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How Values Shape Collaboration Between Patients with Multiple Chronic Conditions and Spousal Caregivers

Published: 02 May 2017 Publication History

Abstract

Individuals with multiple chronic conditions (MCC) collaborate with spousal caregivers daily to pursue what is most important to their health and well-being. Previous research in human-computer interaction has supported individuals with chronic conditions or their caregivers, but little has supported both as a unit. We conducted a field study with 12 patient-caregiver dyads, all married and living together, to identify partners' values and how they shape collaborative management of MCC. Partners' coinciding values motivated them to empathize with and support each other in the face of challenges related to health and well-being. When their values were asymmetric, they perceived tensions between individual autonomy and their ability to coordinate with their partner. Systems to support partners in this context could help them overcome asymmetric values, but should balance this with support for individual autonomy.

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      cover image ACM Conferences
      CHI '17: Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems
      May 2017
      7138 pages
      ISBN:9781450346559
      DOI:10.1145/3025453
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      1. caregiver
      2. collaboration
      3. coordination
      4. multiple chronic conditions
      5. patient
      6. self-care
      7. self-management

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