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When Empathy Is Not Enough: Assessing the Experiences of Autistic Children with Technologies

Published: 02 May 2017 Publication History

Abstract

Capturing and describing the multi-faceted experiences autistic children have with technologies provides a unique research challenge. Approaches based on pragmatist notions of experience, which mostly rely on empathy, are particularly limited if used alone. To address this we have developed an approach that combines Actor-Network Theory and Critical Discourse Analysis. Drawing on this approach, we discuss the experiences autistic children had with technologies resulting from the collaborative design process in the OutsideTheBox project. We construct a holistic picture of the experience by drawing on diverse data sources ranging from interviews to log-data, and most importantly, the first-hand perspective of autistic children. In four case studies, we demonstrate how this approach allowed us to develop unique individual and structural insights into the experiences of autistic children with technology.

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References

[1]
Andrea Alessandrini, Alessandro Cappelletti, and Massimo Zancanaro. 2013. Audio-augmented Paper for the Therapy of Low-functioning Autism Children. In CHI '13 Extended Abstracts on Human Factors in Computing Systems (CHI EA '13). ACM, Paris, France, 505--510.
[2]
Laura Benton, Hilary Johnson, Emma Ashwin, Mark Brosnan, and Beate Grawemeyer. 2012. Developing IDEAS: Supporting Children with Autism Within a Participatory Design Team. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '12). ACM, NY, NY, USA, 2599--2608.
[3]
Sara Bernardini, Kaska Porayska-Pomsta, and Tim J. Smith. 2014. ECHOES: An intelligent serious game for fostering social communication in children with autism. Information Sciences 264, 0 (April 2014), 41--60.
[4]
Elizabeth K. Cridland, Sandra C. Jones, Peter Caputi, and Christopher A. Magee. 2014. Being a Girl in a Boys' World: Investigating the Experiences of Girls with Autism Spectrum Disorders During Adolescence. Journal of Autism and Developmental Disorders 44, 6 (2014), 1261--1274.
[5]
Hanne De Jaegher. 2013. Embodiment and sense-making in autism. Frontiers in Integrative Neuroscience 7 (2013), 15.
[6]
Christian Dindler and Ole Sejer Iversen. 2007. Fictional Inquiry - design collaboration in a shared narrative space. CoDesign 3, 4 (Dec. 2007), 213--234.
[7]
Sue Dockett, Sarah Main, and Lynda Kelly. 2011. Consulting Young Children: Experiences from a Museum. Visitor Studies 14, 1 (April 2011), 13--33.
[8]
Pete Docter and Ronnie Del Carmen. 2015. Inside Out. (2015).
[9]
Allison Druin. 1999. Cooperative Inquiry: Developing New Technologies for Children with Children. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '99). ACM, NY, NY, USA, 592--599.
[10]
Snoefridur T. Egilson, Linda B. Olafsdottir, Thora Leosdottir, and Evald Saemundsen. 2016. Quality of life of high-functioning children and youth with autism spectrum disorder and typically developing peers: Selfand proxy-reports. Autism April, 2016 (2016), 1362361316630881.
[11]
Marc Fakhoury. 2015. Autistic spectrum disorders: A review of clinical features, theories and diagnosis. International Journal of Developmental Neuroscience 43 (June 2015), 70--77.
[12]
William Farr, Nicola Yuill, and Hayes Raffie. 2010. Social benefits of a tangible user interface for children with Autistic Spectrum Conditions. Autism 14, 3 (2010), 237--252.
[13]
Christopher Frauenberger. 2015. Disability and Technology - A Critical Realist Perspective. In Proceedings of the 17th International ACM SIGACCESS Conference on Computers & Accessibility. ACM Press, Lisbon, Portugal, 8.
[14]
Christopher Frauenberger, Judith Good, Alyssa Alcorn, and Helen Pain. 2012. Supporting the Design Contributions of Children with Autism Spectrum Conditions. In Proceedings of the 11th International Conference on Interaction Design and Children (IDC '12). ACM, NY, NY, USA, 134--143.
[15]
Christopher Frauenberger, Julia Makhaeva, and Katta Spiel. 2016a. Designing Smart Objects with Autistic Children: Four Design Exposès. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems (CHI '16). ACM, NY, NY, USA, 130--139.
[16]
Christopher Frauenberger, Marjo Rauhala, and Geraldine Fitzpatrick. 2016b. In-Action Ethics. Interacting with Computers 28 (2016), published online first. Issue 6.
[17]
Katie Gaudion, Ashley Hall, Jeremy Myerson, and Liz Pellicano. 2015. Design and wellbeing: Bridging the empathy gap between neurotypical designers and autistic adults. In Design for Sustainable Well-being and Empowerment. IISc Press and TU Delft, Delft, Netherlands, 61--77.
[18]
Sen H. Hirano, Michael T. Yeganyan, Gabriela Marcu, David H. Nguyen, Lou Anne Boyd, and Gillian R. Hayes. 2010. vSked: evaluation of a system to support classroom activities for children with autism. In Proceedings of the 28th international conference on Human factors in computing systems (CHI '10). ACM, Atlanta, Georgia, USA, 1633--1642.
[19]
Wijnand IJsselsteijn, Karolien Poels, and Yvonne De Kort. 2008. The Game Experience Questionnaire: Development of a self-report measure to assess player experiences of digital games. (2008).
[20]
Lorcan Kenny, Caroline Hattersley, Bonnie Molins, Carole Buckley, Carol Povey, and Elizabeth Pellicano. 2015. Which terms should be used to describe autism? Perspectives from the UK autism community. Autism 20, 4 (July 2015), 442--462.
[21]
Anne V. Kirby, Virginia A. Dickie, and Grace T. Baranek. 2015. Sensory experiences of children with autism spectrum disorder: In their own words. Autism 19, 3 (April 2015), 316--326.
[22]
Andrew Main. 2003. allism: an introduction to a little-known condition. (2003). http://www.fysh.org/~zefram/allism/allism_intro.txt
[23]
Julia Makhaeva, Christopher Frauenberger, and Katta Spiel. 2016. Creating Creative Spaces for Co-designing with Autistic Children: The Concept of a "Handlungsspielraum". In Proceedings of the 14th Participatory Design Conference: Full Papers - Volume 1 (PDC '16). ACM, NY, NY, USA, 51--60.
[24]
Berry Mayall. 1994. Children in action at home and school. Children's childhoods: Observed and experienced (1994), 114--127.
[25]
John McCarthy and Peter Wright. 2007. Technology as Experience. MIT Press, Cambridge, USA.
[26]
William Odom, Ron Wakkary, Youn-kyung Lim, Audrey Desjardins, Bart Hengeveld, and Richard Banks. 2016. From Research Prototype to Research Product. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems (CHI '16). ACM, NY, NY, USA, 2549--2561.
[27]
Narcis Pares, Paul Masri, Gerard van Wolferen, and Chris Creed. 2005. Achieving dialogue with children with severe autism in an adaptive multisensory interaction: the "MEDIATE" project. IEEE Transactions on Visualization and Computer Graphics 11, 6 (Nov. 2005), 734--743.
[28]
Sarah Parsons and Sue Cobb. 2013. Who chooses what I need? Child voice and user-involvement in the development of learning technologies for children with autism. (July 2013). http://eprints.soton.ac.uk/356044/
[29]
Ginny Russell, Stephan Collishaw, Jean Golding, Susan E Kelly, and Tamsin Ford. 2015. Changes in diagnosis rates and behavioural traits of autism spectrum disorder over time. British Journal of Psychiatry Open 1, 2 (2015), 110--115.
[30]
Steve Sato and Tony Salvador. 1999. Methods & Tools: Playacting and Focus Troupes:: Theater Techniques for Creating Quick, Intense, Immersive, and Engaging Focus Group Sessions. interactions 6, 5 (Sept. 1999), 35--41.
[31]
Tom Shakespeare. 2014. Disability Rights and Wrongs Revisited (second endition ed.). Routledge, Oxon,UK.
[32]
Katta Spiel, Christopher Frauenberger, and Geraldine Fitzpatrick. 2016a. Experiences of Autistic Children with Technologies. International Journal of Child Computer Interaction Under Review (2016).
[33]
Katta Spiel, Julia Makhaeva, and Christopher Frauenberger. 2016b. Embodied Companion Technologies for Autistic Children. In Proceedings of the TEI '16: Tenth International Conference on Tangible, Embedded, and Embodied Interaction (TEI '16). ACM, NY, NY, USA, 245--252.
[34]
Laura Sterponi, Kenton de Kirby, and Jennifer Shankey. 2015. Rethinking Language in Autism. Autism 19, 5 (July 2015), 517--526.
[35]
Ippei Torii, Kaoruko Ohtani, Nahoko Shirahama, Takahito Niwa, and Naohiro Ishii. 2012. Voice output communication aid application for personal digital assistant for autistic children. In 2012 IEEE/ACIS 11th International Conference on Computer and Information Science (ICIS). IEEE, Orlando, FL, USA, 329--333.
[36]
Giasemi Vavoula and Mike Sharples. 2007. Future technology workshop: A collaborative method for the design of new learning technologies and activities. International Journal of Computer-Supported Collaborative Learning 2, 4 (2007), 393--419.
[37]
Lilia Villafuerte, Milena Markova, and Sergi Jorda. 2012. Acquisition of Social Abilities Through Musical Tangible User Interface: Children with Autism Spectrum Condition and the Reactable. In CHI '12 Extended Abstracts on Human Factors in Computing Systems (CHI EA '12). ACM, NY, NY, USA, 745--760.
[38]
Tracy L. Westeyn, Gregory D. Abowd, Thad E. Starner, Jeremy M. Johnson, Peter W. Presti, and Kimberly A. Weaver. 2012. Monitoring children's developmental progress using augmented toys and activity recognition. Personal and Ubiquitous Computing 16, 2 (Feb. 2012), 169--191.
[39]
Peter Wright and John McCarthy. 2008. Empathy and experience in HCI. In Proceeding of the twenty-sixth annual SIGCHI conference on Human factors in computing systems (CHI '08). ACM, Florence, Italy, 637--646.

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    cover image ACM Conferences
    CHI '17: Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems
    May 2017
    7138 pages
    ISBN:9781450346559
    DOI:10.1145/3025453
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    Published: 02 May 2017

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    1. autism
    2. children
    3. co-design evaluation
    4. experience

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