ABSTRACT
For adolescents with chronic health conditions, transition from pediatric to adult patient care is often haphazard, leading to gaps in care, lapses in treatment adherence, and unnecessary hospitalizations. A typical approach to addressing transition failures is to offer clinic-based programs that guide adolescents and their families through the process, but these initiatives are costly, may not appeal to adolescents, and have limited reach due to geographic constraints. In this study design paper, we describe our ongoing efforts in the participatory design of a mobile technology-based intervention that may overcome limitations of traditional approaches. We contribute a series of recommendations for conducting human-computer interaction research with adolescents who have chronic illnesses.
- Bassett, R. et al. 2008. Tough Teens: The Methodological Challenges of Interviewing Teenagers as Research Participants. Journal of Adolescent Research. 23, 2 (Mar. 2008), 119--131.Google ScholarCross Ref
- Cahill, C. 2007. Including excluded perspectives in participatory action research. Design Studies. 28, 3 (May. 2007), 325--340.Google ScholarCross Ref
- Carroll, K. 2009. Outsider, insider, alongsider: Examining reflexivity in hospital-based video research. International Journal of Multiple Research Approaches. 3, 3 (Dec. 2009), 246--263.Google ScholarCross Ref
- Clemensen, J. et al. 2007. Participatory Design in Health Sciences: Using Cooperative Experimental Methods in Developing Health Services and Computer Technology. Qualitative Health Research. 17, 1 (Jan. 2007), 122--130.Google ScholarCross Ref
- Crowley, R. et al. 2011. Improving the transition between paediatric and adult healthcare: a systematic review. Archives of disease in childhood. 96, 6 (2011), 548--553.Google Scholar
- Engeström, Y. et al. 2003. The Discursive Construction of Collaborative Care. Applied Linguistics. 24, 3 (Sep. 2003), 286--315.Google ScholarCross Ref
- Forsyth, R. et al. 2009. Illuminating everyday realities: The significance of video methods for social science and health research. International Journal of Multiple Research Approaches. 3, 3 (Dec. 2009), 214-- 217.Google ScholarCross Ref
- Grant, J. and Luxford, Y. 2009. Video: A decolonising strategy for intercultural communication in child and family health within ethnographic research. International Journal of Multiple Research Approaches. 3, 3 (Dec. 2009), 218--232.Google ScholarCross Ref
- Heary, C.M. and Hennessy, E. 2002. The Use of Focus Group Interviews in Pediatric Health Care Research. Journal of Pediatric Psychology. 27, 1 (Jan. 2002), 47--57.Google ScholarCross Ref
- Hourcade, J.P. 2007. Interaction Design and Children. Foundations and Trends® in HumanComputer Interaction. 1, 4 (2007), 277--392. Google ScholarDigital Library
- Iedema, R. et al. 2009. Viewing the taken-forgranted from under a different aspect: A video-based method in pursuit of patient safety. International Journal of Multiple Research Approaches. 3, 3 (Dec. 2009), 290--301.Google ScholarCross Ref
- Ito, M. et al. 2009. Hanging Out, Messing Around, and Geeking Out: Kids Living and Learning with New Media. MIT Press. Google ScholarDigital Library
- Leap, N. et al. 2009. Using video in the development and field-testing of a learning package for maternity staff: Supporting women for normal childbirth. International Journal of Multiple Research Approaches. 3, 3 (2009), 302--320.Google ScholarCross Ref
- Leonard, M. 2007. With A Capital "G": Gatekeepers and Gate-Keeping in Research with Children. Representing Youth: Methodological Issues in Critical Youth Studies. A. Best, ed. NYU Press. 186-- 221.Google Scholar
- Lotstein, D.S. et al. 2009. Planning for health care transitions: Results from the 2005--2006 national survey of children with special health care needs. Pediatrics. 123, 1 (2009), e145--e152.Google ScholarCross Ref
- Morrow, V. and Richards, M. 1996. The Ethics of Social Research with Children: An Overview1. Children & Society. 10, 2 (1996), 90--105.Google Scholar
- Pratt, M.L. 1992. Imperial Eyes: Travel Writing and Tranculturation. Psychology Press.Google ScholarCross Ref
- Ramella, M. and Olmos, G. 2005. Participant Authored Audiovisual Stories (PAAS): Giving the camera away or giving the camera a way? London School of Economics Methodology Institute.Google Scholar
- Reiss, J. et al. 2002. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics. 110, 3 (2002), 1301-- 1303.Google Scholar
- Van Staa, A. et al. 2010. Exciting but exhausting: experiences with participatory research with chronically ill adolescents. Health expectations: an international journal of public participation in health care and health policy. 13, 1 (Mar. 2010), 95--107.Google Scholar
- Stringer, E.T. 2007. Action Research. SAGE.Google Scholar
- Turner, V. 1987. Betwixt and between: The liminal period in rites of passage. Betwixt & Between: Patterns of Masculine and Feminine Initiation. L.C. Mahdi, ed. Open Court Publishing. 3--20.Google Scholar
- Weber, S. and Dixon, S. 2007. Growing Up Online: Young People and Digital Technologies. Macmillan.Google Scholar
- 2011. Reducing Care Fragmentation: A toolkit for coordinating care. The Commonwealth Foundation.Google Scholar
Index Terms
- "My Mobile Health, My Mobile Life": methods for designing health interventions with adolescents
Recommendations
Mobile health: medication abuse and addiction
MobileHealth '14: Proceedings of the 4th ACM MobiHoc workshop on Pervasive wireless healthcarePrescription medication abuse is a major healthcare problem and can lead to addiction syndrome, higher healthcare cost, and serious harm to patients. Mobile health can play a major role in addressing prescription medication abuse. This is due to the ...
Use of Mobile Health Applications for Health-Seeking Behavior Among US Adults
This study explores the use of mobile health applications (mHealth apps) on smartphones or tablets for health-seeking behavior among US adults. Data was obtained from cycle 4 of the 4th edition of the Health Information National Trends Survey (HINTS 4). ...
Mobile-health
Display Omitted An extensive review of the state of the art on m-Health and related approaches.Study of the scientific developments/break-through on m-Health.Analysis of the top mobile health applications in the top mobile markets.Discussion about ...
Comments