Beatriz Peres
Pedro Campos
ABSTRACT
The lives of informal caregivers can get so busy and overwhelmed that they stop caring for themselves. A simple daily mobile phone reminder may be enough to restore some of their self-care. In this study, we explore the effects of reminders in the lives of informal caregivers, specifically in the Mindful Self-Care Scale subdomains. We found positive effects in the Supportive Relationships and the Mindful Relaxation subdomains with medium effects. Despite not being statistically significant, the Mindful Awareness and the Self-Compassion and Purpose subdomains have low enough p-values for us to argue that they may create positive effects if coupled with extra call-to-action features. This should be explored in future studies. The Supportive Structure subdomain seems to have no relation or be affected in any relevant way by the reminders.
- Jennifer Caputo, Eliza Pavalko, and Melissa Hardy. 2016. The Long-Term Effects of Caregiving on Women’s Health and Mortality: The Long-Term Health Effects of Caregiving. Journal of Marriage and Family 78 (07 2016). https://doi.org/10.1111/jomf.12332Google Scholar
Cross Ref
- Catherine P. Cook-Cottone and Wendy M. Guyker. 2018. The Development and Validation of the Mindful Self-Care Scale (MSCS): an Assessment of Practices that Support Positive Embodiment. Mindfulness 9, 1 (Feb. 2018), 161–175. https://doi.org/10.1007/s12671-017-0759-1Google ScholarCross Ref
- Mette Trier Damgaard and Christina Gravert. 2017. Now or never! The effect of deadlines on charitable giving: Evidence from two natural field experiments. Journal of Behavioral and Experimental Economics 66 (2017), 78–87. https://doi.org/10.1016/j.socec.2016.04.013 Experiments in Charitable Giving.Google ScholarCross Ref
- Cristina Fernández-Portero, David Alarcón, Ana Gallardo-Flores, Josue G. Amián, and Jose A. Sánchez-Medina. 2021. Effectiveness of a Mindfulness-Based Intervention Program for Women Family Caregivers of Older Adults. Healthcare 9, 9 (2021). https://doi.org/10.3390/healthcare9091216Google ScholarCross Ref
- Carolina Fuentes, Carlos Hernandez, Lizbeth Escobedo, Valeria Herskovic, and Monica Tentori. 2014. Promoting Self-Reflection of Social Isolation Through Persuasive Mobile Technologies: The Case of Mother Caregivers of Children With Cancer. International Journal of Human–Computer Interaction 30, 10(2014), 802–814. https://doi.org/10.1080/10447318.2014.927279 arXiv:https://doi.org/10.1080/10447318.2014.927279Google ScholarCross Ref
- Yun-Hee Jeon, Henry Brodaty, and Jon Chesterson. 2005. Respite care for caregivers and people with severe mental illness: literature review. J Adv Nurs 49, 3 (Feb. 2005), 297–306. https://doi.org/10.1111/j.1365-2648.2004.03287.xGoogle ScholarCross Ref
- Yeonjung Lee, Alex Bierman, and Margaret Penning. 2020. Psychological Well-Being Among Informal Caregivers in the Canadian Longitudinal Study on Aging: Why the Location of Care Matters. The journals of gerontology. Series B, Psychological sciences and social sciences 75 (09 2020). https://doi.org/10.1093/geronb/gbaa159Google ScholarCross Ref
- Sionnadh McLean, Melanie Gee, Andrew Booth, Sarah Salway, Susan Nancarrow, Mark Cobb, and Sadiq Bhanbhro. 2014. Targeting the Use of Reminders and Notifications for Uptake by Populations (TURNUP): a systematic review and evidence synthesis. NIHR Journals Library, Southampton (UK). http://www.ncbi.nlm.nih.gov/books/NBK260116/Google Scholar
- Shari Miller and Jacquelyn Lee. 2013. A Self-Care Framework for Social Workers: Building a Strong Foundation for Practice. Families in society: the journal of contemporary human services 94 (April 2013), 96–103. https://doi.org/10.1606/1044-3894.4289Google ScholarCross Ref
- Varun Mishra, Florian Künzler, Jan-Niklas Kramer, Elgar Fleisch, Tobias Kowatsch, and David Kotz. 2021. Detecting Receptivity for MHealth Interventions in the Natural Environment. Proc. ACM Interact. Mob. Wearable Ubiquitous Technol. 5, 2, Article 74 (jun 2021), 24 pages. https://doi.org/10.1145/3463492Google ScholarDigital Library
- Francisco Nunes, Nervo Verdezoto, Geraldine Fitzpatrick, Morten Kyng, Erik Grönvall, and Cristiano Storni. 2015. Self-Care Technologies in HCI: Trends, Tensions, and Opportunities. ACM Trans. Comput.-Hum. Interact. 22, 6, Article 33 (dec 2015), 45 pages. https://doi.org/10.1145/2803173Google ScholarDigital Library
- Myonghwa Park, Sora Choi, Song Ja Lee, Seon Hwa Kim, Jinha Kim, Younghye Go, and Dong Young Lee. 2018. The roles of unmet needs and formal support in the caregiving satisfaction and caregiving burden of family caregivers for persons with dementia. Int Psychogeriatr 30, 4 (April 2018), 557–567. https://doi.org/10.1017/S104161021700196XGoogle ScholarCross Ref
- Leonard I. Pearlin and Alex Bierman. 2013. Current Issues and Future Directions in Research into the Stress Process. In Handbook of the Sociology of Mental Health, Carol S. Aneshensel, Jo C. Phelan, and Alex Bierman (Eds.). Springer Netherlands, Dordrecht, 325–340. https://doi.org/10.1007/978-94-007-4276-5_16Google ScholarCross Ref
- Beatriz Peres, Elvio Gouveia, and Pedro Campos. 2022. The Impact of Mobile Phone Reminders on Perceived Self-Care Levels of Informal Caregivers. Informatics 9 (08 2022), 59. https://doi.org/10.3390/informatics9030059Google ScholarCross Ref
- Ana Soares, Anderson Rêgo, Thamires Rodrigues, Luana Cardoso, Mariana Rossaneis, Lígia Carreira, and Cremilde Radovanovic. 2021. Construction and validation of self-care educational technology for caregivers. Revista brasileira de enfermagem 74 (07 2021), e20200215. https://doi.org/10.1590/0034-7167-2020-0215Google ScholarCross Ref
- Sayuri Suwa, Akiyo Yumoto, Mari Ueno, Tomoko Yamabe, Yumiko Hoshishiba, and Mihoko Sato. 2021. Practitioners’ identification of informal caregivers’ difficulties with activities of daily living interventions for older people with dementia in Japan. Psychogeriatrics 21 (04 2021). https://doi.org/10.1111/psyg.12689Google ScholarCross Ref
- Janneke van Roij, Linda Brom, Dirkje Sommeijer, Lonneke Poll-Franse, and Natasja Raijmakers. 2021. Self-care, resilience, and caregiver burden in relatives of patients with advanced cancer: results from the eQuiPe study. Supportive Care in Cancer 29 (Dec. 2021), 1–10. https://doi.org/10.1007/s00520-021-06365-9Google ScholarCross Ref
- Karla T. Washington, Susan E. Meadows, Susan G. Elliott, and Richelle J. Koopman. 2011. Information needs of informal caregivers of older adults with chronic health conditions. Patient Education and Counseling 83, 1 (2011), 37–44. https://doi.org/10.1016/j.pec.2010.04.017Google ScholarCross Ref
- S. H. Zarit, K. E. Reever, and J. Bach-Peterson. 1980. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist 20, 6 (Dec. 1980), 649–655. https://doi.org/10.1093/geront/20.6.649Google ScholarCross Ref
Index Terms
- Don’t Forget to Take Some Time to Yourself: The Effect of Mobile Phone Reminders on Self-care Subdomains of Informal Caregivers
Recommendations
Opportunities in Mental Health Support for Informal Dementia Caregivers Suffering from Verbal Agitation
CSCWPeople with dementia (PwD) often present verbal agitation such as cursing, screaming, and persistently complaining. Verbal agitation can impose mental distress on informal caregivers (e.g., family, friends), which may cause severe mental illnesses, such ...
Respiratory Self-Care: Identifying Current Challenges and Future Potentials for Digital Technology to Support People with Chronic Respiratory Conditions
PervasiveHealth'19: Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for HealthcareChronic respiratory conditions (CRCs) are life-long diseases affecting millions of people worldwide. They have a huge impact on individuals' everyday lives, resulting in a number of physical and emotional challenges. Self-management interventions for ...
Design Opportunities for Supporting Informal Caregivers
CHI EA '16: Proceedings of the 2016 CHI Conference Extended Abstracts on Human Factors in Computing SystemsThis paper highlights key opportunities for technology design for informal caregivers who provide long-term in-home care. For this purpose, a study with informal caregivers was conducted, including interviews (N=4) and online questionnaires (N=34) based ...
Comments