research-article

"I Just Can't Help But Smile Sometimes": Collaborative Self-Management of Depression

Authors:

Eleanor R. Burgess,

Madhu C. Reddy,

David C. MohrAuthors Info & Claims

Proceedings of the ACM on Human-Computer Interaction, Volume 6, Issue CSCW1

Article No.: 70, Pages 1 - 32

https://doi.org/10.1145/3512917

Published: 07 April 2022 Publication History

Abstract

Depression is a challenging condition that requires individuals to manage their moods and emotions over time. Within CSCW, there has been an interest in understanding how individuals seek and share support on social media and in online communities. However, less attention has been paid to how collaboration as an aspect of self-management of depression unfolds in people's daily lives. In this paper, we explore the collaborative self-management work of 28 individuals managing depression who live in the United States. Data collection included remote semi-structured interviews with an associated cognitive mapping exercise. Our findings describe who participants turn to for day-to-day collaborative support, how collaborative activities are enacted (across both mood-focused and preventative support practices), and where these often technology-mediated interactions occur across text, phone, video, and picture-based channels. We discuss collaborative self-management in the depression support context, including key characteristics: agency, reciprocity, time, and interaction. We also present a four-step model of how the process occurs over time (awareness, planning, interaction, and reflection). We conclude by discussing how technology ecosystems support individuals' collaborative self-management.

References

[1]

Ifti Azad Abeer. 2018. Cloud-based Support System for Kidney Patients in Bangladesh. In Proceedings of the 2018 ACM International Joint Conference and 2018 International Symposium on Pervasive and Ubiquitous Computing and Wearable Computers (UbiComp '18), ACM, New York, NY, USA, 1771--1774.

Digital Library

[2]

Nazanin Andalibi. 2019. What Happens After Disclosing Stigmatized Experiences on Identified Social Media: Individual, Dyadic, and Social/Network Outcomes. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems (CHI '19), ACM, New York, NY, USA, 137:1--137:15.

Digital Library

[3]

Nazanin Andalibi and Andrea Forte. 2018. Responding to Sensitive Disclosures on Social Media: A Decision-Making Framework. ACM Transactions on Computer-Human Interaction (TOCHI) 25, 6 (December 2018), 31.

Digital Library

[4]

Nazanin Andalibi, Oliver L. Haimson, Munmun De Choudhury, and Andrea Forte. 2018. Social Support, Reciprocity, and Anonymity in Responses to Sexual Abuse Disclosures on Social Media. ACM Trans. Comput.-Hum. Interact. 25, 5 (October 2018), 28:1--28:35.

Digital Library

[5]

Nazanin Andalibi, Pinar Ozturk, and Andrea Forte. 2015. Depression-related Imagery on Instagram. In Proceedings of the 18th ACM Conference Companion on Computer Supported Cooperative Work & Social Computing (CSCW'15 Companion), ACM, New York, NY, USA, 231--234.

Digital Library

[6]

Nazanin Andalibi, Pinar Ozturk, and Andrea Forte. 2017. Sensitive Self-disclosures, Responses, and Social Support on Instagram: The Case of #Depression. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing (CSCW '17), ACM, New York, NY, USA, 1485--1500.

Digital Library

[7]

Martijn Balsters, Emiel Krahmer, Marc Swerts, and Ad Vingerhoets. 2010. Measuring potential cues for depression in adolescents. In Proceedings of the 7th International Conference on Methods and Techniques in Behavioral Research (MB '10), Association for Computing Machinery, New York, NY, USA, 1--4.

Digital Library

[8]

Jakob E. Bardram, Mads Frost, Károly Szántó, Maria Faurholt-Jepsen, Maj Vinberg, and Lars Vedel Kessing. 2013. Designing Mobile Health Technology for Bipolar Disorder: A Field Trial of the Monarca System. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '13), ACM, New York, NY, USA, 2627--2636.

Digital Library

[9]

Julie Barlow, Chris Wright, Janice Sheasby, Andy Turner, and Jenny Hainsworth. 2002. Self-management approaches for people with chronic conditions: a review. Patient Education and Counseling 48, 2 (October 2002), 177--187.

[10]

Aaron T. Beck. 1979. Cognitive Therapy of Depression. Guilford Press.

[11]

Marit Bentvelzen, Jasmin Niess, and Pawel W. Wozniak. 2021. The Technology-Mediated Reflection Model: Barriers and Assistance in Data-Driven Reflection. In Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems. Association for Computing Machinery, New York, NY, USA, 1--12. Retrieved October 23, 2021 from https://doi.org/10.1145/3411764.3445505

Digital Library

[12]

Andrew B.L. Berry, Catherine Lim, Tad Hirsch, Andrea L. Hartzler, Edward H. Wagner, Evette Ludman, and James D. Ralston. 2017. Getting Traction When Overwhelmed: Implications for Supporting Patient-Provider Communication. In Companion of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing (CSCW '17 Companion), ACM, New York, NY, USA, 143--146.

Digital Library

[13]

Megan Bogia, Chloé Nurik, Andrea Ngan, Bennett Kuhn, Ila Kumar, and Jessa Lingel. 2018. Institutional Shadow Bodies in Mental Health Care Information Seeking. In Companion of the 2018 ACM Conference on Computer Supported Cooperative Work and Social Computing (CSCW '18), ACM, New York, NY, USA, 269--272.

Digital Library

[14]

Vladimir Bostanov, Philipp M. Keune, Boris Kotchoubey, and Martin Hautzinger. 2012. Event-related brain potentials reflect increased concentration ability after mindfulness-based cognitive therapy for depression: A randomized clinical trial. Psychiatry Research 199, 3 (October 2012), 174--180.

[15]

Jean Bourbeau. 2009. The Role of Collaborative Self-Management in Pulmonary Rehabilitation. Semin Respir Crit Care Med 30, 6 (December 2009), 700--707.

[16]

Jean Bourbeau, Waleed Alsowayan, and Joshua Wald. 2018. Self-Management in Pulmonary Rehabilitation. In Textbook of Pulmonary Rehabilitation, Enrico Clini, Anne E. Holland, Fabio Pitta and Thierry Troosters (eds.). Springer International Publishing, Cham, 217--232.

[17]

Virginia Braun and Victoria Clarke. 2013. Successful Qualitative Research: A Practical Guide for Beginners. SAGE.

[18]

G. W. Brown, B. Andrews, T. Harris, Z. Adler, and L. Bridge. 1986. Social support, self-esteem and depression. Psychological Medicine 16, 4 (November 1986), 813--831.

[19]

Ay?e G. Büyüktür and Mark S. Ackerman. 2017. Information Work in Bone Marrow Transplant: Reducing Misalignment of Perspectives. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing (CSCW '17), ACM, New York, NY, USA, 1740--1752.

Digital Library

[20]

Luca Canzian and Mirco Musolesi. 2015. Trajectories of depression: unobtrusive monitoring of depressive states by means of smartphone mobility traces analysis. In Proceedings of the 2015 ACM International Joint Conference on Pervasive and Ubiquitous Computing (UbiComp '15), Association for Computing Machinery, New York, NY, USA, 1293--1304.

Digital Library

[21]

Kelly M. Carpenter and Michael E. Addis. 2000. Alexithymia, Gender, and Responses to Depressive Symptoms. Sex Roles 43, 9 (November 2000), 629--644.

[22]

Lushi Chen, Walid Magdy, Heather Whalley, and Maria Klara Wolters. 2020. Examining the Role of Mood Patterns in Predicting Self-Reported Depressive symptoms. In 12th ACM Conference on Web Science (WebSci '20), Association for Computing Machinery, New York, NY, USA, 164--173.

Digital Library

[23]

Yunan Chen, Victor Ngo, and Sun Young Park. 2013. Caring for caregivers: designing for integrality. In Proceedings of the 2013 conference on Computer supported cooperative work (CSCW '13), Association for Computing Machinery, New York, NY, USA, 91--102.

Digital Library

[24]

Munmun De Choudhury, Michael Gamon, Scott Counts, and Eric Horvitz. 2013. Predicting Depression via Social Media. In Seventh International AAAI Conference on Weblogs and Social Media. Retrieved July 20, 2020 from https://www.aaai.org/ocs/index.php/ICWSM/ICWSM13/paper/view/6124

[25]

Philip Chow, Wesley Bonelli, Yu Huang, Karl Fua, Bethany A. Teachman, and Laura E. Barnes. 2016. DEMONS: an integrated framework for examining associations between physiology and self-reported affect tied to depressive symptoms. In Proceedings of the 2016 ACM International Joint Conference on Pervasive and Ubiquitous Computing: Adjunct (UbiComp '16), Association for Computing Machinery, New York, NY, USA, 1139--1143.

Digital Library

[26]

Sheldon Cohen, Robin Mermelstein, Tom Kamarck, and Harry M. Hoberman. 1985. Measuring the Functional Components of Social Support. In Social Support: Theory, Research and Applications, Irwin G. Sarason and Barbara R. Sarason (eds.). Springer Netherlands, Dordrecht, 73--94.

[27]

Sheldon Cohen, Lynn G. Underwood, and Benjamin H. Gottlieb. 2000. Social Support Measurement and Intervention: A Guide for Health and Social Scientists. Oxford University Press.

[28]

Juliet M. Corbin and Anselm Strauss. 1988. Unending Work and Care: Managing Chronic Illness at Home. Proquest/Csa Journal Div, Place of publication not identified.

[29]

Patrick W. Corrigan, Benjamin G. Druss, and Deborah A. Perlick. 2014. The Impact of Mental Illness Stigma on Seeking and Participating in Mental Health Care, The Impact of Mental Illness Stigma on Seeking and Participating in Mental Health Care. Psychol Sci Public Interest 15, 2 (October 2014), 37--70.

[30]

David Coyle, James Moore, Per Ola Kristensson, Paul Fletcher, and Alan Blackwell. 2012. I did that! Measuring users' experience of agency in their own actions. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '12), Association for Computing Machinery, New York, NY, USA, 2025--2034.

Digital Library

[31]

Munmun De Choudhury, Scott Counts, Eric J. Horvitz, and Aaron Hoff. 2014. Characterizing and Predicting Postpartum Depression from Shared Facebook Data. In Proceedings of the 17th ACM Conference on Computer Supported Cooperative Work & Social Computing (CSCW '14), ACM, New York, NY, USA, 626--638.

Digital Library

[32]

Michael A. DeVito, Ashley Marie Walker, and Jeremy Birnholtz. 2018. "Too Gay for Facebook": Presenting LGBTQ+ Identity Throughout the Personal Social Media Ecosystem. Proc. ACM Hum.-Comput. Interact. 2, CSCW (November 2018), 44:1--44:23.

Digital Library

[33]

Hamdi Dibeklio?lu, Zakia Hammal, Ying Yang, and Jeffrey F. Cohn. 2015. Multimodal Detection of Depression in Clinical Interviews. In Proceedings of the 2015 ACM on International Conference on Multimodal Interaction (ICMI '15), Association for Computing Machinery, New York, NY, USA, 307--310.

Digital Library

[34]

Elizabeth V. Eikey and Madhu C. Reddy. 2017. "It's Definitely Been a Journey": A Qualitative Study on How Women with Eating Disorders Use Weight Loss Apps. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems (CHI '17), Association for Computing Machinery, Denver, Colorado, USA, 642--654.

Digital Library

[35]

Eleanor R. Burgess, Kathryn E. Ringland, Jennifer Nicholas, Ashley A. Knapp, Jordan Eschler, David C. Mohr, and Madhu C. Reddy. 2019. "I Think People Are Powerful": The Sociality of Individuals Managing Depression. PACM on Human-Computer Interaction Vol. 3, No. CSCW, Article 41 (November 2019), 29.

Digital Library

[36]

Eleanor R. Burgess, Madhu C. Reddy, Andrew Davenport, Paul Laboi, and Ann Blandford. 2019. "Tricky to get your head around": Information Work of People Managing Chronic Kidney Disease. In In 2019 CHI Conference on Human Factors in Computing Systems Proceedings (CHI 2019), ACM Press, Glasgow, Scotland, UK, 14.

Digital Library

[37]

Nicole B. Ellison, Jessica Vitak, Charles Steinfield, Rebecca Gray, and Cliff Lampe. 2011. Negotiating Privacy Concerns and Social Capital Needs in a Social Media Environment. In Privacy Online: Perspectives on Privacy and Self-Disclosure in the Social Web, Sabine Trepte and Leonard Reinecke (eds.). Springer, Berlin, Heidelberg, 19--32.

[38]

Emily G. Lattie, Rachel Kornfield, Kathryn E. Ringland, Renwen Zhang, Nathan Winquist, and Madhu Reddy. 2020. Designing Mental Health Technologies that Support the Social Ecosystem of College Students. In In 2019 CHI Conference on Human Factors in Computing Systems Proceedings (CHI 2020), ACM Press, Honolulu, Hawai'i, USA, 10.

Digital Library

[39]

Daniel A. Epstein, An Ping, James Fogarty, and Sean A. Munson. 2015. A lived informatics model of personal informatics. In Proceedings of the 2015 ACM International Joint Conference on Pervasive and Ubiquitous Computing (UbiComp '15), Association for Computing Machinery, New York, NY, USA, 731--742.

Digital Library

[40]

Sindhu Kiranmai Ernala, Tristan Labetoulle, Fred Bane, Michael L. Birnbaum, Asra F. Rizvi, John M. Kane, and Munmun De Choudhury. 2018. Characterizing Audience Engagement and Assessing Its Impact on Social Media Disclosures of Mental Illnesses. In Twelfth International AAAI Conference on Web and Social Media. Retrieved July 16, 2020 from https://aaai.org/ocs/index.php/ICWSM/ICWSM18/paper/view/17884

[41]

Jordan Eschler and Wanda Pratt. 2017. "I'm so glad I met you": Designing Dynamic Collaborative Support for Young Adult Cancer Survivors. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing (CSCW '17), Association for Computing Machinery, New York, NY, USA, 1763--1774.

Digital Library

[42]

Hayley Evans, Udaya Lakshmi, Hue Watson, Azra Ismail, Andrew M. Sherrill, Neha Kumar, and Rosa I. Arriaga. 2020. Understanding the Care Ecologies of Veterans with PTSD. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (CHI '20), Association for Computing Machinery, New York, NY, USA, 1--15.

Digital Library

[43]

World Leaders in Research-Based User Experience. Cognitive Maps, Mind Maps, and Concept Maps: Definitions. Nielsen Norman Group. Retrieved December 17, 2019 from https://www.nngroup.com/articles/cognitive-mind-concept/

[44]

Jessica L. Feuston and Anne Marie Piper. 2018. Beyond the Coded Gaze: Analyzing Expression of Mental Health and Illness on Instagram. Proc. ACM Hum.-Comput. Interact. 2, CSCW (November 2018), 51:1--51:21.

Digital Library

[45]

Geraldine Fitzpatrick and Gunnar Ellingsen. 2013. A Review of 25 Years of CSCW Research in Healthcare: Contributions, Challenges and Future Agendas. Comput. Supported Coop. Work 22, 4--6 (August 2013), 609--665.

[46]

Nanna Gorm and Irina Shklovski. 2017. Participant Driven Photo Elicitation for Understanding Activity Tracking: Benefits and Limitations. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing (CSCW '17), ACM, New York, NY, USA, 1350--1361.

Digital Library

[47]

Rocio Herrero, Azucena García-Palacios, Diana Castilla, Guadalupe Molinari, and Cristina Botella. 2014. Virtual Reality for the Induction of Positive Emotions in the Treatment of Fibromyalgia: A Pilot Study over Acceptability, Satisfaction, and the Effect of Virtual Reality on Mood. Cyberpsychology, Behavior, and Social Networking 17, 6 (June 2014), 379--384.

[48]

Christopher M. Homan, Naiji Lu, Xin Tu, Megan C. Lytle, and Vincent M.B. Silenzio. 2014. Social Structure and Depression in TrevorSpace. In Proceedings of the 17th ACM Conference on Computer Supported Cooperative Work & Social Computing (CSCW '14), ACM, New York, NY, USA, 615--625.

Digital Library

[49]

Jina Huh. 2015. Clinical Questions in Online Health Communities: The Case of "See Your Doctor" Threads. In Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing (CSCW '15), ACM, New York, NY, USA, 1488--1499.

Digital Library

[50]

Ellen Isaacs, Margaret Szymanski, Yutaka Yamauchi, James Glasnapp, and Kyohei Iwamoto. 2012. Integrating local and remote worlds through channel blending. In Proceedings of the ACM 2012 conference on Computer Supported Cooperative Work (CSCW '12), Association for Computing Machinery, New York, NY, USA, 617--626.

Digital Library

[51]

Maia Jacobs, Jeremy Johnson, and Elizabeth D. Mynatt. 2018. MyPath: Investigating Breast Cancer Patients' Use of Personalized Health Information. Proc. ACM Hum.-Comput. Interact. 2, CSCW (November 2018), 78:1--78:21.

Digital Library

[52]

Maia L. Jacobs, James Clawson, and Elizabeth D. Mynatt. 2015. Comparing Health Information Sharing Preferences of Cancer Patients, Doctors, and Navigators. In Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing (CSCW '15), ACM, New York, NY, USA, 808--818.

Digital Library

[53]

Lisa M. Jaremka, Rebecca R. Andridge, Christopher P. Fagundes, Catherine M. Alfano, Stephen P. Povoski, Adele M. Lipari, Doreen M. Agnese, Mark W. Arnold, William B. Farrar, Lisa D. Yee, William E. Carson III, Tanios Bekaii-Saab, Edward W. Martin Jr., Carl R. Schmidt, and Janice K. Kiecolt-Glaser. 2014. Pain, depression, and fatigue: Loneliness as a longitudinal risk factor. Health Psychology 33, 9 (2014), 948--957.

[54]

Jordan Eschler, Eleanor R. Burgess, Madhu C. Reddy, and David C. Mohr. 2020. Emergent Self-Regulation Practices in Technology and Social Media Use of Individuals Living with Depression. In In 2020 CHI Conference on Human Factors in Computing Systems Proceedings (CHI 2020), ACM Press, Honolulu, Hawai'i, USA.

[55]

Jyoti Joshi. 2012. Depression analysis: a multimodal approach. In Proceedings of the 14th ACM international conference on Multimodal interaction (ICMI '12), Association for Computing Machinery, New York, NY, USA, 321--324.

Digital Library

[56]

Ravi Karkar. 2018. Designing for Diagnostic Self-Tracking. In Proceedings of the 2018 ACM International Joint Conference and 2018 International Symposium on Pervasive and Ubiquitous Computing and Wearable Computers (UbiComp '18), ACM, New York, NY, USA, 516--521.

Digital Library

[57]

Dmitri S. Katz, Blaine A. Price, Simon Holland, and Nicholas Sheep Dalton. 2018. Data, Data Everywhere, and Still Too Hard to Link: Insights from User Interactions with Diabetes Apps. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems (CHI '18), Association for Computing Machinery, Montreal QC, Canada, 1--12.

Digital Library

[58]

Ichiro Kawachi and Lisa F. Berkman. 2001. Social ties and mental health. J Urban Health 78, 3 (September 2001), 458--467.

[59]

Elizabeth Kaziunas, Ayse G. Buyuktur, Jasmine Jones, Sung W. Choi, David A. Hanauer, and Mark S. Ackerman. 2015. Transition and Reflection in the Use of Health Information: The Case of Pediatric Bone Marrow Transplant Caregivers. In Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing (CSCW '15), ACM, New York, NY, USA, 1763--1774.

Digital Library

[60]

Christina Kelley, Bongshin Lee, and Lauren Wilcox. 2017. Self-tracking for Mental Wellness: Understanding Expert Perspectives and Student Experiences. Proc SIGCHI Conf Hum Factor Comput Syst 2017, (May 2017), 629--641.

Digital Library

[61]

Elizabeth Kendall, Carolyn Ehrlich, Naomi Sunderland, Heidi Muenchberger, and Carole Rushton. 2011. Self-managing versus self-management: reinvigorating the socio-political dimensions of self-management. Chronic Illness 7, 1 (March 2011), 87--98.

[62]

Predrag Klasnja, Andrea Civan Hartzler, Kent T. Unruh, and Wanda Pratt. 2010. Blowing in the Wind: Unanchored Patient Information Work During Cancer Care. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '10), ACM, New York, NY, USA, 193--202.

Digital Library

[63]

Reinier Kop, Mark Hoogendoorn, and Michel C. A. Klein. 2014. A Personalized Support Agent for Depressed Patients: Forecasting Patient Behavior Using a Mood and Coping Model. In Proceedings of the 2014 IEEE/WIC/ACM International Joint Conferences on Web Intelligence (WI) and Intelligent Agent Technologies (IAT) - Volume 03 (WI-IAT '14), IEEE Computer Society, USA, 302--309.

Digital Library

[64]

Rachel Kornfield, Renwen Zhang, Jennifer Nicholas, Stephen M. Schueller, Scott A. Cambo, David C. Mohr, and Madhu Reddy. 2020. "Energy is a Finite Resource": Designing Technology to Support Individuals across Fluctuating Symptoms of Depression. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (CHI '20), Association for Computing Machinery, Honolulu, HI, USA, 1--17.

Digital Library

[65]

Debbie Kralik, Barbara Paterson, and Vivien Coates. 2010. Translating Chronic Illness Research into Practice. John Wiley & Sons.

[66]

Emily G. Lattie, Stephen M. Schueller, Elizabeth Sargent, Colleen Stiles-Shields, Kathryn Noth Tomasino, Marya E. Corden, Mark Begale, Chris J. Karr, and David C. Mohr. 2016. Uptake and usage of IntelliCare: A publicly available suite of mental health and well-being apps. Internet Interventions 4, (May 2016), 152--158.

[67]

Kwangyoung Lee and Hwajung Hong. 2017. Designing for Self-Tracking of Emotion and Experience with Tangible Modality. In Proceedings of the 2017 Conference on Designing Interactive Systems (DIS '17), ACM, New York, NY, USA, 465--475.

Digital Library

[68]

Guo Li, Xiaomu Zhou, Tun Lu, Jiang Yang, and Ning Gu. 2016. SunForum: Understanding Depression in a Chinese Online Community. In Proceedings of the 19th ACM Conference on Computer-Supported Cooperative Work & Social Computing (CSCW '16), ACM, New York, NY, USA, 515--526.

Digital Library

[69]

Alice J. Lin, Fuhua (Frank) Cheng, and Charles B. Chen. 2020. Use of virtual reality games in people with depression and anxiety. In Proceedings of the 5th International Conference on Multimedia and Image Processing (ICMIP '20), Association for Computing Machinery, New York, NY, USA, 169--174.

Digital Library

[70]

Chenhao Lin, Pengwei Hu, Hui Su, Shaochun Li, Jing Mei, Jie Zhou, and Henry Leung. 2020. SenseMood: Depression Detection on Social Media. In Proceedings of the 2020 International Conference on Multimedia Retrieval (ICMR '20), Association for Computing Machinery, New York, NY, USA, 407--411.

Digital Library

[71]

Nan Lin, Xiaolan Ye, and Walter M. Ensel. 1999. Social Support and Depressed Mood: A Structural Analysis. Journal of Health and Social Behavior 40, 4 (1999), 344--359.

[72]

Jake Linardon, Pim Cuijpers, Per Carlbring, Mariel Messer, and Matthew Fuller?Tyszkiewicz. 2019. The efficacy of app'supported smartphone interventions for mental health problems: a meta?analysis of randomized controlled trials. World Psychiatry 18, 3 (October 2019), 325--336.

[73]

B. Make. 1994. Collaborative self-management strategies for patients with respiratory disease. Respir Care 39, 5 (May 1994), 566--79; discussion 579--83.

[74]

Lena Mamykina, Elizabeth Mynatt, Patricia Davidson, and Daniel Greenblatt. 2008. MAHI: investigation of social scaffolding for reflective thinking in diabetes management. ACM, 477--486.

Digital Library

[75]

Michael Massimi, Jackie L. Bender, Holly O. Witteman, and Osman H. Ahmed. 2014. Life transitions and online health communities: reflecting on adoption, use, and disengagement. In Proceedings of the 17th ACM conference on Computer supported cooperative work & social computing (CSCW '14), Association for Computing Machinery, New York, NY, USA, 1491--1501.

Digital Library

[76]

Mark Matthews and Gavin Doherty. 2011. In the Mood: Engaging Teenagers in Psychotherapy Using Mobile Phones. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '11), ACM, New York, NY, USA, 2947--2956.

Digital Library

[77]

Loretta McCormick. 2019. Collaborative Self-Management and Chronic Obstructive Pulmonary Disease: Integrating Patient Needs into an Educational Program for Nurses. Electronic Thesis and Dissertation Repository (June 2019). Retrieved from https://ir.lib.uwo.ca/etd/6239

[78]

Helena M. Mentis, Madhu Reddy, and Mary Beth Rosson. 2013. Concealment of Emotion in an Emergency Room: Expanding Design for Emotion Awareness. Comput Supported Coop Work 22, 1 (February 2013), 33--63.

[79]

Andrew D. Miller, Sonali R. Mishra, Logan Kendall, Shefali Haldar, Ari H. Pollack, and Wanda Pratt. 2016. Partners in Care: Design Considerations for Caregivers and Patients During a Hospital Stay. CSCW 2016, (2016), 756--769.

Digital Library

[80]

Daniel Miller and Jolynna Sinanan. 2014. Webcam. Polity Press, Cambridge.

[81]

David C Mohr, Kathryn Noth Tomasino, Emily G Lattie, Hannah L Palac, Mary J Kwasny, Kenneth Weingardt, Chris J Karr, Susan M Kaiser, Rebecca C Rossom, Leland R Bardsley, Lauren Caccamo, Colleen Stiles-Shields, and Stephen M Schueller. 2017. IntelliCare: An Eclectic, Skills-Based App Suite for the Treatment of Depression and Anxiety. J Med Internet Res 19, 1 (January 2017).

[82]

Plinio Pelegrini Morita, Melanie S. Yeung, Madonna Ferrone, Ann K. Taite, Carole Madeley, Andrea Stevens Lavigne, Teresa To, M. Diane Lougheed, Samir Gupta, Andrew G. Day, Joseph A. Cafazzo, and Christopher Licskai. 2019. A Patient-Centered Mobile Health System That Supports Asthma Self-Management (breathe): Design, Development, and Utilization. JMIR mHealth and uHealth 7, 1 (2019), e10956.

[83]

Bonnie A. Nardi, Steve Whittaker, and Erin Bradner. 2000. Interaction and outeraction: instant messaging in action. In Proceedings of the 2000 ACM conference on Computer supported cooperative work (CSCW '00), Association for Computing Machinery, New York, NY, USA, 79--88.

Digital Library

[84]

Mark W. Newman, Debra Lauterbach, Sean A. Munson, Paul Resnick, and Margaret E. Morris. 2011. It's Not That I Don'T Have Problems, I'm Just Not Putting Them on Facebook: Challenges and Opportunities in Using Online Social Networks for Health. In Proceedings of the ACM 2011 Conference on Computer Supported Cooperative Work (CSCW '11), ACM, New York, NY, USA, 341--350.

Digital Library

[85]

Kathleen O'Leary, Arpita Bhattacharya, Sean A. Munson, Jacob O. Wobbrock, and Wanda Pratt. 2017. Design Opportunities for Mental Health Peer Support Technologies. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing (CSCW '17), ACM, New York, NY, USA, 1470--1484.

Digital Library

[86]

Kathleen O'Leary, Stephen M. Schueller, Jacob O. Wobbrock, and Wanda Pratt. 2018. "Suddenly, We Got to Become Therapists for Each Other": Designing Peer Support Chats for Mental Health. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems (CHI '18), ACM, New York, NY, USA, 331:1--331:14.

Digital Library

[87]

Kennedy Opoku Asare, Aku Visuri, and Denzil S. T. Ferreira. 2019. Towards early detection of depression through smartphone sensing. In Adjunct Proceedings of the 2019 ACM International Joint Conference on Pervasive and Ubiquitous Computing and Proceedings of the 2019 ACM International Symposium on Wearable Computers (UbiComp/ISWC '19 Adjunct), Association for Computing Machinery, New York, NY, USA, 1158--1161.

Digital Library

[88]

Sungkyu Park, Inyeop Kim, Sang Won Lee, Jaehyun Yoo, Bumseok Jeong, and Meeyoung Cha. 2015. Manifestation of Depression and Loneliness on Social Networks: A Case Study of Young Adults on Facebook. In Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing (CSCW '15), Association for Computing Machinery, New York, NY, USA, 557--570.

Digital Library

[89]

Martin P. Paulus and Angela J. Yu. 2012. Emotion and decision-making: affect-driven belief systems in anxiety and depression. Trends in Cognitive Sciences 16, 9 (September 2012), 476--483.

[90]

Sachin R. Pendse, Kate Niederhoffer, and Amit Sharma. 2019. Cross-Cultural Differences in the Use of Online Mental Health Support Forums. Proc. ACM Hum.-Comput. Interact. 3, CSCW (November 2019), 67:1--67:29.

Digital Library

[91]

Susan Bullers PhD. 2001. The Mediating Role of Perceived Control in the Relationship Between Social Ties and Depressive Symptoms. Women & Health 31, 2--3 (February 2001), 97--116.

[92]

Roma Robertson, Ann Robertson, Ruth Jepson, and Margaret Maxwell. 2012. Walking for depression or depressive symptoms: A systematic review and meta-analysis. Mental Health and Physical Activity 5, 1 (June 2012), 66--75.

[93]

Sandra Yu Rueger, Christine Kerres Malecki, Yoonsun Pyun, Chase Aycock, and Samantha Coyle. 2016. A meta-analytic review of the association between perceived social support and depression in childhood and adolescence. Psychological Bulletin 142, 10 (2016), 1017--1067.

[94]

Farig Sadeque, Dongfang Xu, and Steven Bethard. 2018. Measuring the Latency of Depression Detection in Social Media. In Proceedings of the Eleventh ACM International Conference on Web Search and Data Mining (WSDM '18), Association for Computing Machinery, New York, NY, USA, 495--503.

Digital Library

[95]

Sohrab Saeb, Mi Zhang, Mary Kwasny, Christopher J. Karr, Konrad Kording, and David C. Mohr. 2015. The relationship between clinical, momentary, and sensor-based assessment of depression. In Proceedings of the 9th International Conference on Pervasive Computing Technologies for Healthcare (PervasiveHealth '15), ICST (Institute for Computer Sciences, Social-Informatics and Telecommunications Engineering), Brussels, BEL, 229--232.

[96]

Lauren E. Scissors and Darren Gergle. 2013. "Back and forth, back and forth": channel switching in romantic couple conflict. In Proceedings of the 2013 conference on Computer supported cooperative work (CSCW '13), Association for Computing Machinery, New York, NY, USA, 237--248.

Digital Library

[97]

Anu Shrestha and Francesca Spezzano. 2019. Detecting depressed users in online forums. In Proceedings of the 2019 IEEE/ACM International Conference on Advances in Social Networks Analysis and Mining (ASONAM '19), Association for Computing Machinery, New York, NY, USA, 945--951.

Digital Library

[98]

Charles H. Tardy. 1985. Social support measurement. American Journal of Community Psychology 13, 2 (1985), 187--202.

[99]

Sho Tsugawa, Yusuke Kikuchi, Fumio Kishino, Kosuke Nakajima, Yuichi Itoh, and Hiroyuki Ohsaki. 2015. Recognizing Depression from Twitter Activity. In Proceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems (CHI '15), ACM, New York, NY, USA, 3187--3196.

Digital Library

[100]

Tiffany C. E. Veinot, Chrysta C. Meadowbrooke, Mark W. Newman, Kai Zheng, and Erica E. Perry. 2010. Routines That Ease the Pain: The Information World of a Dialysis Clinic. In Proceedings of the 73rd ASIS&T Annual Meeting on Navigating Streams in an Information Ecosystem - Volume 47 (ASIS&T '10), American Society for Information Science, Silver Springs, MD, USA, 23:1--23:4. Retrieved April 16, 2018 from http://dl.acm.org/citation.cfm?id=1920331.1920364

[101]

Rui Wang, Weichen Wang, Alex daSilva, Jeremy F. Huckins, William M. Kelley, Todd F. Heatherton, and Andrew T. Campbell. 2018. Tracking Depression Dynamics in College Students Using Mobile Phone and Wearable Sensing. Proc. ACM Interact. Mob. Wearable Ubiquitous Technol. 2, 1 (March 2018), 43:1--43:26.

Digital Library

[102]

PinHua Wu, JiaLing Koh, and Arbee L. P. Chen. 2019. Event detection for exploring emotional upheavals of depressive people. In Proceedings of the 34th ACM/SIGAPP Symposium on Applied Computing (SAC '19), Association for Computing Machinery, New York, NY, USA, 2086--2095.

Digital Library

[103]

Xuhai Xu, Prerna Chikersal, Afsaneh Doryab, Daniella K. Villalba, Janine M. Dutcher, Michael J. Tumminia, Tim Althoff, Sheldon Cohen, Kasey G. Creswell, J. David Creswell, Jennifer Mankoff, and Anind K. Dey. 2019. Leveraging Routine Behavior and Contextually-Filtered Features for Depression Detection among College Students. Proc. ACM Interact. Mob. Wearable Ubiquitous Technol. 3, 3 (September 2019), 116:1--116:33.

Digital Library

[104]

Naomi Yamashita, Hideaki Kuzuoka, Keiji Hirata, and Takashi Kudo. 2013. Understanding the conflicting demands of family caregivers caring for depressed family members. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '13), Association for Computing Machinery, Paris, France, 2637--2646.

Digital Library

[105]

Le Yang, Dongmei Jiang, Lang He, Ercheng Pei, Meshia Cédric Oveneke, and Hichem Sahli. 2016. Decision Tree Based Depression Classification from Audio Video and Language Information. In Proceedings of the 6th International Workshop on Audio/Visual Emotion Challenge (AVEC '16), Association for Computing Machinery, New York, NY, USA, 89--96.

Digital Library

[106]

Renwen Zhang, Jordan Eschler, and Madhu Reddy. 2018. Online Support Groups for Depression in China: Culturally Shaped Interactions and Motivations. Computer Supported Cooperative Work (CSCW), Computer supported cooperative work?: CSCW?: an international journal, Computer Supported Cooperative Work: CSCW: An International Journal (May 2018), 1--28.

[107]

Bernice Yeow Ziwei and Hui Na Chua. 2019. An Application for Classifying Depression in Tweets. In Proceedings of the 2nd International Conference on Computing and Big Data (ICCBD 2019), Association for Computing Machinery, New York, NY, USA, 37--41.

Digital Library

[108]

Depression. World Health Organization. Retrieved July 10, 2018 from http://www.who.int/news-room/fact-sheets/detail/depression

[109]

NIMH?» Major Depression. Retrieved January 2, 2019 from https://www.nimh.nih.gov/health/statistics/major-depression.shtml

[110]

Facebook Data Policy. Retrieved February 28, 2021 from https://www.facebook.com/about/privacy

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cover image Proceedings of the ACM on Human-Computer Interaction

Proceedings of the ACM on Human-Computer Interaction Volume 6, Issue CSCW1

CSCW1

April 2022

2511 pages

EISSN:2573-0142

DOI:10.1145/3530837

Editor:
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Apple Inc., United States

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Published: 07 April 2022

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Kornfield RLattie ENicholas JKnapp AMohr DReddy M(2023)"Our Job is to be so Temporary": Designing Digital Tools that Meet the Needs of Care Managers and their Patients with Mental Health ConcernsProceedings of the ACM on Human-Computer Interaction10.1145/36100937:CSCW2(1-28)Online publication date: 4-Oct-2023
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