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Self-determined and Informed Use of Personal Health Records: Assessment of Attitudes and Learning Requirements Among Older Adults

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HCI International 2022 – Late Breaking Papers: HCI for Health, Well-being, Universal Access and Healthy Aging (HCII 2022)

Part of the book series: Lecture Notes in Computer Science ((LNCS,volume 13521))

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Abstract

Personal Health Records (PHR) offer the opportunity for improved care for patients. Older adults, who often face a larger number of chronic diseases, could particularly benefit from the use of PHR. However, confident and self-determined use requires a high degree of digital and content-related competence. The object of this paper is to assess the attitudes and experiences of older adults in connection to the PHR and their requirements towards an eLearning system for appropriate PHR use. To answer the research questions, semi-structured interviews with older adults (aged ≥ 65 years) were conducted. A focus group was also set up, consisting of older adults. Sociodemographic data, previous knowledge about the PHR and willingness to use technology were additionally collected using validated and self-developed questionnaires. While previous knowledge about the PHR was relatively low within the study population, general attitudes towards the PHR were mostly positive. The study participants mainly expressed hope for improved care and concerns about possible incomprehensibility of the content. In terms of learning content, information about access rights and data security were the aspects most frequently mentioned. A high demand for a learning platform enabling the target group to use the PHR successfully was evident. Such a platform could facilitate implementation of the PHR and help older adults to actively participate in their healthcare. At the same time, the specific requirements of older adults should be considered during development.

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Abbreviations

PHR:

Personal health record

References

  1. Chaudhuri, S., et al.: Examining health information-seeking behaviors of older adults. CIN Comput. Inform. Nurs. 31(11), 547–553 (2013). https://doi.org/10.1097/01.NCN.0000432131.92020.42

    Article  Google Scholar 

  2. Crameri, K.-A., Maher, L., Van Dam, P., Prior, S.: Personal electronic healthcare records: what influences consumers to engage with their clinical data online? A literature review. Health Inf. Manag. J. 51(1), 3–12 (2020). https://doi.org/10.1177/1833358319895369

    Article  Google Scholar 

  3. Greenberg, A.J., et al.: Differences in access to and use of electronic personal health information between rural and urban residents in the united states: ePHI use in rural and urban patients. J. Rural Health. 34, s30–s38 (2018). https://doi.org/10.1111/jrh.12228

    Article  Google Scholar 

  4. Greenhalgh, T., Hinder, S., Stramer, K., Bratan, T., Russell, J.: Adoption, non-adoption, and abandonment of a personal electronic health record: case study of HealthSpace. BMJ 341(nov16 1), c5814–c5814 (2010). https://doi.org/10.1136/bmj.c5814

    Article  Google Scholar 

  5. Hong, M.K., et al.: Adolescent and caregiver use of a tethered personal health record system. AMIA. Annu. Symp. Proc. 2016, 628–637 (2017)

    Google Scholar 

  6. Hussein, Z., et al.: Consumer attitude: does it influencing the intention to use mHealth? Procedia Comput. Sci. 105, 340–344 (2017). https://doi.org/10.1016/j.procs.2017.01.231

    Article  Google Scholar 

  7. Koivisto, J., Malik, A.: gamification for older adults: a systematic literature review. Gerontologist 61(7), e360–e372 (2021). https://doi.org/10.1093/geront/gnaa047

    Article  Google Scholar 

  8. Kuerbis, A., Mulliken, A., Muench, F., Moore, A.A., Gardner, D.: Older adults and mobile technology: factors that enhance and inhibit utilization in the context of behavioral health. Mental Health and Addiction Research 2, 2 (2017). https://doi.org/10.15761/MHAR.1000136

    Article  Google Scholar 

  9. Mannheim, I., et al.: Inclusion of older adults in the research and design of digital technology. Int. J. Environ. Res. Public Health 16(19), 3718 (2019). https://doi.org/10.3390/ijerph16193718

    Article  Google Scholar 

  10. Mayring, P.: Qualitative content analysis: theoretical background and procedures. In: Bikner-Ahsbahs, A., Knipping, C., Presmeg, N. (eds.) Approaches to Qualitative Research in Mathematics Education, pp. 365–380. Springer Netherlands, Dordrecht (2015). https://doi.org/10.1007/978-94-017-9181-6_13

    Chapter  Google Scholar 

  11. Neyer, F.J., et al.: Kurzskala technikbereitschaft (TB, technology commitment). Zusammenstellung Sozialwissenschaftlicher Items Skalen ZIS (2016). https://doi.org/10.6102/ZIS244

    Article  Google Scholar 

  12. Niazkhani, Z., Toni, E., Cheshmekaboodi, M., Georgiou, A., Pirnejad, H.: Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review. BMC Medical Inform. Decis. Mak. 20(1), 153 (2020). https://doi.org/10.1186/s12911-020-01159-1

    Article  Google Scholar 

  13. Ose, D., et al.: A personal electronic health record: study protocol of a feasibility study on implementation in a real-world health care setting. JMIR Res. Protoc. 6(3), e33 (2017). https://doi.org/10.2196/resprot.6314

    Article  MathSciNet  Google Scholar 

  14. Paccoud, I., et al.: Socioeconomic and behavioural factors associated with access to and use of Personal Health Records. BMC Medical Inform. Decis. Mak. 21(1), 18 (2021). https://doi.org/10.1186/s12911-020-01383-9

    Article  Google Scholar 

  15. Price, M.M., et al.: Older adults’ perceptions of usefulness of personal health records. Univers. Access Inf. Soc. 12(2), 191–204 (2013). https://doi.org/10.1007/s10209-012-0275-y

    Article  Google Scholar 

  16. Pushpangadan, S., Seckman, C.: Consumer perspective on personal health records: a review of the literature. Online J. Nurs. Inform. 19 (2015)

    Google Scholar 

  17. Robotham, D., Mayhew, M., Rose, D., Wykes, T.: Electronic personal health records for people with severe mental illness; a feasibility study. BMC Psychiatry 15(1), 192 (2015). https://doi.org/10.1186/s12888-015-0558-y

    Article  Google Scholar 

  18. Roque, N.A., Boot, W.R.: A new tool for assessing mobile device proficiency in older adults: the mobile device proficiency questionnaire. J. Appl. Gerontol. 37(2), 131–156 (2016). https://doi.org/10.1177/0733464816642582

    Article  Google Scholar 

  19. Shluzas, L.A., Steinert, M., Katila, R.: User-centered innovation for the design and development of complex products and systems. In: Leifer, L., Plattner, H., Meinel, C. (eds.) Design Thinking Research, pp. 135–149. Springer International Publishing, Cham (2014). https://doi.org/10.1007/978-3-319-01303-9_10

    Chapter  Google Scholar 

  20. Ware, P., et al.: Using eHealth technologies: interests, preferences, and concerns of older adults. Interact. J. Med. Res. 6(1), e3 (2017). https://doi.org/10.2196/ijmr.4447

    Article  Google Scholar 

  21. Weis, A., et al.: Caregivers’ role in using a personal electronic health record: a qualitative study of cancer patients and caregivers in Germany. BMC Med. Inform. Decis. Mak. 20(1), 258 (2020). https://doi.org/10.1186/s12911-020-01172-4

    Article  Google Scholar 

  22. § 20k SGB V Förderung der digitalen Gesundheitskompetenz. https://www.sozialgesetzbuch-sgb.de/sgbv/20k.html. Last Accessed 14 Jan 2021

  23. Fragen und Antworten zur elektronischen Patientenakte. https://www.bundesgesundheitsministerium.de/elektronische-patientenakte.html. Last Accessed 14 Oct 2020

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Authors and Affiliations

  1. Geriatrics Research Group, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Reinickendorfer Str. 61, 13347, Berlin, Germany

    Luis Perotti & Anika Heimann-Steinert

Authors
  1. Luis Perotti
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  2. Anika Heimann-Steinert
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Corresponding author

Correspondence to Luis Perotti .

Editor information

Editors and Affiliations

  1. Purdue University West Lafayette, West Lafayette, IN, USA

    Vincent G. Duffy

  2. Tsinghua University, Beijing, China

    Qin Gao

  3. Chongqing University, Chongqing, China

    Jia Zhou

  4. Foundation for Research and Technology – Hellas (FORTH), Heraklion, Crete, Greece

    Margherita Antona

  5. University of Crete and Foundation for Research and Technology – Hellas (FORTH), Heraklion, Crete, Greece

    Constantine Stephanidis

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Conflict of Interest

The authors declare that they have no financial or personal relationships that may influence their work and no conflict of interest.

Compliance with ethical standards

Ethical approval to conduct the study was obtained from the Ethics Committee of the Charité – Universitätsmedizin Berlin (EA1/142/20). All procedures performed involving human participants were undertaken in accordance with the ethical standards of the relevant research committee and in accordance with the 1964 Declaration of Helsinki and its later amendments or comparable ethical standards. Informed consent was obtained from all individual participants included in the study.

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Perotti, L., Heimann-Steinert, A. (2022). Self-determined and Informed Use of Personal Health Records: Assessment of Attitudes and Learning Requirements Among Older Adults. In: Duffy, V.G., Gao, Q., Zhou, J., Antona, M., Stephanidis, C. (eds) HCI International 2022 – Late Breaking Papers: HCI for Health, Well-being, Universal Access and Healthy Aging. HCII 2022. Lecture Notes in Computer Science, vol 13521. Springer, Cham. https://doi.org/10.1007/978-3-031-17902-0_11

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  • DOI: https://doi.org/10.1007/978-3-031-17902-0_11

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-031-17901-3

  • Online ISBN: 978-3-031-17902-0

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