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Dealing with wandering: a case study on caregivers' attitudes towards privacy and autonomy when reflecting the use of LBS

Published: 07 November 2010 Publication History

Abstract

We present an empirical study that is being conducted in the context of developing a GPS locating system for individuals with Alzheimer's disease (AD) in Germany. A disposition of wandering is one of the most problematic symptoms as it fosters anxiety, disorientation and can even lead to life-threatening situations. Our qualitative empirical study contributes to the research on social phenomena which reveals some technical implications for the development of location-based services (LBS) in dementia care. We demonstrate that common concepts such as the dilemmas "awareness vs. privacy" in general and "safety vs. autonomy" in the context of monitoring systems for wandering patients need to be tackled from practice-based views. Our study attempts to understand caregivers' practices and attitudes towards these concepts.

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Cited By

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  • (2025)Designing for those who are Overlooked - Investigating long-term Impacts of Social Robotics for People with Advanced Dementia, Caregivers and Relatives in a Secured Care EnvironmentProceedings of the ACM on Human-Computer Interaction10.1145/37011909:1(1-30)Online publication date: 10-Jan-2025
  • (2022)Privacy Research with Marginalized GroupsProceedings of the ACM on Human-Computer Interaction10.1145/35555566:CSCW2(1-33)Online publication date: 11-Nov-2022
  • (2020)Approach Matters: Linking Practitioner Approaches to Technology Design for People with DementiaProceedings of the 2020 CHI Conference on Human Factors in Computing Systems10.1145/3313831.3376432(1-15)Online publication date: 21-Apr-2020
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      cover image ACM Conferences
      GROUP '10: Proceedings of the 2010 ACM International Conference on Supporting Group Work
      November 2010
      378 pages
      ISBN:9781450303873
      DOI:10.1145/1880071
      Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

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      Published: 07 November 2010

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      Author Tags

      1. alzheimer's disease
      2. attitudes
      3. autonomy
      4. dementia
      5. family caregivers
      6. grounded theory
      7. localization system
      8. nursing home
      9. privacy
      10. semi-structured interviews

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      GROUP '10
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      GROUP '10: ACM 2010 International Conference on Supporting Group Work
      November 7 - 10, 2010
      Florida, Sanibel Island, USA

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      Cited By

      View all
      • (2025)Designing for those who are Overlooked - Investigating long-term Impacts of Social Robotics for People with Advanced Dementia, Caregivers and Relatives in a Secured Care EnvironmentProceedings of the ACM on Human-Computer Interaction10.1145/37011909:1(1-30)Online publication date: 10-Jan-2025
      • (2022)Privacy Research with Marginalized GroupsProceedings of the ACM on Human-Computer Interaction10.1145/35555566:CSCW2(1-33)Online publication date: 11-Nov-2022
      • (2020)Approach Matters: Linking Practitioner Approaches to Technology Design for People with DementiaProceedings of the 2020 CHI Conference on Human Factors in Computing Systems10.1145/3313831.3376432(1-15)Online publication date: 21-Apr-2020
      • (2019)What are the perceptions of people living with dementia, family carers, professionals and other potential stakeholders to the use of global positioning systems to promote safer outdoor walking?: a qualitative literature reviewDisability and Rehabilitation: Assistive Technology10.1080/17483107.2019.168607416:6(614-623)Online publication date: 11-Nov-2019
      • (2018)Technological interventions to increase mobility of older adults with dementia2018 IEEE 6th International Conference on Serious Games and Applications for Health (SeGAH)10.1109/SeGAH.2018.8401368(1-6)Online publication date: May-2018
      • (2017)Tracking down a solution: exploring the acceptability and value of wearable GPS devices for older persons, individuals with a disability and their support personsDisability and Rehabilitation: Assistive Technology10.1080/17483107.2016.127214012:8(822-831)Online publication date: 18-Jan-2017
      • (2016)Design of A GPS Monitoring System for Dementia Care and its Challenges in Academia-Industry ProjectACM Transactions on Computer-Human Interaction10.1145/296309523:5(1-36)Online publication date: 10-Oct-2016
      • (2016)A technology-enhanced service for person-centered dementia careProceedings of the 9th ACM International Conference on PErvasive Technologies Related to Assistive Environments10.1145/2910674.2910722(1-4)Online publication date: 29-Jun-2016
      • (2016)"Counting on the Group"Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems10.1145/2858036.2858477(3545-3558)Online publication date: 7-May-2016
      • (2016)Location-based technologies for supporting elderly pedestrian in “getting lost” eventsDisability and Rehabilitation: Assistive Technology10.1080/17483107.2016.118179912:4(315-323)Online publication date: 4-Jul-2016
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