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Portraits of a Killer: Visual Expressions of Patient/Parent Expertise on Social Media

The Case of Glioblastoma on Instagram

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HCI International 2022 - Late Breaking Papers. Interaction in New Media, Learning and Games (HCII 2022)

Part of the book series: Lecture Notes in Computer Science ((LNCS,volume 13517))

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Abstract

This paper aims to investigate the search for online information and support for rare cancer patients and their families, focusing on a very specific type of cancer, glioblastoma. Glioblastoma is a rare brain cancer more than often diagnosed at a late stage, with a very poor prognosis and huge and disabling neurological impairments at the time of identification of the disease. Therefore, the analysis deals with the means of expression of the patients’ families and not of the patient’s themselves and on focuses on the understanding of their using of pictures, specially on a very specific platform: Instagram. Through the semio-communicational analysis of the french Instagram account #glioblastome, which includes 472 images and their captions, the study aims to understand how, in the case of glioblastoma, the mediation of digital writing and picturing can promote the recognition of the parent as a potential expert in this disease characterized by its rarity.

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Author information

Authors and Affiliations

  1. GRIPIC, CELSA, Sorbonne University, Paris, France

    Juliette Charbonneaux & Karine Berthelot-Guiet

Authors
  1. Juliette Charbonneaux
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  2. Karine Berthelot-Guiet
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Corresponding author

Correspondence to Juliette Charbonneaux .

Editor information

Editors and Affiliations

  1. Computer and Information Sciences, Towson University, Towson, MD, USA

    Gabriele Meiselwitz

  2. San Jose State University, San Jose, CA, USA

    Abbas Moallem

  3. Department of Multimedia and Graphic Arts, Cyprus University of Technology, Limassol, Cyprus

    Panayiotis Zaphiris

  4. Cyprus University of Technology, Limassol, Cyprus

    Andri Ioannou

  5. Soar Technology, Inc., Orlando, FL, USA

    Robert A. Sottilare

  6. MMS, Fraunhofer FKIE, Wachtberg, Nordrhein-Westfalen, Germany

    Jessica Schwarz

  7. DePaul University, Chicago, IL, USA

    Xiaowen Fang

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Charbonneaux, J., Berthelot-Guiet, K. (2022). Portraits of a Killer: Visual Expressions of Patient/Parent Expertise on Social Media. In: Meiselwitz, G., et al. HCI International 2022 - Late Breaking Papers. Interaction in New Media, Learning and Games. HCII 2022. Lecture Notes in Computer Science, vol 13517. Springer, Cham. https://doi.org/10.1007/978-3-031-22131-6_3

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  • DOI: https://doi.org/10.1007/978-3-031-22131-6_3

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-031-22130-9

  • Online ISBN: 978-3-031-22131-6

  • eBook Packages: Computer ScienceComputer Science (R0)

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