ABSTRACT
Personalized medicine brings the promise of better diagnoses, better treatments, a higher quality of life and increased longevity. To achieve these noble goals, it exploits a number of revolutionary technologies, including genome sequencing and DNA editing, as well as wearable devices and implantable or even edible biosensors. In parallel, the popularity of "quantified self" gadgets shows the willingness of citizens to be more proactive with respect to their own health. Yet, this evolution opens the door to all kinds of abuses, notably in terms of discrimination, blackmailing, stalking, and subversion of devices. After giving a general description of this situation, in this talk we will expound on some of the main concerns, including the temptation to permanently and remotely monitor the physical (and metabolic) activity of individuals. We will describe the potential and the limitations of techniques such as cryptography (including secure multi-party computation), trusted hardware and differential privacy. We will also discuss the notion of consent in the face of the intrinsic correlations of human data. We will argue in favor of a more systematic, principled and cross-disciplinary research effort in this field and will discuss the motives of the various stakeholders.
Index Terms
- The Ultimate Frontier for Privacy and Security: Medicine
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