1093/geront/gny071

    Article  Google Scholar 

  49. Siegel, C., Dorner, T.E.: Information technologies for active and assisted living-influences to the quality of life of an ageing society. Int. J. Med. Inform. 100, 32–45 (2017). https://doi.org/10.1016/j.ijmedinf.2017.01.012

    Article  Google Scholar 

  50. Burleson, W., Lozano, C., Ravishankar, V., Lee, J., Mahoney, D.: An assistive technology system that provides personalized dressing support for people living with dementia: capability study. JMIR Med. Inform. 6(2), 321–335 (2018). https://doi.org/10.2196/medinform.5587

    Article  Google Scholar 

  51. Fleming, R., Sum, S.: Empirical studies on the effectiveness of assistive technology in the care of people with dementia: a systematic review. J. Assist. Technol. 8(1), 14–34 (2014). https://doi.org/10.1108/jat-09-2012-0021

    Article  Google Scholar 

  52. Kim, K., Gollamudi, S.S., Steinhubl, S.: Digital technology to enable aging in place. Exp. Gerontol. 88, 25–31 (2017). https://doi.org/10.1016/j.exger.2016.11.013

    Article  Google Scholar 

  53. van der Cammen, T.J.M., Albayrak, A., Voute, E., Molenbroek, J.F.M.: New horizons in design for autonomous ageing. Age Ageing 46(1), 11–17 (2017). https://doi.org/10.1093/ageing/afw181

    Article  Google Scholar 

  54. Olsson, A., Persson, A.-C., Bartfai, A., Boman, I.-L.: Sensor technology more than a support. Scand. J. Occup. Ther. 25(2), 79–87 (2018). https://doi.org/10.1080/11038128.2017.1293155

    Article  Google Scholar 

  55. Holthe, T., Jentoft, R., Arntzen, C., Thorsen, K.: Benefits and burdens: family caregivers’ experiences of assistive technology (AT) in everyday life with persons with young-onset dementia (YOD). Disabil. Rehabil.: Assist. Technol. 13(8), 754–762 (2018). https://doi.org/10.1080/17483107.2017.1373151

    Article  Google Scholar 

  56. Magnusson, L., Hanson, E., Sandman, L., Rosén, K.G.: Extended safety and support systems for people with dementia living at home. J. Assist. Technol. 8(4), 188–206 (2014). https://doi.org/10.1108/jat-10-2014-0021

    Article  Google Scholar 

  57. Span, M., et al.: Involving people with dementia in developing an interactive web tool for shared decision-making: experiences with a participatory design approach. Disabil. Rehabil. 40(12), 1410–1420 (2018). https://doi.org/10.1080/09638288.2017.1298162

    Article  Google Scholar 

  58. Agenda 2030. https://www.regeringen.se/regeringens-politik/globala-malen-och-agenda-2030/. Accessed 26 January 2019

Download references

Author information

Authors and Affiliations

  1. Department of Health Science, Luleå University of Technology, 97187, Luleå, Sweden

    C. Melander & M. Olsson

  2. Department of Information Engineering, University of Florence, 50139, Florence, Italy

    S. Jayousi, A. Martinelli & L. Mucchi

Authors
  1. C. Melander
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. M. Olsson
    View author publications

    You can also search for this author in PubMed Google Scholar

  3. S. Jayousi
    View author publications

    You can also search for this author in PubMed Google Scholar

  4. A. Martinelli
    View author publications

    You can also search for this author in PubMed Google Scholar

  5. L. Mucchi
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to L. Mucchi .

Editor information

Editors and Affiliations

  1. Department of Information Engineering, University of Florence, Florence, Italy

    Lorenzo Mucchi

  2. Centre for Wireless Communications, University of Oulu, Oulu, Finland

    Matti Hämäläinen

  3. University of Florence, Florence, Italy

    Sara Jayousi

  4. University of Florence, Florence, Italy

    Simone Morosi

Rights and permissions

Reprints and permissions

Copyright information

© 2019 ICST Institute for Computer Sciences, Social Informatics and Telecommunications Engineering

About this paper

Check for updates. Verify currency and authenticity via CrossMark

Cite this paper

Melander, C., Olsson, M., Jayousi, S., Martinelli, A., Mucchi, L. (2019). Digital Resources Aiding Opportunities for Affiliation and Practical Reasoning Among People with Dementia: A Scoping Review. In: Mucchi, L., Hämäläinen, M., Jayousi, S., Morosi, S. (eds) Body Area Networks: Smart IoT and Big Data for Intelligent Health Management. BODYNETS 2019. Lecture Notes of the Institute for Computer Sciences, Social Informatics and Telecommunications Engineering, vol 297. Springer, Cham. https://doi.org/10.1007/978-3-030-34833-5_23

Download citation

  • DOI: https://doi.org/10.1007/978-3-030-34833-5_23

  • Published:

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-34832-8

  • Online ISBN: 978-3-030-34833-5

  • eBook Packages: Computer ScienceComputer Science (R0)

Publish with us

Policies and ethics