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Privacy-Preserving Data Sharing for Medical Research

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Stabilization, Safety, and Security of Distributed Systems (SSS 2021)

Part of the book series: Lecture Notes in Computer Science ((LNTCS,volume 13046))

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Abstract

Electronic patient medical records contain vast amounts of information of potential value to researchers striving to increase understanding of diseases, treatments, and outcomes. Effective use of such data is limited by privacy and technical concerns. Privacy laws require the removal of Personally Identifiable Information (PII) from the released data. Technical concerns are that the data must be abstracted for consistency across different providers. To be most useful, data from different providers for the same patient must be linked together. This paper applies cryptographic techniques to the problem of privacy-preserving linking of medical records.

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Notes

  1. 1.

    In a recent survey of health care organizations, 70% of respondents reported that their organizations had experienced significant security incidents in the prior 12 months [12].

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Acknowledgments

We are grateful to Ewa Syta of Trinity College (Connecticut) for a thorough reading of an early draft of this paper and for providing many helpful comments and pointers to the relevant literature. We thank Bonnie Kaplan of the Yale School of Medicine for sharing her vast knowledge of the world of electronic health data with us. Lastly, we are indebted to Alice Fischer from the University of New Haven, who scrutinized our nearly final draft.

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Authors and Affiliations

  1. Computer Science, Yale University, New Haven, USA

    Michael J. Fischer

  2. UNS Project and Hochman Consultants, Hartford, USA

    Jonathan E. Hochman

  3. School of Medicine, Yale University, New Haven, USA

    Daniel Boffa

Authors
  1. Michael J. Fischer
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  2. Jonathan E. Hochman
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  3. Daniel Boffa
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Corresponding author

Correspondence to Michael J. Fischer .

Editor information

Editors and Affiliations

  1. University of Bordeaux, Bordeaux, France

    Colette Johnen

  2. Chalmers University of Technology, Gothenburg, Sweden

    Elad Michael Schiller

  3. University of Vienna, Vienna, Austria

    Stefan Schmid

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Fischer, M.J., Hochman, J.E., Boffa, D. (2021). Privacy-Preserving Data Sharing for Medical Research. In: Johnen, C., Schiller, E.M., Schmid, S. (eds) Stabilization, Safety, and Security of Distributed Systems. SSS 2021. Lecture Notes in Computer Science(), vol 13046. Springer, Cham. https://doi.org/10.1007/978-3-030-91081-5_6

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  • DOI: https://doi.org/10.1007/978-3-030-91081-5_6

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  • Print ISBN: 978-3-030-91080-8

  • Online ISBN: 978-3-030-91081-5

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