Skip to main content
SpringerLink
Log in

Empowering Independent Living for People with Autism: Designing Supportive, Low-Cost, Interactive E-Health Environments

  • Conference paper
Persuasive Technology. Design for Health and Safety (PERSUASIVE 2012)

Part of the book series: Lecture Notes in Computer Science ((LNISA,volume 7284))

Included in the following conference series:

Abstract

An investigation of the Caregiver Autism Residential E-health (CARE) system, a low-cost, end-user deployable smart home technology, has been evaluated for its potential as an empowering assistive technology for adults living with autism. It allows adults living with autism and their caregivers to create personalized smart home interventions that provide motivational support for activities of daily living, social relationships, and safer behaviors. This is achieved through the use of a ubiquitous computing system composed of off-the-shelf consumer electronic technologies. The Environmental Rating Scale (ERS), designed to assess residential interventions for people living with autism, guided the development and evaluation of CARE/ERS heuristics and interaction scenarios. The contributions of this investigation, advanced through an iterative design process involving expert reviewers, caregivers, and end-users in a patient centered approach for the design of actualizing e-health interventions, can be readily applied to a broad range of residential circumstances that improve quality of life.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Log in via an institution
Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 39.99
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 54.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  1. Advancing Futures for Adults with Autism (2011), http://www.afaa-us.org/site/ (retrieved December 15, 2011 )

  2. Ahrentzen, S., Barger, T., Blackbourn, J., Bosworth, G., Gerhardt, P., Hannah, N., et al.: Opening Doors: A Discussion of Residential Options for Adults Living With Autism and Related Disorders. Autism Center (2009), http://www.autismcenter.org/documents/openingdoors_print_042610_001.pdf (retrieved December 15, 2011 )

  3. Ahrentzen, S., Steele, K.: Advancing Full Spectrum Housing: Designing for Adults with Autism Spectrum Disorders. Arizona Board of Regents, Tempe (2010)

    Google Scholar 

  4. American Psychiatric Association, Diagnostic and Statistical Manual of Mental Disorders IV, Text Revision, Washington, DC, p. 70 (July 2000)

    Google Scholar 

  5. Autism Spectrum Disorder. Center for Disease Control and Prevention (2010), http://www.cdc.gov/ncbddd/autism/index.html (retrieved on December 15, 2011)

  6. Berberrt, R., Carrier, R., Bilodeau, A.: The Functional Autonomy Measurement System (SMAF): Description and validation of an instrument for the measurement of handicaps. Age and Ageing 17, 293–302 (1988)

    Article  Google Scholar 

  7. Burke, M., Kraut, R., Williams, D.: Social use of computer-mediated communication by adults on the autism spectrum. In: ACM CSCW 2010: Conference on Computer-Supported Cooperative Work, pp. 425–434 (2010)

    Google Scholar 

  8. Buxton, B.: Sketching User Experiences: Getting the Design Right and the Right Design. Morgan Kaufman, CA (2007)

    Google Scholar 

  9. Carmien, S., Dawe, M., Fischer, G., Gorman, A., Kintsch, A., Sullivan Jr., J.: Socio-technical environments supporting people with cognitive disabilities using public transportation. ACM Transactions on Human Computer Interactions 12(2), 233 (2005)

    Article  Google Scholar 

  10. Carroll, J.: Scenario-based design: envisioning work and technology in system development. John Wiley & Sons, Inc., New York (1995)

    Google Scholar 

  11. Cook, D.J., Youngblood, M., Heierman, E., Gopalratnam, K., Rao, S., Litvin, A., Khawaja, F.: MavHome: An agent-based smart home. In: Proceedings of Pervasive Computing 2003, pp. 521–524 (2003)

    Google Scholar 

  12. Fogg, B., Grudin, J., Nielsen, J., Card, S.: Persuasive Technology: Using Computers to Change What We Think and Do. Science & Technology Books (2002)

    Google Scholar 

  13. Geurts, H.M., Luman, M., Van Meel, C.S.: What’s in a game: the effect of social motivation on interference control in boys with ADHD and autism spectrum disorders. Journal of Child Psychology and Psychiatry 49, 848–857 (2008)

    Article  Google Scholar 

  14. Helfrich, D., Adrian, M.: Comfort, Clarity and Calm: Architecture for Autism. AUTISM Advocate 52(3), 1–6 (2008)

    Google Scholar 

  15. Heller, T., Caldwell, J.: Innovative project supports later-life planning for adults and their aging family caregivers. Maximizing Human Potential 8(3), 4–5 (2001)

    Google Scholar 

  16. Howlin, P., Goode, S.: Outcome in adult life for individuals with autism. In: Volkmar, F. (ed.) Autism and Developmental Disorders. Cambridge University Press (1998)

    Google Scholar 

  17. Indigo 4.0. Perceptive Automation (2011), http://www.perceptiveautomation.com/indigo/ (retrieved December 15, 2011)

  18. Jabrink, K., Knapp, M.R.J.: The Economic Impact of Autism in Britain. Autism 5(1), 7–22 (2001)

    Article  Google Scholar 

  19. Kientz, J., Patel, S., Jones, B., Price, E., Mynatt, E., Abowd, G.: The Georgia Tech aware home. In: CHI 2008 Extended Abstracts on Human Factors in Computing Systems (2008)

    Google Scholar 

  20. Krauss, M.W., Seltzer, M.M., Jacobson, H.T.: Adults with Autism living at home or in non-family settings: Positive and negative aspects of residential status. Journal of Intellectual Disability Research 49, 111–124 (2005); Anderson, R.E.: Social impacts of computing: Codes of professional ethics. Social Science Computing Review 10(2), 453–469 (1992)

    Article  Google Scholar 

  21. Kraemer, B.R., Blacher, J.: Transition for young adults with severe mental retardation: school preparation, parent expectations, and family involvement. Mental Retardation 39, 423–435 (2001)

    Article  Google Scholar 

  22. Kraemer, B., McIntyre, L., Blacher, J., James, S.: Quality of Life for Young Adults With Mental Retardation During Transition. Mental Retardation 41(4), 250–262 (2003)

    Article  Google Scholar 

  23. Leroy, G., De Leo, G.: Mobile Communication and Data Gathering Software for Autistic Children and Their Caregivers. Paper presented at the Positive Design: Technology + Design + Management = Creating New Models of Possibility for All, Monterrey, Mexico (2008)

    Google Scholar 

  24. Madsen, M., El Kaliouby, R., Goodwin, M., Picard, R.: Technology for just-in-time in-situ learning of facial affect for persons diagnosed with an autism spectrum disorder. In: Proceedings of the 10th International ACM SIGACCESS Conference on Computers and Accessibility (2008)

    Google Scholar 

  25. Mahoney, D.: Linking Home Care and the Workplace Through Innovative Wireless Technology: The Worker Interactive Networking (WIN) Project. Home Health Care Management Practice 16, 417–428 (2004)

    Article  Google Scholar 

  26. Mahoney, D., Mahoney, E., Liss, A.: AT EASE: Automated Technology for Elder Assessment, Safety, and Environmental monitoring. Gerontechnology 8(1), 11–25 (2009)

    Article  Google Scholar 

  27. Matson, J.L., Benavidez, D.A., Compton, L.S., Paclawskyj, T., Baglio, C.: Behavioral treatment of autistic persons. Research in Developmental Disabilities 17, 433–465 (1996)

    Article  Google Scholar 

  28. Matson, J.L., Boisjoli, J.A.: The token economy for children with intellectual disability and/or autism: a review. Research in Developmental Disabilities 30, 240–248 (2009)

    Article  Google Scholar 

  29. McGee, G., Krantz, P., Mason, D., McClannahan, L.: A modified incidental-teaching procedure for autistic youth: acquisition and generalization of receptive object labels. Journal of Applied Behavior Analysis 16(3), 329–338 (1983)

    Article  Google Scholar 

  30. MetLife Market Survey of Nursing Home, Assisted Living, Adult Day Services, and Home Care Costs (2010), http://www.metlife.com/assets/cao/mmi/publications/studies/2010/mmi-2010-market-survey-long-term-care-costs.pdf (retrieved on December 15, 2011)

  31. Mitchell, P., Parsons, S., Leonard, A.: Using Virtual Environments for Teaching Social Understanding to 6 Adolescents with Autistic Spectrum Disorders. Journal of Autism and Developmental Disorders 37(3), 589–600 (2007)

    Article  Google Scholar 

  32. O’Connor, M.: Linentracker Automates Management of Towels, Sheets. RFID Journal (2009), http://www.rfidjournal.com/article/view/533 (retrieved on December 15, 2011)

  33. Olivier, P., Monk, A., Xu, G., Hoey, J.: Ambient kitchen: Designing situated services using a high fidelity prototyping environment, Corfu, Greece, 2 (2009)

    Google Scholar 

  34. Pendaphone (2011), http://www.pendaphonics.com (retrieved on December 15, 2011)

  35. Teeters, A., El Kaliouby, R., Picard, R.W.: Self-Cam: Feedback From What Would be your Social Partner. In: ACM SIGGRAPH, 2006 Research Posters, Boston, MA, July 30-August 3, p. 138 (2006)

    Google Scholar 

  36. Tsui, K. M., Abu-Zahra, K., Casipe, R., M’Sadoques, J., Drury, J. L.: A Process for Developing Specialized Heuristics: Case Study in Assistive Robotics. Computer Science Tech Report 2009-11. University of Massachusetts Lowell, Lowell (2009)

    Google Scholar 

  37. Van Bourgondien, M.E., Mesibov, G.: Diagnosis and treatment of adolescents and adults with Autism. In: Dawson, G. (ed.) Autism, pp. 367–385. Guilford Press, New York (1989)

    Google Scholar 

  38. Van Bourgondien, G., Reichle, N., Campbell, D., Mesibov, G.: The environmental rating scale: A measure of the quality of the residential environment for adults with autism. Research in Developmental Disabilities 19(5), 381–394 (1998)

    Article  Google Scholar 

  39. Vanderheiden, G., Vanderheiden, K.: Guidelines for the Design of Consumer Products to Increase Their Accessibility to Persons with Disabilities or Who Are Aging (1992), http://trace.wisc.edu/docs/consumer_product_guidelines/consumer.htm (retrieved on December 15, 2011)

Download references

Author information

Authors and Affiliations

  1. School of Computing, Informatics, and Decision Systems Engineering, Arizona State University, USA

    Winslow Burleson, Naomi Newman & Ryan Brotman

Authors
  1. Winslow Burleson
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. Naomi Newman
    View author publications

    You can also search for this author in PubMed Google Scholar

  3. Ryan Brotman
    View author publications

    You can also search for this author in PubMed Google Scholar

Editor information

Editors and Affiliations

  1. Department of Computer and Information Science, Linköping University, Sweden

    Magnus Bang  & Eva L. Ragnemalm  & 

Rights and permissions

Reprints and permissions

Copyright information

© 2012 Springer-Verlag Berlin Heidelberg

About this paper

Cite this paper

Burleson, W., Newman, N., Brotman, R. (2012). Empowering Independent Living for People with Autism: Designing Supportive, Low-Cost, Interactive E-Health Environments. In: Bang, M., Ragnemalm, E.L. (eds) Persuasive Technology. Design for Health and Safety. PERSUASIVE 2012. Lecture Notes in Computer Science, vol 7284. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-31037-9_2

Download citation

  • DOI: https://doi.org/10.1007/978-3-642-31037-9_2

  • Publisher Name: Springer, Berlin, Heidelberg

  • Print ISBN: 978-3-642-31036-2

  • Online ISBN: 978-3-642-31037-9

  • eBook Packages: Computer ScienceComputer Science (R0)

Publish with us

Policies and ethics

Search

Navigation