Abstract
This paper presents an ongoing research work that aims to develop governance models and ICTs to enable and empower persons with disabilities according to the orientations settled in the Convention on the Rights of Persons with Disabilities. Starting from the study of the current model of Independent Living Support adopted in Portugal and its practical limitations, we propose a model based on the collaborative networks scientific discipline. This new model aims to guarantee an environment in which all the involved participants can improve and combine their contributions toward providing Personal Assistance to persons with disabilities. The paper also presents a Web platform (SEU - Services to Empower yoU) designed to support offline services acquisition, providing a user interaction adapted to different types of disabilities. Furthermore, we propose an update to the platform SEU to be compliant with the proposed collaborative model.
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References
United Nations: United Nations Convention on the Rights of Persons with Disabilities. https://www.un.org/disabilities/documents/convention/convention_accessible_pdf.pdf. Accessed 28 Apr 2021
Cheng, L.R.L., Levey, S.: Collaborative approaches to the support of people with disabilities: the underserved and unserved. Folia Phoniatrica et Logopaedica. 71(2-3), 62–70 (2019). https://doi.org/10.1159/000492530
Nally, D., Moore, S.S., Gowran, R.J.: How governments manage personal assistance schemes in response to the United Nations Convention on the Rights of Persons with Disabilities: a scoping review. Disabil. Soc. (2021). https://doi.org/10.1080/09687599.2021.1877114
Silva, J.M.: The Portuguese independent living support model (MAVI). Iris J. Nurs. Care. 2, 1–2 (2020). https://doi.org/10.33552/ijnc.2020.02.000550
Macedo, P., Miranda, P., Alburqueue Santos, P., Ferrada, F., Paquete, P., Castro, C.: Plataforma de Serviços SEU – Estudo de Interfaces de Utilizador para Pessoas com Deficiência ou Incapacidade. In: VI CONFERÊNCIA INTERNACIONAL PARA A INCLUSÃO, pp. 237–247 (2020)
Peffers, K., Tuunanen, T., Rothenberger, M.A., Chatterjee, S.: A design science research methodology for information systems research. J. Manag. Inf. Syst. 24, 45–77 (2007). https://doi.org/10.2753/MIS0742-1222240302
Camarinha-Matos, L.M., Afsarmanesh, H.: Collaborative networks: a new scientific discipline. J. Intell. Manuf. 16, 439–452 (2005). https://doi.org/10.1007/s10845-005-1656-3
Commission, E.: Strategy for Rights of Persons with Disabilities 2021–2030. https://ec.europa.eu/commission/presscorner/api/files/document/print/en/qanda_21_813/QANDA_21_813_EN.pdf. Accessed 20 Apr 2021
ENIL – European Network on Independent Living: European Network on Independent Living Personal Assistance Services in Europe 2015-Report. http://www.enil.eu/wp-content/uploads/2012/06/Personal-Assistance-Service-in-Europe-Report-2015.pdf (2016)
Independent Living Institute (ILI). https://www.independentliving.org/. Accessed 23 Apr 2021
Westerberg, B.: Personal assistance: a revolution for people with disabilities. In: 7th International Conference on Social Work in Health and Mental Health, Southern California, Los Angeles (2013)
Center for Independent Living: National Leader Forum Personal Assistance Services Report. https://ilmi.ie/wp-content/uploads/2018/07/Personal-Assistance-Report-2016-.pdf. (2016)
Mladenov, T.: What is good personal assistance made of? Results of a European survey. Disabil. Soc. 35, 1–24 (2020). https://doi.org/10.1080/09687599.2019.1621740
Wu, Y.J., Liu, W.J., Yuan, C.H.: A mobile-based barrier-free service transportation platform for people with disabilities. Comput. Human Behav. 107, 105776 (2020). https://doi.org/10.1016/j.chb.2018.11.005
McLoughlin, I., McNicoll, Y., Beecher Kelk, A., Cornford, J., Hutchinson, K.: A ‘Tripadvisor’ for disability? Social enterprise and ‘digital disruption’ in Australia. Inf. Commun. Soc. 22, 521–537 (2019). https://doi.org/10.1080/1369118X.2018.1538382.
Camarinha-Matos, L.M., Ferrada, F., Oliveira, A.I., Rosas, J., Monteiro, J.N.: Integrated care services in ambient assisted living. In: 15th IEEE International Conference on e-health Networking, Applications and Services (IEEEHealthcom 2013), Lisbon (2013). https://doi.org/10.1109/HealthCom.2013.6720666
Baldissera, T.A., Camarinha-Matos, L.M.: SCoPE: service composition and personalization environment. Appl. Sci. 8, 2297 (2018). https://doi.org/10.3390/app8112297
Camarinha-Matos, L., Afsarmanesh, H.: Collaborative Networks: Reference Modeling. Springer, Boston (2008). https://doi.org/10.1007/978-0-387-79426-6
Camarinha-Matos, L.M., et al.: VO creation assistance services. In: Methods and Tools for Collaborative Networked Organizations, pp. 155–190. Springer, Boston (2008). https://doi.org/10.1007/978-0-387-79424-2_6
Fabo, B., Beblavý, M., Kilhoffer, Z., Lenaerts, K.: An Overview of European Platforms: Scope and Business Models. Publications Office of the European Union, Brussels (2017)
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Project funded by the Polytechnic Institute of Setúbal, through the internal Research Support Program and by the Portuguese “Fundação para a Ciência e Tecnologia” “Strategic program UIDB/00066/2020” (UNINOVA-CTS project).
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Macedo, P., Ferrada, F., Oliveira, A.I., Madeira, R.N. (2021). Designing a Collaborative Personal Assistance Model for Persons with Disabilities: The Portuguese Independent Living Case. In: Camarinha-Matos, L.M., Boucher, X., Afsarmanesh, H. (eds) Smart and Sustainable Collaborative Networks 4.0. PRO-VE 2021. IFIP Advances in Information and Communication Technology, vol 629. Springer, Cham. https://doi.org/10.1007/978-3-030-85969-5_61
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