research-article

Taking our Time: Chronic Illness and Time-Based Objects in Families

Authors:

Andrea Barbarin,

Tiffany C. Veinot,

Predrag KlasnjaAuthors Info & Claims

CSCW '15: Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing

Pages 288 - 301

https://doi.org/10.1145/2675133.2675200

Published: 28 February 2015 Publication History

Abstract

This study examined the use of time-based objects by patients and their families to manage chronic illnesses at home. Calendar systems and medication containers, the main types of time-based objects studied, were used as part of two family-based collaborative work practices: 1) prompting health management activities, and 2) safeguarding these activities. Additionally, these artifacts were part of two social interaction patterns that managed emotional intimacy: 1) expressing support, and 2) hiding and disguising illness. Accordingly, home-based illness management may be more collaborative than previously recognized. Moreover, through their interactive incorporation into family life, time-based objects are laden with psychosocial significance. Breakdowns in temporal support were also evident, and were accompanied by: missed medication events; rationing of medications; medication errors; and difficulties with preparation for medical appointments. We propose novel artifact designs to better support patients and their families in managing the temporal aspects of chronic illness together.

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Index Terms

Taking our Time: Chronic Illness and Time-Based Objects in Families
1. Applied computing
  1. Life and medical sciences

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cover image ACM Conferences

CSCW '15: Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing

February 2015

1956 pages

ISBN:9781450329224

DOI:10.1145/2675133

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Dan Cosley
Cornell University, USA
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Andrea Forte
Drexel University, USA
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Sheffield Hallam University, UK
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University of Washington, USA

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Published: 28 February 2015

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CSCW '15 Paper Acceptance Rate 161 of 575 submissions, 28%;

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Dunbar JPratt WBascom ECurrier CGarcia JSmith JSnyder JPollack A(2024)It's About the Journey - Capturing Stories of the Fluctuating Experiences of Youth Kidney Transplant PatientsProceedings of the ACM on Human-Computer Interaction10.1145/36537048:CSCW1(1-26)Online publication date: 26-Apr-2024
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