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Understanding the Care Ecologies of Veterans with PTSD

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Published:23 April 2020Publication History

ABSTRACT

Post-traumatic stress disorder (PTSD) disproportionately affects United States veterans, yet they may be reluctant to seek or engage in care. We interview 21 participants, including veterans with PTSD, clinicians who treat veterans and friends and family that support veterans through mental health ordeals. We investigate the military identity these veterans share. We explore how this may add to their reluctance in care-seeking behaviors. We also explore the roles of human and non-human intermediaries in ecologies of care and the potential for enhancing patient empowerment in current clinical treatment contexts. We discuss how military culture can be utilized in clinical care, how multiple perspectives can be leveraged to create a more holistic view of the patient, and finally, how veterans can be empowered during treatment. We conclude with recommendations for the design of sociotechnical systems that prioritize the above in support of the mental well-being of veterans with PTSD.

References

  1. 2014. U.S. Department of Veterans Affairs, "Study explores reasons why Veterans seek or don't seek PTSD care". (April 2014). https://www.research.va.gov/currents/spring2014/spring2014--25.cfmGoogle ScholarGoogle Scholar
  2. 2018. Clinical Practice Guideline for the Treatment of Posttraumatic Stress Disorder (PTSD). American Psychological Association (Apr 2018). https://www.apa.org/ptsd-guidelineGoogle ScholarGoogle Scholar
  3. 2018. Traumatic Brain Injury and PTSD: Focus on Veterans. (Jul 2018). https://www.ptsd.va.gov/professional/treat/cooccurring/tbi_ptsd_vets.aspGoogle ScholarGoogle Scholar
  4. 2018. U.S. Department of Veterans Affairs, "How Common is PTSD in Veterans? - PTSD: National Center for PTSD". (Jul 2018). https://www.ptsd.va.gov/understand/common/common_veterans.aspGoogle ScholarGoogle Scholar
  5. 2018. U.S. Department of Veterans Affairs, "Mobile App: PE Coach". (Sep 2018). https://www.ptsd.va.gov/appvid/mobile/pecoach_app_public.aspGoogle ScholarGoogle Scholar
  6. 2018. U.S. Department of Veterans Affairs, "PTSD and Substance Abuse in Veterans - PTSD: National Center for PTSD". (Sep 2018). http://www.ptsd.va.gov/public/problems/ptsd_substance_abuse_veterans.aspGoogle ScholarGoogle Scholar
  7. 2018. U.S. Department of Veterans Affairs, "Treatment of PTSD - PTSD: National Center for PTSD". (Sep https://www.ptsd.va.gov/understand_tx/tx_basics.aspGoogle ScholarGoogle Scholar
  8. 2019. Snapchat. (2019). http://www.snapchat.com/Google ScholarGoogle Scholar
  9. Rosa I. Arriaga. 2017. Using an ecological systems approach to target technology. In Autism Imaging and Devices. CRC Press.Google ScholarGoogle Scholar
  10. American Psychiatric Association and others. 2013. Diagnostic and statistical manual of mental disorders (DSM-5®). American Psychiatric Pub.Google ScholarGoogle Scholar
  11. Boniel-Nissim M. Suler J. Barak, A. 2008. Fostering Empowerment in Online Support Groups. Computers in Human Behavior 24, 5 (2008), 1867--1883.Google ScholarGoogle ScholarDigital LibraryDigital Library
  12. Andrew B. L. Berry, Catherine Lim, Andrea L. Hartzler, Tad Hirsch, Edward H. Wagner, Evette Ludman, and James D. Ralston. 2017. How Values Shape Collaboration Between Patients with Multiple Chronic Conditions and Spousal Caregivers. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems (CHI '17). ACM, NY, NY, USA, 5257--5270. DOI: http://dx.doi.org/10.1145/3025453.3025923Google ScholarGoogle ScholarDigital LibraryDigital Library
  13. Renato Bispo -PhD Student. 2008. Designing out stigma-The role of objects in the construction of disabled peopleÂt's identity. Technical Report.Google ScholarGoogle Scholar
  14. John Boyce, Y Chartier, M Chraiti, B Cookson, N Damani, S Dharan, and others. 2009. WHO guidelines on hand hygiene in health care. Geneva: World Health Organization (2009).Google ScholarGoogle Scholar
  15. Scott R Braithwaite, Christophe Giraud-Carrier, Josh West, Michael D Barnes, and Carl Lee Hanson. 2016. Validating Machine Learning Algorithms for Twitter Data Against Established Measures of Suicidality. JMIR Mental Health 3, 2 (2016). DOI: http://dx.doi.org/10.2196/mental.4822Google ScholarGoogle ScholarCross RefCross Ref
  16. Virginia Braun and Victoria Clarke. 2006. Using thematic analysis in psychology. Qualitative research in psychology 3, 2 (2006), 77--101.Google ScholarGoogle Scholar
  17. U. Bronfenbrenner. 1979. The Ecology of Human Development. Harvard University Press (1979).Google ScholarGoogle ScholarCross RefCross Ref
  18. Alice V. Brown and Jaz Hee-jeong Choi. 2017. Towards Care-based Design. In Proceedings of the 8th International Conference on Communities and Technologies - C&T '17. ACM Press, New York, New York, USA, 56--63. DOI: http://dx.doi.org/10.1145/3083671.3083703Google ScholarGoogle ScholarDigital LibraryDigital Library
  19. Yunan Chen, Victor Ngo, and Sun Young Park. 2013. Caring for caregivers. In Proceedings of the 2013 conference on Computer supported cooperative work - CSCW '13. ACM Press, New York, New York, USA, 91. DOI: http://dx.doi.org/10.1145/2441776.2441789Google ScholarGoogle ScholarDigital LibraryDigital Library
  20. Matthew Chinman, Preethy George, Richard H. Dougherty, Allen S. Daniels, Sushmita Shoma Ghose, Anita Swift, and Miriam E. Delphin-Rittmon. 2014. Peer Support Services for Individuals With Serious Mental Illnesses: Assessing the Evidence. Psychiatric Services 65, 4 (apr 2014), 429--441. DOI: http://dx.doi.org/10.1176/appi.ps.201300244Google ScholarGoogle ScholarCross RefCross Ref
  21. Jane Clemensen, J Rasmussen, A Denning, and M Craggs. 2011. Patient empowerment and new citizen roles through telehealth technologies. In Proceedings of conference eTELEMED. 23--28.Google ScholarGoogle Scholar
  22. Jose E. Coll, Eugenia Weiss, and Michael Metal. 2011a. The Influence of Military Culture and Veteran Worldviews on Mental Health Treatment: Practice Implications for Combat Veteran Help-seeking and Wellness. The International Journal of Health, Wellness, and Society 1, 2 (2011), 75--86. DOI: http://dx.doi.org/10.18848/2156--8960/CGP/v01i02/41168Google ScholarGoogle ScholarCross RefCross Ref
  23. Jose E. Coll, Eugenia L. Weiss, and Jeffrey S. Yarvis. 2011b. No One Leaves Unchanged: Insights for Civilian Mental Health Care Professionals Into the Military Experience and Culture. Social Work in Health Care 50, 7 (aug 2011), 487--500. DOI: http://dx.doi.org/10.1080/00981389.2010.528727Google ScholarGoogle ScholarCross RefCross Ref
  24. Joseph J. Collins. 1998. The complex context of American military culture: A practitioner's view. The Washington Quarterly 21, 4 (1998), 213--228. DOI: http://dx.doi.org/10.1080/01636609809550359Google ScholarGoogle ScholarCross RefCross Ref
  25. Patrick W. Corrigan, Benjamin G. Druss, and Deborah A. Perlick. 2014. The impact of mental illness stigma on seeking and participating in mental health care. Psychological Science in the Public Interest, Supplement (2014). DOI: http://dx.doi.org/10.1177/152910061453139811Google ScholarGoogle ScholarCross RefCross Ref
  26. Patrick W Corrigan and Amy C Watson. 2002. The paradox of self-stigma and mental illness. Clinical Psychology: Science and Practice 9, 1 (2002), 35--53.Google ScholarGoogle ScholarCross RefCross Ref
  27. Jonas D. Forneris C. Wines C. Sonis J. Middleton J. Feltner C. Brownley K. Olmsted K. Greenblatt A. Weil A. Gaynes B. Murphy R. Cusack, K. 2015. Psychological treatments for adults with posttraumatic stress disorder: A systematic review and meta-analysis. Clinical Psychology Review (Feb. 2015). DOI: http://dx.doi.org/10.1016/j.cpr.2015.10.003Google ScholarGoogle ScholarCross RefCross Ref
  28. Bryan Dosono, Yasmeen Rashidi, Taslima Akter, Bryan Semaan, and Apu Kapadia. 2017. Challenges in transitioning from civil to military culture: Hyper-selective disclosure through ICTs. Proceedings of the ACM on Human-Computer Interaction 1, CSCW (2017), 41.Google ScholarGoogle ScholarDigital LibraryDigital Library
  29. Louise A Ellis, Philippa Collin, Patrick J Hurley, Tracey A Davenport, Jane M Burns, and Ian B Hickie. 2013. Young men's attitudes and behaviour in relation to mental health and technology: implications for the development of online mental health services. BMC psychiatry 13, 1 (2013), 119.Google ScholarGoogle Scholar
  30. Deborah L Finfgeld. 2004. Empowerment of individuals with enduring mental health problems: Results from concept analyses and qualitative investigations. Advances in Nursing Science 27, 1 (2004), 44--52.Google ScholarGoogle ScholarCross RefCross Ref
  31. Geraldine Fitzpatrick and Gunnar Ellingsen. 2013. A review of 25 years of CSCW research in healthcare: contributions, challenges and future agendas. Computer Supported Cooperative Work (CSCW) 22, 4--6 (2013), 609--665.Google ScholarGoogle ScholarDigital LibraryDigital Library
  32. Edna B. Foa, Elizabeth Hembree, and Barbara Rothbaum. 2015. Prolonged Exposure Therapy for PTSDEmotional Processing of Traumatic Experiences, Therapist Guide. Oxford University Press, New York, NY.Google ScholarGoogle Scholar
  33. Pin Sym Foong, Shengdong Zhao, Felicia Tan, and Joseph Jay Williams. 2018. Harvesting Caregiving Knowledge. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems - CHI '18. ACM Press, New York, New York, USA, 1--12. DOI: http://dx.doi.org/10.1145/3173574.3173653Google ScholarGoogle ScholarDigital LibraryDigital Library
  34. Erving Goffman. 1963. Stigma: notes on the management of spoiled identity. (1963).Google ScholarGoogle Scholar
  35. Leo A. Goodman. 1961. Snowball Sampling. The Annals of Mathematical Statistics 32, 1 (1961), 148--170. http://www.jstor.org/stable/2237615Google ScholarGoogle ScholarCross RefCross Ref
  36. Francisco J. Gutierrez and Sergio F. Ochoa. 2017. It Takes at Least Two to Tango: Understanding the Cooperative Nature of Elderly Caregiving in Latin America. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing (CSCW '17). ACM, NY, NY, USA, 1618--1630. DOI: http://dx.doi.org/10.1145/2998181.2998314Google ScholarGoogle ScholarDigital LibraryDigital Library
  37. Lynn Hall. 2011. The Importance of Understanding Military Culture. Social Work in Health Care 50, 1 (jan 2011), 4--18. DOI: http://dx.doi.org/10.1080/00981389.2010.513914Google ScholarGoogle ScholarCross RefCross Ref
  38. Donna Haraway. 1988. Situated knowledges: The science question in feminism and the privilege of partial perspective. Feminist studies 14, 3 (1988), 575--599.Google ScholarGoogle Scholar
  39. Donna Jeanne Haraway. 1985. A manifesto for cyborgs: Science, technology, and socialist feminism in the 1980s. Center for Social Research and Education San Francisco, CA.Google ScholarGoogle Scholar
  40. Claire Henderson, Sara Evans-Lacko, and Graham Thornicroft. 2013. Mental illness stigma, help seeking, and public health programs. Am J Public Health 103, 5 (May 2013), 777--780. DOI: http://dx.doi.org/10.2105/AJPH.2012.301056 PMC3698814 [pmcid].Google ScholarGoogle ScholarCross RefCross Ref
  41. Jeffrey Hightower and Gaetano Borriello. 2001. Location systems for ubiquitous computing. Computer 34, 8 (2001), 57--66.Google ScholarGoogle ScholarDigital LibraryDigital Library
  42. Matthew K. Hong, Lauren Wilcox, Daniel Machado, Thomas A. Olson, and Stephen F. Simoneaux. 2016. Care Partnerships: Toward Technology to Support Teens' Participation in Their Health Care. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems (CHI '16). ACM, New York, NY, USA, 5337--5349. DOI: http://dx.doi.org/10.1145/2858036.2858508Google ScholarGoogle ScholarDigital LibraryDigital Library
  43. Yarosh S. Kim J. Abowd G. Arriaga R. Hong, H. 2018. Investigating the use of circles in social networks to support independence of individuals with autism. Proc. ACM Hum.-Comput. Interact. CHI (2018). DOI: http://dx.doi.org/10.1145/2470654.2466439Google ScholarGoogle ScholarDigital LibraryDigital Library
  44. Jonathan Huyghe, Arne Jansen, and Jan Derboven. 2016. NOSE: Improving Patient-Doctor Communication in Rhinoplasty. In Proceedings of the 9th Nordic Conference on Human-Computer Interaction (NordiCHI '16). ACM, NY, NY, USA, Article 86, 4 pages. DOI: http://dx.doi.org/10.1145/2971485.2996720Google ScholarGoogle ScholarDigital LibraryDigital Library
  45. Washington University in St. Louis. 2008. Growing Problem For Veterans: Domestic Violence. (Nov 2008). https://www.sciencedaily.com/releases/2008/11/081106181415.htmGoogle ScholarGoogle Scholar
  46. Azra Ismail, Naveena Karusala, and Neha Kumar. 2018. Bridging Disconnected Knowledges for Community Health. Proc. ACM Hum.-Comput. Interact. 2, CSCW, Article 75 (Nov. 2018), 27 pages. DOI: http://dx.doi.org/10.1145/3274344Google ScholarGoogle ScholarDigital LibraryDigital Library
  47. Maia L. Jacobs, James Clawson, and Elizabeth D. Mynatt. 2015. Comparing Health Information Sharing Preferences of Cancer Patients, Doctors, and Navigators (CSCW '15). 808--818. DOI: http://dx.doi.org/10.1145/2675133.267525212Google ScholarGoogle ScholarCross RefCross Ref
  48. Hee Young Jeong and Rosa I. Arriaga. 2009. Using an ecological framework to design mobile technologies for pediatric asthma management. In Proceedings of the 11th International Conference on Human-Computer Interaction with Mobile Devices and Services - MobileHCI '09. ACM Press, New York, New York, USA.Google ScholarGoogle Scholar
  49. Elizabeth Kaziunas, Mark S. Ackerman, Silvia Lindtner, and Joyce M. Lee. 2017. Caring Through Data: Attending to the Social and Emotional Experiences of Health Datafication. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing (CSCW '17). ACM, NY, NY, USA, 2260--2272. DOI: http://dx.doi.org/10.1145/2998181.2998303Google ScholarGoogle ScholarDigital LibraryDigital Library
  50. Ronald C Kessler, Wai Tat Chiu, Olga Demler, and Ellen E Walters. 2005. Prevalence, severity, and comorbidity of 12-month DSM-IV disorders in the National Comorbidity Survey Replication. Archives of general psychiatry 62, 6 (2005), 617--627.Google ScholarGoogle Scholar
  51. Julie Kientz, Gillian Hayes, Tracy Westeyn, Thad Starner, and Gregory Abowd. 2007. Pervasive Computing and Autism: Assisting Caregivers of Children with Special Needs. IEEE Pervasive Computing 6, 1 (jan 2007), 28--35. DOI: http://dx.doi.org/10.1109/MPRV.2007.18Google ScholarGoogle ScholarDigital LibraryDigital Library
  52. Christopher J. Koenig, Shira Maguen, Jose D. Monroy, Lindsay Mayott, and Karen H. Seal. 2014. Facilitating culture-centered communication between health care providers and veterans transitioning from military deployment to civilian life. Patient Education and Counseling 95, 3 (jun 2014), 414--420. DOI: http://dx.doi.org/10.1016/J.PEC.2014.03.016Google ScholarGoogle ScholarCross RefCross Ref
  53. Kurt Kroenke, Robert L. Spitzer, and Janet B. W. Williams. 2001. The PHQ-9. Journal of General Internal Medicine 16, 9 (2001), 606--613. DOI: http://dx.doi.org/10.1046/j.1525--1497.2001.016009606.xGoogle ScholarGoogle ScholarCross RefCross Ref
  54. Brian M. Landry, Eun Kyoung Choe, Stephen McCutcheon, and Julie A. Kientz. 2010. Post-traumatic stress disorder. In Proceedings of the ACM international conference on Health informatics - IHI '10. ACM Press, New York, New York, USA, 780. DOI: http://dx.doi.org/10.1145/1882992.1883110Google ScholarGoogle ScholarDigital LibraryDigital Library
  55. Jung-Hyun Lee and Hyo-Il Jung. 2013. Biochip technology for monitoring posttraumatic stress disorder (PTSD). BioChip Journal 7, 3 (01 Sep 2013), 195--200. DOI: http://dx.doi.org/10.1007/s13206-013--7301-xGoogle ScholarGoogle ScholarCross RefCross Ref
  56. Leslie S Liu, Sen H Hirano, Monica Tentori, Karen G Cheng, Sheba George, Sun Young Park, and Gillian R Hayes. 2011. Improving communication and social support for caregivers of high-risk infants through mobile technologies. In Proceedings of the ACM 2011 conference on Computer supported cooperative work. ACM, 475--484.Google ScholarGoogle ScholarDigital LibraryDigital Library
  57. Juan F Maestre, Jessica Pater, Georgia Tech, Elizabeth V Eikey, Maia Jacobs, Mark Warner, Gabriela Marcu, Svetlana Yarosh, and Patrick C Shih. 2018. Conducting Research with Stigmatized Populations: Practices, Challenges, and Lessons Learned. (2018). DOI: http://dx.doi.org/10.1145/3272973.3273003Google ScholarGoogle ScholarDigital LibraryDigital Library
  58. Lena Mamykina, Elizabeth Mynatt, Patricia Davidson, and Daniel Greenblatt. 2008. MAHI: investigation of social scaffolding for reflective thinking in diabetes management. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. ACM, 477--486.Google ScholarGoogle ScholarDigital LibraryDigital Library
  59. Lena Mamykina, Elizabeth D Mynatt, and David R Kaufman. 2006. Investigating health management practices of individuals with diabetes. In Proceedings of the SIGCHI conference on Human Factors in computing systems. ACM, 927--936.Google ScholarGoogle ScholarDigital LibraryDigital Library
  60. Gabriela Marcu, Nadia Dowshen, Shuvadittya Saha, Ressa Sarreal, and Nazanin Andalibi. 2016. TreatYoSelf: Empathy-driven behavioral intervention for marginalized youth living with HIV. In Proceedings of the 10th EAI International Conference on Pervasive Computing Technologies for Healthcare. DOI: http://dx.doi.org/10.4108/eai.16--5--2016.2263336Google ScholarGoogle ScholarCross RefCross Ref
  61. Alison Mathie and Gord Cunningham. 2005. Who is driving development? Reflections on the transformative potential of asset-based community development. Canadian Journal of Development Studies/Revue canadienne d'études du développement 26, 1 (2005), 175--186.Google ScholarGoogle Scholar
  62. Andrew D Miller, Sonali R Mishra, Logan Kendall, Shefali Haldar, Ari H Pollack, and Wanda Pratt. 2016. Partners in Care: Design Considerations for Caregivers and Patients During a Hospital Stay. In Proceedings of the 19th ACM Conference on Computer-Supported Cooperative Work & Social Computing - CSCW '16. ACM Press, New York, New York, USA, 754--767. DOI: http://dx.doi.org/10.1145/2818048.2819983Google ScholarGoogle ScholarDigital LibraryDigital Library
  63. Sonali R. Mishra, Shefali Haldar, Ari H. Pollack, Logan Kendall, Andrew D. Miller, Maher Khelifi, and Wanda Pratt. 2016. "Not Just a Receiver": Understanding Patient Behavior in the Hospital Environment. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems (CHI '16). ACM, New York, NY, USA, 3103--3114. DOI: http://dx.doi.org/10.1145/2858036.2858167Google ScholarGoogle ScholarDigital LibraryDigital Library
  64. Sonali R. Mishra, Andrew D. Miller, Shefali Haldar, Maher Khelifi, Jordan Eschler, Rashmi G. Elera, Ari H. Pollack, and Wanda Pratt. 2018. Supporting Collaborative Health Tracking in the Hospital: Patients' Perspectives. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems (CHI '18). ACM, NY, NY, USA, Article 650, 14 pages. DOI: http://dx.doi.org/10.1145/3173574.3174224Google ScholarGoogle ScholarDigital LibraryDigital Library
  65. Annemarie Mol. 2008. The logic of care: Health and the problem of patient choice. Routledge. 13Google ScholarGoogle Scholar
  66. Sean A. Munson. 2017. Rethinking assumptions in the design of health and wellness tracking tools. interactions (2017). DOI: http://dx.doi.org/10.1145/3168738Google ScholarGoogle ScholarDigital LibraryDigital Library
  67. Elizabeth L. Murnane, Tara G. Walker, Beck Tench, Stephen Voida, and Jaime Snyder. 2018. Personal Informatics in Interpersonal Contexts: Towards the Design of Technology That Supports the Social Ecologies of Long-Term Mental Health Management. Proc. ACM Hum.-Comput. Interact. 2, CSCW, Article 127 (Nov. 2018), 27 pages. DOI: http://dx.doi.org/10.1145/3274396Google ScholarGoogle ScholarDigital LibraryDigital Library
  68. Kathleen O'Leary, Arpita Bhattacharya, Sean A. Munson, Jacob O. Wobbrock, and Wanda Pratt. 2017. Design Opportunities for Mental Health Peer Support Technologies. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing - CSCW '17. ACM Press, New York, New York, USA, 1470--1484. DOI: http://dx.doi.org/10.1145/2998181.2998349Google ScholarGoogle ScholarDigital LibraryDigital Library
  69. Anne Opie. 1998. " Nobody's Asked Me for My View": Users' Empowerment by Multidisciplinary Health Teams. Qualitative health research 8, 2 (1998), 188--206.Google ScholarGoogle Scholar
  70. Barbara Paterson. 2001. Myth of empowerment in chronic illness. Journal of advanced nursing 34, 5 (2001), 574--581.Google ScholarGoogle ScholarCross RefCross Ref
  71. Michael J Pencina, Benjamin A Goldstein, Ann Marie Navar, and John P A Ioannidis. 2016. Opportunities and challenges in developing risk prediction models with electronic health records data: a systematic review. Journal of the American Medical Informatics Association 24, 1 (05 2016), 198--208. DOI: http://dx.doi.org/10.1093/jamia/ocw042Google ScholarGoogle ScholarCross RefCross Ref
  72. James W Pennebaker and Anna Graybeal. 2001. Patterns of natural language use: Disclosure, personality, and social integration. Current Directions in Psychological Science 10, 3 (2001), 90--93.Google ScholarGoogle ScholarCross RefCross Ref
  73. Laura R. Pina, Sang-Wha Sien, Teresa Ward, Jason C. Yip, Sean A. Munson, James Fogarty, and Julie A. Kientz. 2017. From Personal Informatics to Family Informatics. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing - CSCW '17. ACM Press, New York, New York, USA, 2300--2315. DOI: http://dx.doi.org/10.1145/2998181.2998362Google ScholarGoogle ScholarDigital LibraryDigital Library
  74. S.A. Redmond, S.L. Wilcox, S. Campbell, A. Kim, K. Finney, K. Barr, and A.M. Hassan. 2015. A brief introduction to the military workplace culture. Work 50, 1 (jan 2015), 9--20. DOI: http://dx.doi.org/10.3233/WOR-141987Google ScholarGoogle ScholarCross RefCross Ref
  75. Barbara Olasov Rothbaum, Larry Hodges, Renato Alarcon, David Ready, Fran Shahar, Ken Graap, Jarrel Pair, Philip Hebert, Dave Gotz, Brian Wills, and David Baltzell. 1999. Virtual Reality Exposure Therapy for PTSD Vietnam Veterans: A Case Study. Journal of Traumatic Stress 12, 2 (01 Apr 1999), 263--271. DOI: http://dx.doi.org/10.1023/A:1024772308758Google ScholarGoogle ScholarCross RefCross Ref
  76. Barbara Olasov Rothbaum and Ann C. Schwartz. 2002. Exposure Therapy for Posttraumatic Stress Disorder. American Journal of Psychotherapy 56, 1 (2002), 59--75. DOI: http://dx.doi.org/10.1176/appi.psychotherapy.2002.56.1.59 PMID: 11977784.Google ScholarGoogle ScholarCross RefCross Ref
  77. Nicolas Rüsch, Matthias C. Angermeyer, and Patrick W. Corrigan. 2005. Mental illness stigma: Concepts, consequences, and initiatives to reduce stigma. (2005). DOI: http://dx.doi.org/10.1016/j.eurpsy.2005.04.004Google ScholarGoogle ScholarCross RefCross Ref
  78. Samiha Samrose, Ru Zhao, Jeffery White, Vivian Li, Luis Nova, Yichen Lu, Mohammad Rafayet Ali, and Mohammed Ehsan Hoque. 2018. CoCo: Collaboration Coach for Understanding Team Dynamics during Video Conferencing. Proceedings of the ACM on Interactive, Mobile, Wearable and Ubiquitous Technologies 1, 4 (2018), 160.Google ScholarGoogle ScholarDigital LibraryDigital Library
  79. Georg Schomerus and Matthias C. Angermeyer. 2008. Stigma and its impact on help-seeking for mental disorders: What do we know? (2008). DOI: http://dx.doi.org/10.1017/S1121189X00002669Google ScholarGoogle ScholarCross RefCross Ref
  80. Bryan Semaan, Lauren M. Britton, and Bryan Dosono. 2017. Military Masculinity and the Travails of Transitioning. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing - CSCW '17. ACM Press, New York, New York, USA, 387--403. DOI: http://dx.doi.org/10.1145/2998181.2998221Google ScholarGoogle ScholarDigital LibraryDigital Library
  81. Bryan C. Semaan, Lauren M. Britton, and Bryan Dosono. 2016. Transition Resilience with ICTs. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems - CHI '16. ACM Press, New York, New York, USA, 2882--2894. DOI: http://dx.doi.org/10.1145/2858036.285thettdah8109Google ScholarGoogle ScholarCross RefCross Ref
  82. Watson H. Krishna A. Sherrill A. Evans H. Shertz, E. and R. Arriaga. 2019. Bridging the Gap: Creating a Clinician-Facing Dashboard for PTSD. International Conference on Human-Computer Interaction (Interact) (sept 2019). DOI: http://dx.doi.org/10.1007/978--3-030--29381--9_14Google ScholarGoogle ScholarCross RefCross Ref
  83. Thor Jarle J Skinstad and Babak A Farshchian. 2016. Empowerment or concealed compliance?: A review of literature on mobile ICT solutions for patient empowerment. In Proceedings of the 9th ACM International Conference on PErvasive Technologies Related to Assistive Environments. ACM, 54.Google ScholarGoogle ScholarDigital LibraryDigital Library
  84. Daniel W. Smith, B. Christopher Frueh, Craig N. Sawchuk, and Michael R. Johnson. 1999. Relationship between symptom over-reporting and pre- and post-combat trauma history in veterans evaluated for PTSD. Depression and Anxiety 10, 3 (1999), 119--124. DOI: http://dx.doi.org/10.1002/(SICI)1520--6394(1999)10:3<119::AID-DA5>3.0.CO;2-K14Google ScholarGoogle ScholarCross RefCross Ref
  85. VA Web Mobile Solutions. 2019. VA DoD Veteran Link. (2019). https://mobile.va.gov/app/va-dod-veteran-linkGoogle ScholarGoogle Scholar
  86. Cristiano Storni. 2010. Multiple forms of appropriation in self-monitoring technology: Reflections on the role of evaluation in future self-care. Intl. Journal of Human--Computer Interaction 26, 5 (2010), 537--561.Google ScholarGoogle ScholarCross RefCross Ref
  87. Matthieu Tixier and Myriam Lewkowicz. 2015. Looking for respite and support: Technological opportunities for spousal caregivers. In Proceedings of the 33rd annual ACM conference on human factors in computing systems. ACM, 1155--1158.Google ScholarGoogle ScholarDigital LibraryDigital Library
  88. Marleen Van Bergeijk, Bart Hengeveld, and Selma Otto. 2017. DOK: Enhancing Child Patient Empowerment. In Proceedings of the Eleventh International Conference on Tangible, Embedded, and Embodied Interaction (TEI'17). ACM, NY, NY, USA, 589--595. DOI: http://dx.doi.org/10.1145/3024969.3025066Google ScholarGoogle ScholarDigital LibraryDigital Library
  89. John Vines, Róisín McNaney, Stephen Lindsay, Jayne Wallace, and John McCarthy. 2014. Special topic: Designing for and with vulnerable people. interactions (2014). DOI: http://dx.doi.org/10.1145/2543490Google ScholarGoogle ScholarDigital LibraryDigital Library
  90. Read S. Walker, S. 2011. Accessing vulnerable research populations: an experience with gatekeepers of ethical approval. International Journal of Palliative Nursing (2011), 14--18. DOI: http://dx.doi.org/10.12968/ijpn.2011.17.1.14Google ScholarGoogle ScholarCross RefCross Ref
  91. Frank Weathers, Brett Litz, Debra Herman, J.A. Huska, and Terence Keane. 1993. PTSD Checklist: Reliability, validity, and diagnostic utility. Proceedings of the 9th Annual Meeting of the International Society for Traumatic Stress Studies (ISTSS) (01 1993).Google ScholarGoogle Scholar
  92. Mary Edwards Wertsch. 1991. Military brats: Legacies of childhood inside the fortress. Brightwell Publishing.Google ScholarGoogle Scholar
  93. Peter West, Max Van Kleek, Richard Giordano, Mark J. Weal, and Nigel Shadbolt. 2018. Common Barriers to the Use of Patient-Generated Data Across Clinical Settings. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems (CHI '18). ACM, New York, NY, USA, Article 484, 13 pages. DOI: http://dx.doi.org/10.1145/3173574.3174058Google ScholarGoogle ScholarDigital LibraryDigital Library
  94. M Wichers, CJP Simons, IMA Kramer, Jessica A Hartmann, C Lothmann, Inez Myin-Germeys, AL Van Bemmel, F Peeters, Ph Delespaul, and J Van Os. 2011. Momentary assessment technology as a tool to help patients with depression help themselves. Acta Psychiatrica Scandinavica 124, 4 (2011), 262--272.Google ScholarGoogle ScholarCross RefCross Ref
  95. Walter J. Williams, E. 2015. When Does the Amount We Pay Research Participants Become "Undue Influence"? The AMA Jounral of Ethics (2015), 1116--1121. DOI: http://dx.doi.org/10.1001/journalofethics.2015.17.12.ecas2--1512Google ScholarGoogle ScholarCross RefCross Ref
  96. Naomi Yamashita, Hideaki Kuzuoka, Keiji Hirata, and Takashi Kudo. 2013. Understanding the conflicting demands of family caregivers caring for depressed family members. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems - CHI '13. ACM Press, New York, New York, USA, 2637. DOI: http://dx.doi.org/10.1145/2470654.2481365Google ScholarGoogle ScholarDigital LibraryDigital Library
  97. Naomi Yamashita, Hideaki Kuzuoka, Keiji Hirata, Takashi Kudo, Eiji Aramaki, and Kazuki Hattori. 2017. Changing Moods: How Manual Tracking by Family Caregivers Improves Caring and Family Communication. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems (CHI '17). ACM, NY, NY, USA, 158--169. DOI: http://dx.doi.org/10.1145/3025453.3025843Google ScholarGoogle ScholarDigital LibraryDigital Library
  98. Naomi Yamashita, Hideaki Kuzuoka, Takashi Kudo, Keiji Hirata, Eiji Aramaki, and Kazuki Hattori. 2018. How Information Sharing about Care Recipients by Family Caregivers Impacts Family Communication. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems - CHI '18. ACM Press, New York, New York, USA, 1--13. DOI: http://dx.doi.org/10.1145/3173574.3173796Google ScholarGoogle ScholarDigital LibraryDigital Library
  99. Langxuan Yin, Lazlo Ring, and Timothy Bickmore. 2012. Using an Interactive Visual Novel to Promote Patient Empowerment Through Engagement. In Proceedings of the International Conference on the Foundations of Digital Games (FDG '12). ACM, New York, NY, USA, 41--48. DOI: http://dx.doi.org/10.1145/2282338.2282351Google ScholarGoogle ScholarDigital LibraryDigital Library
  100. Eschler J. Reddy M. Zhang, R. 2018. Online Support Groups for Depression in China: Culturally Shaped Interactions and Motivations. Computer Supported Cooperative Work (CSCW) (2018), 1--28.Google ScholarGoogle Scholar
  101. Lannert B. K. Sherrill A. M. McSweeney L. B. Sprang K. Goodnight J. R. Rauch S. A. Zwiebach, L. 2019. Military cultural competence in the context of cognitive behavioural therapy. The Cognitive Behaviour Therapist 12 (2019). DOI: http://dx.doi.org/10.1017/S1754470X18000132Google ScholarGoogle ScholarCross RefCross Ref

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      cover image ACM Conferences
      CHI '20: Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems
      April 2020
      10688 pages
      ISBN:9781450367080
      DOI:10.1145/3313831

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      • Published: 23 April 2020

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