skip to main content
research-article

The Struggle for Recognition in Advanced Dementia: Implications for Experience-Centered Design

Published:14 November 2019Publication History
Skip Abstract Section

Abstract

Focusing on the person with advanced dementia as a social being presents a new opportunity for Experience-Centered Design (ECD), opening design to appreciate the agency and intentional actions of the person with advanced dementia. If Human-Computer Interaction is to shift from the predominantly assistive approach to a focus on experience, a theoretical framing that emphasizes the relational nature of selfhood is needed. In this article, we present Recognition Theory—a social theory based on an inter-subjectivist account of the struggle for recognition—to extend ECD approaches for advanced dementia. Focusing on people with advanced dementia, we examine recognition as a social and ethical perspective for establishing and maintaining self. We present a framework for design based on research with people with advanced dementia, experience-centered engagement and social identity, that will support designers to craft opportunities for mutual recognition in the design process and the practice of making.

References

  1. Mental Capacity Act. 2005. Mental Capacity Act. The Stationery Office, London.Google ScholarGoogle Scholar
  2. Trevor Adams and Paula Gardiner. 2005. Communication and interaction within dementia care triads: Developing a theory for relationship-centred care. Dementia 4, 2 (2005), 185--205.Google ScholarGoogle ScholarCross RefCross Ref
  3. Jeffrey C. Alexander and Maria Pia Lara. 1996. Honneth's new critical theory of recognition. New Left Review 1/220 (1996), 126--136.Google ScholarGoogle Scholar
  4. Jee Bang, Salvatore Spina, and Bruce L. Miller. 2015. Frontotemporal dementia. The Lancet 386, 10004 (2015), 1672--1682.Google ScholarGoogle ScholarCross RefCross Ref
  5. Liam J. Bannon. 1995. From human factors to human actors: The role of psychology and human-computer interaction studies in system design. In Proceedings of the Human-Computer Interaction. M. Baecker Ronald et al. (Eds.), Morgan Kaufmann Publishers Inc., 205--214.Google ScholarGoogle ScholarCross RefCross Ref
  6. Jeffrey Bardzell and Shaowen Bardzell. Year. What is critical about critical design? In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. ACM, 3297--3306.Google ScholarGoogle Scholar
  7. Shaowen Bardzell and Jeffrey Bardzell. Year. Towards a feminist HCI methodology: Social science, feminism, and hci. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. ACM, 675--684.Google ScholarGoogle Scholar
  8. Marguerite Barry, Kevin Doherty, Jose Marcano Belisario, Josip Car, Cecily Morrison, and Gavin Doherty. 2017. Mhealth for maternal mental health: Everyday wisdom in ethical design. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems. ACM, Denver, Colorado, 2708--2756. DOI:http://dx.doi.org/10.1145/3025453.3025918Google ScholarGoogle ScholarDigital LibraryDigital Library
  9. Anne Davis Basting. 2003. Looking back from loss: Views of the self in alzheimer's disease. Journal of Aging Studies 17, 1 (2003), 87--99.Google ScholarGoogle ScholarCross RefCross Ref
  10. Renée L. Beard. 2004. In their voices: Identity preservation and experiences of alzheimer's disease. Journal of Aging Studies 18, 4 (2004), 415--428.Google ScholarGoogle ScholarCross RefCross Ref
  11. Geraldine Boyle. 2014. Recognising the agency of people with dementia. Disability and Society 29, 7 (2014), 1130--1144. DOI:http://dx.doi.org/10.1080/09687599.2014.910108Google ScholarGoogle ScholarCross RefCross Ref
  12. Rita Maldonado Branco, Joana Quental, and Óscar Ribeiro. 2016. Playing with personalisation and openness in a codesign project involving people with dementia. In Proceedings of the 14th Participatory Design Conference on Full Papers (PDC’16). 61--70. DOI:http://dx.doi.org/10.1145/2940299.2940309Google ScholarGoogle ScholarDigital LibraryDigital Library
  13. Christina Buse and Julia Twigg. 2018. Keeping up appearances: Family carers and people with dementia negotiating normalcy through dress practice. In Disability, Normalcy and the Everyday. Ashgate, Farnham, UK.Google ScholarGoogle Scholar
  14. Lisa S. Caddell and Linda Clare. 2010. The impact of dementia on self and identity: A systematic review. Clinical Psychology Review 30, 1 (2010), 113--126.Google ScholarGoogle ScholarCross RefCross Ref
  15. Esther Chang, John Daly, Amanda Johnson, Kathleen Harrison, Sally Easterbrook, John Bidewell, Heather Stewart, Michael Noel, and Karen Hancock. 2009. Challenges for professional care of advanced dementia. International Journal of Nursing Practice 15, 1 (2009), 41--47.Google ScholarGoogle ScholarCross RefCross Ref
  16. Rachel Clarke, Peter Wright, Madeline Balaam, and John McCarthy. 2013. Digital portraits: Photo-sharing after domestic violence. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. ACM, Paris, France, 2517--2526. DOI:http://dx.doi.org/10.1145/2470654.2481348Google ScholarGoogle ScholarDigital LibraryDigital Library
  17. Jiska Cohen-Mansfield, Aleksandra Parpura-Gill, and Hava Golander. 2006. Utilization of self-identity roles for designing interventions for persons with dementia. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences 61, 4 (2006), P202--P212.Google ScholarGoogle ScholarCross RefCross Ref
  18. Claire Craig and John Killick. 2011. Creativity and Communication in Persons with Dementia: A Practical Guide. Jessica Kingsley Publishers, London, UK.Google ScholarGoogle Scholar
  19. Dagoberto Cruz-Sandoval, Christian I. Penaloza, Jesứs Favela, and Allan P. Castro-Coronel. 2018. Towards social robots that support exercise therapies for persons with dementia. In Proceedings of the 2018 ACM International Joint Conference and 2018 International Symposium on Pervasive and Ubiquitous Computing and Wearable Computers. ACM, Singapore, 1729--1734. DOI:http://dx.doi.org/10.1145/3267305.3267539Google ScholarGoogle Scholar
  20. Jean-Philippe Deranty. 2009. Beyond Communication: A Critical Study of Axel Honneth's Social Philosophy. Brill, Leiden.Google ScholarGoogle ScholarCross RefCross Ref
  21. Anthony M. DiGioia and Eve Shapiro. 2017. The Patient Centered Value System: Transforming Healthcare through Co-Design. Productivity Press.Google ScholarGoogle Scholar
  22. Murna Downs. 1997. The emergence of the person in dementia research. Ageing and Society 17, 5 (1997), 597--607.Google ScholarGoogle ScholarCross RefCross Ref
  23. Murna Downs. 2000. Dementia in a socio-cultural context: An idea whose time has come. Ageing and Society 20, 3 (2000), 369--375. DOI:http://dx.doi.org/undefinedGoogle ScholarGoogle ScholarCross RefCross Ref
  24. Gemma Corradi Fiumara. 2013. The Other Side of Language: A Philosophy of Listening. Routledge.Google ScholarGoogle Scholar
  25. Sarah Foley, Nadia Pantidi, and John McCarthy. 2019. Care and design: An ethnography of mutual recognition in the context of dementia care. In Proceedings of in 2019 CHI Conference on Human Factors in Computing Systems (CHI’19). ACM, New York, NY.Google ScholarGoogle ScholarDigital LibraryDigital Library
  26. Sarah Foley, Daniel Welsh, Nadia Pantidi, Kellie Morrissey, Tom Nappey, and John McCarthy. 2019. Printer pals: Experience-centered design to support agency for people with dementia. In Proceedings of CHI Conference on Human Factors in Computing Systems Proceedings (CHI’19). ACM, New York, NY.Google ScholarGoogle ScholarDigital LibraryDigital Library
  27. Nancy Fraser. 2000. Rethinking recognition. New Left Review 3 (2000), 107--118.Google ScholarGoogle Scholar
  28. Nancy Fraser. 2003. Distorted beyond all recognition: A rejoinder to axel honneth. In Redistribution or Recognition. Verso, New York, 198--236.Google ScholarGoogle Scholar
  29. Nancy Fraser. 1996. Justice Interruptus: Critical Reflections on the “Postsocialist” Condition. Routledge, London.Google ScholarGoogle Scholar
  30. Batya Friedman. 1996. Value-Sensitive Design. Interactions 3, 6 (1996), 16--23.Google ScholarGoogle ScholarDigital LibraryDigital Library
  31. Paul Michael Garrett. 2010. Recognizing the limitations of the political theory of recognition: Axel Honneth, Nancy fraser and social work. The British Journal of Social Work 40, 5 (2010), 1517--1533. DOI:http://dx.doi.org/10.1093/bjsw/bcp044Google ScholarGoogle ScholarCross RefCross Ref
  32. Atul Gawande. 2014. Being Mortal: Medicine and What Matters in the End. Metropolitan Books.Google ScholarGoogle Scholar
  33. Jane L. Givens, Ruth Palan Lopez, Kathleen M. Mazor, and Susan L. Mitchell. 2012. Sources of stress for family members of nursing home residents with advanced dementia. Alzheimer Disease and Associated Disorders 26, 3 (2012), 254.Google ScholarGoogle ScholarCross RefCross Ref
  34. H. Paul Grice. 1989. Studies in the Way of Words. Harvard University Press.Google ScholarGoogle Scholar
  35. James Hodge, Madeline Balaam, Sandra Hastings, and Kellie Morrissey. 2018. Exploring the design of tailored virtual reality experiences for people with dementia. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems. ACM, Montreal QC, Canada, 1--13. DOI:http://dx.doi.org/10.1145/3173574.3174088Google ScholarGoogle ScholarDigital LibraryDigital Library
  36. Axel Honneth. 1996. The Struggle for Recognition: The Moral Grammar of Social Conflicts. MIT Press.Google ScholarGoogle Scholar
  37. Axel Honneth. 2001. Recognition or Redistribution? Theory, Culture 8 Society 18, 2--3 (2001), 43--55.Google ScholarGoogle Scholar
  38. Axel Honneth. 2003. Redistribution as recognition: A response to nancy fraser. In Redistribution or Recognition?: A Political-Philosophical Exchange, Nancy Fraser (Ed.). 110--197.Google ScholarGoogle Scholar
  39. Axel Honneth. 2014. Disrespect: The Normative Foundations of Critical Theory. John Wiley 8 Sons.Google ScholarGoogle Scholar
  40. Gill Hubbard, Murna G. Downs, and Susan Tester. 2003. Including older people with dementia in research: Challenges and strategies. Aging 8 Mental Health 7, 5 (2003), 351--362.Google ScholarGoogle Scholar
  41. Tim Ingold. Making: Anthropology, Archaeology, Art and Architecture. Routledge, Oxon, UK.Google ScholarGoogle Scholar
  42. Mattias Iser. 2013. Recognition. Stanford Encyclopedia of Philosophy. Retrieved from https://plato.stanford.edu/entries/recognition/.Google ScholarGoogle Scholar
  43. Peter Jones. 2013. Design for Care: Innovating Healthcare Experience. Rosenfeld Media.Google ScholarGoogle Scholar
  44. Raj N. Kalaria. 2016. Neuropathological diagnosis of vascular cognitive impairment and vascular dementia with implications for Alzheimer's disease. Acta Neuropathologica 131, 5 (2016), 659--685.Google ScholarGoogle ScholarCross RefCross Ref
  45. Shigeki Kamada, Yuji Matsuo, Sunao Hara and Masanobu Abe. 2017. New monitoring scheme for persons with dementia through monitoring-area adaptation according to stage of disease. In Proceedings of the 1st ACM SIGSPATIAL Workshop on Recommendations for Location-based Services and Social Networks. ACM, Redondo Beach, CA, 1--7. DOI:http://dx.doi.org/10.1145/3148150.3148151Google ScholarGoogle ScholarDigital LibraryDigital Library
  46. G. Kenning and C. Treadaway. 2018. Designing for dementia: Iterative grief and transitional objects. Design Issues 34, 1 (2018), 42--53. DOI:http://dx.doi.org/10.1162/DESI_a_00475Google ScholarGoogle ScholarCross RefCross Ref
  47. Tom Kitwood. 1993. Towards a theory of dementia care: The interpersonal process. Ageing and Society 13, 1 (1993), 51--67. DOI:http://dx.doi.org/10.1017/S0144686X00000647Google ScholarGoogle ScholarCross RefCross Ref
  48. Tom Kitwood. 2002. Malignant social psychology. Understanding Care, Welfare, and Community: A Reader. Taylor and Francis books London, 225.Google ScholarGoogle Scholar
  49. Tom Kitwood. 1997. Dementia Reconsidered. Open University Press, London.Google ScholarGoogle Scholar
  50. Pia C. Kontos. 2004. Ethnographic reflections on selfhood, embodiment and alzheimer's disease. Ageing and Society 24, 6 (2004), 829--849.Google ScholarGoogle ScholarCross RefCross Ref
  51. Pia C. Kontos and Gary Naglie. 2007. Bridging theory and practice: Imagination, the body, and person-centred dementia care. Dementia 6, 4 (2007), 549--569.Google ScholarGoogle ScholarCross RefCross Ref
  52. Pia C. Kontos. 2005. Embodied selfhood in alzheimer's disease: Rethinking person-centred care. Dementia 4, 4 (2005), 553--570. DOI:http://dx.doi.org/10.1177/1471301205058311Google ScholarGoogle ScholarCross RefCross Ref
  53. Anil Kumar and Arti Singh. 2015. A review on Alzheimer's disease pathophysiology and its management: An update. Pharmacological Reports 67, 2 (2015), 195--203.Google ScholarGoogle ScholarCross RefCross Ref
  54. Alexander F. Kurz. 2005. Uncommon neurodegenerative causes of dementia. International Psychogeriatrics 17, s1 (2005), S35--S49.Google ScholarGoogle ScholarCross RefCross Ref
  55. Karan S. Kverno, Betty S. Black, Marie T. Nolan, and Peter V. Rabins. 2009. Research on treating neuropsychiatric symptoms of advanced dementia with non-pharmacological strategies, 1998--2008: A systematic literature review. International Psychogeriatrics 21, 5 (2009), 825--843.Google ScholarGoogle ScholarCross RefCross Ref
  56. Amanda Lazar, Caroline Edasis, and Anne Marie Piper. 2017. A critical lens on dementia and design in HCI. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems. ACM, Denver, Colorado, 2175-2188. DOI:http://dx.doi.org/10.1145/3025453.3025522Google ScholarGoogle ScholarDigital LibraryDigital Library
  57. Amanda Lazar, Austin L. Toombs, Kellie Morrissey, Gail Kenning, Jennifer Boger, and Rens Brankaert. 2018. Hcixdementia workshop: Engaging people living with dementia. In Proceedings of Extended Abstracts of the 2018 CHI Conference on Human Factors in Computing Systems. ACM, Montreal, QC, Canada, 1--7. DOI:http://dx.doi.org/10.1145/3170427.3170613Google ScholarGoogle Scholar
  58. Hugh Mackay, Chris Carne, Paul Beynon-Davies, and Doug Tudhope. 2000. Reconfiguring the User: Using rapid application development. Social Studies of Science 30, 5 (2000), 737--757. DOI:http://dx.doi.org/10.1177/030631200030005004Google ScholarGoogle ScholarCross RefCross Ref
  59. Galina Madjaroff and Helena Mentis. 2017. Narratives of older adults with mild cognitive impairment and their caregivers. In Proceedings of the 19th International ACM SIGACCESS Conference on Computers and Accessibility. ACM, Baltimore, Maryland, 140--149. DOI:http://dx.doi.org/10.1145/3132525.3132554Google ScholarGoogle ScholarDigital LibraryDigital Library
  60. Kevin Marshall, Anja Thieme, Jayne Wallace, John Vines, Gavin Wood, and Madeline Balaam. 2014. Making Wellbeing: A process of user-centered design. In Proceedings of the 2014 Conference on Designing Interactive Systems. ACM, Vancouver, BC, Canada, 755--764. DOI:http://dx.doi.org/10.1145/2598510.2600888Google ScholarGoogle ScholarDigital LibraryDigital Library
  61. John McCarthy and Peter Wright. 2007. Technology as Experience. The MIT Press.Google ScholarGoogle ScholarDigital LibraryDigital Library
  62. John McCarthy and Peter Wright. 2015. Taking [a]Part: The Politics and Aesthetics of Participation in Experience-Centered Design. The MIT Press.Google ScholarGoogle ScholarDigital LibraryDigital Library
  63. Ian McDowell, Betsy Kristjansson, GB Hill and Rejean Hebert. 1997. Community screening for dementia: The mini mental state exam (mmse) and modified mini-mental state exam (3ms) compared. Journal of Clinical Epidemiology 50, 4 (1997), 377--383.Google ScholarGoogle ScholarCross RefCross Ref
  64. George Herbert Mead. 1934. Mind, Self and Society. University of Chicago Press, Chicago.Google ScholarGoogle Scholar
  65. Bere Miesen. 1992. Attachment theory and dementia. In Caregiving in Dementia. Research and Applications. Routledge/Tavistock, 38--56.Google ScholarGoogle Scholar
  66. Susan L. Mitchell, Dan K. Kiely, Richard N. Jones, Holly Prigerson, Ladislav Volicer, and Joan M. Teno. 2006. Advanced dementia research in the nursing home: The cascade study. Alzheimer Disease and Associated Disorders 20, 3 (2006), 166.Google ScholarGoogle ScholarCross RefCross Ref
  67. Susan L. Mitchell, Joan M. Teno, Dan K. Kiely, Michele L. Shaffer, Richard N. Jones, Holly G. Prigerson, Ladislav Volicer, Jane L. Givens, and Mary Beth Hamel. 2009. The clinical course of advanced dementia. New England Journal of Medicine 361, 16 (2009), 1529--1538.Google ScholarGoogle ScholarCross RefCross Ref
  68. Annemarie Mol. 2008. The Logic of Care: Health and the Problem of Patient Choice. Routledge.Google ScholarGoogle Scholar
  69. Kellie Morrissey. 2017. ’I’m a Rambler, I’m a Gambler, I’m a Long Way from Home’: Exploring Participation through Music and Digital Design in Dementia Care. In Proceedings of the 2016 ACM Conference on Designing Interactive Systems.Google ScholarGoogle Scholar
  70. Kellie Morrissey, Amanda Lazar, Jennifer Boger, and Austin Toombs. 2017. Hcixdementia workshop: The role of technology and design in dementia. In Proceedings of the 2017 CHI Conference Extended Abstracts on Human Factors in Computing Systems. ACM, Denver, Colorado, 484--491. DOI:http://dx.doi.org/10.1145/3027063.3027083Google ScholarGoogle ScholarDigital LibraryDigital Library
  71. Kellie Morrissey, John McCarthy, and Nadia Pantidi. 2017. The value of experience-centred design approaches in dementia research contexts. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems. ACM, Denver, Colorado, 1326--1338. DOI:http://dx.doi.org/10.1145/3025453.3025527Google ScholarGoogle ScholarDigital LibraryDigital Library
  72. Wendy Moyle, Ursula Kellett, Alison Ballantyne, and Natalie Gracia. 2011. Dementia and loneliness: An australian perspective. Journal of Clinical Nursing 20, 9--10 (2011), 1445--1453.Google ScholarGoogle ScholarCross RefCross Ref
  73. Maurice D. Mulvenna, Chris D. Nugent, Ferial Moelaert, David Craig, Rose-Marie Dröes, and Johan E. Bengtsson. 2010. Supporting people with dementia using pervasive healthcare technologies. In Supporting People with Dementia Using Pervasive Health Technologies. Springer, 3--14.Google ScholarGoogle Scholar
  74. Astrid Norberg, Britt-Marie Ternestedt, and Berit Lundman. 2017. Moments of homecoming among people with advanced dementia disease in a residential care facility. Dementia 16, 5 (2017), 629--641.Google ScholarGoogle ScholarCross RefCross Ref
  75. Graham Pullin. 2009. Design Meets Disability. MIT press.Google ScholarGoogle Scholar
  76. John Rawls. 1971. A Theory of Justice. Harvard University, Cambridge, Mass.Google ScholarGoogle Scholar
  77. Johan Redström. 2006. Towards user design? on the shift from object to user as the subject of design. Design Studies 27, 2 (2006), 123--139.Google ScholarGoogle ScholarCross RefCross Ref
  78. Steven R. Sabat. 2002. Surviving manifestationsof selfhood in alzheimer's disease: A case study. Dementia 1, 1 (2002), 25--36.Google ScholarGoogle ScholarCross RefCross Ref
  79. Sonia Miner Salari. 2006. Infantilization as elder mistreatment: Evidence from five adult day centers. Journal of Elder Abuse 8 Neglect 17, 4 (2006), 53--91.Google ScholarGoogle ScholarCross RefCross Ref
  80. Thomas Scanlon. 1998. What We Owe to Each Other. Harvard University Press.Google ScholarGoogle ScholarCross RefCross Ref
  81. Alzheimer's Society. 2019. Communication in the Later Stages of Dementia. Retrieved February 25, 2019 from https://www.alzheimers.org.uk/about-dementia/symptoms-and-diagnosis/how-dementia-progresses/communication-later-stages.Google ScholarGoogle Scholar
  82. Marijke Span, Marike Hettinga, Myrra Vernooij-Dassen, Jan Eefsting, and Carolien Smits. 2013. Involving people with dementia in the development of supportive it applications: A systematic review. Ageing Research Reviews 12, 2 (2013), 535--551.Google ScholarGoogle ScholarCross RefCross Ref
  83. Charles Taylor. 1994. The politics of recognition. In Multiculuralism and the Politics of Recognition, Amy Gutmann (Ed.). Princeton University Press, Princeton.Google ScholarGoogle Scholar
  84. Janelle S. Taylor. 2008. On recognition, caring, and dementia. Medical Anthropology Quarterly 22, 4 (2008), 313--335.Google ScholarGoogle ScholarCross RefCross Ref
  85. Sharon Todd. 2002. Listening as attending to the “echo of the otherwise”: On suffering, justice, and education. Philosophy of Education Yearbook, 405--412.Google ScholarGoogle Scholar
  86. Cathy Treadaway, Jac Fennell, Gail Kenning, David Prytherch, and Andrew Walters. 2016. Designing for wellbeing in late stage dementia. In Proceeding of Design Research Society Conference, Vol. 4.Google ScholarGoogle Scholar
  87. Cathy Treadaway and Gail Kenning. 2016. Sensor E-Textiles: Person centered co-design for people with late stage dementia. Working with Older People 20, 2 (2016), 76--85.Google ScholarGoogle ScholarCross RefCross Ref
  88. Cathy Treadaway, Gail Kenning, and Steve Coleman. 2014. Designing for positive emotion: Ludic artefacts to support wellbeing for people with dementia. In Proceedings of the 9th International Conference on Design and Emotion.Google ScholarGoogle Scholar
  89. Julia Twigg. 2004. The body, gender, and age: Feminist insights in social gerontology. Journal of Aging Studies 18, 1 (2004), 59--73. DOI:http://dx.doi.org/https://doi.org/10.1016/j.jaging.2003.09.001Google ScholarGoogle ScholarCross RefCross Ref
  90. Jelle van Dijk and Caroline Hummels. 2017. Designing for embodied being-in-the-world. In Proceedings of the 10th International Conference on Tangible, Embedded, and Embodied Interaction (TEI’17). 47--56. DOI:http://dx.doi.org/10.1145/3024969.3025007Google ScholarGoogle ScholarDigital LibraryDigital Library
  91. John Vines, Rachel Clarke, Peter Wright, John McCarthy, and Patrick Olivier. 2013. Configuring participation: On how we involve people in design. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. ACM, Paris, France, 429--438. DOI:http://dx.doi.org/10.1145/2470654.2470716Google ScholarGoogle ScholarDigital LibraryDigital Library
  92. John Vines, Gary Pritchard, Peter Wright, Patrick Olivier, and Katie Brittain. 2015. An age-old problem: Examining the discourses of ageing in hci and strategies for future research. ACM Transactions on Computer-Human Interaction 22, 1 (2015), 1--27. DOI:http://dx.doi.org/10.1145/2696867Google ScholarGoogle ScholarDigital LibraryDigital Library
  93. L Volicer. 2007. Goals of care in advanced dementia: Quality of life, dignity and comfort. The Journal of Nutrition, Health 8 Aging 11, 6 (2007), 481.Google ScholarGoogle Scholar
  94. Zuzana Walker, Katherine L. Possin, Bradley F. Boeve, and Dag Aarsland. 2015. Lewy body dementias. The Lancet 386, 10004 (2015), 1683--1697.Google ScholarGoogle ScholarCross RefCross Ref
  95. Jayne Wallace, John McCarthy, Peter C. Wright, and Patrick Olivier. 2013. Making design probes work. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. ACM, Paris, France, 3441--3450. DOI:http://dx.doi.org/10.1145/2470654.2466473Google ScholarGoogle ScholarDigital LibraryDigital Library
  96. Jayne Wallace, Peter C. Wright, John McCarthy, David Philip Green, James Thomas, and Patrick Olivier. 2013. A design-led inquiry into personhood in dementia. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. ACM, Paris, France, 2617--2626. DOI:http://dx.doi.org/10.1145/2470654.2481363Google ScholarGoogle ScholarDigital LibraryDigital Library
  97. Daniel Welsh, Kellie Morrissey, Sarah Foley, Roisin McNaney, Christos Salis, John McCarthy, and John Vines. 2018. Ticket to talk. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems (CHI’18). 1--14. DOI:http://dx.doi.org/10.1145/3173574.3173949Google ScholarGoogle ScholarDigital LibraryDigital Library
  98. Emily West, Astrid Stuckelberger, Sophie Pautex, Janneke Staaks, and Marjolein Gysels. 2017. Operationalising ethical challenges in dementia research—A systematic review of current evidence. Age and Ageing 46, 4 (2017), 678--687.Google ScholarGoogle Scholar
  99. Steve Woolgar. 1991. The turn to technology in social studies of science. Science, Technology, 8 Human Values 16, 1 (1991), 20--50.Google ScholarGoogle ScholarCross RefCross Ref
  100. Peter Wright and John McCarthy. 2010. Experience-centered design: Designers, users, and communities in dialogue. Synthesis Lectures on Human-Centered Informatics 3, 1 (2010), 1--123.Google ScholarGoogle ScholarCross RefCross Ref
  101. Peter Wright, Jayne Wallace, and John McCarthy. 2008. Aesthetics and experience-centered design. ACM Transactions on Computer-Human Interaction 15, 4 (2008), 1--21. DOI:http://dx.doi.org/10.1145/1460355.1460360Google ScholarGoogle ScholarDigital LibraryDigital Library

Index Terms

  1. The Struggle for Recognition in Advanced Dementia: Implications for Experience-Centered Design

    Recommendations

    Comments

    Login options

    Check if you have access through your login credentials or your institution to get full access on this article.

    Sign in

    Full Access

    • Published in

      cover image ACM Transactions on Computer-Human Interaction
      ACM Transactions on Computer-Human Interaction  Volume 26, Issue 6
      December 2019
      230 pages
      ISSN:1073-0516
      EISSN:1557-7325
      DOI:10.1145/3371148
      Issue’s Table of Contents

      Copyright © 2019 ACM

      Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

      Publisher

      Association for Computing Machinery

      New York, NY, United States

      Publication History

      • Published: 14 November 2019
      • Revised: 1 August 2019
      • Accepted: 1 August 2019
      • Received: 1 July 2018
      Published in tochi Volume 26, Issue 6

      Permissions

      Request permissions about this article.

      Request Permissions

      Check for updates

      Qualifiers

      • research-article
      • Research
      • Refereed

    PDF Format

    View or Download as a PDF file.

    PDF

    eReader

    View online with eReader.

    eReader

    HTML Format

    View this article in HTML Format .

    View HTML Format