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Transitioning Toward Independence: Enhancing Collaborative Self-Management of Children with Type 1 Diabetes

Published: 29 April 2022 Publication History

Abstract

Although child participation is required for successful Type 1 Diabetes (T1D) management, it is challenging because the child’s young age and immaturity make it difficult to perform self-care. Thus, parental caregivers are expected to be heavily involved in their child’s everyday illness management. Our study aims to investigate how children and parents collaborate to manage T1D and examine how the children become more independent in their self-management through the support of their parents. Through semi-structured interviews with children with T1D and their parents (N=41), our study showed that children’s knowledge of illness management and motivation for self-care were crucial for their transition towards independence. Based on these two factors, we identified four types of children’s collaboration (i.e., dependent, resistant, eager, and independent) and parents’ strategies for supporting their children’s independence. We suggest design implications for technologies to support collaborative care by improving children’s transition to independent illness management.

References

[1]
Jori Aalders, Esther Hartman, Frans Pouwer, Per Winterdijk, Edgar van Mil, Angelique Roeleveld-Versteegh, Elke Mommertz-Mestrum, Henk-Jan Aanstoot, and Giesje Nefs. 2021. The division and transfer of care responsibilities in paediatric type 1 diabetes: A qualitative study on parental perspectives. J. Adv. Nurs. 77, 4 (April 2021), 1968–1979.
[2]
Christina Akre and Joan-Carles Suris. 2014. From controlling to letting go: what are the psychosocial needs of parents of adolescents with a chronic illness?Health Educ. Res. 29, 5 (Oct. 2014), 764–772.
[3]
Dayna S Alexander, Susan L Hogan, Joanne M Jordan, Robert F DeVellis, and Delesha M Carpenter. 2017. Examining whether the information-motivation-behavioral skills model predicts medication adherence for patients with a rare disease. Patient Prefer. Adherence 11 (Jan. 2017), 75–83.
[4]
Tawfiq Ammari and Sarita Schoenebeck. 2015. Networked Empowerment on Facebook Groups for Parents of Children with Special Needs. In Proceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems. Association for Computing Machinery, New York, NY, USA, 2805–2814.
[5]
Barbara Anderson, Joyce Ho, Julienne Brackett, Dianne Finkelstein, and Lori Laffel. 1997. Parental involvement in diabetes management tasks: relationships to blood glucose monitoring adherence and metabolic control in young adolescents with insulin-dependent diabetes mellitus. The Journal of pediatrics 130, 2 (1997), 257–265.
[6]
B J Anderson, W F Auslander, K C Jung, J P Miller, and J V Santiago. 1990. Assessing family sharing of diabetes responsibilities. J. Pediatr. Psychol. 15, 4 (Aug. 1990), 477–492.
[7]
Barbara J Anderson, L Vangsness, A Connell, D Butler, A Goebel-Fabbri, and LMB Laffel. 2002. Family conflict, adherence, and glycaemic control in youth with short duration type 1 diabetes. Diabetic medicine 19, 8 (2002), 635–642.
[8]
J K Austin. 1990. Assessment of coping mechanisms used by parents and children with chronic illness. MCN Am. J. Matern. Child Nurs. 15, 2 (March 1990), 98–102.
[9]
Naama Barnea-Goraly, Mira Raman, Paul Mazaika, Matthew Marzelli, Tamara Hershey, Stuart A Weinzimer, Tandy Aye, Bruce Buckingham, Nelly Mauras, Neil H White, 2014. Alterations in white matter structure in young children with type 1 diabetes. Diabetes care 37, 2 (2014), 332–340.
[10]
D Baumrind. 1967. Child care practices anteceding three patterns of preschool behavior. Genet. Psychol. Monogr. 75, 1 (Feb. 1967), 43–88.
[11]
Virginia Braun and Victoria Clarke. 2006. Using thematic analysis in psychology. Qualitative research in psychology 3, 2 (2006), 77–101.
[12]
Ayse G Buyuktur, Pei-Yao Hung, Mark W Newman, and Mark S Ackerman. 2018. Supporting Collaboratively Constructed Independence: A Study of Spinal Cord Injury. Proceedings of the ACM on Human-Computer Interaction 2, CSCW(2018), 1–25.
[13]
Fergus J Cameron, Shannon E Scratch, Caroline Nadebaum, Elisabeth A Northam, Ildiko Koves, Juliet Jennings, Kristina Finney, Jeffrey J Neil, R Mark Wellard, Mark Mackay, 2014. Neurological consequences of diabetic ketoacidosis at initial presentation of type 1 diabetes in a prospective cohort study of children. Diabetes care 37, 6 (2014), 1554–1562.
[14]
Gang Chen, Nilufar Baghaei, Abdolhossein Sarrafzadeh, Chris Manford, Steve Marshall, and Gudrun Court. 2011. Designing games to educate diabetic children. In Proceedings of the 23rd Australian Computer-Human Interaction Conference (Canberra, Australia) (OzCHI ’11). Association for Computing Machinery, New York, NY, USA, 72–75.
[15]
Yunan Chen, Victor Ngo, and Sun Young Park. 2013. Caring for caregivers: designing for integrality. In Proceedings of the 2013 conference on Computer supported cooperative work (San Antonio, Texas, USA) (CSCW ’13). Association for Computing Machinery, New York, NY, USA, 91–102.
[16]
Nancy F Cincotta. 2008. The journey of middle childhood. Developmental theories through the life cycle 2 (2008), 79–133.
[17]
Imelda Coyne. 2008. Children’s participation in consultations and decision-making at health service level: a review of the literature. Int. J. Nurs. Stud. 45, 11 (Nov. 2008), 1682–1689.
[18]
I Coyne, A Amory, F Gibson, and G Kiernan. 2016. Information-sharing between healthcare professionals, parents and children with cancer: more than a matter of information exchange. Eur. J. Cancer Care 25, 1 (Jan. 2016), 141–156.
[19]
Jennifer Downing, Helena K Gleeson, Peter E Clayton, Julian R E Davis, Jerry K Wales, and Peter Callery. 2013. Transition in endocrinology: the challenge of maintaining continuity. Clin. Endocrinol. 78, 1 (Jan. 2013), 29–35.
[20]
Daniel A Epstein, Monica Caraway, Chuck Johnston, An Ping, James Fogarty, and Sean A Munson. 2016. Beyond Abandonment to Next Steps: Understanding and Designing for Life after Personal Informatics Tool Use. Proc SIGCHI Conf Hum Factor Comput Syst 2016 (May 2016), 1109–1113.
[21]
Anne L Ersig, Eva Tsalikian, Julie Coffey, and Janet K Williams. 2016. Stressors in Teens with Type 1 Diabetes and Their Parents: Immediate and Long-Term Implications for Transition to Self-Management. J. Pediatr. Nurs. 31, 4 (July 2016), 390–396.
[22]
William A Fisher, Jeffrey D Fisher, and Jennifer Harman. 2003. The information-motivation-behavioral skills model: A general social psychological approach to understanding and promoting health behavior. Social psychological foundations of health and illness 22 (2003), 82–106.
[23]
Geraldine Fitzpatrick and Gunnar Ellingsen. 2013. A review of 25 years of CSCW research in healthcare: contributions, challenges and future agendas. Comput. Support. Coop. Work 22, 4 (2013), 609–665.
[24]
D S Follansbee. 1989. Assuming responsibility for diabetes management: what age? What price?Diabetes Educ. 15, 4 (July 1989), 347–353.
[25]
P Fonagy, G S Moran, M K Lindsay, A B Kurtz, and R Brown. 1987. Psychological adjustment and diabetic control. Arch. Dis. Child. 62, 10 (Oct. 1987), 1009–1013.
[26]
R A Frank and D J Cohen. 1979. Psychosocial concomitants of biological maturation in preadolescence. Am. J. Psychiatry 136, 12 (Dec. 1979), 1518–1524.
[27]
Dag Helge Frøisland, Eirik Årsand, and Finn Skårderud. 2012. Improving diabetes care for young people with type 1 diabetes through visual learning on mobile phones: mixed-methods study. Journal of medical Internet research 14, 4 (2012), e111.
[28]
Amelia Gibson and Samantha J Kaplan. 2015. “A family like ours”: Demographic variations in information seeking behavior and community participation among parents of individuals with autism spectrum disorder (ASD). Proceedings of the Association for Information Science and Technology 52, 1 (2015), 1–4.
[29]
Marie Glasemann, Anne Marie Kanstrup, and Thomas Ryberg. 2010. Making chocolate-covered broccoli: designing a mobile learning game about food for young people with diabetes. In Proceedings of the 8th ACM Conference on Designing Interactive Systems (Aarhus, Denmark) (DIS ’10). Association for Computing Machinery, New York, NY, USA, 262–271.
[30]
Kathleen M Hanna, Barbara Juarez, Shona Swenson Lenss, and Diana Guthrie. 2003. Parent-adolescent communication and support for diabetes management as reported by adolescents with type 1 diabetes. Issues Compr. Pediatr. Nurs. 26, 3 (July 2003), 145–158.
[31]
Linda Herbert, Victoria Owen, Lauren Pascarella, and Randi Streisand. 2013. Text message interventions for children and adolescents with type 1 diabetes: a systematic review. Diabetes Technol. Ther. 15, 5 (May 2013), 362–370.
[32]
Bree E Holtz, Katharine M Murray, Denise D Hershey, Julie K Dunneback, Shelia R Cotten, Amanda J Holmstrom, Arpita Vyas, Molly K Kaiser, and Michael A Wood. 2017. Developing a patient-centered mHealth app: a tool for adolescents with type 1 diabetes and their parents. JMIR mHealth and uHealth 5, 4 (2017), e53.
[33]
Bree E Holtz, Katharine M Murray, Denise D Hershey, Joshua Richman, Julie K Dunneback, Arpita Vyas, and Michael A Wood. 2019. The design and development of MyT1DHero: A mobile app for adolescents with type 1 diabetes and their parents. J. Telemed. Telecare 25, 3 (April 2019), 172–180.
[34]
Hwajung Hong, Jennifer G Kim, Gregory D Abowd, and Rosa I Arriaga. 2012. Designing a social network to support the independence of young adults with autism. In Proceedings of the ACM 2012 conference on Computer Supported Cooperative Work. 627–636.
[35]
Matthew K Hong, Udaya Lakshmi, Kimberly Do, Sampath Prahalad, Thomas Olson, Rosa I Arriaga, and Lauren Wilcox. 2020. Using Diaries to Probe the Illness Experiences of Adolescent Patients and Parental Caregivers. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (Honolulu, HI, USA) (CHI ’20). Association for Computing Machinery, New York, NY, USA, 1–16.
[36]
Juan Pablo Hourcade, Martha Driessnack, and Kelsey E Huebner. 2012. Supporting face-to-face communication between clinicians and children with chronic headaches through a zoomable multi-touch app. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. Association for Computing Machinery, New York, NY, USA, 2609–2618.
[37]
Suzanne B Johnson, Janet Silverstein, Arlan Rosenbloom, Randy Carter, and Walter Cunningham. 1986. Assessing daily management in childhood diabetes. Health Psychol. 5, 6 (1986), 545–564.
[38]
Charalampos Kyfonidis and Marilyn Lennon. 2016. Mummy, Why Do I Have Diabetes? A Tangible Interface For Educating Children With Type-1 Diabetes. In Proceedings of the The 15th International Conference on Interaction Design and Children (Manchester, United Kingdom) (IDC ’16). Association for Computing Machinery, New York, NY, USA, 524–528.
[39]
Charalampos Kyfonidis and Marilyn Lennon. 2019. Making Diabetes Education Interactive: Tangible Educational Toys for Children with Type-1 Diabetes. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. Association for Computing Machinery, New York, NY, USA, 1–12.
[40]
A M La Greca, D J Follansbee, and J S Skyler. 1990. Developmental and behavioral aspects of diabetes in children and adolescents. Child. Health Care 19(1990), 132–139.
[41]
Lori M B Laffel, Laura Vangsness, Alexa Connell, Ann Goebel-Fabbri, Deborah Butler, and Barbara J Anderson. 2003. Impact of ambulatory, family-focused teamwork intervention on glycemic control in youth with type 1 diabetes. J. Pediatr. 142, 4 (April 2003), 409–416.
[42]
Susan A LaValley, Elizabeth A Gage-Bouchard, Michelle Mollica, and Lynda Beaupin. 2015. Examining social media use among parents of children with cancer. Proceedings of the Association for Information Science and Technology 52, 1 (2015), 1–3.
[43]
Gabriela Marcu, Anind K Dey, and Sara Kiesler. 2012. Parent-driven use of wearable cameras for autism support: a field study with families. In Proceedings of the 2012 ACM Conference on Ubiquitous Computing (Pittsburgh, Pennsylvania) (UbiComp ’12). Association for Computing Machinery, New York, NY, USA, 401–410.
[44]
WYLIE L McNABB, Michael T Quinn, Donna M Murphy, Frank K Thorp, and Sandy Cook. 1994. Increasing children’s responsibility for diabetes self-care: The In Control study. The Diabetes Educator 20, 2 (1994), 121–124.
[45]
Maureen Monaghan, Marisa Hilliard, Rachel Sweenie, and Kristin Riekert. 2013. Transition readiness in adolescents and emerging adults with diabetes: the role of patient-provider communication. Curr. Diab. Rep. 13, 6 (Dec. 2013), 900–908.
[46]
Lama Nachman, Amit Baxi, Sangeeta Bhattacharya, Vivek Darera, Piyush Deshpande, Nagaraju Kodalapura, Vincent Mageshkumar, Satish Rath, Junaith Shahabdeen, and Raviraja Acharya. 2010. Jog Falls: A Pervasive Healthcare Platform for Diabetes Management. In Pervasive Computing. Springer Berlin Heidelberg, 94–111.
[47]
Ruth Nightingale, Gretl McHugh, Susan Kirk, and Veronica Swallow. 2019. Supporting children and young people to assume responsibility from their parents for the self-management of their long-term condition: An integrative review. Child Care Health Dev. 45, 2 (March 2019), 175–188.
[48]
Francisco Nunes and Geraldine Fitzpatrick. 2015. Self-Care Technologies and Collaboration. International Journal of Human–Computer Interaction 31, 12 (Dec. 2015), 869–881.
[49]
Chibuzo Odigwe. 2004. Children say they are not involved enough in their treatment. BMJ 328, 7440 (March 2004), 600.
[50]
Işil Oygür, Daniel A Epstein, and Yunan Chen. 2020. Raising the Responsible Child: Collaborative Work in the Use of Activity Trackers for Children. Proc. ACM Hum.-Comput. Interact. 4, CSCW2 (Oct. 2020), 1–23.
[51]
Debra L Palmer, Cynthia A Berg, Deborah J Wiebe, Ryan M Beveridge, Carolyn D Korbel, Renn Upchurch, Michael T Swinyard, Rob Lindsay, and David L Donaldson. 2004. The role of autonomy and pubertal status in understanding age differences in maternal involvement in diabetes responsibility across adolescence. J. Pediatr. Psychol. 29, 1 (Jan. 2004), 35–46.
[52]
Anne Peters, Lori Laffel, American Diabetes Association Transitions Working Group, and Others. 2011. Diabetes care for emerging adults: recommendations for transition from pediatric to adult diabetes care systems: a position statement of the American diabetes association, with representation by the American College of osteopathic family physicians, the American Academy of pediatrics, the American association of clinical endocrinologists, the American osteopathic association, the centers for disease control and prevention, children with diabetes, the endocrine Society, the International Society for pediatric and adolescent diabetes, juvenile diabetes research Foundation international, the National diabetes education program, and the pediatric endocrine Society (formerly Lawson Wilkins pediatric endocrine Society). Diabetes Care 34, 11 (2011), 2477–2485.
[53]
Laura R Pina, Sang-Wha Sien, Clarissa Song, Teresa M Ward, James Fogarty, Sean A Munson, and Julie A Kientz. 2020. DreamCatcher: Exploring How Parents and School-Age Children Can Track and Review Sleep Information Together. Proc ACM Hum Comput Interact 4, CSCW1 (May 2020).
[54]
Laura R Pina, Sang-Wha Sien, Teresa Ward, Jason C Yip, Sean A Munson, James Fogarty, and Julie A Kientz. 2017. From Personal Informatics to Family Informatics: Understanding Family Practices around Health Monitoring. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing (Portland, Oregon, USA) (CSCW ’17). Association for Computing Machinery, New York, NY, USA, 2300–2315.
[55]
Anne Marie Piper, Raymundo Cornejo, Lisa Hurwitz, and Caitlin Unumb. 2016. Technological caregiving: Supporting online activity for adults with cognitive impairments. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems. 5311–5323.
[56]
Jill M Popp, Joann L Robinson, Preston A Britner, and Thomas O Blank. 2014. Parent adaptation and family functioning in relation to narratives of children with chronic illness. J. Pediatr. Nurs. 29, 1 (Jan. 2014), 58–64.
[57]
Shriti Raj, Joyce M Lee, Ashley Garrity, and Mark W Newman. 2019. Clinical Data in Context: Towards Sensemaking Tools for Interpreting Personal Health Data. Proc. ACM Interact. Mob. Wearable Ubiquitous Technol. 3, 1 (March 2019), 1–20.
[58]
Shriti Raj, Kelsey Toporski, Ashley Garrity, Joyce M Lee, and Mark W Newman. 2019. “My blood sugar is higher on the weekends”: Finding a Role for Context and Context-Awareness in the Design of Health Self-Management Technology. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems (Glasgow, Scotland Uk) (CHI ’19, Paper 119). Association for Computing Machinery, New York, NY, USA, 1–13.
[59]
Dixy Rajkumar, Deborah A Ellis, Dana K May, April Carcone, Sylvie Naar-King, Steven Ondersma, and Kathleen C Moltz. 2015. Computerized Intervention to Increase Motivation for Diabetes Self-Management in Adolescents with Type 1 Diabetes. Health Psychol Behav Med 3, 1 (Sept. 2015), 236–250.
[60]
Chokechai Rongkavilit, Sylvie Naar-King, Linda M Kaljee, Apirudee Panthong, Juline A Koken, Torsak Bunupuradah, and Jeffrey T Parsons. 2010. Applying the information-motivation-behavioral skills model in medication adherence among Thai youth living with HIV: a qualitative study. AIDS Patient Care STDS 24, 12 (Dec. 2010), 787–794.
[61]
Laurie Ruggiero, Russell Glasgow, Janet M Dryfoos, Joseph S Rossi, James O Prochaska, C Tracy Orleans, Alexander V Prokhorov, Susan R Rossi, Geoffrey W Greene, Gabrielle R Reed, 1997. Diabetes self-management: self-reported recommendations and patterns in a large population. Diabetes care 20, 4 (1997), 568–576.
[62]
Christopher L Schaefbauer, Danish U Khan, Amy Le, Garrett Sczechowski, and Katie A Siek. 2015. Snack Buddy: Supporting Healthy Snacking in Low Socioeconomic Status Families. In Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing (Vancouver, BC, Canada) (CSCW ’15). Association for Computing Machinery, New York, NY, USA, 1045–1057.
[63]
Lynne S Schilling, Margaret Grey, and Kathleen A Knafl. 2002. The concept of self-management of type 1 diabetes in children and adolescents: an evolutionary concept analysis. J. Adv. Nurs. 37, 1 (Jan. 2002), 87–99.
[64]
Woosuk Seo, Andrew B L Berry, Prachi Bhagane, Sung Won Choi, Ayse G Buyuktur, and Sun Young Park. 2019. Balancing tensions between caregiving and parenting responsibilities in pediatric patient care. Proc. ACM Hum. Comput. Interact. 3, CSCW (Nov. 2019), 1–24.
[65]
Woosuk Seo, Ayse G Buyuktur, Sung Won Choi, Laura Sedig, and Sun Young Park. 2021. Challenges in the Parent-Child Communication of Health-related Information in Pediatric Cancer Care. Proceedings of the ACM on Human-Computer Interaction 5, CSCW1(2021), 1–24.
[66]
Woosuk Seo, Ayse G Buyuktur, Sanya Verma, Hyeryoung Kim, Sung Won Choi, Laura Sedig, and Sun Young Park. 2021. Learning from Healthcare Providers’ Strategies: Designing Technology to Support Effective Child Patient-Provider Communication. In Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems. 1–15.
[67]
Ji Youn Shin and Bree Holtz. 2020. Identifying opportunities and challenges: how children use technologies for managing diabetes. In Proceedings of the Interaction Design and Children Conference (London, United Kingdom) (IDC ’20). Association for Computing Machinery, New York, NY, USA, 495–507.
[68]
Ji Youn Shin and Bree E Holtz. 2019. Towards Better Transitions for Children with Diabetes: User Experiences on a Mobile Health App. In Proceedings of the 18th ACM International Conference on Interaction Design and Children (Boise, ID, USA) (IDC ’19). Association for Computing Machinery, New York, NY, USA, 623–628.
[69]
Janet Silverstein, Georgeanna Klingensmith, Kenneth Copeland, Leslie Plotnick, Francine Kaufman, Lori Laffel, Larry Deeb, Margaret Grey, Barbara Anderson, Lea Ann Holzmeister, Nathaniel Clark, and American Diabetes Association. 2005. Care of children and adolescents with type 1 diabetes: a statement of the American Diabetes Association. Diabetes Care 28, 1 (Jan. 2005), 186–212.
[70]
J G Smetana. 1995. Parenting styles and conceptions of parental authority during adolescence. Child Dev. 66, 2 (April 1995), 299–316.
[71]
L Steinberg and S B Silverberg. 1986. The vicissitudes of autonomy in early adolescence. Child Dev. 57, 4 (Aug. 1986), 841–851.
[72]
Randi Streisand and Maureen Monaghan. 2014. Young children with type 1 diabetes: challenges, research, and future directions. Curr. Diab. Rep. 14, 9 (2014), 520.
[73]
Jessica T Markowitz, Katharine C Garvey, and Lori MB Laffel. 2015. Developmental changes in the roles of patients and families in type 1 diabetes management. Current diabetes reviews 11, 4 (2015), 231–238.
[74]
Kiek Tates and Ludwien Meeuwesen. 2001. Doctor–parent–child communication. A (re) view of the literature. Social science & medicine 52, 6 (2001), 839–851.
[75]
Matthieu Tixier and Myriam Lewkowicz. 2016. ” Counting on the Group” Reconciling Online and Offline Social Support among Older Informal Caregivers. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems. 3545–3558.
[76]
Tammy Toscos, Kay Connelly, and Yvonne Rogers. 2012. Best intentions: health monitoring technology and children. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (Austin, Texas, USA) (CHI ’12). Association for Computing Machinery, New York, NY, USA, 1431–1440.
[77]
Damyanka Tsvyatkova and Cristiano Storni. 2014. Investigating issues related to pediatric diabetes education: problems and barriers. In Proceedings of the 8th International Conference on Pervasive Computing Technologies for Healthcare (Oldenburg, Germany) (PervasiveHealth ’14). ICST (Institute for Computer Sciences, Social-Informatics and Telecommunications Engineering), Brussels, BEL, 191–194.
[78]
Damyanka Tsvyatkova and Cristiano Storni. 2019. Designing an educational interactive eBook for newly diagnosed children with type 1 diabetes: Mapping a new design space. International Journal of Child-Computer Interaction 19 (March 2019), 1–18.
[79]
Marleen Van Bergeijk, Bart Hengeveld, and Selma Otto. 2017. DOK: Enhancing Child Patient Empowerment. In Proceedings of the Eleventh International Conference on Tangible, Embedded, and Embodied Interaction (Yokohama, Japan) (TEI ’17). Association for Computing Machinery, New York, NY, USA, 589–595.
[80]
Deborah J Wiebe, Vicki Helgeson, and Cynthia A Berg. 2016. The social context of managing diabetes across the life span. Am. Psychol. 71, 7 (Oct. 2016), 526–538.
[81]
Mike Wu, Jeremy Birnholtz, Brian Richards, Ronald Baecker, and Mike Massimi. 2008. Collaborating to remember: a distributed cognition account of families coping with memory impairments. In Proceedings of the SIGCHI conference on human factors in computing systems. 825–834.
[82]
T Wysocki, A Taylor, B S Hough, T R Linscheid, K O Yeates, and J A Naglieri. 1996. Deviation from developmentally appropriate self-care autonomy. Association with diabetes outcomes. Diabetes Care 19, 2 (Feb. 1996), 119–125.
[83]
Bridget Young, Mary Dixon-Woods, Michelle Findlay, and David Heney. 2002. Parenting in a crisis: conceptualising mothers of children with cancer. Soc. Sci. Med. 55, 10 (Nov. 2002), 1835–1847.
[84]
Leehu Zysberg and Tali Lang. 2015. Supporting parents of children with type 1 diabetes mellitus: a literature review. PI 7 (Oct. 2015), 21–31.

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cover image ACM Conferences
CHI '22: Proceedings of the 2022 CHI Conference on Human Factors in Computing Systems
April 2022
10459 pages
ISBN:9781450391573
DOI:10.1145/3491102
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Published: 29 April 2022

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  1. child independence
  2. child self-care
  3. child-parent collaboration
  4. chronic illness management
  5. collaborative healthcare technology
  6. pediatric patient
  7. type 1 diabetes

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