Abstract
Where health and care provision is divided across organisation types, such as child health and palliative care, it is difficult for researchers to access comprehensive healthcare data. Integrated electronic health records offer an opportunity for research into care delivered within and across organisations. In this paper a new centralised model for accessing such data is justified using the critical success factors of an established research data provider. This validates a model that will facilitate integrated health research to inform the evidence base and systems used in clinical practice across organisations.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
ISO/TR 20514: Health Informatics – Electronic Health Record – Definition, Scope, and Context. ISO Technical Report. www.iso.org/iso/ (2004). Accessed 21 Aug 2012
Twomey, P., Whittaker, A., Jervis, C.: Implementation of the National Service Framework for Diabetes: Initial opportunities for a PCT to facilitate practice and health community action plans – year one experience. Qual. Prim. Care 12(3), 213–218 (2004)
Ammenworth, E., Schnell-Inderst, P., Machan, C., Siebert, U.: The effect of electronic prescribing on medication errors and adverse drug events: A systematic review. J. Am. Med. Inform. Assoc. 15(5), 585–600 (2008)
Graham, D.J., Campen, D., Hui, R., Spence, M., et al.: Risk of acute myocardial infarction and sudden cardiac death in patients treated with cyclo-oxygenase 2 selective and non-selective non-steroidal anti-inflammatory drugs: Nested case-control study. The Lancet 365(9458), 475–481 (2005)
Wilson, R., Baines, S., Cornford, J., Martin, M.: ‘Trying to do a jigsaw without the picture on the box’: Understanding the challenges of care integration in the context of single assessment for older people in England. Int. J. Integr. Care 7, 1–11 (2007)
Kawonga, M., Blaauw, D., Fonn, S.: Aligning vertical interventions to health systems: A case study of the HIV monitoring and evaluation system in South Africa. Health Res. Policy Syst. 10(2), 1–13 (2012)
Kuperman, G.J.: Health-information exchange: why are we doing it, and what are we doing? J. Am. Inf. Assoc. 18, 678–682 (2011)
Dobrey, A., Haesner, M., Hüsing, T., Korte, W.B., Meyer, I.: Benchmarking ICT use among general practitioners in Europe: final report. Empirica, Germany (2008)
Schoen, C., Osborn, R., Squires, D., Doty, M., Rasmussen, P., Pierson, R., et al.: A survey of primary care doctors in 10 countries shows progress in use of health information technology, less in other areas. Health Aff. (2012). doi:10.1377/hlthaff.2012.0884
Guttmann, A., Schull, M.J., Vermeulen, M.J., Stukel, T.A.: Association between waiting times and short term mortality and hospital admission after departure from emergency department: Population based cohort study from Ontario, Canada. Br. Med. J. 342, d2983 (2011)
Taylor, B., Miller, E., Farrington, C.P., Petropolous, M.-C.: Autism and measles, mumps, and rubella vaccine: No epidemiological evidence for a causal association. The Lancet 353, 2026–2029 (1999)
Vinogradova, Y., Coupland, C., Hippisley-Cox, J.: Exposure to bisphosphonates and risk of cancer: a protocol for nested case–control studies using the QResearch primary care database. Br. Med. J. Open 2, e000548 (2012)
Hippisley-Cox, J., Stables, D., Pringle, M.: QRESEARCH: A new general practice database for research. Inf. Prim. Care 12, 49–50 (2004)
Hippisley-Cox, J., Coupland, C., Vinogradova, Y., Robson, J., et al.: Predicting cardiovascular risk in England and Wales: Prospective derivation and validation of QRISK2. Br. Med. J. 336(7659), 1475–1482 (2008)
Hippisley-Cox, J., Coupland, C., Robson, J., Sheikh, A., et al.: Predicting risk of type 2 diabetes in England and Wales: prospective derivation and validation of QDScore. Br. Med. J. 338, b880 (2009)
Graham, I.M., Stewart, M., Hertog, M.G.L.: Factors impeding the implementation of cardiovascular prevention guidelines: findings from a survey conducted by the European Society of Cardiology. Eur. J. Preventative Cardiol. 13(5), 839–845 (2006)
Department of Health: The NHS Quality, Innovation, Productivity and Prevention Challenge: An Introduction for Clinicians. Crown Copyright, London (2010)
Department of Health: The power of information: putting all of us in control of the health and care information we need. Crown Copyright, London (2012)
Light, D., Dixon, M.: Making the NHS more like Kaiser Permanente. Br. Med. J. 328, 763 (2004)
Stoves, J., Connolly, J., Cheung, C.K., Grange, A. et al.: Electronic consultation as an alternative to hospital referral for patients with chronic kidney disease: a novel application for networked electronic health records to improve the accessibility and efficiency of healthcare. Qual. Saf. Health Care 19(5), e54 PMID: 20554576 (2010)
Ham, C., York, N., Sutch, S., Shaw, R.: Hospital bed utilisation in the NHS, Kaiser permanente, and the US medicare programme: analysis of routine data. Br. Med. J. 327, 1257 (2003)
Keen, J., Denby, T.: Partnerships in the digital age. In: Glasby, J., Dickinson, H. (ed.) International Perspectives on Health and Social Care: Partnerships Working in Action, pp. 95–107. Blackwell Publishing Ltd, Sussex (2009). ISBN-10: 1444322591
Moore, P., Armitage, G., Wright, J., Dobrzanski, S., et al.: Medicines reconciliation using a shared electronic health care record. J. Patient Saf. 7(3), 148–154 (2011)
Department of Health: Making IT happen: information about the National Programme for IT. www.dh.gov.uk/en/Publicationsandstatistics/ (2003). Accessed 27 July 2012
Cheetham, T.C., Levy, G., Niu, F., Bixler, F.: Gastrointestinal safety of nonsteroidal anti-inflammatory drugs and selective cyclooxygenase-2 Inhibitors in patients on warfarin. Ann. Pharmacother. 43(11), 1765–1773 (2009)
Bohensky, M.A., Jolley, D., Sundararajan, V., Evans, S., et al.: Data Linkage: A powerful research tool with potential problems. BMC Health Serv. Res. 10(1), 346 (2010)
Crossfield, S.S.R., Bates, C.J., Parry, J.: ResearchOne Database Protocol. Copyright ResearchOne (2012)
Cohen, J.: A power primer. Psychol. Bull. 112(1), 155–159 (1992)
Lowrance, W.: Learning from experience: privacy and the secondary use of data in health research. J. Health Serv. Res. Policy 8(1), 2–7 (2003)
Wellcome Trust: Towards Consensus for Best Practice: Use of patient records from general practice for research. www.wellcome.ac.uk/GPrecords (2009). Accessed 01 Aug 2012
Hippisley-Cox, J., Stables, D.: QRESEARCH: An ethical high quality general practice database for research. Copyright QRESEARCH (2011)
Economic and Social Data Service: www.ccsr.ac.uk/esds/variables/ (2012). Accessed 28 Aug 2012
Powell, J., Buchan, I.: Electronic Health Records Should Support Clinical Research. Journal of Medical Internet Research 7(1), e4 URL: www.jmir.org/2005/1/e4/ (2005)
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2014 Springer-Verlag Berlin Heidelberg
About this paper
Cite this paper
Crossfield, S.S.R., Clamp, S.E. (2014). Centralised Electronic Health Records Research Across Health Organisation Types. In: Fernández-Chimeno, M., et al. Biomedical Engineering Systems and Technologies. BIOSTEC 2013. Communications in Computer and Information Science, vol 452. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-662-44485-6_27
Download citation
DOI: https://doi.org/10.1007/978-3-662-44485-6_27
Published:
Publisher Name: Springer, Berlin, Heidelberg
Print ISBN: 978-3-662-44484-9
Online ISBN: 978-3-662-44485-6
eBook Packages: Computer ScienceComputer Science (R0)