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Information Systems for Federated Biobanks

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Transactions on Large-Scale Data- and Knowledge-Centered Systems I

Part of the book series: Lecture Notes in Computer Science ((TLDKS,volume 5740))

Abstract

Biobanks store and manage collections of biological material (tissue, blood, cell cultures, etc.) and manage the medical and biological data associated with this material. Biobanks are invaluable resources for medical research. The diversity, heterogeneity and volatility of the domain make information systems for biobanks a challenging application domain. Information systems for biobanks are foremost integration projects of heterogenous fast evolving sources.

The European project BBMRI (Biobanking and Biomolecular Resources Research Infrastructure) has the mission to network European biobanks, to improve resources for biomedical research, an thus contribute to improve the prevention, diagnosis and treatment of diseases.

We present the challenges for interconnecting European biobanks and harmonizing their data. We discuss some solutions for searching for biological resources, for managing provenance and guaranteeing anonymity of donors. Furthermore, we show how to support the exploitation of such a resource in medical studies with specialized CSCW tools.

The work reported here was partially supported by the European Commission 7th Framework program - project BBMRI and by the Austrian Ministry of Science and Research within the program Gen-Au - project GATIB.

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Author information

Authors and Affiliations

  1. Department of Informatics Systems, Alps Adria University Klagenfurt, Austria

    Johann Eder, Claus Dabringer & Michaela Schicho

  2. Department of Knowledge and Business Engineering, University of Vienna, Austria

    Konrad Stark

Authors
  1. Johann Eder
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  2. Claus Dabringer
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  3. Michaela Schicho
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  4. Konrad Stark
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Editors and Affiliations

  1. Institut de Recherche en Informatique de Toulouse (IRIT), Paul Sabatier University, 118, route de Narbonne, 31062, Toulouse CEDEX Cedex, France

    Abdelkader Hameurlain

  2. University of Linz, Altenbergerstraße 69, 4040, Linz, Austria

    Josef Küng  & Roland Wagner  & 

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Eder, J., Dabringer, C., Schicho, M., Stark, K. (2009). Information Systems for Federated Biobanks. In: Hameurlain, A., Küng, J., Wagner, R. (eds) Transactions on Large-Scale Data- and Knowledge-Centered Systems I. Lecture Notes in Computer Science, vol 5740. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-03722-1_7

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  • DOI: https://doi.org/10.1007/978-3-642-03722-1_7

  • Publisher Name: Springer, Berlin, Heidelberg

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