Srishti Shekhar Agrawal
ABSTRACT
In the realm of dementia care-giving within India, the caregivers often resemble hidden patients, bearing the weight of an often-overlooked role. However, there remains a dearth of comprehensive data regarding the emotional and physical challenges caregivers face in the Indian subcontinent. We present a qualitative study that delves into the realities of being a dementia caregiver in India, investigating caregivers’ experiences and examining the impact of several challenges on their daily lives. Through in-depth interviews, we engaged with four primary caregivers of individuals with dementia, delving into how care-giving shapes their social interactions, mental equilibrium, and emotional states. The findings highlight the importance of having an emotional outlet, a support system, and accessible resources for enhancing caregivers’ quality of life. Drawing from these insights, we propose a set of design implications that can guide future endeavors focused on enhancing the overall well-being of dementia caregivers in India. This research effectively bridges a substantial knowledge gap, extending support and understanding to this vital cohort of individuals who stand at the forefront of dementia care.
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Index Terms
- Understanding the Experiences, Challenges, and Needs of Dementia Caregivers in the Indian Subcontinent
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