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Designing a reliable pain drawing tool: avoiding interaction flaws by better tailoring to patients’ impairments

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Abstract

Patients with advanced cancer are influenced by the disease itself and by treatment side effects, both of which may have great impact on their lives. One of the most distressing symptoms is pain. However, pain in cancer patients can in most cases be relieved if the patient is able to communicate the nature and severity of the problem to the healthcare professionals through an effective assessment process. The main goal of this paper is to help form an understanding of central patient characteristics that should be taken into account when designing pain assessment tools for patients with advanced cancer. Traditionally, pain has been assessed by paper-based questionnaires and pain drawings. An iterative study was conducted based on repeated cycles of usability testing of a computerized pain body map for communicating pain by advanced cancer patients. Our aim was to provide a patient interface that most patients were able to interact with, collecting valuable, granular pain information with a minimum of strain on the patient. Through this process, we identified and solved design issues related to the sickest and frailest cancer patients. We further created a web-based solution for collecting individual pain drawings for evaluation by clinicians. The concept was appreciated by the patients, and the information provided was considered valuable by physicians. The main contribution of this paper is a list of suggestions to guide the design of an interactive tool for patients with advanced cancer.

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Acknowledgments

Thanks to Telltale Solutions LLC for diligence, professionalism and flexibility in developing the iPad-based Pain Body Map. Also thanks to Vivit AS for help with usability testing. Thanks to all patients and medical personnel who participated in the various aspects of the study. We also thank M.G. Jaatun for invaluable technical support through the study and writing process. The funding of this project was provided by the Liaison Committee between the Central Norway Regional Health Authority (RHA) and the Norwegian University of Science and Technology (NTNU) (Samarbeidsorganet).

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Authors and Affiliations

  1. European Palliative Care Research Centre, Norwegian University of Science and Technology, Trondheim, Norway

    Ellen Anna Andreassen Jaatun & Dagny Faksvåg Haugen

  2. Department of Otorhinolaryngology, Head and Neck Surgery, St. Olavs Hospital, Trondheim, Norway

    Ellen Anna Andreassen Jaatun

  3. Regional Centre of Excellence for Palliative Care, Western Norway, Haukeland University Hospital, Bergen, Norway

    Dagny Faksvåg Haugen

  4. Department of Clinical Medicine K1, University of Bergen, Bergen, Norway

    Dagny Faksvåg Haugen

  5. SINTEF ICT, Trondheim, Norway

    Yngve Dahl

  6. Department of Computer and Information Science, Norwegian University of Science and Technology, Trondheim, Norway

    Yngve Dahl & Anders Kofod-Petersen

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  1. Ellen Anna Andreassen Jaatun
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Correspondence to Ellen Anna Andreassen Jaatun.

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Jaatun, E.A.A., Haugen, D.F., Dahl, Y. et al. Designing a reliable pain drawing tool: avoiding interaction flaws by better tailoring to patients’ impairments. Pers Ubiquit Comput 19, 635–648 (2015). https://doi.org/10.1007/s00779-015-0850-3

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  • DOI: https://doi.org/10.1007/s00779-015-0850-3

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