Maarten Houben
Minha Lee
ABSTRACT
In this course, we will share concrete guidelines for HCI research in sensitive settings based on our research experience in dementia. We share how these lessons learned apply in sensitive settings regarding how designing for and with people with dementia has general implications for design and computing. First, we will provide real-world insights on designing technologies in sensitive settings by analyzing example cases from academia and industry. Next, we instruct designers and researchers in practical ethical conduct with stakeholders through hands-on exercises, such as facilitating informed consent and modifying common co-design activities for sensitive contexts.
- Rens Brankaert and Gail Kenning (Eds.). 2020. HCI and Design in the Context of Dementia. Springer International Publishing, Cham. DOI:https://doi.org/10.1007/978-3-030-32835-1Google Scholar
Cross Ref
- Rens Brankaert, Elke den Ouden, and Aarnout Brombacher. 2015. Innovate dementia: the development of a living lab protocol to evaluate interventions in context. info 17, 4 (June 2015), 40–52. DOI:https://doi.org/10.1108/info-01-2015-0010Google ScholarCross Ref
- Yngve Dahl and Dag Svanæs. 2020. Facilitating Democracy: Concerns from Participatory Design with Asymmetric Stakeholder Relations in Health Care. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (CHI ’20), Association for Computing Machinery, New York, NY, USA, 1–13. DOI:https://doi.org/10.1145/3313831.3376805Google ScholarDigital Library
- Jiamin Dai and Karyn Moffatt. 2021. Surfacing the Voices of People with Dementia: Strategies for Effective Inclusion of Proxy Stakeholders in Qualitative Research. In Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems (CHI ’21), Association for Computing Machinery, New York, NY, USA. DOI:https://doi.org/10.1145/3411764.3445756Google ScholarDigital Library
- Sarah Foley, Nadia Pantidi, and John McCarthy. 2020. Student Engagement in Sensitive Design Contexts: A Case Study in Dementia Care. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (CHI ’20), Association for Computing Machinery, New York, NY, USA, 1–13. DOI:https://doi.org/10.1145/3313831.3376161Google ScholarDigital Library
- James Hodge, Sarah Foley, Rens Brankaert, Gail Kenning, Amanda Lazar, Jennifer Boger, and Kellie Morrissey. 2020. Relational, Flexible, Everyday: Learning from Ethics in Dementia Research. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (CHI ’20), Association for Computing Machinery, New York, NY, USA, 1–16. DOI:https://doi.org/10.1145/3313831.3376627Google ScholarDigital Library
- Maarten Houben, Rens Brankaert, Saskia Bakker, Inge Bongers, and Berry Eggen. 2020. Exploring Everyday Sounds in Dementia: Practical Guidelines for Interactive Workshops. In HCI and Design in the Context of Dementia, Rens Brankaert and Gail Kenning (eds.). Springer International Publishing, Cham, 207–221. DOI:https://doi.org/10.1007/978-3-030-32835-1_13Google ScholarCross Ref
- Maarten Houben, Rens Brankaert, Saskia Bakker, Gail Kenning, Inge Bongers, and Berry Eggen. 2020. The Role of Everyday Sounds in Advanced Dementia Care. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems, ACM Press, New York, NY, USA, Paper 450, pp. 1–14. DOI:https://doi.org/10.1145/3313831.3376577Google ScholarDigital Library
- Maarten Houben, Rens Brankaert, Gail Kenning, Inge Bongers, and Berry Eggen. 2022. Designing for Everyday Sounds at Home with People with Dementia and their Partners. In CHI Conference on Human Factors in Computing Systems (CHI ’22), ACM, New York, NY, USA, New Orleans, LA, USA, 1–15. DOI:https://doi.org/10.1145/3491102.3501993Google ScholarDigital Library
- Amanda Lazar, Austin L Toombs, Kellie Morrissey, Gail Kenning, Jennifer Boger, and Rens Brankaert. 2018. HCIxDementia Workshop: Engaging People Living with Dementia. In Extended Abstracts of the 2018 CHI Conference on Human Factors in Computing Systems (CHI EA ’18), Association for Computing Machinery, New York, NY, USA. DOI:https://doi.org/10.1145/3170427.3170613Google ScholarDigital Library
- Kellie Morrissey, John McCarthy, and Nadia Pantidi. 2017. The Value of Experience-Centred Design Approaches in Dementia Research Contexts. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems (CHI ’17), ACM Press, New York, New York, USA, 1326–1338. DOI:https://doi.org/10.1145/3025453.3025527Google ScholarDigital Library
- Jenny Waycott, Hilary Davis, Anja Thieme, Stacy Branham, John Vines, and Cosmin Munteanu. 2015. Ethical Encounters in HCI: Research in Sensitive Settings. In Proceedings of the 33rd Annual ACM Conference Extended Abstracts on Human Factors in Computing Systems (CHI EA ’15), Association for Computing Machinery, New York, NY, USA, 2369–2372. DOI:https://doi.org/10.1145/2702613.2702655Google ScholarDigital Library
Index Terms
- HCI Research in Sensitive Settings: Lessons Learned from Technology Design and Ethical Challenges in Dementia
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