Susanne Lindberg
ABSTRACT
Children who have survived a lifethreatening disease like cancer benefit from social support from other children with a similar background. However, these children are often geographically dispersed and have little opportunity to meet. We investigate the design and development of Digital Peer Support Services (DPS), which may overcome this problem. Peer support is a kind of social support that brings together peers with similar experiences to help their adjustment to a disease. The aim of this paper is to develop design patterns for social interaction that can be implemented in a DPS for children surviving cancer. We conducted four sets of design workshops with children, from which emerged clusters relating to peer support and friendship that were broken down into triads. From these, six design patterns for social interaction were developed. The patterns delineate different aspects of social interaction for children and are illustrated with examples from DPS prototypes and concepts. The patterns are organized into a hierarchy, comprising the beginning of a design pattern language for social interaction for children. An essential aspect of the patterns is providing users with transparency and control of the extent to which their social interaction is public or private.
- Alexander, C., 1979. The timeless way of building. Oxford University Press.Google Scholar
- Arvola, M., 2006. Interaction design patterns for computers in sociable use. INT J COMPUT APPL T 25, 2, 128139. Google ScholarDigital Library
- Borchers, J.O., 2000. Interaction design patterns: twelve theses. In Workshop, The Hague Citeseer, 3.Google Scholar
- Borchers, J.O., 2001. A pattern approach to interaction design. AI & SOCIETY 15, 4, 359376. Google ScholarDigital Library
- Davis, H., Skov, M.B., Stougaard, M., and Vetere, F., 2007. Virtual box: supporting mediated family intimacy through virtual and physical play. In Proc. of OzCHI ACM, 151159. Google ScholarDigital Library
- Dearden, A. and Finlay, J., 2006. Pattern languages in HCI: A critical review. Humancomputer interaction 21, 1, 49102.Google Scholar
- Dearden, A., Finlay, J., Allgar, L., and Mcmanus, B., 2002. Evaluating pattern languages in participatory design. In CHI EA '02 ACM, 664665. Google ScholarDigital Library
- Dennis, C.L., 2003. Peer support within a health care context: a concept analysis. Int J Nurs Stud 40, 3, 321332.Google ScholarCross Ref
- Druin, A., 2002. The role of children in the design of new technology. BEHAV INFORM TECHNOL 21, 1, 125.Google ScholarCross Ref
- Du, H., Inkpen, K., Chorianopoulos, K., Czerwinski, M., Johns, P., Hoff, A., Roseway, A., Morlidge, S., Tang, J., and Gross, T., 2011. VideoPal: exploring asynchronous videomessaging to enable crosscultural friendships. In Proc. of ECSCW Springer, 273292.Google Scholar
- Einberg, E., Svedberg, P., Enskär, K., and Nygren, J., 2013. Friendship from the perspective of children with experience of cancer: A focus group study. EJON 17, 6, 897897.Google Scholar
- Enskär, K. and Berterö, C., 2010. Young adult survivors of childhood cancer; experiences affecting selfimage, relationships, and present life. Cancer nurs 33, 1, E18E24.Google Scholar
- Erickson, T., 2000. Lingua Francas for design: sacred places and pattern languages. In Proc. of DIS ACM, 357368. Google ScholarDigital Library
- Fails, J.A., Druin, A., and Guha, M.L., 2010. Mobile collaboration: collaboratively reading and creating children's stories on mobile devices. In Proc. of IDC ACM, 2029. Google ScholarDigital Library
- Giesbers, J., VerdonckDe Leeuw, I., Van Zuuren, F., Kleverlaan, N., and Van Der Linden, M., 2010. Coping with parental cancer: webbased peer support in children. PsychoOncology 19, 8, 887892.Google ScholarCross Ref
- Graham, A., Powell, M., Taylor, N., Anderson, D., and Fitzgerald, R., 2013. Ethical Research Involving Children. UNICEF Office of ResearchInnocenti.Google Scholar
- Gustafsson, G., Heyman, M., and Vernby, Å., 2007. Childhood cancer incidence and survival in Sweden 19842005. Karolinska Institute: Stockholm.Google Scholar
- Herzer, M., Umfress, K., Aljadeff, G., Ghai, K., and Zakowski, S.G., 2009. Interactions with parents and friends among chronically ill children: examining social networks. J Dev Behav Pediatr 30, 6, 499508.Google ScholarCross Ref
- Hevner, A.R., March, S.T., Park, J., and Ram, S., 2004. Design science in information systems research. MISQ 28, 1, 75105. Google ScholarDigital Library
- Khair, K., Holland, M., and Carrington, S., 2012. Social networking for adolescents with severe haemophilia. Haemophilia 18, 3, e290e296.Google Scholar
- Klemm, P. and Hardie, T., 2002. Depression in Internet and facetoface cancer support groups: a pilot study. In Oncology nursing forum Onc Nurs Society, E45E51.Google Scholar
- Li, H.C.W., Chung, O.K.J., and Chiu, S.Y., 2010. The impact of cancer on children's physical, emotional, and psychosocial wellbeing. Cancer nurs 33, 1, 4754.Google Scholar
- Lindberg, S., 2013. Participatory design workshops with children with cancer: lessons learned. In Proc. of IDC ACM, 332335. Google ScholarDigital Library
- Moraveji, N., Li, J., Ding, J., O'kelley, P., and Woolf, S., 2007. Comicboarding: using comics as proxies for participatory design with children. In Proc. of CHI ACM, 13711374. Google ScholarDigital Library
- Nesset, V. and Large, A., 2004. Children in the information technology design process: A review of theories and their applications. LIBR INFORM SCI RES 26, 2, 140161.Google ScholarCross Ref
- Oberholzer, A.E., Nel, E., Myburgh, C.P., and Poggenpoel, M., 2011. Exploring the needs and resources of children in a haematologyoncology unit. Health SA Gesondheid 16, 1.Google ScholarCross Ref
- Potts, H.W., 2005. Online support groups: an overlooked resource for patients. He@lth Information on the Internet 44, 1, 68.Google Scholar
- Solomon, P., 2004. Peer support/peer provided services underlying processes, benefits, and critical ingredients. Psychiatr Rehabil J 27, 4, 392.Google ScholarCross Ref
- Stinson, J.N., White, M., Breakey, V., Chong, A.L., Mak, I., Low, K.K., and Low, A.K., 2011. Perspectives on quality and content of information on the internet for adolescents with cancer. Pediatr Blood Cancer 57, 1, 97104.Google ScholarCross Ref
- Van Welie, M. and Van Der Veer, G.C., 2003. Pattern languages in interaction design: Structure and organization. In Proc. of interact, 15.Google Scholar
- Van Welie, M., Van Der Veer, G.C., and Eliëns, A., 2001. Patterns as tools for user interface design. In Tools for Working with Guidelines Springer, 313324.Google Scholar
- Webb, M., Burns, J., and Collin, P., 2008. Providing online support for young people with mental health difficulties: challenges and opportunities explored. Early Interv Psychiatry 2, 2, 108113.Google ScholarCross Ref
- Wärnestål, P. and Nygren, J., 2013. Building an experience framework for a digital peer support service for children surviving from cancer. In Proc. of IDC ACM, 269272. Google ScholarDigital Library
- Wärnestål, P., Svedberg, P., and Nygren, J., 2014. Coconstructing Child Personas for HealthPromoting Services with Vulnerable Children. In Proceedings of the Proc. of CHI (Toronto, Canada, April 26May 1 2014). Google ScholarDigital Library
- Yarosh, S., Inkpen, K.M., and Brush, A., 2010. Video playdate: toward free play across distance. In Proc. of CHI ACM, 12511260. Google ScholarDigital Library
- Yarosh, S. and Kwikkers, M.R., 2011. Supporting pretend and narrative play over videochat. In Proc. of IDC ACM, 217220. Google ScholarDigital Library
- Yarosh, S., Tang, A., Mokashi, S., and Abowd, G.D., 2013. almost touching: parentchild remote communication using the sharetable system. In Proc. of CSCW ACM, 181192. Google ScholarDigital Library
- Zancanaro, M., Gal, E., Parsons, S., Weiss, T., Bauminger, N., and Cobb, S., 2010. Teaching social competence: in search of design patterns. In Proc. of IDC ACM, 270273. Google ScholarDigital Library
- Zimmerman, J., Forlizzi, J., and Evenson, S., 2007. Research through design as a method for interaction design research in HCI. In Proc. of CHI ACM, 493502. Google ScholarDigital Library
Index Terms
- Designing digital peer support for children: design patterns for social interaction
Recommendations
Building an experience framework for a digital peer support service for children surviving from cancer
IDC '13: Proceedings of the 12th International Conference on Interaction Design and ChildrenChildhood cancer survivors adjust to the physical, mental, and social difficulties associated with their illness and treatment. This process can be facilitated by social support from peers. For children, this is often problematic due to geographical, ...
Lands of Fog: Helping Children with Autism in Social Interaction through a Full-Body Interactive Experience
IDC '16: Proceedings of the The 15th International Conference on Interaction Design and ChildrenAutism Spectrum Disorder is characterized by impaired social communication capacities which can prevent the formation of social relationships with peers. In recent years, potential programs for people with ASD have increasingly used Information and ...
Children's risk and benefit behaviours on social networking sites
AbstractDespite the age restrictions of social networking sites (SNS) averaging age 13 years, younger children are engaging with these sites (Ofcom, 2019). Research has shown that SNS use exposes the user to many risks, such as cyberbullying ...
Highlights- Children's social networking site access is associated with both risky and beneficial outcomes.
Comments