Alex Fowler
ABSTRACT
"Medical records are beacons into our past [and] windows into our future," wrote Simson Garfinkel in Database Nation: The Death of Privacy in the 21st Century. With the growing power of information technologies, medical diagnostics, predictive medicine, and genome science to obtain sensitive information about individuals, the questions we need to ask are: Who should have access to this information? And under what conditions? Moreover, to what degree should the public be aware of -- and actively involved in -- the dialogue concerning the generation, use, and disclosure of health, medical, and genetic information? These questions as viewed through the lenses of the law, policy, ethics, business and the public will be the focus of this session.
Index Terms
- A Prognosis for Use of Health, Medical, and Genetic Information
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