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Promote or Restrict? A Co-design Practice of a Palliative Care Information Management System in China

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Digital Human Modeling and Applications in Health, Safety, Ergonomics and Risk Management (HCII 2023)

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Abstract

Palliative care is a multidisciplinary clinical practice focusing on the relief of suffering, psychosocial support, and closure near the end of life. However, unique palliative care challenges require a more agile, effective, and intelligent management method. This article explores how to design, develop, evaluate (1st test and 2nd test), and iterate a whole course information management system for palliative care (named Multidisciplinary Life Care System, MLS), under the guidance of a medical innovation frame (Eagle Model), a medical co-design methodology (MeX), usability scales (SUS and HUS), based on the practice in Linfen Community Health Service Center, Shanghai, China. The iteration by co-design was arranged between two tests, to longitudinally demonstrate the impact of it. The results show: (1) Users with different educational backgrounds significantly differ in the usability feedback after co-design (F = 5.887, p < 0.05). (2) The total usability score is negatively correlated with HUS (1st test: r = -0.664, p < 0.01) (2nd test: r = -0.454, p < 0.05). (3) Users’ perception of technical support (t = 2.918, p < 0.01) and consistency of the system (t = 2.389, p < 0.05) have been observably improved after co-design. (4) There is no statistically significant change in the total SUS score (t = 1.356, p > 0.05) or HUS score (t = 0.561, p > 0.05) after co-design.

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References

  1. Botero, A., Hyysalo, S.: Ageing together: steps towards evolutionary co-design in everyday practices. CoDesign 9, 37–54 (2013). https://doi.org/10.1080/15710882.2012.760608

    Article  Google Scholar 

  2. Boffi, M., Pola, L., Fumagalli, N., Fermani, E., Senes, G., Inghilleri, P.: Nature experiences of older people for active ageing: an interdisciplinary approach to the co-design of community gardens. Front. Psychol. 12, 702525 (2021). https://doi.org/10.3389/fpsyg.2021.702525

    Article  Google Scholar 

  3. Lo, B., Quill, T., Tulsky, J.: Discussing palliative care with patients. Ann. Int. Med. 130, 744–749 (1999). https://doi.org/10.7326/0003-4819-130-9-199905040-00015

    Article  Google Scholar 

  4. World Health Organization: Palliative care. Cuidados paliativos (2007)

    Google Scholar 

  5. Morrison, R.S., Meier, D.E.: Palliative care. N. Engl. J. Med. 350, 2582–2590 (2004). https://doi.org/10.1056/NEJMcp035232

    Article  Google Scholar 

  6. Ministry of Health of the People's Republic of China: Notice on the Issuance of the List of Medical Institutions’ Diagnostic and Treatment Subjects (Weiheifa [1994] No. 27). https://www.waizi.org.cn/law/13556.html. Accessed 08 Feb 2023

  7. National Health and Wellness Commission of the People's Republic of China: Notice of the Ministry of Health on the Issuance of Three Documents on the Principles for the Establishment of Urban Community Health Service Institutions. http://www.nhc.gov.cn/wjw/gfxwj/201304/499177a487ac4cbaac1a28dbf80123cb.shtml. Accessed 09 Feb 2023

  8. General Office of the National Health and Health Commission: Notice of the General Office of the National Health and Health Commission on the Second Batch of Hospice Pilot Work (National Health Office of the Elderly Letter [2019] No. 483). http://www.nhc.gov.cn/lljks/s7785/201912/efe3ed3d9dce4f519bc7bba7997b59d8.shtml. Accessed 09 Feb 2023

  9. Borgstrom, E., Barclay, S.: Experience-based design, co-design and experience-based co-design in palliative and end-of-life care. BMJ Support Palliat. Care. 9, 60–66 (2019). https://doi.org/10.1136/bmjspcare-2016-001117

    Article  Google Scholar 

  10. Blackwell, R.W., Lowton, K.N., Robert, G., Grudzen, C., Grocott, P.: Using experience-based co-design with older patients, their families and staff to improve palliative care experiences in the emergency department: a reflective critique on the process and outcomes. Int. J. Nurs. Stud. 68, 83–94 (2017). https://doi.org/10.1016/j.ijnurstu.2017.01.002

    Article  Google Scholar 

  11. French, T., Raman, S.: engaging people with lived experience in co-design of future palliative care services. Int. J. Public Adm. 44, 778–789 (2021). https://doi.org/10.1080/01900692.2021.1920612

    Article  Google Scholar 

  12. Macgregor, A., et al.: Palliative and end-of-life care in care homes: protocol for codesigning and implementing an appropriate scalable model of Needs Rounds in the UK. BMJ Open 11, e049486 (2021). https://doi.org/10.1136/bmjopen-2021-049486

    Article  Google Scholar 

  13. Jones, P.H.: Design for Care: Innovating Healthcare Experience. Rosenfeld Media, Brooklyn (2013)

    Google Scholar 

  14. Sanders, E.B.-N., Stappers, P.J.: Co-creation and the new landscapes of design. CoDesign 4, 5–18 (2008). https://doi.org/10.1080/15710880701875068

    Article  Google Scholar 

  15. Sanders, M.S., McCormick, E.J.: Human Factors in Engineering and Design. McGraw-Hill, New York (1993)

    Google Scholar 

  16. Kazadi, K., Lievens, A., Mahr, D.: Stakeholder co-creation during the innovation process: Identifying capabilities for knowledge creation among multiple stakeholders. J. Bus. Res. 69, 525–540 (2016). https://doi.org/10.1016/j.jbusres.2015.05.009

    Article  Google Scholar 

  17. Kildea, J., et al.: Design and development of a person-centered patient portal using participatory stakeholder co-design. J Med Internet Res. 21, e11371 (2019). https://doi.org/10.2196/11371

    Article  Google Scholar 

  18. Marent, B., Henwood, F., Darking, M.: EmERGE Consortium: development of an mhealth platform for HIV care: gathering user perspectives through co-design workshops and interviews. JMIR Mhealth Uhealth. 6, e184 (2018). https://doi.org/10.2196/mhealth.9856

    Article  Google Scholar 

  19. Sanders, E.B.-N., Stappers, P.J.: Probes, toolkits and prototypes: three approaches to making in codesigning. CoDesign 10, 5–14 (2014). https://doi.org/10.1080/15710882.2014.888183

    Article  Google Scholar 

  20. Steen, M.: Co-design as a process of joint inquiry and imagination. Des. Issues 29, 16–28 (2013). https://doi.org/10.1162/DESI_a_00207

    Article  Google Scholar 

  21. Steen, M., Manschot, M., De Koning, N.: Benefits of co-design in service design projects. Int. J. Des. 5, 53–60 (2011)

    Google Scholar 

  22. Kleinsmann, M., Valkenburg, R.: Barriers and enablers for creating shared understanding in co-design projects. Des. Stud. 29, 369–386 (2008). https://doi.org/10.1016/j.destud.2008.03.003

    Article  Google Scholar 

  23. Liu, L., Jiang, Y., Dong, H., Lee, T.C., Liu, Q.Y.: The co-creation process of a platform for healthcare engineering design and innovation (HEDI). In: Langdon, P., Lazar, J., Heylighen, A., Dong, H. (eds.) CWUAAT 2020, pp. 47–55. Springer, Cham (2020). https://doi.org/10.1007/978-3-030-43865-4_5

    Chapter  Google Scholar 

  24. Yue, J.: A study of medical co-creation media support based on service system design (2021)

    Google Scholar 

  25. Jiang, Y., Chen, J., Xu, Y., Xiao, S., Liu, L.: Eagle model: a future medical product innovative design model driven by human-technology symbiosis and co-design. In: Proceedings of 6th International Conference on Intelligent Human Systems Integration (IHSI 2023). AHFE Open Access, Venice, Italy (2023)

    Google Scholar 

  26. Yue, J., She, T., Li, F., Liu, M.: A mediated support service system model for the effectiveness of medical co-creation communication. In: Human Factors - Management - Design - Proceedings of the 20th Management Ergonomics and 1st Design Ergonomics Conference of the Chinese Society of Human Ergonomics. In: Human Factors - Management - Design - Proceedings of the 20th Management Ergonomics and Design Ergonomics Conference of the Chinese Society for Human Ergonomics. pp. 632–647

    Google Scholar 

  27. Zhang, H., Han, B.T., Tang, Z.: Constructing a nationwide interoperable health information system in China: the case study of Sichuan Province. Health Policy Technol. 6, 142–151 (2017). https://doi.org/10.1016/j.hlpt.2017.01.002

    Article  Google Scholar 

  28. Peng, F., Kurnia, S.: Understanding hospital information systems adoption in China. In: PACIS 2010 Proceedings. (2010)

    Google Scholar 

  29. Peres, S.C., Pham, T., Phillips, R.: Validation of the system usability scale (SUS). Proc. Human Fact. Ergon. Soc. Ann. Meet. 57, 192–196 (2013). https://doi.org/10.1177/1541931213571043

    Article  Google Scholar 

  30. Lewis, J.R.: Usability: lessons learned … and yet to be learned. Int. J. Hum.-Comput. Interact. 30, 663–684 (2014). https://doi.org/10.1080/10447318.2014.930311

    Article  Google Scholar 

  31. Bangor, A., Kortum, P.T., Miller, J.T.: An empirical evaluation of the system usability scale. Int. J. Hum.-Comput. Interact. 24, 574–594 (2008). https://doi.org/10.1080/10447310802205776

    Article  Google Scholar 

  32. Anam, H., Sadiq, M., Jamil, H.: Development of system usability scale (SUS) for the Urdu language. Int. J. Comput. Sci. Inf. Secur. 18, 73–78 (2020)

    Google Scholar 

  33. Brooke, J.: SUS: A “Quick and Dirty” usability scale. In: Usability Evaluation in Industry. CRC Press (1996)

    Google Scholar 

  34. Sauro, J.: A Practical Guide to the System Usability Scale: Background, Benchmarks & Best Practices. Measuring Usability LLC (2011)

    Google Scholar 

  35. Adams, D.A., Nelson, R.R., Todd, P.A.: Perceived usefulness, ease of use, and usage of information technology: a replication. MIS Q. 16, 227 (1992). https://doi.org/10.2307/249577

    Article  Google Scholar 

  36. Branscomb, L.M., Thomas, J.C.: Ease of use: a system design challenge. IBM Syst. J. 23, 224–235 (1984). https://doi.org/10.1147/sj.233.0224

    Article  Google Scholar 

  37. Davis, F.D.: Perceived usefulness, perceived ease of use, and user acceptance of information technology. MIS Q. 13, 319 (1989). https://doi.org/10.2307/249008

    Article  Google Scholar 

  38. Peng, X., Zhang, H., Chen, Y.: Study on the promotion of ice and snow tourism industry on the economic development of Heilongjiang. J. Econ. Res. Introduct., 152–153 (2018)

    Google Scholar 

  39. Peng, X.: Research on the design of virtual reality system for ice and snow art based on somatosensory interaction. https://kns.cnki.net/kcms/detail/detail.aspx?dbcode=CMFD&dbname=CMFD201901&filename=1018892558.nh&uniplatform=NZKPT&v=1d6lCPsPLtvWLhJ67Ou5qiC9X6OW32tL4rotd_0qO8kvZrN_CXyGHhJ4OWlf1SNJ (2018)

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Acknowledgments

The authors would like to acknowledge the financial support of the 2022 Tongji University First-class Interdisciplinary Innovation Design and Intelligent Manufacturing Discipline Cluster Construction Fund (grant number: F2204).

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Authors and Affiliations

  1. Tongji University, Shanghai, 200082, China

    Yue Jiang, Jing Chen & Long Liu

  2. Shanghai Linfen Community Health Service Center, Shanghai, 200040, China

    Qi Chen

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  1. Yue Jiang
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Correspondence to Long Liu .

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  1. Purdue University, West Lafayette, IN, USA

    Vincent G. Duffy

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Jiang, Y., Chen, J., Chen, Q., Liu, L. (2023). Promote or Restrict? A Co-design Practice of a Palliative Care Information Management System in China. In: Duffy, V.G. (eds) Digital Human Modeling and Applications in Health, Safety, Ergonomics and Risk Management. HCII 2023. Lecture Notes in Computer Science, vol 14029. Springer, Cham. https://doi.org/10.1007/978-3-031-35748-0_5

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  • DOI: https://doi.org/10.1007/978-3-031-35748-0_5

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