Abdullah Al Mahmud
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Abstract
In this article, we describe the iterative design and field trial of Amail, an email client specifically designed for people with aphasia who have problems expressing themselves verbally. We conducted a 3-month study with eight persons with aphasia to better understand how people with aphasia could integrate Amail in their daily life. Subjective data (questionnaires, interviews, and diaries) and objective data (usage logs) were collected to gain understanding of the usage patterns. All persons with aphasia in our study were able to use Amail independently, and four participants continued using Amail after the study period. The usage patterns, especially the frequency and length of the composed email messages, indicated that, over time, persons with aphasia were able to improve their email communication. Email partners also had the impression that their email partners with aphasia were improving gradually. Last but not least, the use of Amail positively influenced the number and quality of social contacts for the persons with aphasia. We also report some of the challenges encountered while conducting the field trial.
- M. Allen, J. McGrenere, and B. Purves. 2008. The field evaluation of a mobile digital image communication application designed for people with aphasia. ACM Transactions on Accessible Computing 1, 1, 1--26. Google Scholar
Digital Library
- A. Al Mahmud and J.-B. Martens. 2010. Re-connect: Designing accessible email communication support for persons with aphasia. In Proceedings of the 28th International Conference on Extended Abstracts on Human Factors in Computing Systems (CHI EA’10). ACM, New York, NY, 3505--3510. Google ScholarDigital Library
- A. Al Mahmud and J.-B. Martens. 2013. Amail: Design and evaluation of an accessible email tool for persons with aphasia. Interacting with Computers 25, 351--74.Google ScholarCross Ref
- J. L. Arnott, Z. Khairulla, A. Dickinson, A. Syme, N. Alm, R. Eisma, and P. Gregor. 2004. Email interfaces for older adults. In Proceedings of the IEEE Conference on Systems, Man & Cybernetics (SMC’’04). 111--117.Google Scholar
- I. Behrns. 2009. Aphasia and the Challenge of Writing. Ph.D. Dissertation. Institute of Neuroscience and Physiology, Department of Audiology, Logopedics, Occupational Therapy & Physiotherapy, University of Gothenburg, Sweden University of Gothenberg, Sweden.Google Scholar
- C. Benjamin, J. Harris, A. Moncrief, G. Ramsberger, and C. Lewis. 2008. Naming practice on an open platform for people with aphasia. In Proceedings of the 10th International ACM SIGACCESS Conference on Computers and Accessibility. ACM, New York, NY, 265--266. Google ScholarDigital Library
- D. F. Benson. 1979. Aphasia, Alexia, and Agraphia (Vol. 1). New York, NY, Churchill Livingstone.Google Scholar
- J. L. Boyd-Graber, S. S. Nikolova, K. Moffatt, K. C. Kin, J. Y. Lee, W. L. Mackey, M. Tremaine, and M. M. Klawe. 2006. Participatory design with proxies: Developing a desktop-PDA system to support people with aphasia. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI’06). ACM, New York, NY, 151--160. Google ScholarDigital Library
- T. Brett. 2009. The challenges of game and human computer interface design for the rehabilitation of aphasic patients. In Proceedings of the 2009 Conference on Future Play on @ GDC Canada. ACM, New York, NY, 21--22. Google ScholarDigital Library
- E. Daemen, P. Dadlani, J. Du, Y. Li, P. Erik-Paker, J.-B. Martens, and B. De Ruyter. 2007. Designing a free style, indirect, and interactive storytelling application for people with aphasia. In Proceedings of the 11th IFIP TC 13 International Conference on Human-Computer Interaction (INTERACT'07), Cécilia Baranauskas, Philippe Palanque, Julio Abascal, and Simone Diniz Junqueira Barbosa (Eds.). Springer-Verlag, Berlin, Heidelberg, 221--234. Google ScholarDigital Library
- R. J. P. Dalemans. 2010. Stroke Survivors with Aphasia and Their Social Participation. Ph.D. Dissertation. Maastricht University, Netherlands.Google Scholar
- M. Dawe. 2006. Desperately seeking simplicity: How young adults with cognitive disabilities and their families adopt assistive technologies. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI’06). ACM, New York, NY, 1143--1152. Google ScholarDigital Library
- S. Devlin and G. Unthank. 2006. Helping aphasic people process online information. In Proceedings of the 8th International ACM SIGACCESS Conference on Computers and Accessibility. ACM, New York, NY, 225--226. Google ScholarDigital Library
- A. Dickinson, A. F. Newell, M. J. Smith, and R. L. Hill. 2005. Introducing the Internet to the over-60s: Developing an email system for older novice computer users. Interacting with Computers 17, 6, 621--642. Google ScholarDigital Library
- Dutch Aphasia Association. 2013. What Is Aphasia? Retrieved October 10, 2015, from http://www.afasie.nl/aphasia/pdf/3/brochure1.pdf.Google Scholar
- Dynavox. 2013. Dynavox Home Page. Retrieved October 10, 2015, from http://www.dynavoxtech.com/products/.Google Scholar
- J. Egan, L. Worrall, and D. Oxenham. 2004. Accessible Internet training package helps people with aphasia cross the digital divide. Aphasiology 18, 3, 265--280.Google ScholarCross Ref
- R. Elman. 2001. The Internet and aphasia: Crossing the digital divide. Aphasiology 15, 10, 895--899.Google ScholarCross Ref
- J. J. Evans, A. Wilson, P. Needham, and S. Brentnall. 2003. Who makes good use of memory aids? Results of a survey of people with acquired brain injury. Journal of the International Neuropsychological Society 9, 6, 925--935.Google ScholarCross Ref
- S. Fager, K. Hux, D. R. Beukelman, and R. Karantounis. 2006. Augmentative and alternative communication use and acceptance by adults with traumatic brain injury. Augmentative and Alternative Communication 22, 1, 37--47.Google ScholarCross Ref
- J. Feng, J. Lazar, L. Kumin, and A. Ozok. 2010. Computer usage by children with Down syndrome: Challenges and future research. ACM Transactions on Accessible Computing 2, 1--44. Google ScholarDigital Library
- S. L. Henry. 2007. Just Ask: Integrating Accessibility throughout Design (2nd ed.). Lulu.com.Google Scholar
- H. Goodglass, E. Kaplan, and Barresi. 2000. The Assessment of Aphasia and Related Disorders (3rd ed.). Lippincott Williams and Wilkins, Baltimore, MD.Google Scholar
- A. Greenwald, B. Nosek, and M. Banaji. 2003. Understanding and using the Implicit Association Test: I. An improved scoring algorithm. Journal of Personality and Social Psychology 85, 2, 197--216.Google ScholarCross Ref
- J. Hailpern, M. Danilevsky, A. Harris, K. Karahalios, G. Dell, and J. Hengst. 2011. Aces: Promoting empathy towards aphasia through language distortion emulation software. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. ACM, New York, NY, 609--618. Google ScholarDigital Library
- D. Hawthorn. 2003. How universal is good design for older users? In Proceedings of the 2003 Conference on Universal Usability (CUU’03). ACM, New York, NY, 38--45. Google ScholarDigital Library
- A. E. Hillis. 2007. Aphasia: Progress in the last quarter of a century. Neurology 69, 200--213.Google ScholarCross Ref
- H.-F. Hsieh and S. E. Shannon. 2005. Three approaches to qualitative content analysis. Qualitative Health Research 15, 9, 1277--1288.Google ScholarCross Ref
- W. Huber, K. Poeck, and K. Willmes. 1984. The Aachen Aphasia Test. Advances in Neurology 42, 291--303.Google Scholar
- K. Karapanos, J. Zimmerman, J. Forlizzi, and J.-B. Martens. 2009. User experience over time: An initial framework. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI’09). ACM, New York, NY, 729--738. Google ScholarDigital Library
- J. R. Landis and G. G. Koch. 1977. The measurement of observer agreement for categorical data. Biometrics 33, 159--174.Google ScholarCross Ref
- J. Lasker and J. Bedrosian. 2001. Promoting acceptance of augmentative and alternative communication by adults with acquired communication disorders. Augmentative and Alternative Communication 17, 3, 141--153.Google ScholarCross Ref
- J. B. Lee and L. R. Cherney. 2008. The changing “face” of aphasia therapy. SIG 2 Perspectives on Neurophysiology and Neurogenic Speech and Language Disorders 18, 1, 15--23.Google Scholar
- R. Leung, L. Findlater, J. McGrenere, and P. Graf. 2010. Multi-layered interfaces to improve older adults’ initial learnability of mobile applications. ACM Transactions on Accessible Computing 3, 1, 1--30. Google ScholarDigital Library
- J. Light. 1988. Interaction involving individuals using augmentative and alternative communication systems: State of the art and future directions. Augmentative and Alternative Communication 4, 2, 66--82.Google ScholarCross Ref
- M. Linebarger, M. Schwartz, T. Kantner, and D. McCall. 2002. Promoting access to the Internet in aphasia. Brain and Language 83, 169--172.Google Scholar
- M. C. Linebarger, J. F. Romania, R. B. Fink, M. R. Bartlett, and M. F. Schwartz. 2008. Building on residual speech: A portable processing prosthesis for aphasia. Journal of Rehabilitation Research and Development 45, 9, 1401--1414.Google ScholarCross Ref
- D. M. Martin, R. Laird, F. Hwang, and C. Salis. 2013. Computerized short-term memory treatment for older adults with aphasia: Feedback from clinicians. In Proceedings of the 15th International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS’13). ACM, New York, NY. Google ScholarDigital Library
- H. Miller, H. Buhr, C. Johnson, and J. Hoepner. 2013. AphasiaWeb: A social network for individuals with aphasia. In Proceedings of the 15th International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS’13). ACM, New York, NY. Google ScholarDigital Library
- MindExpress. 2011. Jabbla Home Page. Retrieved July 25, 2011, from http://www.jabbla.com.Google Scholar
- K. Moffatt, J. McGrenere, B. Purves, and M. Klawe. 2004. The participatory design of a sound and image enhanced daily planner for people with aphasia. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI’04). ACM, New York, NY, 407--414. Google ScholarDigital Library
- F. Morganti and G. Riva. 2005. Ambient intelligence for rehabilitation. In Ambient Intelligence, G. Riva, F. Vatalaro, F. Davide, and A. M. Davide (Eds.). IOS Press, Amsterdam, Netherlands, 283--295.Google Scholar
- R. W. Morrell, C. B. Mayhorn, and J. Bennett. 2000. A survey of World Wide Web use in middle-aged and older adults. Human Factors 42, 175--182.Google ScholarCross Ref
- National Aphasia Association. 2012. National Aphasia Association Home Page. Retrieved January 12, 2014, from http://www.aphasia.org/.Google Scholar
- A. B. Owen. 2001. Empirical Likelihood. Boca Raton, FL, Chapman and Hall/CRC.Google Scholar
- Pew Internet and American Life Project. 2011. Email vs. Social Networks. Retrieved July 24, 2011, from http://pewresearch.org/databank/dailynumber/?NumberID=1088Google Scholar
- A. M. Piper, N. Weibel, and J. D. Hollan. 2010. Introducing multimodal paper-digital interfaces for speech-language therapy. In Proceedings of the 12th International ACM SIGACCESS Conference on Computers and Accessibility. ACM, New York, NY, 203--210. Google ScholarDigital Library
- E. M. Rogers. 1982. Diffusion of Innovation. Free Press.Google Scholar
- A. Roper, J. Marshall, and M. S. Wilson. 2014. Assessing technology use in aphasia. In Proceedings of the 16th International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS’14). ACM, New York, NY, 239--240. Google ScholarDigital Library
- A. Rostron, S. Ward, and R. Plant. 1996. Computerised augmentative communication devices for people with dysphasia: Design and evaluation. European Journal of Disorders of Communication 31, 1, 11--30.Google ScholarCross Ref
- C. M. Shewan and A. Kertesz. 1980. Reliability and validity characteristics of the Western Aphasia Battery (WAB). Journal of Speech and Hearing Disorders 45, 308.Google ScholarCross Ref
- E. Shove and D. Southerton. 2000. Defrosting the freezer: From novelty to convenience. Journal of Material Culture 5, 3, 301.Google ScholarCross Ref
- M. Spaniol, L. Springer, R. Klamma, and M. Jarke. 2004. SOCRATES: Barrier free communities of aphasics on the Internet. In Proceedings of the 9th International Conference on Computer Helping People with Special Needs (ICCHP’04). 1024--1031Google Scholar
- M. M. Sohlberg, L. A. Ehlhardt, S. Fickas, and A. Sutcliffe. 2003. A pilot study exploring electronic (or e-mail) mail in users with acquired cognitive-linguistic impairments. Brain Injury 7, 609--629.Google ScholarCross Ref
- M. M. Sohlberg, S. Fickas, L. Ehlhardt, and B. Todis. 2005. The longitudinal effects of accessible email for individuals with severe cognitive impairments. Aphasiology 19, 7, 651--681.Google ScholarCross Ref
- Spika. 2011. Spika Home Page. Retrieved September 1, 2011, from http://www.fluency.nl/spika/index.htm.Google Scholar
- C. Stapleton, J. Whiteside, J. Davies, D. Mott, and J. Vick. 2014. Transforming lives through story immersion: Innovation of aphasia rehabilitation therapy through storytelling learning landscapes. In Proceedings of the 2nd ACM International Workshop on Immersive Media Experiences (ImmersiveMe’14). ACM, New York, NY, 29--34. Google ScholarDigital Library
- A. Strauss and J. M. Corbin. 1990. Basics of Qualitative Research: Grounded Theory Procedures and Techniques. Sage Publications.Google Scholar
- K. Tee, K. Moffatt, L. Findlater, E. MacGregor, J. McGrenere, B. Purves, and S. S. Fels. 2005. A visual recipe book for persons with language impairments. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI’05). ACM, New York, NY, 501--510. Google ScholarDigital Library
- L. Thorburn, M. Newhoff, and S. Rubin. 1995. Ability of subjects with aphasia to visually analyze written language, pantomime, and iconographic symbols. American Journal of Speech-Language Pathology 4, 4, 174--179.Google ScholarCross Ref
- Tobii Assistive Technology. 2011. Tobii Home Page. Retrieved July 25, 2014, from http://www.tobii.com/.Google Scholar
- B. Todis, M. M. Sohlberg, D. Hood, and S. Fickas. 2005. Making electronic mail accessible: Perspectives of people with acquired cognitive impairments, caregivers and professionals. Brain Injury 19, 6, 389--401.Google ScholarCross Ref
- TouchSpeak. 2011. TouchSpeak Home Page. Retrieved July 25, 2011, from http://www.touchspeak.co.uk/.Google Scholar
- M. Van de Sandt-Koenderman. 2004. High-tech AAC and aphasia: Widening horizons? Computers and aphasia: Their role in the treatment of aphasia and the lives of people with aphasia. Aphasiology 18, 3, 245--263.Google Scholar
- C. P. Vickers. 2010. Social networks after the onset of aphasia: The impact of aphasia group attendance. Aphasiology 24, 6--8, 902--913.Google ScholarCross Ref
- A. Waller, F. Dennis, J. Alistair, and A. Cairns. 1998. Evaluating the use of TalksBac, a predictive communication device for non-fluent adults with aphasia. International Journal of Language and Communication Disorders 33, 1, 45--70.Google ScholarCross Ref
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- Iterative Design and Field Trial of an Aphasia-Friendly Email Tool
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