ABSTRACT
Patients who fail to reach shared understanding with their providers about their health care priorities can have poorer health outcomes and quality of life. Because patients' priorities often reflect their values-things important and meaningful in their lives-it is important to incorporate values into patient-provider conversations. However, patients often withhold values from providers when they do not perceive them to be pertinent. In a field study with 24 patients with multiple chronic conditions, we sought to understand how participants perceived relationships among their values and their health concerns. We found that participants felt overwhelmed by multiple concerns, but were able to surmount these feelings when they pursued values that were linked to self-care. We discuss implications for patient-provider communication to help patients link values with self-care practices.
- Erik Farin, Lukas Gramm, and Erika Schmidt. 2012. The patient-physician relationship in patients with chronic low back pain as a predictor of outcomes after rehabilitation. Journal of Behavioral Medicine 36, 3: 246--258.Google ScholarCross Ref
- Batya Friedman, Peter H Kahn Jr, Alan Borning, and Alina Huldtgren. 2013. Value Sensitive Design and Information Systems. In Philosophy of Engineering and Technology. Springer, 55--95.Google Scholar
- Maia L. Jacobs, James Clawson, and Elizabeth D. Mynatt. 2015. Comparing Health Information Sharing Preferences of Cancer Patients, Doctors, and Navigators. In ACM Conference on Computer Supported Cooperative Work & Social Computing. Google ScholarDigital Library
- Catherine Lim, Andrew BL Berry, Tad Hirsch, Andrea Hartzler, Edward H Wagner, Evette Ludman, and James D Ralston. 2016. "It just seems outside my health:" How Patients with Chronic Conditions Perceive Communication Boundaries with Providers. In ACM Conference on Designing Interactive Systems. Google ScholarDigital Library
- Lena Mamykina, Elizabeth Mynatt, Patricia Davidson, and Daniel Greenblatt. 2008. MAHI: investigation of social scaffolding for reflective thinking in diabetes management. In SIGCHI Conference on Human Factors in Computing Systems. Google ScholarDigital Library
- Ana-Maria Vranceanu, Cynthia Cooper, and David Ring. 2009. Integrating Patient Values into Evidence-Based Practice: Effective Communication for Shared Decision-Making. Hand Clinics 25, 1: 83--96.Google ScholarCross Ref
Index Terms
- Getting Traction When Overwhelmed: Implications for Supporting Patient-Provider Communication
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