skip to main content
10.1145/3369457.3370914acmotherconferencesArticle/Chapter ViewAbstractPublication PagesozchiConference Proceedingsconference-collections
research-article

Co-designing with Adolescents with Autism Spectrum Disorder: From Ideation to Implementation

Published: 10 January 2020 Publication History

Abstract

Most co-design-based Autism Spectrum Disorder (ASD) research is conducted with children and does not involve the participants directly. Studies have shown that people with ASD can take on the co-designer role in early phases of the software design process. We present a longitudinal study that investigates how adolescents with ASD participate as co-designers in an iterative software design process. In this work, we conducted seven co-design workshops with six adolescents with ASD over eight months. The team exchanged ideas and communicated through group discussion and drawings. Our findings suggest that: (1) parents, community group and fellow participants play a pivotal role in supporting a longitudinal ASD co-design study and (2) adolescents with ASD are also able to make better design decision over an iterative software design process. These findings should to be considered when engaging adolescents with ASD as co-designers in a software design process.

References

[1]
Susana Alarcon-Licona, Lian Loke and Naseem Ahmadpour. 2018. From Autism Educators to Game Designers: Integrating Teaching Strategies into Game Design for Autism Education Support. In Proceedings of Proceedings of the 30th Australian Conference on Computer-Human Interaction. ACM, 58--62.
[2]
Hans Asperger. 1944. Die „Autistischen Psychopathen" Im Kindesalter. Archiv für Psychiatrie und Nervenkrankheiten 117, 1, 76--136. http://dx.doi.org/10.1007/bf01837709
[3]
Tony Attwood. 1997. Asperger's Syndrome: A Guide for Parents and Professionals. Jessica Kingsley Publishers,
[4]
Laura Benton, Hilary Johnson, Emma Ashwin, Mark Brosnan and Beate Grawemeyer. 2012. Developing Ideas: Supporting Children with Autism within a Participatory Design Team. In Proceedings of Proceedings of the SIGCHI conference on Human factors in computing systems. ACM, 2599--2608.
[5]
Laura Benton, Hilary Johnson, Mark Brosnan, Emma Ashwin and Beate Grawemeyer. 2011. Ideas: An Interface Design Experience for the Autistic Spectrum. In Proceedings of CHI'11 Extended Abstracts on Human Factors in Computing Systems. ACM, 1759--1764.
[6]
Virginia Braun, Victoria Clarke, Nikki Hayfield and Gareth Terry. 2019. Thematic Analysis. Handbook of Research Methods in Health Social Sciences, 843--860.
[7]
Jennifer Brown and Donna Murray. 2001. Strategies for Enhancing Play Skills for Children with Autism Spectrum Disorder. Education and Training in Mental Retardation and Developmental Disabilities, 312--317.
[8]
Lieven De Couvreur and Richard Goossens. 2011. Design for (Every) One: Co-Creation as a Bridge between Universal Design and Rehabilitation Engineering. CoDesign 7, 2, 107--121.
[9]
Paul Farrand, Fearzana Hussain and Enid Hennessy. 2002. The Efficacy of Themind Map'study Technique. Medical education 36, 5, 426--431.
[10]
Peter Francis, Sandrine Balbo and Lucy Firth. 2009. Towards CoDesign with Users Who Have Autism Spectrum Disorders. Universal Access in the Information Society 8, 3, 123--135.
[11]
Christopher Frauenberger, Judith Good and Alyssa Alcorn. 2012. Challenges, Opportunities and Future Perspectives in Including Children with Disabilities in the Design of Interactive Technology. In Proceedings of Proceedings of the 11th International Conference on Interaction Design and Children. ACM, 367--370.
[12]
Christopher Frauenberger, Judith Good and Wendy Keay-Bright. 2011. Designing Technology for Children with Special Needs: Bridging Perspectives through Participatory Design. CoDesign 7, 1, 1--28. http://dx.doi.org/10.1080/15710882.2011.587013
[13]
Paulo Freire. 1982. Creating Alternative Research Methods: Learning to Do It by Doing It. Creating knowledge: A monopoly, 29--37.
[14]
Alastair Fuad-Luke. 2013. Design Activism: Beautiful Strangeness for a Sustainable World. Routledge,
[15]
Robin L Gabriels and Dina E Hill. 2010. Growing up with Autism: Working with School-Age Children and Adolescents. Guilford Press,
[16]
Kim Halskov and Nicolai Brodersen Hansen. 2015. The Diversity of Participatory Design Research Practice at Pdc 2002--2012. International Journal of Human-Computer Studies 74, 81--92.
[17]
L. Kanner. 1943. Autistic Disturbances of Affective Contact. Nervous Child 2, 217--253.
[18]
Stephen Kemmis, Robin McTaggart and Rhonda Nixon. 2013. The Action Research Planner: Doing Critical Participatory Action Research. Springer Science & Business Media,
[19]
Päivi Löfman, Marjaana Pelkonen and Anna-Maija Pietilä. 2004. Ethical Issues in Participatory Action Research. Scandinavian Journal of Caring Sciences 18, 3, 333--340.
[20]
Dianna Madden, Yvonne Cadet-James, Ian Atkinson and Felecia Watkin Lui. 2014. Probes and Prototypes: A Participatory Action Research Approach to Codesign. CoDesign 10, 1, 31--45. http://dx.doi.org/10.1080/15710882.2014.881884
[21]
Miriam Madsen, Rana El Kaliouby, Micah Eckhardt, Mohammed E Hoque, Matthew S Goodwin and Rosalind Picard. 2009. Lessons from Participatory Design with Adolescents on the Autism Spectrum. In Proceedings of CHI'09 Extended Abstracts on Human Factors in Computing Systems. ACM, 3835--3840.
[22]
Miriam Madsen, Rana el Kaliouby, Micah Eckhardt, Mohammed E. Hoque, Matthew S. Goodwin and Rosalind Picard. 2009. Lessons from Participatory Design with Adolescents on the Autism Spectrum. In Proceedings of CHI '09 Extended Abstracts on Human Factors in Computing Systems. ACM, Boston, MA, USA, 3835--3840. http://dx.doi.org/10.1145/1520340.1520580
[23]
Micah O Mazurek. 2013. Social Media Use among Adults with Autism Spectrum Disorders. Computers in Human Behavior 29, 4, 1709--1714.
[24]
Donald A Norman. 2005. Human-Centered Design Considered Harmful. interactions 12, 4, 14--19.
[25]
Gwenn Schurgin O'Keeffe and Kathleen Clarke-Pearson. 2011. The Impact of Social Media on Children, Adolescents, and Families. Pediatrics 127, 4, 800--804.
[26]
Samuel L Odom, Julie L Thompson, Susan Hedges, Brian A Boyd, Jessica R Dykstra, Michelle A Duda, Kathrine L Szidon, Leann E Smith and Aimee Bord. 2015. Technology-Aided Interventions and Instruction for Adolescents with Autism Spectrum Disorder. Journal of autism and developmental disorders 45, 12, 3805--3819.
[27]
Katrina Ostmeyer and Angela Scarpa. 2012. Examining School-Based Social Skills Program Needs and Barriers for Students with High-Functioning Autism Spectrum Disorders Using Participatory Action Research. Psychology in the Schools 49, 10, 932--941.
[28]
Betsy Phillips and Hongxin Zhao. 1993. Predictors of Assistive Technology Abandonment. Assistive technology 5, 1, 36--45.
[29]
Leigh Ellen Potter, Jessica Korte and Sue Nielsen. 2014. Design with the Deaf: Do Deaf Children Need Their Own Approach When Designing Technology? In Proceedings of Proceedings of the 2014 conference on Interaction design and children. ACM, 249--252.
[30]
Henry Sanoff. 2008. Multiple Views of Participatory Design. International Journal of Architectural Research 2, 1, 57--69.
[31]
Marcia J Scherer. 2002. Assistive Technology: Matching Device and Consumer for Successful Rehabilitation. American Psychological Association,
[32]
James Shore. 2007. The Art of Agile Development: Pragmatic Guide to Agile Software Development. "O'Reilly Media, Inc.",
[33]
Amani Indunil Soysa and Abdullah Al Mahmud. 2018. Assessing Tablet Applications Focused on Social Interactions: What Functionalities Do Sri Lankan Practitioners Want for Children with Asd? In Proceedings of Proceedings of the 30th Australian Conference on Computer-Human Interaction. ACM, 32--41.
[34]
Atau Tanaka, Adam Parkinson, Zack Settel and Koray Tahiroglu. 2012. A Survey and Thematic Analysis Approach as Input to the Design of Mobile Music Guis. In Proceedings of NIME. Citeseer.
[35]
Susan W White and Roxann Roberson-Nay. 2009. Anxiety, Social Deficits, and Loneliness in Youth with Autism Spectrum Disorders. Journal of autism and developmental disorders 39, 7, 1006--1013.
[36]
Cheryl A Wright, Scott D Wright, Marissa L Diener and Jacqueline Eaton. 2014. Autism Spectrum Disorder and the Applied Collaborative Approach: A Review of Community Based Participatory Research and Participatory Action Research. Journal of Autism 1, 1, 1.

Cited By

View all
  • (2024)Participatory and Inclusive Design Models from the Perspective of Universal Design for Children with Autism: A Systematic ReviewEducation Sciences10.3390/educsci1406061314:6(613)Online publication date: 6-Jun-2024
  • (2024)Foldiverse: Augmenting Paper Folding Physiotherapy for Children with Autism via Family-Centered Mixed Reality DesignCompanion Proceedings of the 2024 Annual Symposium on Computer-Human Interaction in Play10.1145/3665463.3678823(378-383)Online publication date: 14-Oct-2024
  • (2023)Children and Young People’s Involvement in Designing Applied Games: Scoping ReviewJMIR Serious Games10.2196/4268011(e42680)Online publication date: 16-Mar-2023
  • Show More Cited By

Recommendations

Comments

Information & Contributors

Information

Published In

cover image ACM Other conferences
OzCHI '19: Proceedings of the 31st Australian Conference on Human-Computer-Interaction
December 2019
631 pages
ISBN:9781450376969
DOI:10.1145/3369457
Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

In-Cooperation

  • HFESA: Human Factors and Ergonomics Society of Australia Inc.

Publisher

Association for Computing Machinery

New York, NY, United States

Publication History

Published: 10 January 2020

Permissions

Request permissions for this article.

Check for updates

Author Tags

  1. Autism
  2. Co-Design
  3. HCI
  4. Participatory Action Research

Qualifiers

  • Research-article
  • Research
  • Refereed limited

Conference

OZCHI'19
OZCHI'19: 31ST AUSTRALIAN CONFERENCE ON HUMAN-COMPUTER-INTERACTION
December 2 - 5, 2019
WA, Fremantle, Australia

Acceptance Rates

Overall Acceptance Rate 362 of 729 submissions, 50%

Contributors

Other Metrics

Bibliometrics & Citations

Bibliometrics

Article Metrics

  • Downloads (Last 12 months)126
  • Downloads (Last 6 weeks)5
Reflects downloads up to 20 Jan 2025

Other Metrics

Citations

Cited By

View all
  • (2024)Participatory and Inclusive Design Models from the Perspective of Universal Design for Children with Autism: A Systematic ReviewEducation Sciences10.3390/educsci1406061314:6(613)Online publication date: 6-Jun-2024
  • (2024)Foldiverse: Augmenting Paper Folding Physiotherapy for Children with Autism via Family-Centered Mixed Reality DesignCompanion Proceedings of the 2024 Annual Symposium on Computer-Human Interaction in Play10.1145/3665463.3678823(378-383)Online publication date: 14-Oct-2024
  • (2023)Children and Young People’s Involvement in Designing Applied Games: Scoping ReviewJMIR Serious Games10.2196/4268011(e42680)Online publication date: 16-Mar-2023
  • (2023)Co-design of Technology Involving Autistic Children: A Systematic Literature ReviewInternational Journal of Human–Computer Interaction10.1080/10447318.2023.226624840:22(7498-7516)Online publication date: 12-Oct-2023
  • (2023)How are Autistic People Involved in the Design of Extended Reality Technologies? A Systematic Literature ReviewJournal of Autism and Developmental Disorders10.1007/s10803-023-06130-354:11(4232-4258)Online publication date: 16-Sep-2023
  • (2023)Participatory Methods to Engage Autistic People in the Design of Digital Technology: A Systematic Literature ReviewJournal of Autism and Developmental Disorders10.1007/s10803-023-06015-554:8(2960-2971)Online publication date: 30-May-2023
  • (2023)In the hands of users with intellectual disabilities: co-designing tangible user interfaces for mental wellbeingPersonal and Ubiquitous Computing10.1007/s00779-023-01752-x27:6(2171-2191)Online publication date: 1-Dec-2023
  • (2022)The State of Web Accessibility for People with Cognitive Disabilities: A Rapid Evidence AssessmentBehavioral Sciences10.3390/bs1202002612:2(26)Online publication date: 26-Jan-2022
  • (2022)A Systematic Review and Thematic Analysis of Community-Collaborative Approaches to Computing ResearchProceedings of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491102.3517716(1-18)Online publication date: 29-Apr-2022
  • (2022)Interactive Technologies and Autism, Second EditionundefinedOnline publication date: 18-Mar-2022
  • Show More Cited By

View Options

Login options

View options

PDF

View or Download as a PDF file.

PDF

eReader

View online with eReader.

eReader

Media

Figures

Other

Tables

Share

Share

Share this Publication link

Share on social media