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Learning from Healthcare Providers’ Strategies: Designing Technology to Support Effective Child Patient-Provider Communication

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Published:07 May 2021Publication History

ABSTRACT

Effective patient-provider communication is critical to promote patient satisfaction, encourage patient involvement in care, and improve health outcomes. Although prior HCI works aim to enhance the dyadic communication by improving patients’ communication skills, little is known about healthcare providers’ communication work to facilitate effective communication with their child patients. Through semi-structured interviews with 10 healthcare providers and clinic observations, our study identified four strategies that providers used in their communication with patients: building rapport, developing familiarity with care settings, respecting patients’ communication modes and preferences, and delegating small decision-making and directing questions to patients. Based on these strategies, we discuss three key elements that providers value and work toward to achieve effective communication in pediatric care practice. Our study also uncovers the detailed process of how the providers develop their strategies to tailor their communication to the patients’ specific needs and preferences, and we describe design opportunities for communication technology.

References

  1. Mariela Acuña Mora, Carina Sparud-Lundin, Åsa Burström, Katarina Hanseus, Annika Rydberg, Philip Moons, and Ewa-Lena Bratt. 2019. Patient empowerment and its correlates in young persons with congenital heart disease. European Journal of Cardiovascular Nursing 18, 5 (2019), 389–398.Google ScholarGoogle ScholarCross RefCross Ref
  2. Andrew B.L. Berry, Catherine Y. Lim, Tad Hirsch, Andrea L. Hartzler, Linda M. Kiel, Zoë A. Bermet, and James D. Ralston. 2019. Supporting communication about values between people with multiple chronic conditions and their providers. In Conference on Human Factors in Computing Systems - Proceedings. Association for Computing Machinery, New York, New York, USA, 1–14. https://doi.org/10.1145/3290605.3300700Google ScholarGoogle ScholarDigital LibraryDigital Library
  3. Timothy W. Bickmore, Laura M. Pfeifer, and Brian W. Jack. 2009. Taking the Time to Care: Empowering Low Health Literacy Hospital Patients with Virtual Nurse Agents. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (Boston, MA, USA) (CHI ’09). Association for Computing Machinery, New York, NY, USA, 1265–1274. https://doi.org/10.1145/1518701.1518891Google ScholarGoogle ScholarDigital LibraryDigital Library
  4. Matthew Bonner, Lan Wang, and Elizabeth D. Mynatt. 2012. Activity-Based Interaction: Designing with Child Life Specialists in a children’s hospital. In Conference on Human Factors in Computing Systems - Proceedings. ACM Press, New York, New York, USA, 2087–2096. https://doi.org/10.1145/2207676.2208360Google ScholarGoogle ScholarDigital LibraryDigital Library
  5. Sarah R Brand, Karen Fasciano, and Jennifer W Mack. 2017. Communication preferences of pediatric cancer patients: talking about prognosis and their future life. Supportive care in cancer 25, 3 (2017), 769–774.Google ScholarGoogle Scholar
  6. Arlene M Butz, Jennifer M Walker, Margaret Pulsifer, and Marilyn Winkelstein. 2007. Shared decision making in school age children with asthma. Pediatric nursing 33, 2 (2007), 111.Google ScholarGoogle Scholar
  7. Patricia Cahill and Alexia Papageorgiou. 2007. Triadic communication in the primary care paediatric consultation: a review of the literature. British Journal of General Practice 57, 544 (2007), 904–911.Google ScholarGoogle ScholarCross RefCross Ref
  8. Craig Caldwell, Carol Bruggers, Roger Altizer, Grzegorz Bulaj, Troy D’Ambrosio, Robert Kessler, and Brianne Christiansen. 2013. The intersection of video games and patient empowerment: Case study of a real world application. In ACM International Conference Proceeding Series. ACM Press, New York, New York, USA, 1–7. https://doi.org/10.1145/2513002.2513018Google ScholarGoogle ScholarDigital LibraryDigital Library
  9. Robyn Patricia Cant and RA Aroni. 2008. Exploring dietitians’ verbal and nonverbal communication skills for effective dietitian–patient communication. Journal of human nutrition and dietetics 21, 5 (2008), 502–511.Google ScholarGoogle ScholarCross RefCross Ref
  10. April Idalski Carcone, Angela J. Jacques-Tiura, Kathryn E. Brogan Hartlieb, Terrance Albrecht, and Tim Martin. 2016. Effective Patient-Provider Communication in Pediatric Obesity. , 525–538 pages. https://doi.org/10.1016/j.pcl.2016.02.002Google ScholarGoogle ScholarCross RefCross Ref
  11. Delesha M. Carpenter, Guadalupe X. Ayala, Dennis M. Williams, Karin B. Yeatts, Stephanie Davis, and Betsy Sleath. 2013. The relationship between patient–provider communication and quality of life for children with asthma and their caregivers. Journal of Asthma 50, 7 (sep 2013), 791–798. https://doi.org/10.3109/02770903.2013.808347Google ScholarGoogle ScholarCross RefCross Ref
  12. Donald J Cegala and Stefne Lenzmeier Broz. 2002. Physician communication skills training: a review of theoretical backgrounds, objectives and skills. Medical education 36, 11 (2002), 1004–1016.Google ScholarGoogle Scholar
  13. Gang Chen, Nilufar Baghaei, Abdolhossein Sarrafzadeh, Chris Manford, Steve Marshall, and Gudrun Court. 2011. Designing Games to Educate Diabetic Children. In Proceedings of the 23rd Australian Computer-Human Interaction Conference (Canberra, Australia) (OzCHI ’11). Association for Computing Machinery, New York, NY, USA, 72–75. https://doi.org/10.1145/2071536.2071546Google ScholarGoogle ScholarDigital LibraryDigital Library
  14. Lei Cheng, Liying Wang, Mengxue He, Sheng Feng, Yehui Zhu, and Cheryl Rodgers. 2018. Perspectives of children, family caregivers, and health professionals about pediatric oncology symptoms: a systematic review. Supportive Care in Cancer 26, 9 (2018), 2957–2971.Google ScholarGoogle ScholarCross RefCross Ref
  15. Chia-Fang Chung, Qiaosi Wang, Jessica Schroeder, Allison Cole, Jasmine Zia, James Fogarty, and Sean A. Munson. 2019. Identifying and Planning for Individualized Change: Patient-Provider Collaboration Using Lightweight Food Diaries in Healthy Eating and Irritable Bowel Syndrome. Proc. ACM Interact. Mob. Wearable Ubiquitous Technol. 3, 1, Article 7 (March 2019), 27 pages. https://doi.org/10.1145/3314394Google ScholarGoogle ScholarDigital LibraryDigital Library
  16. Angela M. Feraco, Sarah R. Brand, Jennifer W. Mack, Jennifer C. Kesselheim, Susan D. Block, and Joanne Wolfe. 2016. Communication Skills Training in Pediatric Oncology: Moving Beyond Role Modeling. Pediatric Blood & Cancer 63, 6 (jun 2016), 966–972. https://doi.org/10.1002/pbc.25918Google ScholarGoogle ScholarCross RefCross Ref
  17. Marie Glasemann, Anne Marie Kanstrup, and Thomas Ryberg. 2010. Making Chocolate-Covered Broccoli: Designing a Mobile Learning Game about Food for Young People with Diabetes. In Proceedings of the 8th ACM Conference on Designing Interactive Systems (Aarhus, Denmark) (DIS ’10). Association for Computing Machinery, New York, NY, USA, 262–271. https://doi.org/10.1145/1858171.1858219Google ScholarGoogle ScholarDigital LibraryDigital Library
  18. Amanda M. Hall, Paulo H. Ferreira, Christopher G. Maher, Jane Latimer, and Manuela L. Ferreira. 2010. The Influence of the Therapist-Patient Relationship on Treatment Outcome in Physical Rehabilitation: A Systematic Review. Physical Therapy 90, 8 (aug 2010), 1099–1110. https://doi.org/10.2522/ptj.20090245Google ScholarGoogle ScholarCross RefCross Ref
  19. Marit Helene Hem, Kristin Heggen, and Knut W Ruyter. 2008. Creating trust in an acute psychiatric ward. Nursing ethics 15, 6 (2008), 777–788.Google ScholarGoogle Scholar
  20. L Kari Hironaka and Michael K Paasche-Orlow. 2008. The implications of health literacy on patient–provider communication. Archives of disease in childhood 93, 5 (2008), 428–432.Google ScholarGoogle Scholar
  21. Nynke Holwerda, Robbert Sanderman, Grieteke Pool, Chris Hinnen, Johannes A. Langendijk, Willem A. Bemelman, Mariët Hagedoorn, and Mirjam A. G. Sprangers. 2013. Do patients trust their physician? The role of attachment style in the patient-physician relationship within one year after a cancer diagnosis. Acta Oncologica 52, 1 (jan 2013), 110–117. https://doi.org/10.3109/0284186X.2012.689856Google ScholarGoogle ScholarCross RefCross Ref
  22. Matthew K. Hong, Lauren Wilcox, Daniel Machado, Thomas A. Olson, and Stephen F. Simoneaux. 2016. Care Partnerships: Toward Technology to Support Teens’ Participation in Their Health Care. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems (San Jose, California, USA) (CHI ’16). Association for Computing Machinery, New York, NY, USA, 5337–5349. https://doi.org/10.1145/2858036.2858508Google ScholarGoogle ScholarDigital LibraryDigital Library
  23. Juan Pablo Hourcade, Martha Driessnack, and Kelsey E. Huebner. 2012. Supporting face-to-face communication between clinicians and children with chronic headaches through a zoomable multi-touch app. In Conference on Human Factors in Computing Systems - Proceedings. ACM Press, New York, New York, USA, 2609–2618. https://doi.org/10.1145/2207676.2208651Google ScholarGoogle ScholarDigital LibraryDigital Library
  24. Teresa A. Jerofke. 2013. Concept analysis of empowerment from survivor and nurse perspectives within the context of cancer survivorship.Research and theory for nursing practice 27, 3 (jan 2013), 157–172. https://doi.org/10.1891/1541-6577.27.3.157Google ScholarGoogle ScholarCross RefCross Ref
  25. Ha-Kyung Kong and Karrie Karahalios. 2020. Addressing Cognitive and Emotional Barriers in Parent-Clinician Communication through Behavioral Visualization Webtools. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (Honolulu, HI, USA) (CHI ’20). Association for Computing Machinery, New York, NY, USA, 1–12. https://doi.org/10.1145/3313831.3376181Google ScholarGoogle ScholarDigital LibraryDigital Library
  26. Charalampos Kyfonidis and Marilyn Lennon. 2019. Making Diabetes Education Interactive: Tangible Educational Toys for Children with Type-1 Diabetes. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems (Glasgow, Scotland Uk) (CHI ’19). Association for Computing Machinery, New York, NY, USA, 1–12. https://doi.org/10.1145/3290605.3300671Google ScholarGoogle ScholarDigital LibraryDigital Library
  27. Veronica Lambert, Michele Glacken, and Mary McCarron. 2011. Communication between children and health professionals in a child hospital setting: a Child Transitional Communication Model. Journal of Advanced Nursing 67, 3 (2011), 569–582.Google ScholarGoogle ScholarCross RefCross Ref
  28. Zeina Atrash Leong, Michael S. Horn, Lisa Thaniel, and Emily Meier. 2018. Inspiring AWE: Transforming clinic waiting rooms into informal learning environments with active waiting education. In Conference on Human Factors in Computing Systems - Proceedings, Vol. 2018-April. Association for Computing Machinery, New York, New York, USA, 1–12. https://doi.org/10.1145/3173574.3173672Google ScholarGoogle ScholarDigital LibraryDigital Library
  29. Wendy Levinson, Cara S. Lesser, and Ronald M. Epstein. 2010. Developing physician communication skills for patient-centered care. , 1310–1318 pages. https://doi.org/10.1377/hlthaff.2009.0450Google ScholarGoogle ScholarCross RefCross Ref
  30. Catherine Lim, Andrew B.L. Berry, Tad Hirsch, Andrea L. Hartzler, Edward H. Wagner, Evette Ludman, and James D. Ralston. 2016. ”It Just Seems Outside My Health”: How Patients with Chronic Conditions Perceive Communication Boundaries with Providers. In Proceedings of the 2016 ACM Conference on Designing Interactive Systems (Brisbane, QLD, Australia) (DIS ’16). Association for Computing Machinery, New York, NY, USA, 1172–1184. https://doi.org/10.1145/2901790.2901866Google ScholarGoogle ScholarDigital LibraryDigital Library
  31. Svetla Loukanova, Rachael Molnar, and John FP Bridges. 2007. Promoting patient empowerment in the healthcare system: highlighting the need for patient-centered drug policy. Expert Review of Pharmacoeconomics & Outcomes Research 7, 3 (jun 2007), 281–289. https://doi.org/10.1586/14737167.7.3.281Google ScholarGoogle ScholarCross RefCross Ref
  32. Sonali R. Mishra, Andrew D. Miller, Shefali Haldar, Maher Khelifi, Jordan Eschler, Rashmi G. Elera, Ari H. Pollack, and Wanda Pratt. 2018. Supporting collaborative health tracking in the hospital: Patients’ perspectives. In Conference on Human Factors in Computing Systems - Proceedings, Vol. 2018-April. Association for Computing Machinery, New York, New York, USA, 1–14. https://doi.org/10.1145/3173574.3174224Google ScholarGoogle ScholarDigital LibraryDigital Library
  33. Alex Molassiotis, Kate Morris, and Ian Trueman. 2007. The importance of the patient–clinician relationship in adherence to antiretroviral medication. International Journal of Nursing Practice 13, 6 (dec 2007), 370–376. https://doi.org/10.1111/j.1440-172X.2007.00652.xGoogle ScholarGoogle ScholarCross RefCross Ref
  34. Tao Ni, Amy K. Karlson, and Daniel Wigdor. 2011. AnatOnMe: Facilitating doctor-patient communication using a projection-based handheld device. In Conference on Human Factors in Computing Systems - Proceedings. ACM Press, New York, New York, USA, 3333–3342. https://doi.org/10.1145/1978942.1979437Google ScholarGoogle ScholarDigital LibraryDigital Library
  35. Debra L Palazzi, MEd I Martin Lorin, Teri L Turner, MEd A Mark Ward, and Antonio G Cabrera. [n.d.]. Communicating with Pediatric Patients and their Families: The Texas Children’s Hospital Guide for Physicians, Nurses and other Healthcare Professionals. Technical Report. www.bcm.edu/pediatrics/patient-communication-guideGoogle ScholarGoogle Scholar
  36. Sun Young Park, Yunan Chen, and Shriti Raj. 2017. Beyond health literacy: Supporting Patient-provider communication during an emergency visit. In Proceedings of the ACM Conference on Computer Supported Cooperative Work, CSCW. Association for Computing Machinery, New York, NY, USA, 2179–2192. https://doi.org/10.1145/2998181.2998357Google ScholarGoogle ScholarDigital LibraryDigital Library
  37. Niral J Patel, Karishma A Datye, and Sarah S Jaser. 2018. Importance of patient–provider communication to adherence in adolescents with type 1 diabetes. In Healthcare, Vol. 6. Multidisciplinary Digital Publishing Institute, 30.Google ScholarGoogle Scholar
  38. Rupa A. Patel, Andrea Hartzler, Wanda Pratt, Anthony Back, Mary Czerwinski, and Asta Roseway. 2013. Visual Feedback on Nonverbal Communication: A Design Exploration with Healthcare Professionals. In Proceedings of the 7th International Conference on Pervasive Computing Technologies for Healthcare (Venice, Italy) (PervasiveHealth ’13). ICST (Institute for Computer Sciences, Social-Informatics and Telecommunications Engineering), Brussels, BEL, 105–112. https://doi.org/10.4108/icst.pervasivehealth.2013.252024Google ScholarGoogle ScholarDigital LibraryDigital Library
  39. Maryam Peimani, Ensieh Nasli-Esfahani, and Roya Sadeghi. 2020. Patients’ perceptions of patient–provider communication and diabetes care: A systematic review of quantitative and qualitative studies. , 3–22 pages. https://doi.org/10.1177/1742395318782378Google ScholarGoogle ScholarCross RefCross Ref
  40. Leonhard Quintero Garzón, Susan Koranyi, Dorit Engelmann, Rebecca Philipp, Katharina Scheffold, Frank Schulz-Kindermann, Martin Härter, and Anja Mehnert. 2018. Perceived doctor-patient relationship and its association with demoralization in patients with advanced cancer. Psycho-Oncology 27, 11 (nov 2018), 2587–2593. https://doi.org/10.1002/pon.4823Google ScholarGoogle ScholarCross RefCross Ref
  41. Shriti Raj, Mark W. Newman, Joyce M. Lee, and Mark S. Ackerman. 2017. Understanding Individual and Collaborative Problem-Solving with Patient-Generated Data: Challenges and Opportunities. Proc. ACM Hum.-Comput. Interact. 1, CSCW, Article 88 (Dec. 2017), 18 pages. https://doi.org/10.1145/3134723Google ScholarGoogle ScholarDigital LibraryDigital Library
  42. Fateme Rajabiyazdi, Charles Perin, Jo Vermeulen, Haley MacLeod, Diane Gromala, and Sheelagh Carpendale. 2017. Differences That Matter: In-Clinic Communication Challenges. In Proceedings of the 11th EAI International Conference on Pervasive Computing Technologies for Healthcare(Barcelona, Spain) (PervasiveHealth ’17). Association for Computing Machinery, New York, NY, USA, 251–260. https://doi.org/10.1145/3154862.3154885Google ScholarGoogle ScholarDigital LibraryDigital Library
  43. Cornelia M. Ruland, Harald H. Holte, Jo Røislien, Cathy Heaven, Glenys A. Hamilton, Jørn Kristiansen, Heidi Sandbæk, Stein O. Kvaløy, Line Hasund, and Misoo C. Ellison. 2010. Effects of a computer-supported interactive tailored patient assessment tool on patient care, symptom distress, and patients’ need for symptom management support: A randomized clinical trial. Journal of the American Medical Informatics Association 17, 4 (jul 2010), 403–410. https://doi.org/10.1136/jamia.2010.005660Google ScholarGoogle ScholarCross RefCross Ref
  44. Lyndsey Runaas, David Hanauer, Molly Maher, Evan Bischoff, Alex Fauer, Tiffany Hoang, Anna Munaco, Roshun Sankaran, Rahael Gupta, Sajjad Seyedsalehi, 2017. BMT roadmap: a user-centered design health information technology tool to promote patient-centered care in pediatric hematopoietic cell transplantation. Biology of Blood and Marrow Transplantation 23, 5 (2017), 813–819.Google ScholarGoogle ScholarCross RefCross Ref
  45. Myeonghan Ryu, Eunkyung Jo, and Sung-In Kim. 2017. COSMA: Cooperative Self-Management Tool for Adolescents with Autism. In Proceedings of the 19th International ACM SIGACCESS Conference on Computers and Accessibility(Baltimore, Maryland, USA) (ASSETS ’17). Association for Computing Machinery, New York, NY, USA, 409–410. https://doi.org/10.1145/3132525.3134825Google ScholarGoogle ScholarDigital LibraryDigital Library
  46. Elizabeth Salt, Graham D Rowles, and Deborah B Reed. 2012. Patient’s perception of quality patient–provider communication. Orthopaedic Nursing 31, 3 (2012), 169–176.Google ScholarGoogle ScholarCross RefCross Ref
  47. D Shaligram, SC Girimaji, and SK Chaturvedi. 2007. Psychological problems and quality of life in children with thalassemia. The Indian Journal of Pediatrics 74, 8 (2007), 727–730.Google ScholarGoogle ScholarCross RefCross Ref
  48. Jonathan Silverman, Suzanne Kurtz, and Juliet Draper. 2016. Skills for communicating with patients. crc press.Google ScholarGoogle Scholar
  49. Anselm Strauss and Juliet M Corbin. 1997. Grounded theory in practice. Sage.Google ScholarGoogle Scholar
  50. K. Tates and L. Meeuwesen. 2001. Doctor-parent-child communication. A (re)view of the literature. , 839–851 pages. https://doi.org/10.1016/S0277-9536(00)00193-3Google ScholarGoogle ScholarCross RefCross Ref
  51. Sarah J Tracy. 2010. Qualitative quality: Eight “big-tent” criteria for excellent qualitative research. Qualitative inquiry 16, 10 (2010), 837–851.Google ScholarGoogle Scholar
  52. Marleen Van Bergeijk, Bart Hengeveld, and Selma Otto. 2017. DOK: Enhancing child patient empowerment. In TEI 2017 - Proceedings of the 11th International Conference on Tangible, Embedded, and Embodied Interaction. Association for Computing Machinery, Inc, New York, New York, USA, 589–595. https://doi.org/10.1145/3024969.3025066Google ScholarGoogle ScholarDigital LibraryDigital Library
  53. Laura Pfeifer Vardoulakis, Amy K. Karlson, Dan Morris, Greg Smith, Justin Gatewood, and Desney S. Tan. 2012. Using mobile phones to present medical information to hospital patients. In Conference on Human Factors in Computing Systems - Proceedings. ACM Press, New York, New York, USA, 1411–1420. https://doi.org/10.1145/2207676.2208601Google ScholarGoogle ScholarDigital LibraryDigital Library
  54. Henry N. Young, Maria E. Len-Rios, Roger Brown, Megan M. Moreno, and Elizabeth Cox. 2017. How does patient-provider communication influence adherence to asthma medications?Patient Education and Counseling 100, 4 (apr 2017), 696–702. https://doi.org/10.1016/j.pec.2016.11.022Google ScholarGoogle ScholarCross RefCross Ref
  55. R. Zachariae, C. G. Pedersen, A. B. Jensen, E. Ehrnrooth, P. B. Rossen, and H. Von Der Maase. 2003. Association of perceived physician communication style with patient satisfaction, distress, cancer-related self-efficacy, and perceived control over the disease. British Journal of Cancer 88, 5 (mar 2003), 658–665. https://doi.org/10.1038/sj.bjc.6600798Google ScholarGoogle ScholarCross RefCross Ref
  56. Xiaomu Zhou, Mark S. Ackerman, and Kai Zheng. 2010. Doctors and psychosocial information: Records and reuse in inpatient care. In Conference on Human Factors in Computing Systems - Proceedings, Vol. 3. ACM Press, New York, New York, USA, 1767–1776. https://doi.org/10.1145/1753326.1753592Google ScholarGoogle ScholarDigital LibraryDigital Library

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        cover image ACM Conferences
        CHI '21: Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems
        May 2021
        10862 pages
        ISBN:9781450380966
        DOI:10.1145/3411764

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