research-article

Caring for caregivers: designing for integrality

Authors:

Sun Young ParkAuthors Info & Claims

CSCW '13: Proceedings of the 2013 conference on Computer supported cooperative work

Pages 91 - 102

https://doi.org/10.1145/2441776.2441789

Published: 23 February 2013 Publication History

Abstract

Health and wellness have drawn significant attention in the HCI and CSCW communities. Many prior studies have focused on designing technologies that are patient-centric, allowing caregivers to take better care of patients. Less has been done in understanding and minimizing the burden of caregiving in caregivers' own lives. We conducted a qualitative interview study to understand their experiences in caregiving. The findings reveal a great magnitude of challenges in the caregivers' day-to-day lives, ranging from the physical and social, to the personal and emotional. Caregivers have to constantly balance their personal lives with work, family, and their caregiver roles, which can be overwhelmingly stressful. We discuss how caregivers attempt maintaining this balance through two concepts: first, giving-impact, and second, visibility-invisibility. Our study's findings call for system design that focuses not only on patients but also caregivers, addressing the burdens that often impair their health and wellness.

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Cited By

Sha YRoth ALankenau SSchwartz DMarcu G(2025)Meeting People Where They Are: Building Community-Centered Care with Smartphone-Facilitated Response to OverdosesProceedings of the ACM on Human-Computer Interaction10.1145/37012009:1(1-23)Online publication date: 10-Jan-2025
https://dl.acm.org/doi/10.1145/3701200
Homaeian LDuong VKatsuragawa KWallace J(2025)Community Support for Aging in Place: A Computational Thematic Analysis of Discussions about Informal Care on RedditProceedings of the ACM on Human-Computer Interaction10.1145/37011879:1(1-25)Online publication date: 10-Jan-2025
https://dl.acm.org/doi/10.1145/3701187
Kabir KCohoon JLund JChen JMetz AWiese J(2025)Balancing Care Responsibilities with Remote WorkProceedings of the ACM on Human-Computer Interaction10.1145/37011829:1(1-21)Online publication date: 10-Jan-2025
https://dl.acm.org/doi/10.1145/3701182
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Index Terms

Caring for caregivers: designing for integrality
1. Applied computing
  1. Life and medical sciences
2. Human-centered computing
  1. Collaborative and social computing
  2. Human computer interaction (HCI)

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cover image ACM Conferences

CSCW '13: Proceedings of the 2013 conference on Computer supported cooperative work

February 2013

1594 pages

ISBN:9781450313315

DOI:10.1145/2441776

General Chairs:
Amy Bruckman
Georgia Institute of Technology, USA
,
Scott Counts
Microsoft Research, USA
,
Program Chairs:
Cliff Lampe
University of Michigan, USA
,
Loren Terveen
University of Minnesota, USA

Copyright © 2013 ACM.

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SIGCHI: ACM Special Interest Group on Computer-Human Interaction

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Association for Computing Machinery

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Published: 23 February 2013

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CSCW '13

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CSCW '13: Computer Supported Cooperative Work

February 23 - 27, 2013

Texas, San Antonio, USA

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Overall Acceptance Rate 2,235 of 8,521 submissions, 26%

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Cited By

Sha YRoth ALankenau SSchwartz DMarcu G(2025)Meeting People Where They Are: Building Community-Centered Care with Smartphone-Facilitated Response to OverdosesProceedings of the ACM on Human-Computer Interaction10.1145/37012009:1(1-23)Online publication date: 10-Jan-2025
https://dl.acm.org/doi/10.1145/3701200
Homaeian LDuong VKatsuragawa KWallace J(2025)Community Support for Aging in Place: A Computational Thematic Analysis of Discussions about Informal Care on RedditProceedings of the ACM on Human-Computer Interaction10.1145/37011879:1(1-25)Online publication date: 10-Jan-2025
https://dl.acm.org/doi/10.1145/3701187
Kabir KCohoon JLund JChen JMetz AWiese J(2025)Balancing Care Responsibilities with Remote WorkProceedings of the ACM on Human-Computer Interaction10.1145/37011829:1(1-21)Online publication date: 10-Jan-2025
https://dl.acm.org/doi/10.1145/3701182
Luna GDermid GUnger J(2024)Fentanyl harm reduction strategies among Latinx communities in the United States: a scoping reviewHarm Reduction Journal10.1186/s12954-024-01070-221:1Online publication date: 16-Aug-2024
https://doi.org/10.1186/s12954-024-01070-2
Nikkhah SRode AKulkarni NMittal PMueller EMiller A(2024)Family Resilience in Care Coordination Technologies: Designing for Families as Adaptive SystemsProceedings of the ACM on Human-Computer Interaction10.1145/36869988:CSCW2(1-28)Online publication date: 8-Nov-2024
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Patel SNikkhah SNadkarni SSuryawanshi PSureddi RBhoyar MKulkarni PJogadia DShimala SHarishchandrakar ASanaeipoor SMueller EMiller AFarzan RLópez CCardoso Llach DQuercia DMustafa MNiu SWong-Villacrés M(2024)Designing for Resilient Caregiving Coordination Journeys: Prioritizing Features Across Families and PhasesCompanion Publication of the 2024 Conference on Computer-Supported Cooperative Work and Social Computing10.1145/3678884.3681901(525-532)Online publication date: 11-Nov-2024
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Kong EHuang KGautam AFarzan RLópez CCardoso Llach DQuercia DMustafa MNiu SWong-Villacrés M(2024)Envisioning Possibilities and Challenges of AI for Personalized Cancer CareCompanion Publication of the 2024 Conference on Computer-Supported Cooperative Work and Social Computing10.1145/3678884.3681885(415-421)Online publication date: 11-Nov-2024
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Wu YLee JPillai ACho JAhmadpour NRoto VSachathep TLiu JSawan MSong DČaić MCheng LLiu RKettley SSoares LGrace KAstell-Burt TFarzan RLópez CCardoso Llach DQuercia DMustafa MNiu SWong-Villacrés M(2024)Collective Imaginaries for the Futures of Care WorkCompanion Publication of the 2024 Conference on Computer-Supported Cooperative Work and Social Computing10.1145/3678884.3681838(732-735)Online publication date: 11-Nov-2024
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Havens ZLatulipe C(2024)Proxy Accounts and Behavioural Nudges: Investigating Support for Older Adults and their Financial DelegatesProceedings of the 50th Graphics Interface Conference10.1145/3670947.3670962(1-14)Online publication date: 3-Jun-2024
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Kim TKim HRoberts AJacobs MKay M(2024)Opportunities in Mental Health Support for Informal Dementia Caregivers Suffering from Verbal AgitationProceedings of the ACM on Human-Computer Interaction10.1145/36373818:CSCW1(1-26)Online publication date: 26-Apr-2024
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