Abstract
This article presents the Islamic bioethical deliberation on the issue of sex assignment surgery (SAS) for infants with disorders of sex development (DSD) or intersexed as a case study. The main objective of this study is to present a different approach in assessing a biomedical issue within the medium of the Maqasid al-Shari’ah. Within the framework of the maqasidic scheme of benefits and harms, any practice where benefits are substantial is considered permissible, while those promoting harms are prohibited. The concept of Maqasid al-Shari’ah which is the mechanistic interpretation of Qur’an and Hadith presents the holistic attention of Islam on many life activities, including healthcare. Indeed, this concept encompasses many aspects of worldly life, both for the human individual and collectively for the whole society. In healthcare, the practice of SAS on DSD newborns has presented an assortment of implications on the future livelihood of the affected individual. The process of decision-making seems to be very multifaceted since every element such as the determination of the ‘correct’ sex and the urgency of early surgery must consider the benefits and harms, as well as the child’s rights and best interest. The application of the concept of Maqasid al-Shari’ah, would convey a pragmatic approach that is often disregarded in Western medicine. This approach considers the right of the individual to live life optimally, individually and socially and practice his faith, precisely, in accordance with the assigned gender.
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Notes
For clarity, AIS is substituted for TFS (Testicular Feminisation Syndrome) which is basically the same condition for the intersexed considered in the fatwa.
Personal communication with Officer in Islamic Affairs, Selangor Mufti Department, Malaysia about the issue of gender ambiguity dated October 14th, 2008.
References
AbdelKader, D. (2003). Modernity, the principles of public welfare (Maslaha) and the end goals of Shari’a (Maqasid) in Muslim legal thought. Islam and Christian–Muslim Relations. New York: Routledge.
Ahmed, L. (1992). Women and gender in Islam: Historical roots of a modern debate. New Haven: Yale University Press.
Al attas, S. M. N. (1995). Prolegomena to the metaphysics of Islam: An exposition of the fundamental elements of the worldview of Islam. Kuala Lumpur: Institute of Islamic Thought and civilization.
Ali, A. S. M. (1989). Al-Mawarith fi al-Shariah al-Islamiyyah fi Daw’ al-Kitab wa al-Sunnah. Damshiq: Dar al-Qalam.
Al-Jammas, Diya’ al-Din. (1993). Dirasat Tibbiyya Fiqhiyya Mu’asira. Damascus: Markaz Nur al-Sha’, lilKitab.
Al-Matroudi, A. H. (2006). The Hanbali School of Law and Ibn Taymiyyah: Conflict or conciliation. New York: Routledge.
Al-Tdlibin, M. (1949). Al-Majmu’Sharh al-Muhadhdhab. Egypt: Matba’at al-Imam.
Ath-Thayyar, A. (2006). Ensiklopedia Shalat:Tuntutan Shalat Lengkap. (Trans: Halim, A.M). Jakarta: Maghfirah Pustaka.
Auda, J. (2010). Maqasid al-Shariah as philosophy of Islamic law, a systems approach. Kuala Lumpur: Islamic Book Trust.
Badran, B. A. A. (1985). Al-Mawarith wa al-Wasiyyah wa al-Hibah fi al-Shari’ah al-Islamiyyah wa al-Qanun wa Nusus al-Qawanin al-Sadirah li Shu’nihu. Al-Iskandariyyah: Mu’assasah Shabab al-Jami’ah.
Beauchamp, T. L., & Childress, J. F. (2001). Principles of biomedical ethics. Oxford: Oxford University Press.
Beh, H. G., & Diamond, M. (2000). An emerging ethical and medical dilemma: Should physicians perform sex assignment surgery on infants with ambiguous genitalia? Michigan Journal of Gender and Law, 7(1), 1–65.
Bouhdiba, A. (2013). Sexuality in Islam. New York: Routledge.
Chase, C. (1998). Surgical process is not the answer to intersexuality. Journal of Clinical Ethics, 9, 385–391.
Chase, C. (1999). Rethinking treatment for ambiguous genitalia. Pediatric Nursing, 25, 451–455.
Ciaravino, H. (2001). How to pray: Tapping into the power of divine communication. New York: Square One Publishers.
Colapinto, J. (1997). “The True Story of John/Joan”. Rolling Stone(Dec.11, 1998). Accessed February 1, 2014 from http://www-psych.stanford.edu/~gender/RollingStone_Colapinto.pdf.
Coventry, M. (1999). Finding the words. In A. D. Dreger (Ed.), Intersex in the age of ethics (pp. 71–78). Hagerstown, MD: University Publishing Group.
Creighton, S., & Liao, L. (2004). Changing attitudes to sex assignment in DSD. British Journal of Urology International, 93(5), 659–664.
Crouch, N., Minto, C., Liao, L.-M., & Woodhouse, C. (2004). Genital sensation after feminizing genitoplasty for congenital adrenal hyperplasia. British Journal of Urology International., 93(1), 135–138.
Daar, A. S., & Khitamy, A. (2001). Bioethics for clinicians: 21 Islamic bioethics. Canadian Medical Association Journal, 164(1), 60–63.
Diamond, M., & Sigmundson, H. K. (1997). Sex reassignment at birth: Long-term review and clinical implications. Archives of Pediatrics and Adolescent Medicine, 151(3), 298–304.
Domurat, A. D. (1998). Ambiguous sex or ambivalent medicine? Ethical issues in the treatment of intersexuality. Hasting Center Report, 28(3), 24–35.
Dreger, A. D. (1998). Hermaphrodites and the medical intervention of sex. Cambridge: Harvard University Press.
Dreger, A. D., & Herdon, A. M. (2009). Progress and politics in the intersex rights movement: Feminist theory in action. A Journal of Lesbian and Gay Studies, 15(2), 199–224.
Fausto-Sterling, A. (1996). How to build a man. In V. A. Rosario (Ed.), Science and homosexualities. New York: Routledge.
Fernando, J. M. (2006). The position of Islam in the constitution of Malaysia. Journal of Southeast Asian Studies, 37(2), 249.
Ford, K. K. (2001). “ First, Do No Harm”: The Fiction of Legal Parental Consent to Genital-Normalizing Surgery on Intersexed Infants. Yale Law & Policy Review, 19(2), 488.
Grumbach, M.M., Hughes, I.A., & Conte, F.A. (2003). Disorder of Sex differentiation. In P.R.Larsen, H.M.Kronenberg, S. Melmed and K.S Polonsky (Eds.), Williams Textbook of Endocrinology (pp. 842–1002). Heidelberg, Germany: Saunders.
Hallaq, W. B. (2004). A history of Islamic legal theories: An introduction to Sunni Usul Fiqh. Cambridge: Cambridge University Press.
Hermer, L. D. (2002). Paradigms revised: Intersex children, bioethics and the law. Annals Health Law, 11, 199.
Hines, M. (2004). Brain gender. New York: Oxford University Press.
Hughes, I. A., Houk, C., Ahmed, S. F., & Lee, P. A. (2006). Consensus statement on management of DSD disorders. Archives of Disease in Childhood, 91(7), 554–563.
Ibrahim, Y. A. (1986). Al-Mirath fi al-Shari’ah al-Islamiyyah. Beirut: Mu’assasah al-Risalah.
Kamali, M. H. (1999). Maqasid Al-Syariah. The objectives of Islamic law. Islamabad: Islamic Research Institute, International Islamic University Islamabad.
Kamali, M. H. (2009). Principles of Islamic jurisprudence. Subang Jaya: Ilmiah Publication.
Kass, E., Kogan, S. J., Manley, C., Wacksman, J. A., Klykylo, W. M., Meza, A., et al. (1996). Timing of elective surgery on the genitalia of male children with particular reference to the risks, benefits, and psychological effects of surgery and anesthesia. Pediatrics, 97(4), 590–594.
Kessler, S. (1990). The medical construction of gender: Case management of intersexed newborns. Journal of Women Culture Society, 16, 3–26.
Kessler, S.J. (1998). Lessons from intersexed, New Brunswick, New Jersey: Rutgers University Press.
Kipnis, K., & Diamond, M. (1998). Pediatrics ethics and the surgical assignment of sex. Journal of Clinical Ethics, 9(4), 398–410.
Lev, A. I. (2006). Intersexuality in the family: An unacknowledged trauma. Journal of Gay & Lesbian Psychotherapy, 10(2), 27–56.
Majah, I., & Ibn Yazid, M. (1984). Al-Sunan Ibn Majah. Beirut: Dar Ihya al-Turath al-Arabi.
Malaysian Islamic Development Department (JAKIM). (2007). Keputusan Fatwa Kebangsaan (Vol. 1). Kuala Lumpur: Percetakan Nasional Malaysia Berhad.
Malaysian Islamic Development Department (JAKIM). (2014). The Issue of Congenital Adrenal Hyperplasia Gender Confusion and testicular Feminization Syndrome. Accessed 23 March 2014 from http://www.e-fatwa.gov.my/fatwa-negeri/isu-kekeliruan-jantina-congenital-adrenal-hyperplasia-dan-testicular-feminization-0.
Manzur, Y. A. D. M. I. (1975). Lisan al-arab. Al Dar al-Misriyya Li-l-ta’lif wa-l-tarhim. Dar Sadir: Beirut.
Mohamed, M. S., & Nor, S. N. M (2010). Ensuring sustainable society through informed and culturally relevant decision-making procedures in medicine, Proceeding paper in 9th Universiti Malaysia Terengganu International Annual Symposium on Sustainability and Management, 1, 123–127.
Money, J., & Ehrhardt, A. E. (1973). Man and woman, boy and girl. Baltimore: Johns Hopkins University Press.
Money, J., Hampson, J. C., & Hampson, J. L. (1955). Hermaphroditism: Recommendations concerning assignments of sex, change of sex, and psychological management. John Hopkins Medical Journal, 97, 284–300.
Nyazee, I. A. K. (2000). Islamic Jurispudence (Usul al-Fiqh). Islamabad: Islamic Research Institute Press.
Ortner, S. (1974). Is female to male as nature to culture? In M. Rosaldo & L. Lamphere (Eds.), Woman, culture, and society. Standford: Standford University Press.
Preves, S. E. (1998). For the sake of the children: Destigmatizing intersexuality. Journal of Clinical Ethics, 9, 411–414.
Qudamah, I., & al-Maqdisi, M. A. D. (1972). al-Mughni. Riyadh: Al-Maktabah al-Haditsah.
Rahman, F. (1975). llmu Waris. Bandung: PT AI-Ma’arif.
Reiner, W. G. (1996). Case study: Sex reassignment in a teenage girl. Journal of the American Academy of Child and Adolescent Psychiatry, 35(6), 799–803.
Sajuri, N. (2006). Sex determination for ambiguous genitalia and testicular feminisation syndrome, 55th Panel Meeting For Syariah Studies of Malaysia, 20 Februari 2006. Kuala Lumpur: Jabatan Kemajuan Islam Malaysia [Governmental document].
Schober, J. M. (1999). Long-term outcomes and changing attitudes to intersexuality. British Journal of Urology International, 83(3), 39–50.
Solihu, A. K. H., & Ambali, A. R. (2011). Dissolving the engineering moral dilemmas within the Islamic ethico-legal praxes. Science and engineering ethics, 17(1), 133–147.
The Islamic Fiqh Academy (1989). The issue of transforming the male into a female, and vice versa. Accessed on March 1, 2014 from http://www.islamopediaonline.org/fatwa/international-islamic-fiqh-academy-jeddah-rules-against-trans-sexuality-calling-it-crime-suppo.
Warne, G. L., & Raza, J. (2008). Disorders of sex development (DSDs), their presentation and management in different cultures. Reviews in Endocrine and Metabolic Disorders, 9(3), 227–236.
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Mohamed, M.S., Noor, S.N.M. Islamic Bioethical Deliberation on the Issue of Newborns with Disorders of Sex Development. Sci Eng Ethics 21, 429–440 (2015). https://doi.org/10.1007/s11948-014-9534-z
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DOI: https://doi.org/10.1007/s11948-014-9534-z