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Evaluating the Privacy Policies of Mobile Personal Health Records for Pregnancy Monitoring

  • Mobile & Wireless Health
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Abstract

A mobile personal health record (mPHR) for pregnancy monitoring allows the pregnant woman to track and manage her personal health data. However, owing to the privacy and security issues that may threaten the exchange of this sensitive data, a privacy policy should be established. The aim of this study is to evaluate the privacy policies of 19 mPHRs for pregnancy monitoring (12 for iOS and 7 for Android) using a template covering the characteristics of privacy, security, and standards and regulations. The findings of this study show that none of the privacy policies evaluated entirely comply with the characteristics studied. The developers of mPHRs for pregnancy monitoring are, therefore, requested to improve and pay more attention to the structure and the content of the privacy policies of their apps.

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References

  1. Hung, P., Towards a privacy access control model for e-healthcare services. Third Annu. Conf. Privacy, Secur. Trust. 17799:12–14, 2005.

    Google Scholar 

  2. Ancker, J. S., Hafeez, B., and Kaushal, R., Socioeconomic disparities in adoption of personal health records over time. Am. J. Manag. Care. 22(8):539–540, 2016.

    PubMed  PubMed Central  Google Scholar 

  3. Ford, E. W., Hesse, B. W., and Huerta, T. R., Personal health record use in the United States: Forecasting Future Adoption Levels. J. Med. Internet Res. 18(3):e73, 2016.

    Article  PubMed  PubMed Central  Google Scholar 

  4. Fernández-Alemán, J. L., Seva-Llor, C. L., Toval, A., Ouhbi, S., and Fernández-Luque, L., Free web-based personal health records: An analysis of functionality. J. Med. Syst. 37(6):9990, 2013.

    Article  PubMed  Google Scholar 

  5. Meingast, M., Roosta, T., and Sastry, S., Security and privacy issues with health care information technology. Conf. Proc. IEEE Eng. Med. Biol. Soc. 1:5453–5458, 2006.

    PubMed  Google Scholar 

  6. Malin, B. A., El Emam, K., and O’Keefe, C. M., Biomedical data privacy: problems, perspectives, and recent advances. J. Am. Med. Informatics Assoc. 20(1):2–6, 2013.

    Article  Google Scholar 

  7. Ouhbi, S., Fernández-Alemán, J. L., Toval, A., Idri, A., and Pozo, J. R., Free blood donation mobile applications. J. Med. Syst. 39(5):52, 2015.

    Article  PubMed  Google Scholar 

  8. Sardi, L., Idri, A., and Fernández-Alemán, J. L., Gamified mobile blood donation applications. Int. Conf. Bioinform. Biomed. Eng. 1:165–176, 2017.

    Article  Google Scholar 

  9. Idri, A., Bachiri, M., Fernandez-Aleman, J. L., and Toval, A., ISO/IEC 25010 based evaluation of free mobile personal health records for pregnancy monitoring. Proc. - Int. Comput. Softw. Appl. Conf. 1:262–267, 2017.

    Google Scholar 

  10. Bouri, N., and Ravi, S., Going mobile: How mobile personal health records can improve health care during emergencies. JMIR Mhealth Uhealth. 2(1):e89, 2014.

    Article  Google Scholar 

  11. Ouhbi, S., Idri, A., Fernandez-Aleman, J. L., and Toval, A., Mobile personal health records for cardiovascular patients. In: 2015 Third World Conf. Complex Syst., pp. 1–6, 2015.

  12. Chavez, S. et al., Mobile apps for the management of diabetes. Diabetes Care. 40(10):e145–e146, 2017.

    Article  PubMed  PubMed Central  Google Scholar 

  13. Liu, L. S., Shih, P. C., and Hayes, G. R., Barriers to the adoption and use of personal health record systems. In: Proc. 2011 iConference - iConference ‘11, pp. 363–370, 2011.

  14. Zapata, B. C., Hernández Niñirola, A., Fernández-Alemán, J. L., and Toval, A., Assessing the privacy policies in mobile personal health records. IEEE Eng. Med. Biol. Soc. 2014:4956–4959, 2014.

    Google Scholar 

  15. Martinez-Pérez, B., de la Torre-Diez, I., and Lopez-Coronado, M., Privacy and security in mobile health apps: A Review and Recommendations. J. Med. Syst. 39(1):181, 2015.

    Article  PubMed  Google Scholar 

  16. Leino-Kilpi, H. et al., Privacy:a review of the literature. Int. J. Nurs. Stud. 38(6):663–671, 2001.

    Article  PubMed  CAS  Google Scholar 

  17. Haas, S., Wohlgemuth, S., Echizen, I., Sonehara, N., and Müller, G., Aspects of privacy for electronic health records. Int. J. Med. Inform. 80(2):e26–e31, 2011.

    Article  PubMed  Google Scholar 

  18. Bachiri, M., Idri, A., Fernández-Alemán, J. L., and Toval, A., Mobile personal health records for pregnancy monitoring functionalities: Analysis and potential. Comput. Methods Programs Biomed. 134:121–135, 2016.

    Article  PubMed  Google Scholar 

  19. Shaw, E. et al., Access to web-based personalized antenatal health records for pregnant women: a randomized controlled trial. J. Obstet. Gynaecol. Can. 30(1):38–43, 2008.

    Article  PubMed  Google Scholar 

  20. Lee, Y., and Moon, M., Utilization and content evaluation of mobile applications for pregnancy, birth, and child care. Healthc. Inform. Res. 22(2):73–80, 2016.

    Article  PubMed  PubMed Central  Google Scholar 

  21. Dehling, T., Gao, F., Schneider, S., and Sunyaev, A., Exploring the far side of mobile health: Information Security and Privacy of Mobile Health Apps on iOS and Android. JMIR mHealth uHealth. 3(1):e8, 2015.

    Article  PubMed  PubMed Central  Google Scholar 

  22. Adhikari, R., Richards, D., and Scott, K., Security and privacy issues related to the use of mobile health apps. In: 25th Australas. Conf. Inf. Syst. (ACIS 2014), no. Schulke 2013, pp. 1–11, 2014.

  23. Señor, I. C., Fernández-Alemán, J. L., and Toval, A., Are personal health records safe? A review of free web-accessible personal health record privacy policies. J. Med. Internet Res. 14(4):1–13, 2012.

    Google Scholar 

  24. Healthcare Mobile App Development and mHealth Apps, 2017. Available: https://medium.com/@Adoriasoft_Com/healthcare-mobile-app-development-and-mhealth-apps-in-2017-eb307d4cad36. [Accessed: 24-Sep-2017].

  25. Privacy Policy Guidance, 2017. Available: https://developers.google.com/actions/policies/privacy-policy-guide. [Accessed: 24-Sep-2017].

  26. App Store Review Guidelines, 2017. Available: https://developer.apple.com/app-store/review/guidelines/#health-and-health-research. [Accessed: 24-Sep-2017].

  27. International Organization for Standardization, 2011. ISO/TS 13606–4:2009: Health informatics -- Electronic Health Record Communication -- Part 4: Security. Available: https://www.iso.org/standard/50121.html. [Accessed: 29-Oct-2017].

  28. Yee, G., and Korba, L. Personal privacy policies. In: Vacca, J. R, (Ed.), Computer and Information Security Handbook. Amsterdam: Morgan Kaufmann, pp. 487–505, 2009.

  29. Denzin, N. K., Sociological Methods: A Sourcebook. New Brunswick, NJ: Aldine Transaction, 2006.

    Google Scholar 

  30. Arora, S., Yttri, J., and Nilsen, W., Privacy and Security in Mobile Health (mHealth) Research. Alcohol Res. Curr. Rev. 36(1):143–152, 2014.

    Google Scholar 

  31. Zubaydi, F., Saleh, A., Aloul, F., and Sagahyroon, A., Security of mobile health (mHealth) systems. In: 2015 IEEE 15th Int. Conf. Bioinforma. Bioeng. BIBE 2015, 2015.

  32. WebMD - Better information. Better health, 2018. Available: https://www.webmd.com. [Accessed: 04-Jun-2018].

  33. WebMD Privacy policy, 2017. Available: http://www.webmd.com/about-webmd-policies/about-privacy-policy. [Accessed: 01-Aug-2017].

  34. The commitment to reliable health and medical information on the internet, 2017. Available: http://www.hon.ch/HONcode/Patients/Visitor/visitor.html. [Accessed: 25-Sep-2017].

  35. Health On the Net Foundation, 2018. Available: https://www.hon.ch/HONcode/Patients/Visitor/visitor.html. [Accessed: 04-Jun-2018].

  36. Luxton, D. D., Kayl, R. A., and Mishkind, M. C., mHealth data security: The Need for HIPAA-Compliant Standardization. Telemed. e-Health. 18(4):284–288, 2012.

    Article  Google Scholar 

  37. 2018 reform of EU data protection rules, 2018. Available: https://ec.europa.eu/commission/priorities/justice-and-fundamental-rights/data-protection/2018-reform-eu-data-protection-rules_en#abouttheregulationanddataprotection. [Accessed: 05-Jun-2018].

  38. Carrión, I., Fernández-Alemán, J. L., Jayne, C., Palmer-Brown, D., Toval, A., and Carrillo-De-Gea, J. M., Evaluation and neuronal network-based classification of the PHRs privacy policies. Proc. Annu. Hawaii Int. Conf. Syst. Sci. 1:2840–2849, 2011.

    Google Scholar 

  39. Zapata, B. C., Niñirola, A. H., Fernández-Alemán, J. L., and Toval, A., Seguridad y privacidad en carpetas personales de salud para android e iOS. RISTI - Rev. Iber. Sist. e Tecnol. Inf. 13(1):35–50, 2014.

    Google Scholar 

  40. Huba, N., and Zhang, Y., Designing patient-centered personal health records (PHRs): Health care professionals’ perspective on patient-generated data. J. Med. Syst. 36(6):3893–3905, 2012.

    Article  PubMed  Google Scholar 

  41. Apple HealthKit, 2017. Available: https://developer.apple.com/documentation/healthkit. [Accessed: 01-Sep-2017].

  42. Avancha, S., Baxi, A., and Kotz, D., Privacy in mobile technology for personal healthcare. ACM Comput. Surv. 45(1):1–54, 2012.

    Article  Google Scholar 

  43. Win, K. T., Susilo, W., and Mu, Y., Personal health record systems and their security protection. J. Med. Syst. 30(4):309–315, 2006.

    Article  PubMed  Google Scholar 

  44. Fernández-Alemán, J. L., Señor, I. C., Lozoya, P. A. O., and Toval, A., Security and privacy in electronic health records: A systematic literature review. J. Biomed. Inform. 46(3):541–562, 2013.

    Article  PubMed  Google Scholar 

  45. Apple Health App, 2017. Available: https://www.apple.com/ios/health/. [Accessed: 20-Sep-2017].

  46. Zhang, L., Zhang, Y., Tang, S., and Luo, H., Privacy protection for E-Health systems by means of dynamic authentication and three-factor key agreement. IEEE Trans. Ind. Electron. 65(3):2795–2805, 2018.

    Article  Google Scholar 

  47. Model Privacy Notice (MPN), 2017. Available: https://www.healthit.gov/policy-researchers-implementers/model-privacy-notice-mpn. [Accessed: 12-Dec-2017].

  48. About the PHR Model Privacy Notice, 2011. Available: https://www.healthit.gov/sites/default/files/phr-model-privacy-notice-backgrounder-final.pdf. [Accessed: 12-Dec-2017].

  49. 2016 Model Privacy Notice, 2016. Available: https://www.healthit.gov/sites/default/files/2016_model_privacy_notice.pdf. [Accessed: 12-Dec-2017].

  50. Stone, P. W., Popping the (PICO) question in research and evidence-based practice. Appl. Nurs. Res. 15(3):197–198, 2002.

    Article  PubMed  Google Scholar 

  51. Wetherall, D., et al., Privacy revelations for web and mobile apps. In: Proc. 13th USENIX Conf. Hot Top. Oper. Syst., pp. 21–21, 2011.

  52. Ouhbi, S., Fernández-Alemán, J. L., Carrillo-de-Gea, J. M., Toval, A., and Idri, A., E-health internationalization requirements for audit purposes. Comput. Methods Programs Biomed. 144:49–60, 2017.

    Article  PubMed  Google Scholar 

  53. Cruz Zapata, B., Fernández-Alemán, J. L., Toval, A., and Idri, A., Reusable Software usability specifications for mHealth applications. J. Med. Syst. 42(3):1–9, 2018.

    Article  Google Scholar 

  54. El-Gayar, O., Timsina, P., Nawar, N., and Eid, W., Mobile applications for diabetes self-management: Status and potential. J. Diabetes Sci. Technol. 7(1):247–262, 2013.

    Article  PubMed  PubMed Central  Google Scholar 

  55. Kadi, I., Idri, A., and Fernandez-Aleman, J. L., Knowledge discovery in cardiology: A systematic literature review. Int. J. Med. Inform. 97:12–32, 2017.

    Article  PubMed  CAS  Google Scholar 

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Acknowledgements

This work was conducted within the research project MPHR-PPR1-2015-2017. The authors would like to thank the Moroccan MESRSFC and CNRST for their support. It is also a part of the GINSENG project (TIN2015-70259-C2-2-R) supported by the Spanish Ministry of Economy and Competitiveness and European FEDER funds.

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Correspondence to Mariam Bachiri.

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This article does not contain any studies with human participants or animals performed by any of the authors.

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This article is part of the Topical Collection on Mobile & Wireless Health

Appendix 1

Appendix 1

Table 3 Evaluation results of the privacy policies of the selected mPHRs for pregnancy monitoring

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Bachiri, M., Idri, A., Fernández-Alemán, J.L. et al. Evaluating the Privacy Policies of Mobile Personal Health Records for Pregnancy Monitoring. J Med Syst 42, 144 (2018). https://doi.org/10.1007/s10916-018-1002-x

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