Abstract
The well-being of care recipients is an important issue in health care domains, while demand for higher work efficiency through data and information technologies is increasing. Data and technology utilization without a focus on individuals may lead to disregard for human dignity. This paper introduces a design principle for person-centered care services that prioritizes individual well-being on the basis of patient life backgrounds. We extracted problematic care behaviors with 6 typical categories, employed the person-centered care principle to design a co-creation workshop, and qualitatively evaluated the effectiveness of the workshop with care workers. A qualitative analysis using the Grounded Theory Approach revealed the effectiveness of visualization and shared viewpoints in the workshop design; however, we found that the design should be improved so that participants could deeply empathize with the recipients. We also extracted the 66 attitudes and behaviors expected of care workers and analyzed the requirements for their work environments. We discuss two important requirements in designing workshops. The first is care recipient centered design to provide each recipient with person-centered care service. The second is service-provider centered design to provide care workers with experience in empathizing with care recipients so that they could deeply understand them and effectively provide the created care service.
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References
Hu, Y., Wang, Y.: HSAACE: design a cloud platform health status assessment application to support continuous evolution of assessment capabilities. In: 2022 The 5th International Conference on Software Engineering and Information Management (ICSIM) (ICSIM 2022), pp. 132–137. ACM, New York (2022). https://doi.org/10.1145/3520084.3520105
Karim, S., Gide, E., Sandu, R.: The impact of big data on health care services in australia: using big data analytics to categorise and deal with patient. In: Proceedings of the 2019 International Conference on Mathematics, Science and Technology Teaching and Learning (ICMSTTL 2019), pp. 34–38. ACM, New York (2019). https://doi.org/10.1145/3348400.3348414
Li, H., Cheng, Y., Li, Y., Ma, X., Li, D.: Health assessment system based on big data analysis of meridian electrical potential. In: Proceedings of the 3rd International Conference on Biomedical Signal and Image Processing (ICBIP 2018), pp. 75–80. ACM, New York (2018). https://doi.org/10.1145/3278229.3278235
Taweel, A., Speedie, S., Tyson, G., Tawil, A.R.H., Peterson, K., Delaney, B.: Service and model-driven dynamic integration of health data, In: Proceedings of the First International Workshop on Managing Interoperability and Complexity in Health Systems (MIXHS 2011), pp. 11–17. ACM, New York (2011). https://doi.org/10.1145/2064747.2064752
Grissinger, M.: Unresolved disrespectful behavior in health care: practitioners speak up (again)-part 1. Pharm. Therpeut. 42(1), 4–23 (2017). PMID: 28090154; PMCID: PMC5215268
Grissinger, M.: Disrespectful behavior in health care: its impact, why it arises and persists, and how to address it-part 2. Pharm. Therpeut. 42(2), 74–77 (2017). PMID: 28163550; PMCID: PMC5265230
Pais, S.: Integrating patient-generated wellness data: a user-centered approach. In: Proceedings of the Australasian Computer Science Week Multiconference (ACSW 2020), Article 35, pp. 1–8. ACM, New York (2020). https://doi.org/10.1145/3373017.3373052
MacCaull, W., Jewers, H., Latzel, M.: Using an interdisciplinary approach to develop a knowledge-driven careflow management system for collaborative patient-centred palliative care. In: Proceedings of the 1st ACM International Health Informatics Symposium (IHI 2010), pp. 507–511. ACM, New York (2010). https://doi.org/10.1145/1882992.1883073
Carswell, A., McColl, M.A., Baptiste, S., Law, M., Polatajko, H., Pollock, N.: The canadian occupational performance measure: a research and clinical literature review. Can. J. Occup. Ther. 71(4), 210–222 (2004). https://doi.org/10.1177/000841740407100406
Kitwood, T., Bredin, K.: Towards a theory of dementia care: personhood and well-being. Ageing Soc. 12(3), 269–287 (1992). https://doi.org/10.1017/s0144686x0000502x
Håkansson Eklund, J., Holmström, I.K., Kumlin, T., Kaminsky, E., Skoglund, K., Höglander, J., et al.: “Same same or different?” a review of reviews of person-centered and patient-centered care. Pat. Educ. Couns. 102(1), 3–11 (2019). https://doi.org/10.1016/j.pec.2018.08.029
University of Bradford: Dementia Care Mapping. https://www.bradford.ac.uk/dementia/training-consultancy/. Accessed 31 Jan 2023
Brooker, D.: Dementia care mapping: a review of the research literature. Gerontologist 45(suppl_1), 11–18 (2005). https://doi.org/10.1093/geront/45.suppl_1.11
Glaser, B., Strauss, A.: The Discovery of Grounded Theory: Strategies for Qualitative Research. Aldine, Chicago (1967)
Kimura, A., Hayashi, M., Akasaka, F., Ihara, M.: Sustainable person-centered Living Lab for regional management as extension of Japanese dementia care activities. In: Proceedings of OpenLivingLab Days 2019, pp. 312–321 (2019)
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We would like to thank the employees of the nursing facility “Living Aeru” for participating in the workshop and answering the questionnaire.
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Ihara, M. et al. (2023). Facilitating Empathy for Care Recipients. In: Marcus, A., Rosenzweig, E., Soares, M.M. (eds) Design, User Experience, and Usability. HCII 2023. Lecture Notes in Computer Science, vol 14034. Springer, Cham. https://doi.org/10.1007/978-3-031-35705-3_26
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DOI: https://doi.org/10.1007/978-3-031-35705-3_26
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