Skip to main content
SpringerLink
Log in

Overcoming the Fragmentation: A Proposal of Model Ontology, Architecture System and Web-Based Implementation for Planning the Persons with Disability’s Life Project

  • Conference paper
  • First Online:
Universal Access in Human-Computer Interaction (HCII 2023)

Part of the book series: Lecture Notes in Computer Science ((LNCS,volume 14020))

Included in the following conference series:

  • 745 Accesses

Abstract

In recent decades important changes in the disability area occurred, both at regulatory-political and socio-cultural level, urging to rethink the Life Project of persons with disabilities (PwD) from a lifelong and life wide perspective. From the Nineties, in Italy this change has been introduced by a policy agenda introducing the construct of individual Life Project as a crucial mean to guarantee rights and quality of life aimed at fully implementing the principle of social inclusion. However, this evolution continues to clash with standard and fragmented solutions that does not respond to the need of an individualized, emancipatory, rights-based planning. The paper presents a model of PwD’ Life Project developed by the researchers in Special Education of University of Bergamo (UNIBG) as a result of the “Training Program on Life Project related to the Dopo di Noi” promoted in collaboration with Agenzia Tutela Salute (ATS) of Bergamo. Adopting a participatory design approach, UNIBG researchers follow a three steps model: 1) defining the conceptual framework (ontology) with respect to disability, the rights of the PwD and the load-bearing features and steps characterizing the individual Life Project planning; 2) organizing the overall architecture of the system; 3) designing a low-fidelity prototype. The current state of the art of the UNIBG research contributes to inform PwD’s Life Project design process and preliminary results highlight the overall validity of the model ontology and the proposed architecture. As next research step, the prototype will be discussed with some selected stakeholders participating in ATS-UNIBG “Training Program” to collect their feedback and proceed with the re-design phase.

The contribution was conceived, designed, and realized by all authors. Mabel Giraldo wrote §1, Fabio Sacchi wrote §3 and both authors wrote §2 and §4. Serenella Besio participated in the research design framework and in the conception of UNIBG Life Project model ontology and related architecture and first prototype.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Log in via an institution
Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 84.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 109.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Notes

  1. 1.

    See: https://docs.italia.it/italia/designers-italia/design-linee-guidadocs/it/stabile/doc/prototyping/prototipare-un-servizio.html (retrieved: January 29th, 2023).

  2. 2.

    See: https://www.w3.org/TR/WCAG20/ (retrieved: January 29th, 2023).

  3. 3.

    UNIBG researchers decide to adopt ICF 2020 edition as it includes the revision of most of the codes related to ICF-CY (WHO, 2007), covers the entire lifespan.

  4. 4.

    Adopting ICF terminology, a “domain” is «a practical and meaningful set of related physiological functions, anatomical structures, actions, tasks, or areas of life» (WHO, 2001:33). In the UNIBG model, “priority domain” is a practical and meaningful set of related actions, tasks, or life areas identified as a need or strength. It has been selected within the chapters in which the ICF “Activity and Participation component” is divided according to the concept of priority.

  5. 5.

    It represents the adaptive behaviors expected for the age group considered. It is not a clinical construct, but an adaptive reference to support Life Project design process aimed at promoting the autonomy of the person with disability. The “autonomy goals” and their intrinsic evolutionary development are extremely important for the construction of the person's life project and are reported, in relation to the “domains” and chronological age group considered.

  6. 6.

    Age groups have been identified based on the main life steps of the person with disability.

  7. 7.

    See: https://www.matriciecologiche.net/ (retrieved: January 29th, 2023).

References

  1. Field, J., Leicester, M.: Lifelong Learning: Education Across the Lifespan, 2nd edn. Routledge, London (2003)

    Google Scholar 

  2. Jackson, N. J.: Learning for a complex world: A lifewide concept of learning, education and personal development. Authorhouse (2011)

    Google Scholar 

  3. Ianes, D., Cramerotti, S.: Il piano educativo individualizzato. Progetto di vita, vol. 1. Edizioni Erickson, Trento (2009)

    Google Scholar 

  4. Bianquin, N.: L’ICF a supporto di percorsi personalizzati lungo l’arco della vita. Pensa Multimedia, Lecce (2020)

    Google Scholar 

  5. Bindels-de Heus, K.G., van Staa, A., van Vliet, I., Ewals, F.V., Hilberink, S.R.: Transferring young people with profound intellectual and multiple disabilities from pediatric to adult medical care: parents’ experiences and recommendations. Intellect. Dev. Disabil. 51(3), 176–189 (2013)

    Article  Google Scholar 

  6. Giraldo, M., Bianquin, N., Sacchi, F.: Step into adulthood: exploring transition experiences of young adults with disabilities through a narrative inquiry. Giornale Italiano di Educazione alla Salute, Sport e Didattica Inclusiva 5(4), 1–14 (2021)

    Google Scholar 

  7. McDonnell, J., Hardman, M.L.: Successful Transition Programs: Pathways for Students with Intellectual and Developmental Disabilities. Sage Publications, London (2009)

    Google Scholar 

  8. Shurr, J. C., Minuk, A.: Parent perspectives and beliefs on inclusive education for students with intellectual disability. In: Shurr, J.C., Minuk, A. (eds.) The Routledge Handbook of Inclusive Education for Teacher Educators, pp. 58–71. Routledge, India (2023)

    Google Scholar 

  9. Kurth, J.A., Love, H., Pirtle, J.: Parent perspectives of their involvement in IEP development for children with autism. Focus Autism Other Develop. Disabil. 35(1), 36–46 (2020)

    Article  Google Scholar 

  10. Hammel, J., Magasi, S., Heinemann, A., Whiteneck, G., Bogner, J., Rodriguez, E.: What does participation mean? An insider perspective from people with disabilities. Disabil. Rehabil. 30(19), 1445–1460 (2008)

    Article  Google Scholar 

  11. Butterworth, J., Steere, D.E., Whitney-Thomas, J.: Using person-centered planning to address personal quality of life. Qual. Life Appl. Persons Disabil. 2, 5–23 (1997)

    Google Scholar 

  12. Cramerotti, S., et al.: Un sistema esperto per la stesura di PEI e PDP. Erickson, Trento (2015)

    Google Scholar 

  13. Bellacicco, R., Dell’Anna, S., Micalizzi, E., Parisi, T.: Nulla su di noi senza di noi: Una ricerca empirica sull’abilismo in Italia. FrancoAngeli, Milano (2022)

    Google Scholar 

  14. McGee, P., Diaz, V.: Wikis and podcasts and blogs! Oh, My! what is a faculty member supposed to do? Educause Rev. 42(5), 28–41 (2007)

    Google Scholar 

  15. Clark, J.E.: E-portfolios at 2.0: Surveying the field. Association of American Colleges and Universities Peer Rev. 11(1), 1–4 (2009)

    Google Scholar 

  16. Xuesong, S., Olfman, L., Ractham, P.: Designing e-portfolio 2.0: Integrating and coordinating web 2.0 services with e-portfolio systems for enhancing users’ learning. J. Inform. Syst. Educ. 18(2), 203–215 (2007)

    Google Scholar 

  17. Black, J.: Digital transition portfolios for secondary students with disabilities. Interv. Sch. Clin. 46(2), 118–124 (2010)

    Google Scholar 

  18. Test, D.W., Fowler, C.H., Wood, W.M., Brewer, D.M., Eddy, S.: A conceptual framework of self-advocacy for students with disabilities. Remed. Spec. Educ. 26(1), 43–54 (2005)

    Article  Google Scholar 

  19. Cooper, M., Heath, A.: Access for all to eLearning. Res. Reflect. Innov. Integrat. ICT Educ. 2, 1139–1143 (2009)

    Google Scholar 

  20. Real, R. M., Snider, C., Goudswaard, M., Hicks, B.: Dimensions of prototyping knowledge: characterising prototype evaluation methods and their contributions to design knowledge. In: Real, R.M. (eds.) Design Computing and Cognition 2022, pp. 643–660. Springer, Cham (2023). https://doi.org/10.1007/978-3-031-20418-0_38

  21. Wensveen, S., Matthews, B.: Prototypes and prototyping in design research. In: Rodgers, P.A., Yee, J. (eds.) Routledge Companion to Design Research, pp. 262–276. Routledge, London (2014)

    Google Scholar 

  22. Lim, Y.K., Stolterman, E., Tenenberg, J.: The anatomy of prototypes: prototypes as filters, prototypes as manifestations of design ideas. ACM Trans. Comput. Hum. Interact. 15(2), 1–27 (2008)

    Article  Google Scholar 

  23. Pernice, K.: UX prototypes: low fidelity vs. high fidelity. Nielsen Norman Group. https://www.nngroup.com/articles/ia-view-prototype/. Accessed 21 Jan 2023

  24. Sauer, J., Franke, H., Ruettinger, B.: Designing interactive consumer products: utility of paper prototypes and effectiveness of enhanced control labeling. Appl. Ergon. 39(1), 71–85 (2008)

    Article  Google Scholar 

  25. Hawthorn, D.: Interface design and engagement with older people. Behav. Inform. Technol. 26(4), 333–341 (2007)

    Article  Google Scholar 

  26. Mathias, D., Hicks, B., Snider, C., Ranscombe, C.: Characterising the affordances and limitations of common prototyping techniques to support the early stages of product development. Proc. Int. Des. Conf. Des. 3, 1257–1268 (2018)

    Google Scholar 

  27. Kang, B., Crilly, N., Ning, W., Kristensson, P.O.: Prototyping to elicit user requirements for product development: using head-mounted augmented reality when designing interactive devices. Des. Stud. 84, 101–147 (2023)

    Article  Google Scholar 

  28. Simonsen, J., Robertson, T.: Routledge International Handbook of Participatory Design. Routledge, New York (2013)

    Google Scholar 

  29. Bianquin, N.: ICF, Profilo di funzionamento e Buona Scuola. Un nuovo modello di progettazione per l'alunno con disabilità. L’Integrazione Scolastica e Sociale 18(3), 269–285 (2019)

    Google Scholar 

  30. Zhu, L., Huang, R., Wang, X., Wang, Y.: Research on personalized teaching model for individual user in isi: a web-based learning systems platforms. In: 2008 International Conference on Computer Science and Software Engineering, pp. 789–792. IEEE (2008)

    Google Scholar 

  31. Cramerotti, S., Ianes, D.: An ontology-based system for building individualized education plans for students with special educational needs. Procedia Soc. Behav. Sci. 217(32), 192–200 (2016)

    Article  Google Scholar 

  32. Chen, C.M.: Intelligent web-based learning system with personalized learning path guidance. Comput. Educ. 51(2), 787–814 (2008)

    Article  Google Scholar 

  33. Traina, I., Mannion, A., Leader, G.: Curriculum di preparazione al lavoro: come supportare i giovani adulti con disabilità intellettiva nel passaggio dalla scuola al lavoro. Giornale Italiano dei Disturbi del Neurosviluppo, 2, 0, 7(2), 77–81 (2016)

    Google Scholar 

  34. Wills, K.V., Rice, R.: ePortfolio Performance Support Systems: Constructing, Presenting, and Assessing Portfolios. Parlor Press LLC, New York (2013)

    Book  Google Scholar 

  35. Giorgini, F.: An interoperable ePortfolio tool for all. In: Sustaining TEL: From Innovation to Learning and Practice. In: 5th European Conference on Technology Enhanced Learning, EC-TEL 2010, Barcelona, Spain, September 28-October 1(5), 2010, pp. 500–505. Springer, Berlin Heidelberg (2010)

    Google Scholar 

  36. Clancy, M., Gardner, J.: Using digital portfolios to develop non-traditional domains in special education settings. Int. J. ePortfolio 7(1), 93–100 (2017)

    Google Scholar 

  37. Maritz, R., Aronsky, D., Prodinger, B.: The international classification of functioning, disability and health (ICF) in electronic health records. Appl. Clin. Inform. 8(03), 964–980 (2017)

    Article  Google Scholar 

  38. Tyler, C.V., Jr., Schramm, S., Karafa, M., Tang, A.S., Jain, A.: Electronic health record analysis of the primary care of adults with intellectual and other developmental disabilities. J. Policy Pract. Intellect. Disabil. 7(3), 204–210 (2010)

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

  1. University of Bergamo, Bergamo, Italy

    Mabel Giraldo, Fabio Sacchi & Serenella Besio

Authors
  1. Mabel Giraldo
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. Fabio Sacchi
    View author publications

    You can also search for this author in PubMed Google Scholar

  3. Serenella Besio
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Mabel Giraldo .

Editor information

Editors and Affiliations

  1. Foundation for Research and Technology, Heraklion, Crete, Greece

    Margherita Antona

  2. Foundation for Research and Technology, Heraklion, Crete, Greece

    Constantine Stephanidis

Rights and permissions

Reprints and permissions

Copyright information

© 2023 The Author(s), under exclusive license to Springer Nature Switzerland AG

About this paper

Check for updates. Verify currency and authenticity via CrossMark

Cite this paper

Giraldo, M., Sacchi, F., Besio, S. (2023). Overcoming the Fragmentation: A Proposal of Model Ontology, Architecture System and Web-Based Implementation for Planning the Persons with Disability’s Life Project . In: Antona, M., Stephanidis, C. (eds) Universal Access in Human-Computer Interaction. HCII 2023. Lecture Notes in Computer Science, vol 14020. Springer, Cham. https://doi.org/10.1007/978-3-031-35681-0_3

Download citation

  • DOI: https://doi.org/10.1007/978-3-031-35681-0_3

  • Published:

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-031-35680-3

  • Online ISBN: 978-3-031-35681-0

  • eBook Packages: Computer ScienceComputer Science (R0)

Publish with us

Policies and ethics

Search

Navigation