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The Invisible Labor of Access in Academic Writing Practices: A Case Analysis with Dyslexic Adults

Published:07 April 2022Publication History
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Abstract

Writing is the currency of academia. Although technology-mediated writing has been studied extensively in CSCW, we know little about how writing practices unfold with disabled people, such as dyslexic writers whose neurodivergence shapes how they process language. Our qualitative analysis reveals how dyslexic professionals simultaneously identify how editing tools break down on academic language; develop workarounds that re-appropriate other tools as language sources; cultivate ad-hoc collaborations to compensate for technology's limitations; and navigate culturally ingrained ableist expectations for writing. We discuss how dyslexic writers' experiences with shouldering invisible work to participate in academic writing processes indicates that current tools and services do not support their needs. We then draw on our findings to inform design opportunities to make writing processes more accessible through changes to writing tools, institutional services, and peer review practices.

References

  1. ADHD-Hub. [n.d.]. Home. https://www.adhd-hub.comGoogle ScholarGoogle Scholar
  2. International Dyslexia Association. [n.d.]. Dyslexia Basics. https://dyslexiaida.org/dyslexia-basics/Google ScholarGoogle Scholar
  3. Kess L. Ballentine. 2019. Understanding Racial Differences in Diagnosing ODD Versus ADHD Using Critical Race Theory. Families in Society, Vol. 100, 3 (July 2019), 282--292. https://doi.org/10.1177/1044389419842765 Publisher: SAGE Publications Inc.Google ScholarGoogle Scholar
  4. April A Benasich, Naseem Choudhury, Sue Peters, and Silvia Ortiz-Mantilla. 2016. Early Screening and Intervention of Infants at High Risk for Developmental Language Disorders. Perspectives on Language and Literacy, Vol. 42, 1 (2016), 7.Google ScholarGoogle Scholar
  5. Michael S. Bernstein, Greg Little, Robert C. Miller, Björn Hartmann, Mark S. Ackerman, David R. Karger, David Crowell, and Katrina Panovich. 2010. Soylent: A Word Processor with a Crowd Inside. In Proceedings of the 23Nd Annual ACM Symposium on User Interface Software and Technology (UIST '10). ACM, New York, NY, USA, 313--322. https://doi.org/10.1145/1866029.1866078 event-place: New York, New York, USA.Google ScholarGoogle ScholarDigital LibraryDigital Library
  6. Jeremy Birnholtz and Steven Ibara. 2012. Tracking Changes in Collaborative Writing: Edits, Visibility and Group Maintenance. In Proceedings of the ACM 2012 Conference on Computer Supported Cooperative Work (CSCW '12). ACM, New York, NY, USA, 809--818. https://doi.org/10.1145/2145204.2145325 event-place: Seattle, Washington, USA.Google ScholarGoogle ScholarDigital LibraryDigital Library
  7. Jeremy Birnholtz, Stephanie Steinhardt, and Antonella Pavese. 2013. Write here, write now! an experimental study of group maintenance in collaborative writing. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '13). Association for Computing Machinery, New York, NY, USA, 961--970. https://doi.org/10.1145/2470654.2466123Google ScholarGoogle ScholarDigital LibraryDigital Library
  8. Tom Boellstorff, Bonnie Nardi, Celia Pearce, and T. L. Taylor. 2013. Words with friends: writing collaboratively online. Interactions, Vol. 20, 5 (Sept. 2013), 58--61. https://doi.org/10.1145/2501987Google ScholarGoogle ScholarDigital LibraryDigital Library
  9. Stacy M. Branham and Shaun K. Kane. 2015a. Collaborative Accessibility: How Blind and Sighted Companions Co-Create Accessible Home Spaces. In Proceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems (CHI '15). ACM, New York, NY, USA, 2373--2382. https://doi.org/10.1145/2702123.2702511Google ScholarGoogle ScholarDigital LibraryDigital Library
  10. Stacy M. Branham and Shaun K. Kane. 2015b. The Invisible Work of Accessibility: How Blind Employees Manage Accessibility in Mixed-Ability Workplaces. In Proceedings of the 17th International ACM SIGACCESS Conference on Computers & Accessibility (ASSETS '15). ACM, New York, NY, USA, 163--171. https://doi.org/10.1145/2700648.2809864Google ScholarGoogle ScholarDigital LibraryDigital Library
  11. Khiara M. Bridges. 2018. Implicit Bias and Racial Disparities in Health Care. Human Rights Magazine, Vol. 43, 3 (Nov. 2018). https://www.americanbar.org/groups/crsj/publications/human_rights_magazine_home/the-state-of-healthcare-in-the-united-states/racial-disparities-in-health-care/Google ScholarGoogle Scholar
  12. Thomas C. Buchmueller and Helen G. Levy. 2020. The ACA's Impact On Racial And Ethnic Disparities In Health Insurance Coverage And Access To Care. Health Affairs, Vol. 39, 3 (March 2020), 395--402. https://doi.org/10.1377/hlthaff.2019.01394 Publisher: Health Affairs.Google ScholarGoogle ScholarCross RefCross Ref
  13. USA Centers for Disease Control and Prevention. 2005. Health disparities experienced by black or African Americans--United States. MMWR: Morbidity and mortality weekly report, Vol. 54, 1 (2005), 1--3. https://www.safetylit.org/citations/index.php?fuseaction=citations.viewdetails&citationIds[]=citjournalarticle_11363_13Google ScholarGoogle Scholar
  14. Kathy Charmaz. 2008. Constructionism and the Grounded Theory Method. In Handbook of Constructionist Research, James A. Holstein and Jaber F. Gubrium (Eds.). Vol. 1. Guilford Press, New York, NY, USA, 397--412.Google ScholarGoogle Scholar
  15. Kathy Charmaz. 2014. Constructing Grounded Theory. SAGE. Google-Books-ID: v_GGAwAAQBAJ.Google ScholarGoogle Scholar
  16. John Lee Clark. 2020. Tactile Art by John Lee Clark. https://www.poetryfoundation.org/poetrymagazine/articles/150914/tactile-art Archive Location: https://www.poetryfoundation.org/ Library Catalog: www.poetryfoundation.org Publisher: Poetry Magazine.Google ScholarGoogle Scholar
  17. Tumaini R. Coker, Marc N. Elliott, Sara L. Toomey, David C. Schwebel, Paula Cuccaro, Susan Tortolero Emery, Susan L. Davies, Susanna N. Visser, and Mark A. Schuster. 2016. Racial and Ethnic Disparities in ADHD Diagnosis and Treatment. Pediatrics, Vol. 138, 3 (Sept. 2016). https://doi.org/10.1542/peds.2016-0407 Publisher: American Academy of Pediatrics Section: Article.Google ScholarGoogle ScholarCross RefCross Ref
  18. Vincent Connelly, Sonya Campbell, Morag MacLean, and Jim Barnes. 2006. Contribution of Lower Order Skills to the Written Composition of College Students With and Without Dyslexia. Developmental Neuropsychology, Vol. 29, 1 (Feb. 2006), 175--196. https://doi.org/10.1207/s15326942dn2901_9 Publisher: Routledge _eprint: https://doi.org/10.1207/s15326942dn2901_9.Google ScholarGoogle Scholar
  19. Aisling Conway, Nuala Brady, and Karuna Misra. 2017. Holistic word processing in dyslexia. PLOS ONE, Vol. 12, 11 (Nov. 2017), e0187326. https://doi.org/10.1371/journal.pone.0187326 Publisher: Public Library of Science.Google ScholarGoogle Scholar
  20. Julie Cosenza. 2017. A Critical Disability Pedagogy: Legitimizing Dyslexia. ProQuest LLC. ISSN: EISSN- Publication Title: ProQuest LLC.Google ScholarGoogle Scholar
  21. Maitraye Das, Darren Gergle, and Anne Marie Piper. 2019. "It doesn't win you friends": Understanding Accessibility in Collaborative Writing for People with Vision Impairments. Proceedings of the ACM on Human-Computer Interaction, Vol. 3, CSCW (Nov. 2019), 191:1--191:26. https://doi.org/10.1145/3359293Google ScholarGoogle ScholarDigital LibraryDigital Library
  22. Maartje De Meulder, Jemima Napier, and Christopher Stone. 2018. Designated or preferred? A deaf academic and two signed language interpreters working together for a PhD defence: A case study of best practice. 10 (Dec. 2018). https://wlv.openrepository.com/handle/2436/622011 Accepted: 2019-01-04T16:21:53Z Publisher: Conference of Interpreter Trainers.Google ScholarGoogle Scholar
  23. Jay T Dolmage. 2017. Academic Ableism: Disability and Higher Education. University of Michigan Press.Google ScholarGoogle ScholarCross RefCross Ref
  24. Elizabeth Ellcessor. 2016. Restricted Access: Media, Disability, and the Politics of Participation. NYU Press. https://www.jstor.org/stable/j.ctt18040rgGoogle ScholarGoogle ScholarDigital LibraryDigital Library
  25. Ruth Falzon. 2020. Dyslexia and academic life. (2020). https://doi.org/10.5772/intechopen.94577 Accepted: 2020--12--10T09:53:17Z Publisher: IntechOpen.Google ScholarGoogle Scholar
  26. M. Inmaculada Fernández-Andrés, Pilar Tejero, and Ximena Vélez-Calvo. 2021. Visual Attention, Orthographic Word Recognition, and Executive Functioning in Children With ADHD, Dyslexia, or ADHD+Dyslexia. Journal of Attention Disorders, Vol. 25, 7 (May 2021), 942--953. https://doi.org/10.1177/1087054719864637 Publisher: SAGE Publications Inc.Google ScholarGoogle Scholar
  27. Alexander Fiannaca, Ann Paradiso, Mira Shah, and Meredith Ringel Morris. 2017. AACrobat: Using Mobile Devices to Lower Communication Barriers and Provide Autonomy with Gaze-Based AAC. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing (CSCW '17). ACM, New York, NY, USA, 683--695. https://doi.org/10.1145/2998181.2998215Google ScholarGoogle ScholarDigital LibraryDigital Library
  28. Adam Fourney, Meredith Ringel Morris, and Ryen W. White. 2017. Web Search as a Linguistic Tool. In Proceedings of the 26th International Conference on World Wide Web (WWW '17). International World Wide Web Conferences Steering Committee, Republic and Canton of Geneva, CHE, 549--557. https://doi.org/10.1145/3038912.3052651Google ScholarGoogle ScholarDigital LibraryDigital Library
  29. Adam Fourney, Meredith Ringel Morris, Abdullah Ali, and Laura Vonessen. 2018. Assessing the Readability of Web Search Results for Searchers with Dyslexia. In The 41st International ACM SIGIR Conference on Research & Development in Information Retrieval (SIGIR '18). Association for Computing Machinery, New York, NY, USA, 1069--1072. https://doi.org/10.1145/3209978.3210072Google ScholarGoogle ScholarDigital LibraryDigital Library
  30. David Galbraith, Veerle Baaijen, Jamie Smith-Spark, and Mark Torrance. 2012. Chapter 2.02.06: The Effects of Dyslexia on the Writing Processes of Students in Higher Education. Learning to Write Effectively: Current Trends in European Research (Jan. 2012), 195--198. https://doi.org/10.1163/9781780529295_044 Publisher: Brill Section: Learning to Write Effectively: Current Trends in European Research.Google ScholarGoogle Scholar
  31. Inc. Grammarly. [n.d.]. Write your best with Grammarly. https://www.grammarly.com/Google ScholarGoogle Scholar
  32. Aimi Hamraie. 2016. Universal Design and the Problem of "Post-Disability" Ideology. Design and Culture, Vol. 8, 3 (Sept. 2016), 285--309. https://doi.org/10.1080/17547075.2016.1218714Google ScholarGoogle ScholarCross RefCross Ref
  33. Christian Heath, Jon Hindmarsh, and Paul Luff. 2010. Video in Qualitative Research. SAGE. Google-Books-ID: Ze59B640hbMC.Google ScholarGoogle Scholar
  34. Megan Hofmann, Devva Kasnitz, Jennifer Mankoff, and Cynthia L Bennett. 2020. Living Disability Theory: Reflections on Access, Research, and Design. In The 22nd International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS '20). Association for Computing Machinery, New York, NY, USA, 1--13. https://doi.org/10.1145/3373625.3416996Google ScholarGoogle ScholarDigital LibraryDigital Library
  35. Shamsi T. Iqbal, Jaime Teevan, Dan Liebling, and Anne Loomis Thompson. 2018. Multitasking with Play Write, a Mobile Microproductivity Writing Tool. In Proceedings of the 31st Annual ACM Symposium on User Interface Software and Technology (UIST '18). Association for Computing Machinery, New York, NY, USA, 411--422. https://doi.org/10.1145/3242587.3242611Google ScholarGoogle ScholarDigital LibraryDigital Library
  36. Dhruv Jain, Venkatesh Potluri, and Ather Sharif. 2020. Navigating Graduate School with a Disability. In The 21st International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS '20). 17.Google ScholarGoogle ScholarDigital LibraryDigital Library
  37. Talila A. Lewis. 2020. Ableism 2020: An Updated Definition. http://www.talilalewis.com/1/post/2020/01/ableism-2020-an-updated-definition.htmlGoogle ScholarGoogle Scholar
  38. Lois MacCullagh, Agnes Bosanquet, and Nicholas A. Badcock. 2017. University Students with Dyslexia: A Qualitative Exploratory Study of Learning Practices, Challenges and Strategies. Dyslexia, Vol. 23, 1 (2017), 3--23. https://doi.org/10.1002/dys.1544 _eprint: https://onlinelibrary.wiley.com/doi/pdf/10.1002/dys.1544.Google ScholarGoogle ScholarCross RefCross Ref
  39. David S. Mandell, Lisa D. Wiggins, Laura Arnstein Carpenter, Julie Daniels, Carolyn DiGuiseppi, Maureen S. Durkin, Ellen Giarelli, Michael J. Morrier, Joyce S. Nicholas, Jennifer A. Pinto-Martin, Paul T. Shattuck, Kathleen C. Thomas, Marshalyn Yeargin-Allsopp, and Russell S. Kirby. 2009. Racial/Ethnic Disparities in the Identification of Children With Autism Spectrum Disorders. American Journal of Public Health, Vol. 99, 3 (March 2009), 493--498. https://doi.org/10.2105/AJPH.2007.131243Google ScholarGoogle ScholarCross RefCross Ref
  40. David Martin, Benjamin V. Hanrahan, Jacki O'Neill, and Neha Gupta. 2014. Being a turker. In Proceedings of the 17th ACM conference on Computer supported cooperative work & social computing (CSCW '14). Association for Computing Machinery, New York, NY, USA, 224--235. https://doi.org/10.1145/2531602.2531663Google ScholarGoogle ScholarDigital LibraryDigital Library
  41. Caida Mendelsohn. [n.d.]. 6 Surprising Ways Dyslexia Affects Me as a Young Adult. https://www.understood.org/en/community-events/blogs/the-inside-track/2017/05/16/6-surprising-ways-dyslexia-affects-me-as-a-young-adultGoogle ScholarGoogle Scholar
  42. Helena M. Mentis, Madhu Reddy, and Mary Beth Rosson. 2010. Invisible emotion: information and interaction in an emergency room. In Proceedings of the 2010 ACM conference on Computer supported cooperative work (CSCW '10). Association for Computing Machinery, New York, NY, USA, 311--320. https://doi.org/10.1145/1718918.1718975Google ScholarGoogle ScholarDigital LibraryDigital Library
  43. Microsoft. [n.d.]. Improve Reading & Writing - Microsoft Education. https://www.microsoft.com/en-us/education/products/learning-tools Library Catalog: www.microsoft.com.Google ScholarGoogle Scholar
  44. Julie Minich. 2016. Enabling Whom? Critical Disability Studies Now. Lateral, Vol. 5 (May 2016). https://doi.org/10.25158/L5.1.9Google ScholarGoogle Scholar
  45. Aliaksei Miniukovich, Antonella De Angeli, Simone Sulpizio, and Paola Venuti. 2017. Design Guidelines for Web Readability. In Proceedings of the 2017 Conference on Designing Interactive Systems (DIS '17). ACM, New York, NY, USA, 285--296. https://doi.org/10.1145/3064663.3064711 event-place: Edinburgh, United Kingdom.Google ScholarGoogle ScholarDigital LibraryDigital Library
  46. Aliaksei Miniukovich, Michele Scaltritti, Simone Sulpizio, and Antonella De Angeli. 2019. Guideline-Based Evaluation of Web Readability. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems (CHI '19). ACM, New York, NY, USA, 508:1--508:12. https://doi.org/10.1145/3290605.3300738 event-place: Glasgow, Scotland Uk.Google ScholarGoogle ScholarDigital LibraryDigital Library
  47. S. Mohamad, W. Mansor, and Khuan Y. Lee. 2013. Review of neurological techniques of diagnosing dyslexia in children. In 2013 IEEE 3rd International Conference on System Engineering and Technology. 389--393. https://doi.org/10.1109/ICSEngT.2013.6650206Google ScholarGoogle ScholarCross RefCross Ref
  48. Paul L. Morgan, George Farkas, Marianne M. Hillemeier, Richard Mattison, Steve Maczuga, Hui Li, and Michael Cook. 2015. Minorities are Disproportionately Underrepresented in Special Education: Longitudinal Evidence Across Five Disability Conditions. Educational researcher (Washington, D.C. : 1972), Vol. 44, 5 (2015), 278--292. https://doi.org/10.3102/0013189X15591157Google ScholarGoogle Scholar
  49. Paul L. Morgan, Jeremy Staff, Marianne M. Hillemeier, George Farkas, and Steven Maczuga. 2013. Racial and Ethnic Disparities in ADHD Diagnosis From Kindergarten to Eighth Grade. Pediatrics, Vol. 132, 1 (July 2013), 85--93. https://doi.org/10.1542/peds.2012--2390 Publisher: American Academy of Pediatrics Section: Article.Google ScholarGoogle Scholar
  50. Meredith Ringel Morris, Adam Fourney, Abdullah Ali, and Laura Vonessen. 2018. Understanding the Needs of Searchers with Dyslexia. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems (CHI '18). Association for Computing Machinery, New York, NY, USA, 1--12. https://doi.org/10.1145/3173574.3173609Google ScholarGoogle ScholarDigital LibraryDigital Library
  51. Sarah Murphy. 2020. Dyslexia in the Writing Center: Multimodal Strategies. http://thepeerreview-iwca.org/issues/issue-4-0/dyslexia-in-the-writing-center-multimodal-strategies/Google ScholarGoogle Scholar
  52. Jakob Neilson. 2012. Thinking Aloud: The #1 Usability Tool. https://www.nngroup.com/articles/thinking-aloud-the-1-usability-tool/Google ScholarGoogle Scholar
  53. Jason M. Nelson, Will Lindstrom, and Patricia A. Foels. 2015. Test Anxiety Among College Students With Specific Reading Disability (Dyslexia): Nonverbal Ability and Working Memory as Predictors. Journal of Learning Disabilities, Vol. 48, 4 (July 2015), 422--432. https://doi.org/10.1177/0022219413507604 Publisher: SAGE Publications Inc.Google ScholarGoogle ScholarCross RefCross Ref
  54. Judith S. Olson, Dakuo Wang, Gary M. Olson, and Jingwen Zhang. 2017. How People Write Together Now: Beginning the Investigation with Advanced Undergraduates in a Project Course. ACM Transactions on Computer-Human Interaction, Vol. 24, 1 (March 2017), 4:1--4:40. https://doi.org/10.1145/3038919Google ScholarGoogle ScholarDigital LibraryDigital Library
  55. June Lyday Orton. 1966. The Orton-Gillingham Approach. Orton Dyslexia Society.Google ScholarGoogle Scholar
  56. Ola Ozernov-Palchik and Nadine Gaab. 2016. Tackling the Early Identification of Dyslexia with the Help of Neuroimaging. Perspectives on Language and Literacy, Vol. 42, 1 (2016), 7.Google ScholarGoogle Scholar
  57. Dai O'Brien. 2020. Mapping deaf academic spaces. Higher Education (Feb. 2020). https://doi.org/10.1007/s10734-020-00512--7Google ScholarGoogle Scholar
  58. Trevor O'Brien. 2018. Exploring the social construction of dyslexia. In Learn, Vol. 40. 97--105.Google ScholarGoogle Scholar
  59. Bhaskar Pant. 2016. Different Cultures See Deadlines Differently. Harvard Business Review (May 2016). https://hbr.org/2016/05/different-cultures-see-deadlines-differently Section: Cross-cultural management.Google ScholarGoogle Scholar
  60. Jennifer Pedler. 2001. Computer spellcheckers and dyslexics-a performance survey. British Journal of Educational Technology, Vol. 32, 1 (2001), 23--37. https://doi.org/10.1111/1467--8535.00174Google ScholarGoogle ScholarCross RefCross Ref
  61. Margaret Price. 2011. Mad at School: Rhetorics of Mental Disability and Academic Life. University of Michigan Press. Google-Books-ID: e_eI21iCl8AC.Google ScholarGoogle Scholar
  62. Margaret Price. 2015. The Bodymind Problem and the Possibilities of Pain. Hypatia, Vol. 30, 1 (2015), 268--284. https://doi.org/10.1111/hypa.12127Google ScholarGoogle ScholarCross RefCross Ref
  63. ProWritingAid. [n.d.]. ProWritingAid - the best grammar checker, style editor, and editing tool in one package. https://prowritingaid.com/Google ScholarGoogle Scholar
  64. Alberto Quattrini Li, Licia Sbattella, and Roberto Tedesco. 2013. PoliSpell: An Adaptive Spellchecker and Predictor for People with Dyslexia. In User Modeling, Adaptation, and Personalization (Lecture Notes in Computer Science ), Sandra Carberry, Stephan Weibelzahl, Alessandro Micarelli, and Giovanni Semeraro (Eds.). Springer Berlin Heidelberg, 302--309.Google ScholarGoogle Scholar
  65. Luz Rello. 2014. DysWebxia: A Text Accessibility Model for People with Dyslexia. PhD Thesis. Universitat Pompeu Fabra.Google ScholarGoogle Scholar
  66. Luz Rello and Ricardo Baeza-Yates. 2013. Good Fonts for Dyslexia. In Proceedings of the 15th International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS '13). ACM, New York, NY, USA, 14:1--14:8. https://doi.org/10.1145/2513383.2513447Google ScholarGoogle ScholarDigital LibraryDigital Library
  67. Luz Rello and Ricardo Baeza-Yates. 2016. The Effect of Font Type on Screen Readability by People with Dyslexia. ACM Trans. Access. Comput., Vol. 8, 4 (May 2016), 15:1--15:33. https://doi.org/10.1145/2897736Google ScholarGoogle ScholarDigital LibraryDigital Library
  68. Luz Rello, Ricardo Baeza-Yates, Stefan Bott, and Horacio Saggion. 2013a. Simplify or Help?: Text Simplification Strategies for People with Dyslexia. In Proceedings of the 10th International Cross-Disciplinary Conference on Web Accessibility (W4A '13). ACM, New York, NY, USA, 15:1--15:10. https://doi.org/10.1145/2461121.2461126Google ScholarGoogle ScholarDigital LibraryDigital Library
  69. Luz Rello, Miguel Ballesteros, and Jeffrey P. Bigham. 2015. A Spellchecker for Dyslexia. In Proceedings of the 17th International ACM SIGACCESS Conference on Computers & Accessibility (ASSETS '15). ACM, New York, NY, USA, 39--47. https://doi.org/10.1145/2700648.2809850 event-place: Lisbon, Portugal.Google ScholarGoogle ScholarDigital LibraryDigital Library
  70. Luz Rello and Jeffrey P. Bigham. 2017. Good Background Colors for Readers: A Study of People with and Without Dyslexia. In Proceedings of the 19th International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS '17). ACM, New York, NY, USA, 72--80. https://doi.org/10.1145/3132525.3132546 event-place: Baltimore, Maryland, USA.Google ScholarGoogle ScholarDigital LibraryDigital Library
  71. Luz Rello, Gaurang Kanvinde, and Ricardo Baeza-Yates. 2012. Layout Guidelines for Web Text and a Web Service to Improve Accessibility for Dyslexics. In Proceedings of the International Cross-Disciplinary Conference on Web Accessibility (W4A '12). ACM, New York, NY, USA, 36:1--36:9. https://doi.org/10.1145/2207016.2207048Google ScholarGoogle ScholarDigital LibraryDigital Library
  72. Luz Rello, Martin Pielot, Mari-Carmen Marcos, and Roberto Carlini. 2013b. Size Matters (Spacing Not): 18 Points for a Dyslexic-friendly Wikipedia. In Proceedings of the 10th International Cross-Disciplinary Conference on Web Accessibility (W4A '13). ACM, New York, NY, USA, 17:1--17:4. https://doi.org/10.1145/2461121.2461125Google ScholarGoogle ScholarDigital LibraryDigital Library
  73. Lindsay Reynolds and Shaomei Wu. 2018. ?I'm Never Happy with What I Write": Challenges and strategies of people with dyslexia on social media. In Twelfth International AAAI Conference on Web and Social Media. https://www.aaai.org/ocs/index.php/ICWSM/ICWSM18/paper/view/17812Google ScholarGoogle ScholarCross RefCross Ref
  74. Gregory Richardson. 2021. Dyslexia in higher education. Educational Research and Reviews, Vol. 16, 4 (April 2021), 125--135. https://doi.org/10.5897/ERR2021.4128 Publisher: Academic Journals.Google ScholarGoogle Scholar
  75. Barbara Riddick. 2001. Dyslexia and inclusion: Time for a social model of disability perspective? International Studies in Sociology of Education, Vol. 11, 3 (Nov. 2001), 223--236. https://doi.org/10.1080/09620210100200078 Publisher: Routledge _eprint: https://doi.org/10.1080/09620210100200078.Google ScholarGoogle Scholar
  76. Robin van Rijthoven, Tijs Kleemans, Eliane Segers, and Ludo Verhoeven. 2018. Beyond the phonological deficit: Semantics contributes indirectly to decoding efficiency in children with dyslexia. Dyslexia, Vol. 24, 4 (2018), 309--321. https://doi.org/10.1002/dys.1597 _eprint: https://onlinelibrary.wiley.com/doi/pdf/10.1002/dys.1597.Google ScholarGoogle ScholarCross RefCross Ref
  77. Kerri Rinaldi. 2015. Disability in the writing center: A new approach (that's not so new). Praxis: A Writing Center Journal, Vol. 13, 1 (2015), 8--13.Google ScholarGoogle Scholar
  78. Niloufar Salehi, Jaime Teevan, Shamsi Iqbal, and Ece Kamar. 2017. Communicating Context to the Crowd for Complex Writing Tasks. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing (CSCW '17). Association for Computing Machinery, New York, NY, USA, 1890--1901. https://doi.org/10.1145/2998181.2998332Google ScholarGoogle ScholarDigital LibraryDigital Library
  79. Bahareh Sarrafzadeh, Sujay Kumar Jauhar, Michael Gamon, Edward Lank, and Ryen W. White. 2021. Characterizing Stage-aware Writing Assistance for Collaborative Document Authoring. Proceedings of the ACM on Human-Computer Interaction, Vol. 4, CSCW3 (Jan. 2021), 271:1--271:29. https://doi.org/10.1145/3434180Google ScholarGoogle ScholarDigital LibraryDigital Library
  80. Kristin L. Sayeski, Gentry A. Earle, Rosalie Davis, and Josie Calamari. 2019. Orton Gillingham: Who, What, and How. TEACHING Exceptional Children, Vol. 51, 3 (Jan. 2019), 240--249. https://doi.org/10.1177/0040059918816996 Publisher: SAGE Publications Inc.Google ScholarGoogle Scholar
  81. Moniek M. H. Schaars, Eliane Segers, and Ludo Verhoeven. 2017. Word Decoding Development during Phonics Instruction in Children at Risk for Dyslexia. Dyslexia, Vol. 23, 2 (2017), 141--160. https://doi.org/10.1002/dys.1556 _eprint: https://onlinelibrary.wiley.com/doi/pdf/10.1002/dys.1556.Google ScholarGoogle ScholarCross RefCross Ref
  82. Sami Schalk. 2017. Critical Disability Studies as Methodology. Lateral, Vol. 6 (May 2017). https://doi.org/10.25158/L6.1.13Google ScholarGoogle Scholar
  83. Betty B. Sheffield. 1991. The structured flexibility of Orton-Gillingham. Annals of Dyslexia, Vol. 41, 1 (Jan. 1991), 41--54. https://doi.org/10.1007/BF02648077Google ScholarGoogle ScholarCross RefCross Ref
  84. Kristen Shinohara, Mick McQuaid, and Nayeri Jacobo. 2020. Access Differential and Inequitable Access: Inaccessibility for Doctoral Students in Computing. In The 21st International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS '20).Google ScholarGoogle Scholar
  85. Kristen Shinohara, Mick McQuaid, and Nayeri Jacobo. 2021. The Burden of Survival: How Doctoral Students in Computing Bridge the Chasm of Inaccessibility. In Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems. Number 376. Association for Computing Machinery, New York, NY, USA, 1--13. https://doi.org/10.1145/3411764.3445277Google ScholarGoogle ScholarDigital LibraryDigital Library
  86. Linda S Siegel. 2006. Perspectives on dyslexia. Paediatrics & Child Health, Vol. 11, 9 (Nov. 2006), 581--587. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2528651/Google ScholarGoogle ScholarCross RefCross Ref
  87. Christine Sleeter. 2010. Why Is There Learning Disabilities? A Critical Analysis of the Birth of the Field in Its Social Context. Disability Studies Quarterly, Vol. 30, 2 (June 2010). https://doi.org/10.18061/dsq.v30i2.1261 Number: 2.Google ScholarGoogle ScholarCross RefCross Ref
  88. C. Estelle Smith, Xinyi Wang, Raghav Pavan Karumur, and Haiyi Zhu. 2018. [Un]breaking News: Design Opportunities for Enhancing Collaboration in Scientific Media Production. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems (CHI '18). Association for Computing Machinery, New York, NY, USA, 1--13. https://doi.org/10.1145/3173574.3173955Google ScholarGoogle ScholarDigital LibraryDigital Library
  89. Margaret J. Snowling, Charles Hulme, and Kate Nation. 2020. Defining and understanding dyslexia: past, present and future. Oxford Review of Education, Vol. 46, 4 (July 2020), 501--513. https://doi.org/10.1080/03054985.2020.1765756 Publisher: Routledge _eprint: https://doi.org/10.1080/03054985.2020.1765756.Google ScholarGoogle Scholar
  90. Heeju Sohn. 2017. Racial and Ethnic Disparities in Health Insurance Coverage: Dynamics of Gaining and Losing Coverage over the Life-Course. Population research and policy review, Vol. 36, 2 (April 2017), 181--201. https://doi.org/10.1007/s11113-016--9416-yGoogle ScholarGoogle Scholar
  91. Lissa Stapleton. 2015. The Disabled Academy: The Experiences of Deaf Faculty at Predominantly Hearing Institutions. Thought & Action (2015).Google ScholarGoogle Scholar
  92. Susan Leigh Star and Anselm Strauss. 1999. Layers of Silence, Arenas of Voice: The Ecology of Visible and Invisible Work. Computer Supported Cooperative Work (CSCW), Vol. 8, 1 (March 1999), 9--30. https://doi.org/10.1023/A:1008651105359Google ScholarGoogle ScholarDigital LibraryDigital Library
  93. Kevin M. Storer and Stacy M. Branham. 2019. "That's the Way Sighted People Do It": What Blind Parents Can Teach Technology Designers About Co-Reading with Children. In Proceedings of the 2019 on Designing Interactive Systems Conference (DIS '19). Association for Computing Machinery, New York, NY, USA, 385--398. https://doi.org/10.1145/3322276.3322374Google ScholarGoogle ScholarDigital LibraryDigital Library
  94. Emma Sumner and Vincent Connelly. 2020. Writing and Revision Strategies of Students With and Without Dyslexia. Journal of Learning Disabilities, Vol. 53, 3 (May 2020), 189--198. https://doi.org/10.1177/0022219419899090 Publisher: SAGE Publications Inc.Google ScholarGoogle Scholar
  95. Jaime Teevan, Shamsi T. Iqbal, and Curtis von Veh. 2016. Supporting Collaborative Writing with Microtasks. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems (CHI '16). Association for Computing Machinery, New York, NY, USA, 2657--2668. https://doi.org/10.1145/2858036.2858108Google ScholarGoogle ScholarDigital LibraryDigital Library
  96. Anja Thieme, Cynthia L. Bennett, Cecily Morrison, Edward Cutrell, and Alex S. Taylor. 2018. "I can do everything but see!" -- How People with Vision Impairments Negotiate their Abilities in Social Contexts. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems (CHI '18). Association for Computing Machinery, New York, NY, USA, 1--14. https://doi.org/10.1145/3173574.3173777Google ScholarGoogle ScholarDigital LibraryDigital Library
  97. Tanya Titchkosky. 2011. The Question of Access: Disability, Space, Meaning. University of Toronto Press. Google-Books-ID: 1k13q3QTeBcC.Google ScholarGoogle Scholar
  98. W. Tops, C. Callens, E. Van Cauwenberghe, J. Adriaens, and M. Brysbaert. 2013. Beyond spelling: the writing skills of students with dyslexia in higher education. Reading and Writing, Vol. 26, 5 (May 2013), 705--720. https://doi.org/10.1007/s11145-012--9387--2Google ScholarGoogle ScholarCross RefCross Ref
  99. Wim Tops, Maaike Callens, Jan Lammertyn, Valérie Van Hees, and Marc Brysbaert. 2012. Identifying students with dyslexia in higher education. Annals of Dyslexia, Vol. 62, 3 (Oct. 2012), 186--203. https://doi.org/10.1007/s11881-012-0072--6Google ScholarGoogle ScholarCross RefCross Ref
  100. understood.org. [n.d.]. What Is Dyslexia? https://www.understood.org/en/learning-thinking-differences/child-learning-disabilities/dyslexia/what-is-dyslexiaGoogle ScholarGoogle Scholar
  101. Yvonne Vezzoli, Asimina Vasalou, and Kaska Porayska-Pomsta. 2017. Dyslexia in SNS: An Exploratory Study to Investigate Expressions of Identity and Multimodal Literacies. Proceedings of the ACM on Human-Computer Interaction, Vol. 1, CSCW (Dec. 2017), 103:1--103:14. https://doi.org/10.1145/3134738Google ScholarGoogle ScholarDigital LibraryDigital Library
  102. Ashley Marie Walker and Michael A. DeVito. 2020. "'More gay' fits in better": Intracommunity Power Dynamics and Harms in Online LGBTQ+ Spaces. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (CHI '20). Association for Computing Machinery, New York, NY, USA, 1--15. https://doi.org/10.1145/3313831.3376497Google ScholarGoogle ScholarDigital LibraryDigital Library
  103. Dakuo Wang, Haodan Tan, and Tun Lu. 2017. Why Users Do Not Want to Write Together When They Are Writing Together: Users' Rationales for Today's Collaborative Writing Practices. Proceedings of the ACM on Human-Computer Interaction, Vol. 1, CSCW (Dec. 2017), 107:1--107:18. https://doi.org/10.1145/3134742Google ScholarGoogle ScholarDigital LibraryDigital Library
  104. Emily Q. Wang and Anne Marie Piper. 2018. Accessibility in Action: Co-Located Collaboration among Deaf and Hearing Professionals. Proceedings of the ACM on Human-Computer Interaction, Vol. 2, CSCW (Nov. 2018), 180:1--180:25. https://doi.org/10.1145/3274449Google ScholarGoogle ScholarDigital LibraryDigital Library
  105. David R. Williams and Toni D. Rucker. 2000. Understanding and Addressing Racial Disparities in Health Care. Health Care Financing Review, Vol. 21, 4 (2000), 75--90. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4194634/Google ScholarGoogle Scholar
  106. Alice Wong and Nina G. 2019. Ep 57: Disabled Writers. https://disabilityvisibilityproject.com/2019/08/11/ep-57-disabled-writers/Google ScholarGoogle Scholar
  107. Shaomei Wu, Lindsay Reynolds, Xian Li, and Francisco Guzmán. 2019. Design and Evaluation of a Social Media Writing Support Tool for People with Dyslexia. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems (CHI '19). ACM, New York, NY, USA, 516:1--516:14. https://doi.org/10.1145/3290605.3300746 event-place: Glasgow, Scotland Uk.Google ScholarGoogle ScholarDigital LibraryDigital Library
  108. Soobin Yim, Dakuo Wang, Judith Olson, Viet Vu, and Mark Warschauer. 2017. Synchronous Collaborative Writing in the Classroom: Undergraduates' Collaboration Practices and their Impact on Writing Style, Quality, and Quantity. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing (CSCW '17). Association for Computing Machinery, New York, NY, USA, 468--479. https://doi.org/10.1145/2998181.2998356Google ScholarGoogle ScholarDigital LibraryDigital Library
  109. Anon Ymous, Katta Spiel, Os Keyes, Rua M. Williams, Judith Good, Eva Hornecker, and Cynthia L. Bennett. 2020. "I am just terrified of my future" -- Epistemic Violence in Disability Related Technology Research. In Extended Abstracts of the 2020 CHI Conference on Human Factors in Computing Systems (CHI EA '20). Association for Computing Machinery, Honolulu, HI, USA, 1--16. https://doi.org/10.1145/3334480.3381828Google ScholarGoogle ScholarDigital LibraryDigital Library
  110. Christen Linke Young. 2020. There are clear, race-based inequalities in health insurance and health outcomes. https://www.brookings.edu/blog/usc-brookings-schaeffer-on-health-policy/2020/02/19/there-are-clear-race-based-inequalities-in-health-insurance-and-health-outcomes/Google ScholarGoogle Scholar
  111. Waganesh A. Zeleke, Tammy L. Hughes, and Natalie Drozda. 2019. Disparities in Diagnosis and Service Access for Minority Children with ASD in the United States. Journal of Autism and Developmental Disorders, Vol. 49, 10 (Oct. 2019), 4320--4331. https://doi.org/10.1007/s10803-019-04131--9Google ScholarGoogle ScholarCross RefCross Ref
  112. Yeshuang Zhu, Shichao Yue, Chun Yu, and Yuanchun Shi. 2017. CEPT: Collaborative Editing Tool for Non-Native Authors. In Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing (CSCW '17). Association for Computing Machinery, New York, NY, USA, 273--285. https://doi.org/10.1145/2998181.2998306Google ScholarGoogle ScholarDigital LibraryDigital Library
  113. Annuska Zolyomi, Anne Spencer Ross, Arpita Bhattacharya, Lauren Milne, and Sean A. Munson. 2018. Values, Identity, and Social Translucence: Neurodiverse Student Teams in Higher Education. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems (CHI '18). ACM, New York, NY, USA, 499:1--499:13. https://doi.org/10.1145/3173574.3174073Google ScholarGoogle ScholarDigital LibraryDigital Library
  114. Zotero. [n.d.]. Zotero textbar Your personal research assistant. https://www.zotero.org/Google ScholarGoogle Scholar

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  1. The Invisible Labor of Access in Academic Writing Practices: A Case Analysis with Dyslexic Adults

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        Proceedings of the ACM on Human-Computer Interaction  Volume 6, Issue CSCW1
        CSCW1
        April 2022
        2511 pages
        EISSN:2573-0142
        DOI:10.1145/3530837
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