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The participatory patient

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Tariq AndersenAuthors Info & Claims

PDC '10: Proceedings of the 11th Biennial Participatory Design Conference

Pages 151 - 154

https://doi.org/10.1145/1900441.1900463

Published: 29 November 2010 Publication History

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Abstract

This paper introduces the concept of the "participatory patient" as a vehicle to promote attention to patients' dual enactment of participation on participatory design (PD) projects in healthcare. By an empirical case-story from an ongoing PD project in healthcare, I illustrate the relationship between a patient's work on the project as a co-designer and his work of being a patient using a prototype. I conclude by arguing for the importance of being aware of the ways in which patients inscribe patient work and non-work and thinking of what kind of working or non-working patients it implies.

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Cited By

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Voilmy DDjellal A(2024)Le patient participatif pour le développement de la santé numérique dans le champ gériatriqueDroit, Santé et Société10.3917/dsso.103.0027N° 3:3(27-35)Online publication date: 14-Feb-2024
https://doi.org/10.3917/dsso.103.0027
Çarçani KBratteteig THolone HHerstad J(2023)EquiP: A Method to Co-Design for CooperationComputer Supported Cooperative Work (CSCW)10.1007/s10606-023-09463-w32:3(385-438)Online publication date: 21-Mar-2023
https://doi.org/10.1007/s10606-023-09463-w
Laursen CFinken S(2020)Silent Data, Active PatientsHuman-Centric Computing in a Data-Driven Society10.1007/978-3-030-62803-1_31(398-408)Online publication date: 10-Nov-2020
https://doi.org/10.1007/978-3-030-62803-1_31
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Published In

PDC '10: Proceedings of the 11th Biennial Participatory Design Conference

November 2010

314 pages

ISBN:9781450301312

DOI:10.1145/1900441

Conference Chair:
Toni Robertson
Univ. of Technology Sydney, Australia
,
Program Chairs:
Keld Bødker
Roskilde University, Denmark
,
Tone Bratteteig
University of Oslo, Norway
,
Daria Loi
Intel Corporation

Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

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Association for Computing Machinery

New York, NY, United States

Publication History

Published: 29 November 2010

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PDC '10

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DE
UTS-HCTDRS
SIGCHI-Australia
Zumio

PDC '10: The 11th Biennial Participatory Design Conference

November 29 - December 3, 2010

Sydney, Australia

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Overall Acceptance Rate 49 of 289 submissions, 17%

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Voilmy DDjellal A(2024)Le patient participatif pour le développement de la santé numérique dans le champ gériatriqueDroit, Santé et Société10.3917/dsso.103.0027N° 3:3(27-35)Online publication date: 14-Feb-2024
https://doi.org/10.3917/dsso.103.0027
Çarçani KBratteteig THolone HHerstad J(2023)EquiP: A Method to Co-Design for CooperationComputer Supported Cooperative Work (CSCW)10.1007/s10606-023-09463-w32:3(385-438)Online publication date: 21-Mar-2023
https://doi.org/10.1007/s10606-023-09463-w
Laursen CFinken S(2020)Silent Data, Active PatientsHuman-Centric Computing in a Data-Driven Society10.1007/978-3-030-62803-1_31(398-408)Online publication date: 10-Nov-2020
https://doi.org/10.1007/978-3-030-62803-1_31
Grosjean SBonneville LRedpath C(2019)Le patient comme acteur du design en e-santé : design participatif d’une application mobile pour patients cardiaquesSciences du Design10.3917/sdd.009.0065n° 9:1(65-83)Online publication date: 25-Apr-2019
https://doi.org/10.3917/sdd.009.0065
Nielsen KLangstrup H(2018)Tactics of material participation: How patients shape their engagement through e-healthSocial Studies of Science10.1177/030631271876915648:2(259-282)Online publication date: 20-Apr-2018
https://doi.org/10.1177/0306312718769156
Davy CBleasel JLiu HTchan MPonniah SBrown A(2015)Factors influencing the implementation of chronic care models: A systematic literature reviewBMC Family Practice10.1186/s12875-015-0319-516:1Online publication date: 19-Aug-2015
https://doi.org/10.1186/s12875-015-0319-5
Kanstrup ABertelsen PNøhr C(2015)Patient Innovation: An Analysis of Patients' Designs of Digital Technology Support for Everyday Living with DiabetesHealth Information Management Journal10.1177/18333583150440010244:1(12-20)Online publication date: 1-Mar-2015
https://doi.org/10.1177/183335831504400102
Storni C(2015)A Manifesto for Epistemological Empowerment in Chronic Disease Self CareEmpowering Users through Design10.1007/978-3-319-13018-7_15(267-279)Online publication date: 13-Jan-2015
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Andersen TBruckman ACounts SLampe CTerveen L(2013)Medication management in the makingProceedings of the 2013 conference on Computer supported cooperative work10.1145/2441776.2441901(1103-1112)Online publication date: 23-Feb-2013
https://dl.acm.org/doi/10.1145/2441776.2441901

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Emerging spaces in community-based participatory design: reflections from two case studies

The early shaping of participatory design at PDC

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