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Designing for and with People with Dementia using a Human Rights-Based Approach

Published: 08 May 2021 Publication History

Abstract

User-centered design is typically framed around meeting the preferences and needs of populations involved in the design process. However, when designing technology for people with disabilities, in particular dementia, there is also a moral imperative to ensure that human rights of this segment of the population are consciously integrated into the process and respectfully included in the product. We introduce a human rights-based user-centered design process which is informed by the United Nations Convention on the Rights of Persons with Disabilities (CRPD). We conducted two editions of a three-day-long design workshop during which undergraduate students and dementia advocates came together to design technology for people with dementia. This case study demonstrates our novel approach to user-centered design that centers human rights through different stages of the workshop and actively involves people with dementia in the design process.

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Cited By

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  • (2024)Know Me Inside-Out: Conversational and Quiz-Based System for Reminiscence Therapy for People with DementiaCompanion of the 2024 on ACM International Joint Conference on Pervasive and Ubiquitous Computing10.1145/3675094.3678377(809-815)Online publication date: 5-Oct-2024
  • (2023)Enriching Social Sharing for the Dementia Community: Insights from In-Person and Online Social ProgramsACM Transactions on Accessible Computing10.1145/358255816:1(1-33)Online publication date: 29-Mar-2023
  • (2023)Risk and HarmProceedings of the 5th International Conference on Conversational User Interfaces10.1145/3571884.3603751(1-6)Online publication date: 19-Jul-2023
  • Show More Cited By

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cover image ACM Conferences
CHI EA '21: Extended Abstracts of the 2021 CHI Conference on Human Factors in Computing Systems
May 2021
2965 pages
ISBN:9781450380959
DOI:10.1145/3411763
Permission to make digital or hard copies of part or all of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for third-party components of this work must be honored. For all other uses, contact the Owner/Author.

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Association for Computing Machinery

New York, NY, United States

Publication History

Published: 08 May 2021

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Author Tags

  1. CRPD
  2. Dementia
  3. Heuristics
  4. Human Rights
  5. User-Centered Design

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  • Extended-abstract
  • Research
  • Refereed limited

Funding Sources

  • National Science Foundation Graduate Research Fellowship Program
  • U.S. Admin. for Community Living, NIDILRR, Dept. of Health & Human Services

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CHI '21
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Overall Acceptance Rate 6,164 of 23,696 submissions, 26%

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Cited By

View all
  • (2024)Know Me Inside-Out: Conversational and Quiz-Based System for Reminiscence Therapy for People with DementiaCompanion of the 2024 on ACM International Joint Conference on Pervasive and Ubiquitous Computing10.1145/3675094.3678377(809-815)Online publication date: 5-Oct-2024
  • (2023)Enriching Social Sharing for the Dementia Community: Insights from In-Person and Online Social ProgramsACM Transactions on Accessible Computing10.1145/358255816:1(1-33)Online publication date: 29-Mar-2023
  • (2023)Risk and HarmProceedings of the 5th International Conference on Conversational User Interfaces10.1145/3571884.3603751(1-6)Online publication date: 19-Jul-2023
  • (2022)Key Stakeholders’ Experiences and Perceptions of Virtual Reality for Older Adults Living With Dementia: Systematic Review and Thematic SynthesisJMIR Serious Games10.2196/3722810:4(e37228)Online publication date: 23-Dec-2022
  • (2022)Culture Change, Human-Centered Design, and Ethical by Design as Transactional Cornerstone Concepts in the Development of Technology for Supporting AgingProceedings of the 15th International Conference on PErvasive Technologies Related to Assistive Environments10.1145/3529190.3535692(556-561)Online publication date: 29-Jun-2022
  • (2022)Disability InteractionsundefinedOnline publication date: 26-Mar-2022

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